Hey there Mindy it's Cheryl! I heard it was infusions 13 - 24 that were the most risky. I may be wrong but I thought that once you hit infusion 25 you were relatively safe. I am not a doctor this is just what I have heard! I am glad to hear you are feeling so well on the drug I am still debating!!
i was diagnosed july 1st and i've been on rebif..do you know how long it is safe to stay on rebif? i've never heard. also thanks for making these videos. it helps me just knowing that there are others out there dealing with this. i'm 27 years old and i have relapsing remitting ms.
Hi Mindy! I have just had my 61st Tysabri infusion and, yes, I tested positive for the JCV anti-bodies, and I am sticking with Tysabri because it gave me my life back. I am out of a wheelchair and off of crutches and, as a result, I have freedom. Am I worried? Nah. This drug works for ME but I understand your concerns because they are YOUR concerns, no one else's concerns matter.
Oh Mindy, I've heard the same stories about Tysabri's long term effects. It's definitely scary! Oh, and the JC virus test? Funny, my sister's Dr. doesn't seem to think it's important enough to even test for and he's starting her on Tysabri shortly! I think it's crazy how Dr's opinions can be so drastically different. Good luck to you and I look forward to your future videos.
:) hey there Mindy. I totally support you in whatever decision you make. I wish I were "shocked" that the insurance company will not pay for the JC virus test. You would think they would pay for it as it could cost them even more money, so maybe your Dr. could use that angle. That is just wrong and sadly typical of insurance companies. I understand why people choose Tysabri. I just hope you will monitor that announcement link that reports the cases. Love you and wish you the very best.
Hey there Mindy it's Cheryl! I heard it was infusions 13 - 24 that were the most risky. I may be wrong but I thought that once you hit infusion 25 you were relatively safe. I am not a doctor this is just what I have heard! I am glad to hear you are feeling so well on the drug I am still debating!!
SOMUCHMORETHANMS 4 months ago
Can you share the announcement link please?
TrinnyandSkye 5 months ago
i was diagnosed july 1st and i've been on rebif..do you know how long it is safe to stay on rebif? i've never heard. also thanks for making these videos. it helps me just knowing that there are others out there dealing with this. i'm 27 years old and i have relapsing remitting ms.
WVSweety09 6 months ago
Hi Mindy! I have just had my 61st Tysabri infusion and, yes, I tested positive for the JCV anti-bodies, and I am sticking with Tysabri because it gave me my life back. I am out of a wheelchair and off of crutches and, as a result, I have freedom. Am I worried? Nah. This drug works for ME but I understand your concerns because they are YOUR concerns, no one else's concerns matter.
vbeachy 6 months ago
Oh Mindy, I've heard the same stories about Tysabri's long term effects. It's definitely scary! Oh, and the JC virus test? Funny, my sister's Dr. doesn't seem to think it's important enough to even test for and he's starting her on Tysabri shortly! I think it's crazy how Dr's opinions can be so drastically different. Good luck to you and I look forward to your future videos.
eternity222 6 months ago
:) hey there Mindy. I totally support you in whatever decision you make. I wish I were "shocked" that the insurance company will not pay for the JC virus test. You would think they would pay for it as it could cost them even more money, so maybe your Dr. could use that angle. That is just wrong and sadly typical of insurance companies. I understand why people choose Tysabri. I just hope you will monitor that announcement link that reports the cases. Love you and wish you the very best.
donotconcede 6 months ago