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Hello. My heart goes out to you and your family. My family and I are suffering from this disease and I hurt everyday watching my nephew having to suffer from this. I will not give up on this as I do walk-a-thons and other events to raise money and awareness. I want to do more to get my families story out there. I have a bit of a medical background and will continue to learn more to help families who suffer and who need advice. Please reach out to me as I'm reaching out to you.god bless
TheNewHomes 1 year ago