chromosome 13 deletion

[15tennisstar]

my name is lea and my sister's name is maya too! such a coincidence. beautiful video!

[MonaRocks09]

how is she doing? god bless you and her

[ILOVEMYDOG458]

how cute she is! awww-3 god bless

[jaconamichoacan100]

god bless your daughter



[persssooon]

My son is also born with 13q deletion syndrom

[Abnormaldiversity]

What part of 13 is missing?

[bowecho]

Just curious....what were the odds the doctor gave that your third daughter would be born with the same defect? Or did you just play russian roullette?

[bowecho]

Just curious....what were the odds the doctor gave that your third daughter would be born with the same defect? Or did you just play russian roullette?

[Dolphidood]

this is the music on the pc default

[lissa99a]

shes so stinkin adorable!!

i have 3 girls as well. aren't girls GREAT?

[0theshorthalf0]

She is gorgeous, and obviously a very happy child. You are clearly (a) fantastic parent(s)!

[pirechili]

Maya's mommy is hot!

[silverstar713]

@rreeder1981: congrats on your baby girl! Maya is three now and just started her second year of preschool. I'd love to tell you more and hear about your baby. My email is silverstar713@yahoo.com. There is also a support group that I can tell you about as well.

[rreeder1981]

Hi there, I've just seen this video. Our baby girl has an x13 deletion. We only found out when my partner was32 weeks pregnent. Our Beautiful baby girl was born full term weighing 2.2kgs. She spent 11 weeks in nicu before finally coming home. She has many similar problems as your daughter i.e small size etc. I would love to get in contact withyou or any parents with children with this similar problem, as I'd love to know how you delt with everything as your daughter grew up. Thanks Richard

[yankeegurl62]

she is beautiful!!

[XHUMBITO1]

such a beautiful angel (A)

[eleo399]

we had a daughter Maya as well. she had trisomy 5. she would have been 2 months last Monday...

we had her just for 24 days...i am missing our Maya so much....

[ettam12]

she is so cute like angel. My god bless her

[coralb83]

hello, i just watch your beutifull video, we found out yesterday that my little boy has chromosome 13 deletion of part q14-q22 he is nearly 14 months and is yet to walk or crawl and is very small, he also has a white cloud in his eye so were back up today for it to be checked out! would love to hear from you!

[silverstar713]

i'm so sorry to hear about your son. i'm so glad to see that you have found my video. i'm going to make another one soon. Maya is now crawling and cruizing...she will be 3 in december! I want to tell you about a chromosome deletion group that I am in. I will email you the place to get in touch with the leader.

[josecitoperecito]

@coralb83 the cloud in the eye. he has a cataract.

[Basiloma]

All your children are beautiful. They are sweet gifts. Very cute smiles too!!

[bexcarlisle88]

She is gorgeous. My brother had full Trisomy 18 (Edward's syndrome) we lost him at 4 week's 5 day's in 2006.

Hope she is still doing so well. x

[shellsikizz]

hi i have a daughter who has Alfi syndrome (chromosome 9 p deletions) and she has trisomy on chromosome 4 , just wondered if u were part of the unique chromosome disorder support network , love to u all and ure amazin little princess x

[goaskalice83]

our stories are almost the same exsept im still waitin to get a diagnoises for my 11 month old girl ,she still not even sitting up.

all our love to u and urs from me and lola

[silverstar713]

Have you had blood drawn to do a chromosome analysis?

[goaskalice83]

they did chromosome tst when she was born they came back clear but are now PLANING to do an array test which is more advanced but of course its not avaible in ireland so we'll have to wait for 4 months 4 any answers.very tough

[chromosome16disorder]

hi, a while ago i messaged you from a different account and said that you inspired me to tell my own story. well, i have just finished uploading my first video about my son who has a chromosome deletion. have a look at my channel. thanks alot guys.

ang.

[ring13mama]

she is just so beautiful. you did a great job on video. how are the hormones going for her? i posted a video of elijah on here you have to go check it out when you get a chance. its chromosme ring 13

[silverstar713]

Thank you for everyone's possitive feedback.

[aml1cml]

What a cutie!  All your kids are beautiful! Best of luck

[yolandarassi]

So beautiful. God bless her.

[jlyon220]

Thank you. She is beautiful. Our daughter Ruby turned 1 today with a 13q deletion. All the best to your family

Lyon family

[bpdhell]

thank you for sharing your story. you have inspired me to do the same. I have a 5 year old with a partial deletion of chromosome 16. Hopefully I will ha e uploaded a video about him soon. Good luck with your precious little girl.

[silverstar713]

I'm glad I have inspired you to share your story of your son. I was looking around to find more parents' stories of special needs children when I decided to show everyone Maya. I was hoping that others would see the possitives about raising special needs children. I hope to see your video soon!

[kateym01]

she is so wonderful.i didnt know you made this its great.i feel like we as parents need to get out there and spred the word about rare chromosome defects so they can be more knowledged.

[ranmik3]

you have so much to be proud of... that is a darling little girl... how thankful you must feel...