The Boy Whose Skin Fell Off (Jonny Kennedy) 4/5

[TheGideon92]

Y U NO SHOW PART 5 IN GERMANY!

[xXGetFucKEDUpXx]

Im glad this guy died because it fucking sucks to be liveing in pain suffering and all other stuff  R.I.P. Jonny

[n8tivguitar]

i sure hope there life after death

[MMMDaDay]

@n8tivguitar the real question is - is there life before death ...

[n8tivguitar]

@MMMDaDay death before life like jonny wanted

[thechickable]

jonny, you didn't come to learn, you came to teach. thank you for doing so with such grace. you have taught us well. mission accomplished! :)

[shotgunromance]

I love that he accepts the fact that he's dying and doesn't wallow in self pity. He lives life and doesn't want people to feel sorry for him. It's amazing, I honestly can say that I would not be able to do the same.

[TheFionstein]

if I new I was going to die. I would like to be alive at my own funeral. I would like to see what people have to say about me and what they liked/disliked. I think that once you see that, everyone can die at peace.

[mitchellloomis]

My skin disorder does not in anyway compare 2 this, but it is very discomforting when it does breakout. I was diagnosed with Darier's Disease/Hailey Hailey. Kudo's 2 the Mother who stood by his side through all of this

[MrPierce333]

i wish i could meet this kids and tell him how sorry i feel for him

[fluteplayer]

His brother is a great example, what a sibling can and should be and to never take life for granted!!!

[emaresea]

His father sounds like a major asshole.

[k92091]

i shut my eyes and cried

[Xeno25]

This story is a true testament of a mother's undying love for her children.

[accordingtolive]

This is great for anyone scared of dying, or dealing with the death of a loved one.

[BarrockYomamma2010]

R.I.P. Dude

[IstalkBananas]

SALT BATHS????? That´s pure torture!!

[BLUEYdiceCLAN]

RIP my dude

[zoeymypup1]

RIP <3

[irishgirl993]

Started bawling like a baby.:( In a way you'd feel sorry for him, but at the same time you have to see the strength while being in such pain.. Putting up with it for so many years, this is the type of people that are strong despite how we live in such a darwinistic world. Feel like such a baby when seeing how I'd complain about stupid things.

[Caliera]

This is Strength

This is Courage

This is Beauty

[ClaireyMarie]

I didn't know this beautiful man. But I miss him.

R.I.P Jonny Kennedy, you've made me appreciate life and cherish every moment, good or bad.

[Nibbit]

Look at his cute little red cheeks when he's got his wine :).

[tavern2468]

it was so nice to see him smile in the jet: ''fannnntastic'' : D

[The3ang3ls]

Loveee their accent!!!! <3

[kellydjelly]

johnny felt a lil better with that wine;) he's in heaven now.

[kayper54]

I agree with Jonny that we're put on earth to benefit from lessons, but I don't think Jonny was put here to learn necessarily, but to teach the rest of us.

[mathiasvanacker]

Can i ask how old he is in this video?

[kayper54]

@mathiasvanacker 36 years.

[ItzR3zR4pt0r]

what a guy, RIP

[alialvarez100]

i'm so sad it makes me want to cry......

[truerubberlegs]

what sick minded people could dislike this

[ArabSudanese101]

:'(

[TheBlJake]

There is no 10:18

[ronvins]

How many of your shut your eyes and pictured what he was describing?

[OrthodoxDarwinist]

@ronvins

He described it beautifully.

[muaythaiguy6669]

@ronvins I did

[truerubberlegs]

@ronvins He is telling us his glimpse of Heaven.

[hellerenee]

@ronvins I did.

[MsCourteau]

@ronvins i closed my eyes and thought of Johnny soaring away

[ViRGiNsOnLY]

hello im watching this from 3025 and i can say that this documentary is a farse, he didnt die. This man is obviously darth vader...

[MsMaggieOC]

I always loved the English for their refreshing honesty.

[radtwelve]

I certainly learned some lessons from watching this series of his last few months of life.

[wreckem881]

He deserves the best drugs out there to improve his quality of life

[LovelyLenore]

I love him so much, he was so strong and funny and brave. He deserved so much better.

[GetStencilD]

That scene in the airplane... BAWWW

[tackyman2011]

I like this guy. He's real matter-of-fact. So is his family. He has dignity. I think he did OK in this life. I should go out with this much moxy when it's my time.

[Superkittensnugs]

@tackyman2011 I think everyone could do with being a bit more like Jonny. But you hit the nail right on the head. He was the very definition of dignity.

[gaiagale]

true wisdom ...to prepare for death as Jonny ...remarkable

[LILO1198]

this is by far one of the sadiest stories i have ever seen jonny i know your in heaven with god

[aliciaanne]

LOL, Jonny was in love with Nell.

[HippyDippyFool]

Incredibly touching...it does put some perspective on my own life. All my problems are trivial compared to so many. It's sad I have to see another person suffer like this to realize that...

[RoseyLovesBritney1]

I feel so bad for him!! I cried ! Its so sad he had to deal with all that pain & suffering ! Jonny I hope your happy in Heaven ! <3

[otakufanatic98]

I've gotta say, when the video started, and he was smiling in that airplane, it warmed my heart.

[MrFrosty1178]

and wat happend to his brother

[MrFrosty1178]

thumbs up if you whould have stay with him if you were hiis father

[bramachari]

I have no problems. Not one.

[walrusluver77]

two people obviously don't have a heart

[34525314]

every normal born person takes their life for granted. jonny opens your eyes to reality

[PaintedinallColors]

HIs Mom is so strong, such a wonderful woman.

[blackbarbiie89]

So nice that he shared his story.. so inspiring.

[AuthorSCFanChannel]

"I'm not gonna be there, but I'll come and haunt you" lol! Jonny what a wonderful character. Amazing human being, RIP Jonny!

[musixlurver98]

its sad to see but i wish i had the strength u had

[72cherbear]

Oh Jonny, I pray everyday for strength like yours. I hope people like you are kings in heaven. I hope you're flying free over crystal waters and pine trees. I hope you can feel the clouds touch your face as you fly by. Be free love, be free.

[Natindahat1]

Who is that model? She is wonderful, what a fantastic genuine, caring person. Johnny is so inspirational.

[makezmuzic]

What an amazing man.

[jewgirl952]

I saw this special on TV twice. Jonny is someone you never forget. If all people in the world were like him, we wouldn't need politics or religion. We would all be equal. This wouldn't be the world anymore. It would be heaven.

[Zebonka]

Nell McAndrew is hotter than two hot things that have crashed into each other and landed in a hot sauce factory.

[highestpower999]

did his father commit suicide over him? :(

[star161943]

@highestpower999 not that it says but i woulnt think so hope that helped

[poempoorlywritten3]

Is there better treatment for people with EB now? I would hope so..

[Barnabi20]

@poempoorlywritten3 In the vid it says there is just it was 2 late for him

[poempoorlywritten3]

@Barnabi20 I know. But I mean, are there better medications or treatments for those people nowadays?

[Barnabi20]

@poempoorlywritten3 I'm pretty sure there are... Though I don't know what they are...

[asxwexdream]

Jonny was such a gentle and kind spirit! I've never met anyone in my life who is as kind as him, what a great sense of humor too! Even with one of the most horrible and painful diseases, he was able to touch the lives of those around him. Amazing!Truly Amazing!

[cottrellness]

He was such a beautiful person inside and out, its very rare these days to find someone who keeps that childhhod innocence and kindness under such circumstances. He was kind and funny and all the things healthy people ARENT. This is just further proof that even through personal agony YOU and only YOU are responsible for who you are and what you can be. I dont have a wish for Jonny because he is no longer suffering,for his family a sense of relief and calm knowing they helped him all they could..

[angelicinspiration1]

JONNY HAD THE MOST INCREDIBLE SENSE OF HUMOUR. HE WAS INCREDIBLY INTELLIGENT. LOOKING OUTSIDE OF THE SHELL THAT CONTAINED HIM, HE WAS SO ANGELIC IN EVERY WAY!

[Serenitynite]

What a courageous and wonderful man!! we all lost a beautiful spirit but god and heaven gained a beautiful angel. <3

[caasiful]

i have a tooth ache as i watch this, n the pain makes me feel like i will lose my mind, i see hw much he has suffered almost on a daily basis n he is strong in faith n accepted it all. Not once did he say "why me", instead he sought his purpose in life. i pray that God keeps his soul in eternal peace. i wish i had his strength.

[thehumanbirdie]

@caasiful

omg me to O_O I think my gums are infected

and I agree with you fully =]

[talzypoo]

"Oh, you can say something! You can say; "Thank god that old fart's gone!" Haha He's awesome.

[XenomorphLV426]

what a remarkable person. I hope your having up there, RIP brother.

[masonsohi2]

this man touched my heart

[shorteylove]

Did he know when to die, since he orders coffin and so on??

[photographylovergr]

@shorteylove I don't know if you watched the previous ones. He knew he was gonna die eventually because his doctors had told him that he had terminal skin cancer. That's why he ordered the coffin and arranged his funeral.

[29martian]

I could hardly make it through part 3 so I skipped through but he did it for 36yrs. cheers Johnny boy

[Hermelinchen1]

wenn einer den himmel verdient hat....dann jonny.ich hoffe du hast deinen spass da oben.....bis dahin,lg c.

[jontibloom]

I dont believe in God, but if there is a Heaven I hope its reserved for people like Jonny

[stuffedolivia]

@jontibloom agreed

[hailey2800]

this is so sad for real i cant even imagine the pain he went through but he had a good spirit and he seems like a nick person and i wish i could have met him

[PsychedelicSodaCan]

He's got a good sense of humor. =)

[milkandmeat]

:44 was awesome

[FunJessica]

he liked the blonde girl?

[dReALoOvEzYoOh]

omgsh! one of the many things that makes me sad is that hes planning hes funeral himself, in reality ppl doo it for you, not yourself

:///

[Plozen]

Not true. Lots of people plan their own funeral.

[1Oneto2]

Yeah this was reality and he planned it for himself.

[YTMD91]

If we can live to have souls as half full as johnny's we've lived to the fullest everyday. Johnny is and will be an inspiration to anyone. lie in peace and sore free big man, huge as you are, physically and as a soul you are!

[keef78]

Its so aweful to think his father rejected him and was embarrassed by him, you can tell johnny is a very old soul and i dont think he'll be coming back to this earth, i think he's done his time on this plane and will move on to a higher one. i wish i was as brave as him.

[Star13570]

agreed this documentary really touched me jus tht meaning of it outside the horrible disorder that he had to go through.

RIP John Kennedy.

[laurenwastaken87]

@keef78 I suppose people deal with their grief in their own way. Thinking the answer is to run away and to feel embarrassed. A guess he felt like a failure as a man coming from the 'old school' way of living. But I think if Jonny's father had stayed I believe the relationship would have been extra special shame the father didn't see it :(

[klimtog]

@keef78 I so agree with you comment!

[OrthodoxDarwinist]

@keef78

Can't believe what his father did, it takes a truly horrible person to chuck your kid who has no skin in a salt water bath.

[austin10123]

its a boy dumb fuck

[JoshSitar]

He's talking about the blond woman, Mr. Snap Judgment.

[forbee43]

i hope he's in heaven <3

[adarkenedmind]

That must have been such a wonderful experience for him to get to fly like that.. that would have been so awesome.

That had to have been hard on Jonny to deal with a father like that.

I like how his brother and him can have a good time bantering back and forth. That's always a good, healthy relationship to have.

I liked the housewarming party. Everyone got a chance to see him and say their good-byes as well as have a good time.

[russianninja989]

seeing him flying and and a smile on his face made me cry

rip jonny

amazing story

live on in heaven

[cottrellness]

<3 RIP love

[jayne1p]

that happy place sounds so perfect. He was so strong

[ekhornbeck127]

absolutely priceless... though notice the way that the viewing figures have dropped off significantly from the 30 or so thousand who have seen the first part of this documentary!

i shudder to think how many have actually gone through to the end with jonny.

[beatjunkie89]

hope your in a better place!

[l0lr0flm40]

He is!

[idonthaveacoolcar]

i dont have the strath to do that id be like mom im going to kill my self and jump off a cliff

[sharenslattery]

r.i.pxxxxxxxxxxxxxxxxxxxxxxxxx­xxxxxxxxxxxxx

[kptheegoalie]

Jonny is amazing and extremely inspirational. He could've just sat around moping his whole life, praying for death, but instead he embraced it and lived life to its fullest.

R.I.P Jonny <3

[tinkerbellinparis]

at 3.50 onwards..thats class...what a sense of humour!

[DarrenLiu123]

it is easy to die, but way harder to live. He lived 32 years and finally decided to die.

[photographylovergr]

@DarrenLiu123 decided to die? he had terminal skin cancer. He managed to become 36 years old.

[xxstrxxstrxx]

jesus, poor kid there are hole`s all over his neck. god dont exist, if he does why he let people suffer then? god is just a fucking story. poor boy, rest in peace.

[chocolatelabfreak]

i get eat ur saying but god DOES exist, god does love him and is in as much pain as johnny is wen he sees him suffering, now johnnys pain has ended and he can be in his imaginary place 4ever :'(

[gobblerdallas]

"Is God willing to prevent evil, but not able?

Then he is not omnipotent.

Is he able, but not willing?

Then he is malevolent.

Is he both able, and willing?

Then whence cometh evil?

Is he neither able nor willing?

Then why call him God."

-Epicurus

[zombiebackrub]

haven't you been paying attention to what the man's been saying? jonny himself says that he believes the earth is like a classroom and god creates your life so that you can learn a lesson. how are you to learn anything if your entire life is perfect?

i don't personally believe in god, but i do believe that if more religious people considered their religion the way jonny did, people would at least be able to get along better.

[hellohello66666]

very well put, he doesnt go along with a dogmatic religion like christianity or islam, he makes his own religion that suits and aids him

[GodOnStrike]

Beautiful point :]

[boozesharell]

@zombiebackrub God is real.God is the lord and the Savior.He died on the cross for our sins.He is King of Kings.

[TheGabybot]

@boozesharell

i believe in God but you cant force your beliefs on others

[melvasaiel]

@zombiebackrub, Agreed. I am also an atheist, but I can respect Jonny's need to believe in an afterlife. His viewpoint on it seems very Buddhist-like in thinking. He's here to learn, and if he doesn't, then he comes back for another shot.

[TheJediCharles]

@zombiebackrub

The most eloquent and on-target comment in a long time.

[sazzy925]

yeah it's times like that when I doubt god. I'm not a typical christian at all, and it's times like that when I just look at everything that religion says and ask why this has happened.

[melukpita]

estoy de acuerdo con vos. si dios realmente existiese no lo hubiese hecho sufrir de esa manera.

[lilspliff69]

@xxstrxxstrxx he isnt aa kid

[photographylovergr]

@xxstrxxstrxx he was a 36 year old man trapped in a boy's body because of his condition. Didn't you read the introduction?

[richard6979]

Amazing person, unbelievable attitude towards life even after suffering so much.

[clady82]

The begining of this segment is my favorite part of this documentary...so touching...

[thonymom]

We need to be in the shoes of that mother to understand. We can't judge what we don't know.

Only God knows the answer to all our questions.

Only God knows what, we mother of special kids, feel.

[Googonx]

Thonymom is right, you have no room to talk. And besides, put yourself in her shoes, and even Jonny's shoes. Would you liek to live a life of discomfot and agonizing pain, and be compltley limited. At least quadrapalegic people are in pain all of the time.

I am a guy, and I think the only right time to abort a human being is when you know it will live a life of pain and want to die anyways. Jonny is actually looking foeward to ying.

[KungFu17]

you have a point, herecomes...i don't necessarily the mother should be able to make that choice, but i think adults should be able to choose to end their own lives with legal and medical support. and only the competent adult should have that right -not anyone else. then it's between that person and God.

[dyerik87]

humans as we are, and just mere creations of a god, how would we know what God would think?

[videohoster]

i concur

[GiveTheRabbitTrix]

The mother makes complete and total sense. She has seen the suffering that Jonny went through, and Jonny even said himself he would abort a baby if he knew it had E.B. And he DEFINITELY has a right to say such a thing. He would know if he'd rather be dead than life the life he did.