I wish you and your children very well. Please let me know if there are any options for me to contribute financially or by fundraising to RB research. I am a runner, and could use this as a forum to promote awareness of RB.
My granddaughter was just diagnosed with stage four retinoblastoma. They have scheduled to remove her eye in 3 days, as they say this is the best solution. The other is to go through 3 or more years of chemo. I only have this weekend to gather information on any other alternative than having the eye removed. I am seeing stories of kids having some form of other treatment. Any info would greatly be appreciated.
I am so glad you did this video!!! I was cryin. My daughter also has bi-lateral. retinoblastoma. It has been very very scary for me. I cant believe it is real!!I want to wake up and my daughter Reece to be ok. Thank you so much for letting expierence your story, robin
I was born with Retinoblastoma, and had my first surgery at the age of 9 months and underwent 10 surgeries till the age of 14, and i am only 15 right now
I wish you and your children very well. Please let me know if there are any options for me to contribute financially or by fundraising to RB research. I am a runner, and could use this as a forum to promote awareness of RB.
iammdeepak1 1 month ago
all of those boy where so so cute
superstarmariah 1 year ago
My granddaughter was just diagnosed with stage four retinoblastoma. They have scheduled to remove her eye in 3 days, as they say this is the best solution. The other is to go through 3 or more years of chemo. I only have this weekend to gather information on any other alternative than having the eye removed. I am seeing stories of kids having some form of other treatment. Any info would greatly be appreciated.
1956REDHEAD 2 years ago
I am so glad you did this video!!! I was cryin. My daughter also has bi-lateral. retinoblastoma. It has been very very scary for me. I cant believe it is real!!I want to wake up and my daughter Reece to be ok. Thank you so much for letting expierence your story, robin
Fillzuup 3 years ago
thank you, i hope that your daughter is doing well, please feel free to keep in touch if you have any questions.
eyler07 3 years ago
My retinoblastoma was considered a fluke, so if i have kids, they shouldnt get retinoblastoma
dogsarethebest4 3 years ago
I was born with Retinoblastoma, and had my first surgery at the age of 9 months and underwent 10 surgeries till the age of 14, and i am only 15 right now
dogsarethebest4 3 years ago
My son has Unilateral Retinoblastoma, I know exactly how you feel!! Im glad that there is someone out there that had the same experiances as me!
candancer21 3 years ago 2
Aww you have such a beautiful family .
ravenmom5 3 years ago 2
You kids are adorable! What an amazing story.
Jassie26 3 years ago 4