My son was don't for personal reasons and thank god for that as we wouldn't have found out that he was a hemophiliac. Everyone has there reasons and if that is the only thing you got out of my video then maybe you should watch it again. We didn't do it knowing he was a hemophiliac that is how we found out. Since the video my younger son HAD to be done as well due to multiple infections that caused severe bruising. But thanks for watching and learning.
i am from Cebu, Philippines. My son is 9 years old. I suspected that he has the sickness because old the signs when he was 7-8 months old; he was diagnosed as positive of having hemophilia A just last year when there was a FREE factor assay in our location since it is very expensive and we can't afford it. My son never tried the infusion of factor VIII; the only thing i did is always keep my eyes on him.......and take EXTRA EXTRA care and attention to avoid the injuries....
@johnshepardable Chill out .. you can hang out with ur freind , if you got muscles .. it means ur veines are strong .. so no problem .. they can not broke so easy .. if you are skinny . like me .. you can still hang out .. run and all this shit .. but .. no sport .. we have to live with this ...
I urge EVERYONE associated with hemophilia to listen to Episode 39 at:
HowPositiveAreYou . com
Episode 39 is about a hemophiliac who REFUSED to touch any HIV/AID$ drugs & 25yrs later is alive & wants every hemophiliac to know his story.
“Brian” (not his real name) was diagnosed HIV-positive in 1987 along with many other hemophiliacs. Unlike most of the others, however, Brian did not start on AZT. Unlike almost all who did, he is still alive and well today."
I`m 13 years old .. My mom discovered that i have this disorder when i was four .. In my country*Romania*. My country does not have enought Factor eight , this meaning i can`t do anything .. The only thing i can do is Swimming .. This really gets me sad .. And Upset ..
if u all want too kno, they both have severe hemophilia type A the worst of the worst type of it.....like i have...i have the port o cathe too...its painful to go though and its horrible ive had 29 surgeries and was in the hospital from 8 months old to age 3 and im only 13 but ive survived
I'm six months pregnant and we found out we're having a boy. I'm a carrier - both my father and his brother are mild Hemophiliacs - so we're pretty scared. Do you have any advice?
I am also a Hemophilliac ( its a blood disorder) and my doctor just told my parents a couple months back that i had Fatal Alcohol Syndrome and probably wont last for more than a year or maybe not even that long... Plz Pray For Me THX
this is a wonderful video, my son also has hemophilia and i would like to extend an invitation to anyone who has a facebook account that are touched by hemophilia to join the online support group i created the site is called
My son has hemophilia and I started an online support group on facebook its called MY BEAUTIFUL SON THE HEMOPHILIAC if you have a facebook account you are more then welcome to join currently we have over 100 members and most are hemo parents and it is very helpful to us all. anyone who is effected by or interested in learning more about it are welcom
Thank you so much for putting out this video there is a lot of crappy information out there. I have severe hemophilia A and i got all of my treatment at sick kids as well. I'm 19 now and have my black belt in tae kwon do, and the canadian dragon boat team, anything is possible with hemophilia. We can anything we want. docter carcao was actually my doctor, if anne marrie is still working there please say hi from gabe for me. thank you so much
Thank you for the video, my son has severe heamolilia too we have to decide whether we should insert a port. Idon't think i can give my son a niddle. Congratulations
My Wife had the same problem she hates neddles, but we knew this was the best way to treat there bleeds. She kind of imagined just sticking a pin in a pillow. sounds bad but you do what you have to....Good luck and keep your head up.
My youngest has a port and the oldest had one till he was old enough for us to do the needles in his vains. Both of them cried till they were basically desensities to it. They are 3 and 9 years old
We want to help as many families as we can cause we went through hell when our oldest was young cause there wasn't a lot of families we could talk to that were dealing with this and a very young child (1 WEEK old)
My son was don't for personal reasons and thank god for that as we wouldn't have found out that he was a hemophiliac. Everyone has there reasons and if that is the only thing you got out of my video then maybe you should watch it again. We didn't do it knowing he was a hemophiliac that is how we found out. Since the video my younger son HAD to be done as well due to multiple infections that caused severe bruising. But thanks for watching and learning.
Yours truly,
The family these days.
srt1589 3 weeks ago
Wtf? They circumcised their son? Wtf is up with parents these days
xn117 3 weeks ago
very informative, thanks for uploading!!
xotiffaxo 2 months ago
i am from Cebu, Philippines. My son is 9 years old. I suspected that he has the sickness because old the signs when he was 7-8 months old; he was diagnosed as positive of having hemophilia A just last year when there was a FREE factor assay in our location since it is very expensive and we can't afford it. My son never tried the infusion of factor VIII; the only thing i did is always keep my eyes on him.......and take EXTRA EXTRA care and attention to avoid the injuries....
Mrs072666 4 months ago
@johnshepardable Wow . i`m from europe .. i don`t know how kids are in USA ..
HowToHackVideoCast 6 months ago
@johnshepardable Where are u from dude ?
HowToHackVideoCast 6 months ago
@johnshepardable Chill out .. you can hang out with ur freind , if you got muscles .. it means ur veines are strong .. so no problem .. they can not broke so easy .. if you are skinny . like me .. you can still hang out .. run and all this shit .. but .. no sport .. we have to live with this ...
HowToHackVideoCast 6 months ago
I've got a son who is 3 and is a severe Hemophilac Type A factor 8 deficient. thanks for sharing your story with us!
jenjen41414141 7 months ago
I urge EVERYONE associated with hemophilia to listen to Episode 39 at:
HowPositiveAreYou . com
Episode 39 is about a hemophiliac who REFUSED to touch any HIV/AID$ drugs & 25yrs later is alive & wants every hemophiliac to know his story.
“Brian” (not his real name) was diagnosed HIV-positive in 1987 along with many other hemophiliacs. Unlike most of the others, however, Brian did not start on AZT. Unlike almost all who did, he is still alive and well today."
HIV & AID$ MEDS kill! PERIOD!
annie46664 7 months ago
I`m 13 years old .. My mom discovered that i have this disorder when i was four .. In my country*Romania*. My country does not have enought Factor eight , this meaning i can`t do anything .. The only thing i can do is Swimming .. This really gets me sad .. And Upset ..
HowToHackVideoCast 9 months ago
i am a very young hemophiliac.
TheACF12 9 months ago
doesnt suck at all im a 26 yr old hemophiliac. n my life kicks ass having hemophilia builds charecter. really its not that bad
mustanbandit06 11 months ago
Very sad & must really suck to be like that. I know a family who's in the same boat unfortunately.
rlmotionpictures 1 year ago
Best View: Hemophilia and Kids
WorldBestViews 1 year ago
if u all want too kno, they both have severe hemophilia type A the worst of the worst type of it.....like i have...i have the port o cathe too...its painful to go though and its horrible ive had 29 surgeries and was in the hospital from 8 months old to age 3 and im only 13 but ive survived
tj7621aaa 1 year ago 2
I'm six months pregnant and we found out we're having a boy. I'm a carrier - both my father and his brother are mild Hemophiliacs - so we're pretty scared. Do you have any advice?
MzSimpkins 1 year ago
@MzSimpkins Its just luck he may or may not have haemophilia
MrVissu91 1 year ago
I am also a Hemophilliac ( its a blood disorder) and my doctor just told my parents a couple months back that i had Fatal Alcohol Syndrome and probably wont last for more than a year or maybe not even that long... Plz Pray For Me THX
rbnprettygirl 1 year ago 2
this is a wonderful video, my son also has hemophilia and i would like to extend an invitation to anyone who has a facebook account that are touched by hemophilia to join the online support group i created the site is called
MY BEAUTIFUL SON THE HEMOPHILIAC all are welcome
purplekrys 1 year ago
my son has severe hemophilla a i would like to chat with other parents about it
ladycaution22 1 year ago
@ladycaution22
No problem. Where are you located?
srt1589 1 year ago
@ladycaution22
My son has hemophilia and I started an online support group on facebook its called MY BEAUTIFUL SON THE HEMOPHILIAC if you have a facebook account you are more then welcome to join currently we have over 100 members and most are hemo parents and it is very helpful to us all. anyone who is effected by or interested in learning more about it are welcom
purplekrys 1 year ago
@ladycaution22 My Uncle has Hemophillia and it's sad to see him struggle but he never gives up God Bless.
cubbs357 1 year ago
@ladycaution22 awww im so sorry, god bless you and your son andd I hope from the bottom of my heart he is ok :), just be carefull with him ok?
ImSoFreakingAwsome 1 year ago
Thank you so much for putting out this video there is a lot of crappy information out there. I have severe hemophilia A and i got all of my treatment at sick kids as well. I'm 19 now and have my black belt in tae kwon do, and the canadian dragon boat team, anything is possible with hemophilia. We can anything we want. docter carcao was actually my doctor, if anne marrie is still working there please say hi from gabe for me. thank you so much
FTW0FTW 1 year ago
Thank you for the video, my son has severe heamolilia too we have to decide whether we should insert a port. Idon't think i can give my son a niddle. Congratulations
fleurnoire1 2 years ago
My Wife had the same problem she hates neddles, but we knew this was the best way to treat there bleeds. She kind of imagined just sticking a pin in a pillow. sounds bad but you do what you have to....Good luck and keep your head up.
srt1589 2 years ago
thanks , i think i will have to get used to neddles. does your son have a port? how old is he? does he cry?
fleurnoire1 2 years ago
My youngest has a port and the oldest had one till he was old enough for us to do the needles in his vains. Both of them cried till they were basically desensities to it. They are 3 and 9 years old
srt1589 2 years ago
i think your doing an amazing job. my son has a port in it gets better within time. he just lays there. i will soon post some of my own video's.
goodluck
ejNdale 2 years ago
my children have this i found it a good insite 2 the illness thank u
bryannaandleo 2 years ago
No problem,
We want to help as many families as we can cause we went through hell when our oldest was young cause there wasn't a lot of families we could talk to that were dealing with this and a very young child (1 WEEK old)
srt1589 2 years ago
srt1589
Are these you and your kids in the video.
robby19921 2 years ago
It was on Slice Network in Ontario Canada.
srt1589 2 years ago
what tv network is this from?
xokelseyxo7 2 years ago 2