However, your wife can also under go Pet w gallium68 which is the "gold standard" for NET disease imaging. There is a You Tube video on PRRT from DR Richard Baum which reviews the disease, imaging PET vs Oscan, and the therapy PRRT and different types. See this video . My site has a ton of data on links on all options and disease data as I have advanced NET's
You are such a devoted warrior for your wife, and others with Pancreatic Cancer. I still believe much of the problems PC patients encounter is because of its fatality rate, and that there is little money to be made. It's disgraceful that money is a factor, but I think if Companies could make multi-millions things would move much faster. Good luck to you, my friend, Ray..
Michael sorry to here about this issue. Wha an outstanding job you are doing for your wife but for so many others. Seems to me the USA must step up and make these treatments available elsewhere available here as well. My best thoughts are you with and your wife both!!!
Thank you for taking the time to bring this important issue to the forefront. It is disturbing to know that the United States does not have this important diagnostic tool available for those who desperately need it. My best wishes to you and Sherrie, and let's hope your proactive efforts will help enact some changes soon.
Mount Sinai in NY does octreoscans and MIBG scans. My wife had it for diagnosing a neuroendocrin type dormant tumor that was removed in March 2011.
Dr. Michelle Kim and surgeon Sasan Roayaie are her doctors and I can recommend them both.
davidnayir 4 months ago
This issue is resolved now btw.
However, your wife can also under go Pet w gallium68 which is the "gold standard" for NET disease imaging. There is a You Tube video on PRRT from DR Richard Baum which reviews the disease, imaging PET vs Oscan, and the therapy PRRT and different types. See this video . My site has a ton of data on links on all options and disease data as I have advanced NET's
good luck!
renalcarcinoidguy 1 year ago
Octreoscan is again available in the US.
tech515 2 years ago
Thanks for this info, Michael. Please let us know if there is anything we can do to advocate along with you.
Ellen
pancanvolunteer 2 years ago
Michael.
You are such a devoted warrior for your wife, and others with Pancreatic Cancer. I still believe much of the problems PC patients encounter is because of its fatality rate, and that there is little money to be made. It's disgraceful that money is a factor, but I think if Companies could make multi-millions things would move much faster. Good luck to you, my friend, Ray..
Rain44maker 2 years ago
Michael sorry to here about this issue. Wha an outstanding job you are doing for your wife but for so many others. Seems to me the USA must step up and make these treatments available elsewhere available here as well. My best thoughts are you with and your wife both!!!
maborics 2 years ago
I wish you and Sherrie the best of luck, Michael. You're doing a great job advocating for her and others with NETs.
JTWebsites 2 years ago
Michael,
Thank you for taking the time to bring this important issue to the forefront. It is disturbing to know that the United States does not have this important diagnostic tool available for those who desperately need it. My best wishes to you and Sherrie, and let's hope your proactive efforts will help enact some changes soon.
ExHillbilly 2 years ago