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  • I'm 19 right now. I did fall head first on concrete stairs at age 8. Bleeding was part of the role. After time passes and the days go by, and the bleeding has stopped and so is the pain, I started doing bad in school, became shy, low self esteem and confidence, not talking, depression, slow thinking, and I'm slow at doing math in my head. Before I fell down, I won math and reading awards, sing/dance to michael jackson music. Now I don't and always don't. :( Is this really brain damage?

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  • Im 16 and on the 23rd of august thsi year i ate some canibis which then lead me to have a seizure (My second in my lifetime the first from smoking canibis) It is so hard to live with the damige..its just not fair..i forget were i am all the time...my thinking is slowed....cant watch tv..i fell trapped in my brain..psychotic problems also...it is a nightmare,,having a weak brain sucks

  • im 17 and have severe visual problems constant disabling headache, watching this video is a great effort, i cant sustain reading. its been 7 months and i can finally be exposed to minimum light. i havn't heard of someone anywhere near as light sensitive as i was. i just hope for a full recovery. i also have feel spacey and have a reality disconnect when over stimulated. im still very much in the midst of a neurological nightmare

  • @thatsheavydude i know how you fell mate...as a 16 year old living with nurological problems it is really hard..

  • I had a sub arachnoid haemorrahage in 2001 & so nearly died,but I am still here I am still recovering.I attended a local head injury unit & they taught me & gave me so much help & still do. My main difficulties are the judgemental attitudes of others I look well & my intersocial skills remained intact so they treat me as lazy or a scrounger as I am unable to work.As for the DHSS they were awful to deal with it took me 7 years to get DLA.There goto attitude is you are trying to screw the system.

  • It must be that new technology where the DR. Iz doing a surgery from a shore in Hawaii and what you guyz juzt saw it's an animated version of what hiz seen butt it's really happening somewhere 1000z of milez away that would be beazt lol...I feel bad 4 ppl that need thiz I wish it never happenez 2 my family or me:^(

  • I had a extreme snowboarding accident 2/28/2011 and had a level 1 TBI and it was 10/22/2011 that I saw a nuerologist and he gave me the great news that I had made a fully recovery so a full recovery is possible, I suggest passaients and positiveness would be great for your recovery. Also I had alot of acupuncture used alot of essential oils and natural herbs.

  • so sad =(

  • Brain is something which is least known part of our body.

  • My name is austin ward..and i smoked pot and did drugs this year..it has caused me to have brain problems and it sucks im just 16 and had my whole life ahead of me...i cant think right understand things...i miss my old brain so much can someone please help me with geting over not having my old inteligince

  • @bukenda Don't worry, doing drugs is not good for you, but having done it once or even a few times will not degrade your brain. While on drugs, you may do something to get yourself killed. The only things that can surely give you brain damage are things that involve force to the brain - car accidents, getting hit in the head, football, boxing, falling. Now don't get me wrong, lifelong drug-users do have directly related issues with their brains. Always ALWAYS protect your face and head.

  • One question i want an answer on: Is it possible to get normal again if you get an traumatic brain injury? (thinking of chris medinas fiancee)

  • Yes TBI patients deserve support!

  • what if you don't feel safe with anyone?

  • Three people don't like the subtitles

  • People with TBI deserve all the help and support they can get. They are perfectly normal people who just had a terrible accident that changed them. They are just as equal as anybody else.

  • @slynicolai im also a former infantryman myself... i was run over by a drunk driver in feb 05 and had a 2.5 in air pocket on my brain for 36 hours.. your lucky it took you 6 years before too much began effecting you.. i was retired when i was 20, 3 weeks before my unit was deployed, 25 now, i believe many of us with this issue are having many of the same problems in civi life... "do you purposely serve or serve a purpose" - Stone Sour... good question to find an answer to for us all

  • Hello thanks for the KUDOS, it is a struggle everyday with work, life etc. WOuld love to get to a university to work but sooooo difficult, if you ever want to chat 5179440463

  • I was walking across the street about a year ago. Hit the pavement, of course. I thought it would be better by now. Very frustrating and just starting to recognize the problems as a more permanent condition. I thought I just needed to rest and I would be the same, but I'm different.

  • I recommend trial and error to all TBI patients. However, one should learn body awareness first; how to listen to the body. Since doctors cannot prove anything about my condition, aside from odd brain waves and abnormal MRI, I rely on trial and error for treatment and since most people refuse to understand something that isn't proven by medical science, they refuse to cooperate with my material leanings (sleeping on a cot every night or using a cane for a few years until I find a treatment).

  • Shum fort eheh 

  • This video and some of the comments make me feel alot better.

    I damaged my temporal lobe due to a amphetamine overdose, and Ive been suffering from grand-mal seizures and myoclonic seizures everday or almost everyday ever since.

    Some people though are much worse, just seriously fucked in the head.

  • @JenkemBOMBS I hope you keep progressing and staying positive. There are some amazing people in this world, Keep the faith. :)

  • @SlyNicolai you stupid bitch TBI means Transvestite Bitch Initiation so you must be a bitchy transvestite you stupid bitch.

  • @SlyNicolai your a stupid bitch and i'm going to shove my dick in your ass

  • i was assaulted struck to the sideof the head and knocked out !i am not the same person i was ,i identify with all these comments,im so fucked up ,so done with and so frusrated i feel like im alone ,cant do my job anymore,depressed,tired.i want my old self back.everything seems to be falling apart.so done with this shitover two years and counting,so out of here

  • @tarrzaan you deserved it too you stupid bitch, haha you have a fucked up brain you gay faggot.

  • @crazedJSLive Speaking of fucked up brains....

  • @klin1klinom your a stupid bitch, bitch

  • @tarrzaan WE LOVE YOU true humans care for one another I KNOW what this pain is like and I hope you keep progressing and stay positive :)

  • Some form of rehabilitation.* I believe many of the studies were done over a relatively short-term period, several months to a year or so. Several years would produce results that you couldn't find in a pill.

  • Simply, reversing or overcoming the effects of brain injury will require some form rehabilitation. Nootropics, Brainwave Entrainment, cognitive, memory, and physical exercise, music, and good nutrition all will make profound differences over a long-term period of time. First off, Google "Binaural beats research" and read any of the research studies on Brainwave Entrainment. The long-term results are absolutely profound and affect the brain a considerably. The exact opposite of brain injury .

  • @FrosDOwnz you don't know anything satan will heal your brain with his awesome powers your just a bitch who likes pie in his eye

  • Very informative video.

    Metriks' FCE software allows the healthcare professional to objectively quantify and report on a person's functional abilities.

  • @metriks07 you dumb skank FCE is Faggot Cunt Election you must be a gay cunt you stupid bitch

  • I had a TBI when I was 18, I am now 40 and have 2 masters degree. I am a rehabilitation counselor passed my CRCC but cannot keep a job, always fired and sent to the next employer. Any suggestions? charlesbrose@msn.com

  • @rosechar35 wow...We have similiar stories. I was 21 when I was in my accident. I am 38 now. I recently completed my MS in Rehab Counseling also! I haven't taken the CRC/CRCC though. I got a job (finally!) & the CRC is not required to work there. But that is so great that you got it! And TWO Master's! Lots of initials after your name!

    Don't forget to look at all of the amazing things you have accomplished!

  • hey i got a brain injury 10 months in the hospital sucked but im happy for what those people did the only thing i need now is a drivers license

  • When you die, you should have your brain donated to science. I hear they're trying to come up with the perfect vacuum.

  • I am IN TEARS watching this video!!! 4 years and two months ago (TODAY), I was in an accident resulting in a coma (right frontal lobe head injury)and a paralyaed arm.

    Here I am more than 4 years later:

    GRATEFUL beyond expression that I have survived yet, frustrated beyond beleif that I am STILL enduring (and learning about) resulting issues from the TBI.

    I am currently enrolled full-time in college and doing exceptionally well however, I face challenges that I didnt have before. 

  • @MELLOGURLY hunni, you are doing great! KEEP GOING..life is long from here on out..God will give you the time you require to learn, hunni. you are doing great. keep laughing(:

  • This is the first time that I have seen this type of injury addressed. I was injured this way as a kid. I cant believe that there is a standard of behavior. I have struggled with social relations all of my life. and have been treated as an outcast, by society as a whole. Oh how I wish that every person that is, be required to learn of these things.

  • @Anthonybocc I am saddened by your unfortunate story. But at least it is more widely discussed & treated now...

  • my niece(16 yrs) was shot in the head and the bullet severed the vein that supplies blood to the brain, Dr's gave her 10% chance of survival,since this vein was irreplaceable, she was in an enduced comma and when they broygh her out of it she woke, she recovered almost completely in 3 weeks,the body found another way to supply the brain from blood. the Dr's still can't explain it. can't loose hope . There is a lot we don't know about the brain.

  • my niece(16 yrs) was shot in the head and the bullet severed the vein that supplies blood to the brain, Dr's gave her 10% chance of survival,since this vein was irreplaceable, she was in an enduced comma and when they broygh her out of it she woke, she recovered almost completely in 3 weeks,the body found another way to supply the brain from blood. the Dr's still can't explain it. can't loose hope . There is a lot we don't know about the barain.

  • It's as hard as learning finger independence for my piano lesson.

  • back to being a rebel; wanna know why Russia is ruled by security services?

  • and I'll never get angry again... spreads some fairy dust.

  • fuckers.

  • marijuana is antiinflammatory thats why its illegal

  • my moms brain injury does the exact opossite

  • I had a frontal lobe injury from an automobile accident in 2009. they told me that what I had at a year is what I would have forever. It gives me hope to hear that you said 4 years. Seems like my short term memory (about a week) is getting worse. I completely forget conversations that I have had. I can't afford this injury, I am a teacher. Sometimes when I try to talk, certain words just wont come out. I can see the word in my head, but I just can't say it. I am hoping that gets better

  • @asilsmith Hang in there,as you try to get all kinds of info on brain recovery, you find some info give you hope others give you dispair. Just believe in good ones! You have an important job and a lot of people need you.

  • I'm living with a traumatic brain injury. It happened 6 years a go on october 28th and I'm still recovering from it she said. I was unconscious and in a coma for 2-3 months afterward. I lost use of my entire right side but every year now I notice that It's healing. I couldn't eat anything and I didn't understand why. I was in the hospital for 9 months. I finnally returned home on my eleventh birthday. But my mom couldn't keep me so I went to live with my grandma who is a retired nurse.

  • i latter feel on my puppys head to day i thought he was just stuck under it but i lifted the latter he tried getting up and couldnt then his head started swelling 3 times the size of his normal head now hes unconscious i feel really bad for him i wonder if hes in a coma right now hes still alive and breathing but just looks like hes sleeping peacefully

  • survivor.... 7 y passed... you guys dont even imagine. I dont even know how i managed to fight it...

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  • For all those who feel distressed by the subtitles, click on the little grey "cc" icon to turn them off.

  • The video is great; however the words in the captions do make it extremely difficult as they do not sync with the words the people are saying. Yes it is stressful to watch for me. I too have been living with a moderate TBI as a result of brain surgery 5 years back.

  • @wolfshaman1 Subtitles are out of sync.

  • 8 yr survivor :-) Great video. I just hope people will open there mind to just try and understand,

  • Thank you so much for this. Hit from behind at a high speed on the highway 5 years ago, I'm left with a so-called "mild" TBI. My son Chris filmed me delivering a script I've presented to grad students in the Boston area, but he made it really accessible and even funny with film clips. It's in 6 parts: Go to YouTube's TBINBD channel.

  • Can you put the info boxes into a script and add it to your description? I can't focus on the video and the words. It's too much. VinCapp is right. It's stressful watching both.

  • There is more hope for these people than compensation but the treatments are not main stream. Anyone who knows a brain injured person should search the name Ryan Reitmyer

  • I wonder of a big part of the frustration had by some people with brain injury is shame about not being able to act like they did in the past. What helps me GREATLY is really choosing to know that I'm totally okay the way I am, and I avoided people who didn't know this.

  • @anutuk With a brain injury your thinking can be fuzzy... sometimes blurry... .. definitively blurry. Comes and goes... but the pain.. is always there... will almost driver you up the wall. Lost some of the vision in my left eye... so i see flashes of light all the time. Some things you used to think about... you just dont care about anymore.. sometimes you cant even see through your minds eye... no joke.

  • I have two dialogs on the screen. I want to read the text on the yellow bar, but there's white text on a black bar that covers it largely.

  • Whats with that stupid narrator comments!!! We couldn't listen what the he was saying.

  • These people are lucky to still be living. My friend Lynn age 33 was hospitalized for 2 weeks died last night at 2:00am EST from TBI :'(

  • The narator text obscures the video's subtitles which severely affect the experience very detrimentally.

  • finally after 3 months im seeing a lot of improvement, like they say in the video the most annoying thing is the thinking, its easy to get overwhelmed and stressed over almost nothing.

    and talking doesnt flow like it should, ill be talking about something and i just cant process words like i used to, i have to stop and wait to remember the right word sometimes

  • @oneadamtwelve86 I feel for ya man.. i hope things go well for ya & GL.

  • Subtitles are extremely helpful for me-I have a brain injury.

  • I suffer TBI i wish more people know about this,because it effects people that you would think looks ok.

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  • BaaRaiin DAAAmmmaggggeEEEEE reeAlY sUcKs

  • omg take out the annotations, i'm leaving...

  • As far as my knowledge around head injury and what to do, you should:

    - Look around in the area to se what could have caused the injury.

    - Secure the respiration system.

    - How is the breathing.

    - Is there any reactions of the pasient/concerned.

    - Check the pulse.

    - Call your emergency line/number.

  • the subtitles are dont go with what is being said in the video, and are extremely distracting

  • subtitle fail

  • The Words on the screen really stress me out

  • @VinnCapp Very distracting.

  • @VinnCapp Subtitles are out of sync.

  • My brother suffered a brain injury from an accident that left him in a coma for months. He was only 16 at the time. After about a year of rehabilitation he was able to go home. Unfortunately due to his loss of mobility, severe tremors, and depression the suffering lasted for another decade. Now, through art he has found a new love of life and spirituality. Some people see him as some sort of tragedy. I can see that he knows more about life than most and he is a huge inspiration to me.

  • its so sad

  • Where do you go for anoxic brain injury when all the help my private insurance is offering is a nursing home? He can talk he just needs help with his short time memory loss and physical therpy to walk again

  • Where do you go for help my husband is only 41 and has anoxic brain injury the only thing my private insurance offers is a nursing home

  • Anticipating the unanticipated. How war makes a nation pay and pay and pay --- Traumatic brain injury.

  • Hi, really interesting video. A small comment on the subtitles though. I understand that you put the subtitles in to aid communication. But (I don't know if you or someone else has already identified this or commented on it), the subtitles are unfortunately about 20seconds off the audio and video as a whole. Just thought you might like to know. Thanks

  • Brain Works activities as well as attending a day program that is just for Brain Injuries will work as well.

  • 24:50 he's playing quake 4. awesome!

  • He's lagging like crazy oh god

  • I had a pretty serious and untreated head injury while partying a few years ago. I can still feel the bone scar on my skull underneath my skin, mid forehead (third eye). My social capabilities have been handicapped, words come out in wrong order at times, but it has improved since the trauma. HOWEVER, my visual creativity has been awakened. In two years I have metamorphosed into a professional fine artist.

  • Criminal activities intercepted, under arrest.

  • I enjoyed the video. As a survivor of a tbi myself it was very informant. My only problem with it is that it left out the tendency of tbi patients to become addicted to drugs, alcohol, and other things. This was a huge thing after my accident. I was in a car accident and flown to CMC with a GSC rating of 4. My recovery has taken me 3 years and I still have a little to go.

  • Robert Cody here, Vietnam Vet with a TBI .. If you know or are a vet with a TBI and would like to help with research on TBI's: Contact - Sandra Bonifant, Program Specialist at the NIH Bethesda at 301-594-5751 - From the late 1960's to 2006 this research was the Vietnam Head Injury Study and is now the Warfighters Head Injury Study .. Your help, helps others, Robert Cody "The GRunt"

  • SHORT-TERM MEMORY

  • brain researchers might never have picked upon the fragmentary nature of memory without their studies of people whose memory has been damaged by illness or injury . the most celebrated individual is H.M. . IN 1953 , when he was 27, he had a drastic brain surgery to cure severe epelipsy . the operation cured his epilepsy , but removing part of his brain temporal lobes, including a structure called the hippocampus, destroyed his ability to form new memories. H.M.WHO IS STIL ALIVE , HAS A GOOD S

  • thank you for getting this information out.

  • yo jackasss stop putting those pop out there annyoning <<<spelled it wrong :P

    + u dont give us time to read it it leaves in second. and u should go to hell u bitch because you were fun of that guy

    u said " Ha i dont even know whats he saying* SO GO FUCK UR SELF

  • In September 2009 there was research done with specially formulated hydrogel on brain injured mice (severe enough that lesions were caused), within the first few weeks of the hydrogel being injected at the injury site (injury was blunt) the brain tissue actually started regenerating and creating new cells to 'fill in' the area. Within mere weeks, the mice had recovered from nearly all of the damage.

    Check Google News, every day researchers that hydrogel can heal virtually any tissue.

  • @FrosDOwnz

    I mean every day researches find that hydrogel can heal virtually any tissue.

    Even the spinal cord.

    And yet at first it was just being used to treat injuries affecting mainly the skin.

  • For example, biofeedback ('brain wave therapy'), proper nutrition, exercise, exposure to new experiences, nootropics ('Neuro-PS', piracetam, oxiracetam and aniracetam especially [which is up to 30 times more potent than piracetam]), vitamins and minerals, (especially B-Vitamins and trace minerals such as magnesium, potassium, zinc, copper and iron).

    The brain is very adaptive, and thus within the first 6 months you make the largest recoveries.

    Or hydrogel, which has the capability to heal it

  • I've had a lot of accidents and at least 3 or 4 concussive injuries before...

    I could have been possibly 140+ IQ, though IQ is a measurement of only convergent thinking, now I'm around 115-120, but I still retain much of my cognitive functioning as well as what keeps me essentially human.

    Having Aspergers, and being of native brilliance spares much of the potential loss, but I'll never know what I'm missing until I have a CAT done.

    But there are ways to recover quicker...

  • Confidence can be known through loving kindness and compassion that don't require cognitive superiority.

  • what symptoms of TBI and what are causes

  • So true! It's clear how a TBI demands the full attention of the injured person and, if they are lucky, family members too. I think this video opened many doors of understanding to a certain level of traumatic brain injury and rehabilitation needs. But the video only shows people who have sustained a TBI and are able to talk about it, with a sense of their own history. Many people never pull out of the coma, and others have massive impairments they could never describe.

  • I've had a tbi for 10 years now, December 27 1999 (motorcycle head on collision, no helmet). In order for other people to relate to brain injury is unfathomable. Realistically, there is no actual recovery, but simply accepting death of yourself, and trying to be in the body of another person that feels like yourself. The doctors are talking as though they understand it, unfortunately can never actually relate, and express the frustration and complete deception that a tbi person may endure

  • This is a great video! My son suffered a TBI almost 2 yrs ago, and this really sums up the truth-it is a VERY long road, and the only way to get through it is to take it one day at a time, and not give up.

  • Great video!! I was in a car accident 1995. The work as you might realize or know is.. an incredible amount. We who survived our accidents and live with our head injuries are strong people. Don't ever forget that!

  • excellent worker!

  • IMO, there should be a mercy law for people with TBI.

  • i have a brain injuryn and i am 15 i hate it

  • pwned!

  • be a gamer man and get mw 2 and gfw 2 get a xbox and live you need to be good omg

  • Good video

  • How do these people handle finances when one person can't work and their needs are expensive?

    What kind of meds are these people taking?

    My husband can't read because his brain doesn't process the letters. Prior to the injury he had a genius IQ.

    Recovery from TBI doesn't always take time. Sometimes it doesn't happen and/or goes into reverse.

  • Thx for posting this. I had TBI as a result of an auto wreck nearly 16 years ago. It was hard, it still it but with the internet it is now easy to access info and get help and understand this far better than before.

  • you have no idea what you're saying, but if you really want tbi, just take a trip down a flight of stairs. Just know that scrambled brains are permanent.

  • i suffered from TBI when i was two years and this really helped me and understand more about this

  • i agree with the statements after 25:00

  • we as an occupational therapists play a major role in returning people which have a brain injury to thier brevious role :)

  • true but it takes a lot more people other then Occupatinal therapists to help brain injured people.

  • excellent teaching material - Thank you.

    Dr. Morrison

    Assistant Professor

    KU Medical Center

  • My brother had a brain injury 6 months ago. He spent about a week unconscious. Doctors say he is already 50% back to normal. He's lucky he was just 18. He spent his 19th birthday on the neurology ward. Now he's back in college, retaking his first year. n_n

  • thank the lord. Glad to hear your brother is okay! He got lucky!! xx

  • had sumthing similar happened to me last year when i was still 18 also...

  • glad to hear there's hope. My mom was recently injured. And I have no idea how to help her

  • @princessannikki I wish the best for him glad he recovered. Im livin with a skull fracture suffered hemorrhagin. Sometimes the left side of my brain becomes warmer than usual suddenly, cant sleep on my left side of my face since 5 years..ago and blah blah blah its the pits

  • @princessannikki glad to hear that.

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  • care of her every day, keep her happy and comfortable and absolutely enjoy each moment we share together--and that is 24/7! She no longer does any therapy, other than what we do here at home. i.e., last night, we did the 'feed the world' vocabulary test and she was awesome through level 2 (out of 60). We pushed on and I challenge her like that a lot. Our days of looking for 'getting better' are over now.  We're very happy together and I love her and am committed to her forever. Bless U All!

  • My wife suffered a TBI accident in2001. For weeks, she lay unresponsive in a coma. Then 1 day she awoke and I was so happy and excited that she 'came back.' Over the course of that 1st year it was quite clear she wasn't the same person. We had the best medical treatment and rehab available at the time but she plateau'd probably during her 2nd year. With a lot of trial and error RX's, we finally discovered Zyprexa and that has been a miracle drug for her mood disorders. Now, I just take...

  • We are caring for our son who sustained a severe T.B.I. in 7/06. We are using natural therapies to help him heal. Vitamins,herbs,etc. We recently had 20 HBOT sessions(need more, but SO expensive) It's good to read that helping him recover here at home is the best(been wondering if we were holding him back) We do not keep him doped up. Going to look into the green algae..see what that's about. God bless all of you who are living with or caring for a T.B.I. survivor!! Peace ;-)

  • how is your son doing after all these years?

  • @Groove4evah i dontbelieve in god ,,,,but wish you the bestes of luck ...

  • I was a straight A student until 6th,then I played football,I barely graduated,and i think problems sometimes now

  • If you liked this film, and haven't already found it, you might like the Brainline website (from WETA public broadcasting in Washington DC area). It's "Brainline" and ".org". Look at their section titled Personal Stories -- you'll find links to this film and a whole lot of others. Also great updates on research and news about brain injury. Tell Victoria, the editor, I sent you. :-) Anita

  • I found this video encouraging. Thanks for posting it. :o)

  • I find it strange why we have not evolved to protect our brains better i mean our skulls are good but not good enough to bad injuries to the head.

  • booooooooooooooo

  • this narrators voice is so annoying

  • This is so helpful for educating those who love us, employ us, etc to understand how to assist and accept our disability. My Dr. Long, had told me that all of us TBI's need a huge BAND AID affixed to our head so that others will know what it is that we live with.LOL

    Wishing Love, Light, and Laughter (the best medicine) to ALL.

    abraca-

    Dabra

  • I am so glad that these people had team of doctors who were right to give these people help. With me, I had a team of clueless professionals. I STILL feel as if I should charge them for my time with them. But thats the past. Today, I am highly successful at what I do and I thank God for my progress.

  • I just checked in at the online journal of "corydonindiana" who dropped in here and posted some questions 6 months ago. I highly recommend that all visitors here scroll back to his postings and then click his link and read his journal--if you want to see what the first year or so of life is like for someone with severe brain injury, and a couple of everyday heros. Joe and Angela are inspiring to all people facing challenges and deserve our hopes and prayers.  Thanks, Anita

  • I am a survivor of TBI 4 times. I learned that there is much prejudice. People think I am either wierd..or too smart. In either case, have family and friends who do not want any part of me.

  • I imagine Lewis Carroll, who wrote Alice in Wonderland, must have been one of us. I like your mentioning a lot of people think you're too smart. I had a high I.Q. before brain injury and I still do. It's amazing how many people think brain injury = stupid. There needs to be more awareness of the myriad of ways brain damage may affect us, our many "faces." Thanks for helping with the education project.

  • I get called crazy by every nasty person that try to take advantage of me because of my disabilities, and as soon as I stand up for my self, their defense is that I am crazy, as if that gives them the right to disrespect me or disrespect, steal, or destroy my property. My I.Q. never got back to where it was, but I have genius in other areas that are far above the average. And I might be higher than tested because I have a hard time communicating ( I do so slowly)

  • One of the saddest things about becoming disabled, at age 49, was finding out how many supposedly normal people will try to take advantage of vulnerable people--including those with disabilities such as brain injury--because they think they can get away with it. Once when I challenged someone being paid to help me, and trying to take advantage, what if I complain? - he said "I'll just say since you hit your head, you get confused and make things up."

  • thats horrible. I'm sorry to hear that. I Hope you find better people to help

  • I think you got smarter after the brain injury!

    You go!

  • Selby, its not that I got smarter, its that I now can absorb more than I ever did. Things got clearer. However what labels they have for me as 'genuis' or whatever, I have so many problems resulting in this tbi. I see shadows and apparitions. Its boothersome! Very bothersome!

  • Have your medical providers come up with an explanation of "seeing things" that makes sense to you? Something besides mental health labels like psychotic? You might be interested in reading online about temporal lobe seizures...

  • Anita, I don't have a 'team" of medical proviers over my shoulder. Actually, it has been my experience that no one had clue and all they gave me was a song and dance number. I've been too many theatrical plays and know a song and dance routine when I see one.

  • :-D ! Yes, it helps to have a good BS detector! And persistence in saying no, no, no to things that don't seem right. BTW, I did not have a "team" either. I was not treated by the UW folks shown in this film (they just made the film look that way without asking me). Lucky for me, the two good therapists I ran into, who were also very effective gatekeepers in healthcare system, were able to outweight the legion of clueless. Thanks for being here!

  • Anita,Just to share with you this: I drew a line between myself who doctors told me that I needed meds and my HUMAN self who needed peaceful surroundings and people who assisted me in getting more involved with life. I found peace and those people. I am not taking any meds and don;t expect to. This HOW I am getting better. Thanks for responding and listening

  • This is my problem, I haven't found those type of people nor doctors.

    A person can not heal properly with bullies and users around.

  • Had that problem first few years of TBI. It was cause by nuorotin for nerve damage & complete numb below my breast bone, or/& a combo of the meds given me, I went off of them & it stopped, but I didn't understand that I had TBI for another 8 months or so after that, even though I was told, I didn't understand. you don't know what you can't remember, healing started the most when I learned from another TBI that acted just like me, what was wrong & the Vail dropped, & I learned to laugh at myself

  • Brain chip - CHECK MY SITE.

  • CSF drops teh blood brain barrier, and activates the white blood cells to replace damaged celsl from the CNS.

  • I am 21 yrs post subdural hematoma/CHI/TBI, brain surgery...ect I have been resrching evrthng about TBI. I have even been nominated to be on a BIAA board (quite an honor.) I know I know more than any graduating med student out there on the brain and TBI. It is permenant, cells do not regenerate. The hardest part of my tbi is the new learning, and delayed recall.

  • 1987, no disrespect intended - but the idea "once brain cells are dead, they're dead" has been disproven. Research since the 1990's (and since what doctors told you originally about your TBI) gives recent TBI survivors like me a lot more hope! What is true is, "use it or lose it." Sadly, telling people they cannot expect to get better becomes a self-fulfilling prophecy if they then do not try.

  • I am not saying "one can not get better." I do know that the 90's was the decade of the brain and their has been so much advancement. However, once a cell dies, it is gone and there is no bringing it back. If you could see me and know what they told my parents, you would never believe it.

  • "once brain cells are dead, they're dead"

    How can you disprove that statement?

  • I am so glad you asked! :-) The day after car wreck, I could not walk. I also could not read, remember anything for more than a few minutes, when I tried to write, words and letters came out backward and upside down. According to old medical view, my broken bones would heal but not my broken brain. Now I can walk, and read, and write this note to you, and work. Never give up. Never listen to anyone who says "You can't." If you can't now, try again in six months or a year.

  • Your braincells aren't dead then.