EVANESCENCE out of the shadows for Epilepsy

[coconutzify]

awwww he is sooo adorable! almost looks like my cuzin hahah xD

[WeaponXXIV]

There's not many videos that bring me to tears...This did because I am reminded of how I am not alone and that there are others who live with epilepsy

I'm so grateful to my family for all their support and never giving up when it would have been so easy to

I have been diagnosed with epilepsy since I was about three years old (I'm now 22) and I refuse to let it run my life or hold me back...It's not a disorder and I'm not ashamed of it

Thank you for posting this video

[ashmstng]

This is one of the sadest videos I have seen. I have Epilepsy since I was 3 years old.

[LuminolBlue]

Excellent video; thanks for sharing!

[Havixus]

I hope he grows out of it. I'm not very educated about epilepsy, but I have a friend who has it, and a cousin I grew up with who had it. I never understood why he couldn't play sometimes and why he had to take so many "time outs" when he COULD play. I'm sure there are many types of epilepsy, my cousin grew out of his by the time he was 13. I really hope your son gets some relief. I do not know what it's like to have a seizure, can someone fill me in?

[crazy7house]

Strange, I am Epileptic, I live every day the best I can, yeah I don't like my meds.... it's strange cause I listen to this song allot.... it reminds me of my Epileptic self, I have 3 types of seizures throughout my life.

[FallingXInXTheXDark]

this is sooo touching! my friend has epilepsy, and i worry bout her every time she has a seizure (grand malls), i wish u the best in life, and he seems a lovely lad!

[Epigirl1988]

Hi Thunder,

I have epilepsy too (janz-syndrom) and I think it's a good way to show the people which kinds of epilepsy excists. So much people are loughing about a grand mal seizure and have no idea what it means to live with epilepsy. god bless you, your son and your whole family and i wish richie all the best from the bottom of my heart.

[TheMrM2]

HI there THUNDERROAD22 if i could i would trade places with richie just to relive u of all the waries . Richie realy look lika a energetik and playfull boy . I also have Epilepsy and know how ruth it can b i only have 2-3 sz a month

God Bless and stay strong always stay strong coz God listans to all our prays it may take time b4 we c the rezults of our faith but always stay strong

[temporary142]

He's such a beautiful young man who will be such a heartbreaker when hes older.. I wish you all the luck in the world. xxx

[sxykitty72]

He seems to be a very special little boy, Richie, and he couldn't ask for a better Dad. All the best to you both xoxo

Gretchen

[mccoyjeremy]

I wish you both the best of luck on your journey from a fellow ~E~ Fighter. I'm proud to see that it doesn't change your sons life and never let anyone tell you or your son that he can't do something, we all bleed red, we can do everything & anything that we put our faith & mind to.

[mccoyjeremy]

I suffered from Mesial Temporal Sclerosis (MTS) of the Right temporal lobe & am proud 2 say on May 30th of this yr I'll be celebrating 1 yr anniversary since my surgery date & seizure free. Keep Smiling, and living life 2 the fullest both of you. Its a journey but always know what our heavenly father leads us to, he'll lead us through. So never give up and keep fighting for being seizure free. I'm living proof that its possible.

[THUNDERROAD22]

You are welcome to your opinion, but my son cannot speak for himself, as he has a rare form of uncontrollable epilepsy as well as LKS... and if you look at other videos of him, many are of his good days, and filled with smiles... this video was made to get the word out, that you dont have to look sick to have epilepsy, and it can hit at any time without warning, that is what this video is portraying... I hope you are doing well in your battle ...

[Cathy61mcm]

I have watched this one about 100 times in the last week ... and it still brings tears to my eyes to watch him go through it .....but i know he has you to always watch over him ... you have both touched my heart very deeply and always will ..... god bless you both ..... love always ,Cathy xxx

[AstarteVX]

poor guy... =(

[johnandsusielangley]

Great video!!!! You seem to be a great dad with a very special boy. We have a 8 month old little girl that was diagnosed with infantile spasms at 4 months old. At her worst she was having about 500 seizures a day. She is on some medicine now that has helped, but hasn't stopped the seizures. Its good to see Richie getting to enjoy things and having people around that love him the way you guys do. It gives us some hope that our little girl might be able to do the same thing one day.

[brandiet1972]

I love this video!!!  Even though I have never met you, I am honored to know of you. You have no idea the effect you have on my life. Take care Richie!!

Thinking of you, Brandie

[olinx95]

hi,what i know is that there is an op method to treat it and it´s effecitive,i wish your son to get better soon!

[Pasco08]

i have E as well and i am 24 me and my wife will put ur son in our prayers i know what u are going through sorda but god bless

[PetrusAhmed]

Woww good luck Richie, I used to have it too, there must be some medecins available to stop the attacks. I used ''carbamacepine'' ask your doctor FIRST!! if its good in your case.

Really hate to wake up so tired after an attack.

We have the 'Sacred decease' hahaha, people like michael scofield an mohammed had the same thing. Good luck and enjoy your life.

Peace.

[PetrusAhmed]

Sorry the medecin is called, 'Carbamazepine' and maybe only available in the Netherlands.

But there must be something similar in your as well. We are atleast better of than the poor people in Africa and Asia who dont have anti epeleptic medecin at all.

[my9pandas]

Richie, ♥♥♥ You

[my9pandas]

Thinking about Richie....... Much Love to you two. ♥

[TiuAndria]

Un bellissimo ragazzino.

Tutti questi fantastici bambini che hanno l'epilessia hanno la caratteristica,oltre al fatto d'essere veramente speciali,anche quella cosa che manca a molti cosidetti "sani" la sensibilità e l'intelligenza.

God bless you!!!

[my9pandas]

Multi~tasking at its finest, you two are always on my mind.

~♥~ Ryn

[claudiasebel]

my son 10 years old has lks too.

nice video,lots of love

xclaudia

[kennisings]

I know how it feels to see your child suffer like this. God bless you and you're in my prayers.

[marcialeer]

my prayers are with your son and your family!

[nyprincess10001]

I know exactly what your going through.

Beautiful video. I wish you all the best

[faeryjennie]

love to you both, thinking of you....

Jennie

[TiuAndria]

My thoughts are with you...

Andrea

[rimedrider]

Hope your son makes a soon recovery...Love you all

God Bless

Shak

[lpeck59]

I've seen your video before. I think we are friends on myspace. It seems so unfair that we have to lose someone to this disorder and then raise a loved one with the same disorder. My daughter died 2 years ago and now I am raising my granddaughter who was diagnosed with E last year. I guess this just makes us stronger and fight harder for awareness, education and hopefully someday a cure.

God Bless you!!!

[my9pandas]

Laura you can teach us so much....

I Thank God I have you in my life. Your courage and strength is inspiring.

[africankelli]

God Bless baby, am always here 4 u & your family x x x

[faeryjennie]

Im so sorry. Your son is absolutely precious. My husband has awful seizures daily, I know how it feels to watch the one you love go thru this.I pray for more "ups" in your life. If you ever want to talk please message me anytime, ANYTIME. ~Jennie

[THUNDERROAD22]

thank you for the kind words Jennie, I lost my wife 8 years ago basically due to a grandmal in her sleep...so I know it from both sides...Enjoy everyday, and most of all I am sharing these videos etc, to raise awareness...God bless, Rich and Richie

[africankelli]

If I could've taken that from your little boy, god I would. I have epilepsy, but hey hey long story, wasnt diagonosed until I was 19. My thoughts are with u all, am always here if I can ever answer any questions. Kelli x x x

[kirsty261]

i had, grandmal, tonic clonic, absent, and other seizures, i had it sinice the an infant seconds after being born

im 25 years old now and still have every i hope it well go away but it dosent

my thoughts are with you

[THUNDERROAD22]

Kirsty, our prayers and thoughts are with you as well, Richie's epilepsy brings every kind of seizure known, and he also suffers from Landau Kleffner Syndrome, and epileptic condition that robbed his ability to speak and recognize speech for 3 years...Just remember you and Richie are not alone, utube has been a good place to share, learn, and make friends, while raising awareness about epilepsy...Good luck in your on going battle...

[THUNDERROAD22]

thank you Kelli, his seizures are very violent these happen to be taken after grandmals, or his postal time...me and others are trying to raise awareness about epilepsy etc...utube has been a good venue for making friends and getting and sharing information...Good luck with you battle, you are not alone...

[josielasher]

I watch your videos of your love with Vera and cry, i watch your videos with Allison and can't put words to that, I watch your videos with crazy Kat and smile, but in the end I always go back to the videos of Richie and have peace that you're where you're meant to be. Kiss him every morning and every night for me. And keep finding that strength you've found for being an amazing Dad.

[THUNDERROAD22]

thats a much appreciated compliment especially coming from you ... I was wondering if you caught the MEOW video...lol...Katrina say i could always make her cry as well...I guess this is the last mark I am leaving to all my friends, never did write 'THE BOOK' but this is the next best thing...I owe meeting Vera to you, cause you were always there watching over me, sorry for all the worrying that I have dropped in your lap over the years, I am so happy for you not being ruined by me...no lol...

[THUNDERROAD22]

You are truly the first person that REALLY understands what I am going through...I only wish it wasnt because of your daughter being afflicted as well...Your words are so TRUE...and your dedication to your daughter is WONDERFUL...thanks for the post, I would never wish this on any parent, but it is helpful to know that I am not alone...God Bless you and your beautiful daughter...

[my9pandas]

Pure innocence. Sadly we know all to well when those seizures hit that innocence is taken. Thankfully he has a great dad like you.

He is handsome. Perfectly made, that childhood laugh suddenly snatched away by a parents worst nightmare...

[THUNDERROAD22]

Richie had a wonderful day today, with a friend I havent seen since High School, she was amazing with him...it was so nice to see him laugh and interact with someone other than myself...

[THUNDERROAD22]

...to my friends we ask for continued prayers, and for new viewers with children with epilepsy WE are always here for each other...thanks to Evanescence whom is spreading the word about childhood epilepsy, and we pray for her brother in his BATTLE...

GOD BLESS YOU ALL

Richie and I thank you all