ME/CFS - A Subtle Threat

[jamesclackton]

Almost exactly the same handwriting as me.

[thinleela]

That is brilliant well done I had a go today but mine is rubbish.

I might take it off actually as it is so amateur I would have been better doing something like this only I did not think of it so your brain must work better than mine.

[MultiCherryLips]

good video i have fibromialgy and cronic fatigue. 4 years ago, i am feeling so bad..

[radlikemad]

this is so cute Nate! love it ;)

[SharkBateNait]

:-)

[chocchoccychocolate]

This is good, well done. It made my hands hurt just watching it ! : )

[SharkBateNait]

Thanks Choccy, hope I didn't give you a cramp! Hurts my head less to write than to speak so this was easier for me. It was fun to try something new too. Hope you're well, sounds like you'll be alright just as long as you keep a good supply of CHOCOLATE around. :)

[DarkWaterfall]

I loved this video. Thank you for sharing it!!!! Hopefully I will be making a new one soon. At the moment I've been pretty much bedridden and exhausted.

[ellebee4]

Great video. As one bedridden with CFS and unable to speak above a whisper, I often have to write notes to communicate. So this video really resonated with me. Thanks for sharing it.

[SharkBateNait]

It's good to hear that you can relate, nice to find people who understand, sometimes the only way I manage a conversation is by writing it out in advance, isn't it silly? ;-) What a strange little fatigued world we live in. fyi, science might just be headed somewhere useful for us, I'm very hopeful. Take care Ellebee4

[MasterSun2200]

Very cool video, nice idea

[SharkBateNait]

Thanks MasterSun2200

[poppymoone]

I loved this... the fact you see no face , hear no voice.. gives the viewer a sense of how it is for M.E sufferers.. the lack of music.. the world passing by... and we seem not a part of it... your video was excellent well done!!!!

[SharkBateNait]

thanks, you're making me blush, you can tell it's authentic, strange in ways only one of us could come up with I suppose, it really does feel like what I wanted to express, somehow it came through, I'm glad you can feel it too

[theonlyfluffyone]

Just watched your video, it was great, made me smile, have been bedbound with ME for quite a bit, given up the fight with my insurance, hope to tackle them when am bit better, keep up the good work, best wishes

[SharkBateNait]

Thanks, best to you too. Hope you've had some luck with your insurance.

[SharkBateNait]

Hey, thanks, I'm sorry to hear that. Good luck and don't give up, I've heard that at least in legal disputes with insurance companies, the longer you keep at it the more likely you are to wear them down and win. Also I'm optimistic about current legal and treatment developments. We may see some real improvements soon. Cheers

[DAiiSYXO]

I only just saw this video, but wow, it's very moving :)

[SharkBateNait]

Thanks Daisy, I was partly inspired to make some videos after watching a few of yours. Just finding someone else who was sick, who still had a great sense of humour and made me laugh was very encouraging. Especially that hilarious juggling video ;-)

[ragazza1974]

Your videos are great and minister to a great extent... Keep pressing on... You're doing a good job! Thank you!

[SharkBateNait]

_Thanks, that's always good to hear :)

[luminescentfeeling]

Great video, very 'arty' and original yet serious also.

Well done!

[SharkBateNait]

_Thanks, I try not to make overly serious videos, but this one needed to be a little more "graphic" since it's targetting people new to all this.

_I enjoyed your awareness vid too, I think I'm due to watch it again.

_Your singing is quite impressive as well. :)

[deadgirldreaming]

Oh - and thanks for putting all the Science web stuff up - very interesting.

[SharkBateNait]

You're welcome, I was a little surprised not to find them on YouTube and I'm glad I could contribute to the CFS/ME community in some way just by uploading them. :)

[deadgirldreaming]

Just want to say that book you have in the background is one of the better ones - shame it hasn't been more widely circulated or become a paperback.

I would suggest everyone reads it.

[SANDMANCASTHISSPELL]

i love this video. thanks

[SharkBateNait]

That's great! Thank you :)

[neelubird]

Critisms: is this poor man's powerpoint:P The bit where you mentioned "something gets stuck in the brain" could've been worded better otherwise too many ppl out there interpret it to mean a psychological problem in the brain (I know that's not what you meant)... I also think it's more like a pandemic rather than epidemic. Other than that, it's really nice I liked it. I also noticed you've got "encounters with the invisible"- is it any good?

[SharkBateNait]

Yeah some of this is pretty crude, you might be right about the psychological sound to it, maybe when I say "you might think you're lazy, depressed... etc, until you can't stand up" offsets it a little, hopefully. Pandemic may be more accurate, but I had to look that up, whereas epidemic is maybe a more recognized word, to me anyway. Clarity over accuracy? Thanks for the suggestions, it encourages me to think these things through more thoroughly. :)

[SharkBateNait]

The book looks good, haven't read it yet though. I needed something flat to write on and it seemed like a nice and appropriate background. :)

[Bilbo107]

Great vid again my friend. The links from your other videos are really well worth following up (message to other readers). Busy motorcycle area there by the sound of it. Regards again from Steve in England.

[SharkBateNait]

Thanks man, and yeah busy everything below my place. I'll keep posting links as I find more, lots of people here have shared what they've found with me and I'm learning quite a bit, albeit ME-slowly. Cheers