Living w/ hypothyroid: Ep 003 at 100 mcg of Levo

[bratxx666]

u all people are sick... i got thyroid n i am all ok .... i dont take stress. i go gym ... i dun let myself feel miserable..... fuck u alll. sick people...

[poo5244]

whats ur recent update

[chrislgrooms]

I have hyperthyroidism. I was diagnosed about 3 years ago. I went about 1 year without taking my medication and was in very bad shape - palpitations, itching, sudden extreme exhaustion, temp felt +20 higher, insomnia, bad tremors, among about 20 others. I went from being very skinny to gaining about 40lbs.

[DorixDoll]

my TSH is 7.3 .... i feel like shit... Can't wait for the doc to get this shit OFF ME...

[angelwings0428]

so i was researching why I wasn't losing weight (been dieting for at least three weeks now and haven't lost a pound) and I came across thyroid issues. My mom has hypothyroidism and I have many of the symptoms listed. I never put two and two together. Will get tested and see if it is true.

[harveydog2006]

what has your gp told you the correct levels of t4 and tsh should be ????

[toussi02]

I was just diagnosed with hypoactive thyroid today. This is not a good thing because I'm only 13. I am so scared about what is going to happen, but this video has helped me learn what is going to happen.

[justacameragirl]

@toussi02 hang in there dear! I think the main thing is that now you are going to have to REALLY look after yourself. Try to eat as healthy as you can, be active even if it feels tough and always talk to your family and doctor about everything. (hugs)

[therazzledazzle101]

@toussi02 me too, but i'm younger.



[tikusrabun]

@toussi02 i never knew it could affect someone so young. All the best to you

[lacey2682]

i know what your going through i have low thyroid to i fine out about 3 weak ago for my doctor

[DaveTheJackal]

As well as this, my taste in movies changed, what I like to do with my spare time, attitudes to all sorts of things. Quite disorienting and confusing at times but worth it in the end.

[DaveTheJackal]

Some endochronologists will say "what the hell" and just up your dose. This may initially make you feel very 'speedy', like you've had 100 coffees at the start of the day but stick with it, your body will take time to find things to do with this new thyroxine (6 months or so) and as your nervous system returns to normal you may just 'feel' weird. All that's happening is that you're 'feeling' like most people do rather than being doped up by hypothyroidism.

[DaveTheJackal]

Headaches can be caused by the pituitary swelling up, a good sign it has been attempting to over produce TSH for some time. Especially if they seem to be low down, you feel pressure on the back of your sinuses/airways. The pituitary may also have adjusted itself to low expectations of T4 production, hence TSH levels may not be a good indication of the T4 you need. It may take years to adjust to (it took me 10 years to get to the stage where my blood tests correspond to how I feel).

[DaveTheJackal]

I was on a dose of 175mcg for years then one blood test showed borderline TSH results. 2 years later I am now on 275mcg and feel much better. Initially I ascribed many of what turned out to be hypothyroid symptoms to my medication. Be aware that you may have been ill for a long time and that what is 'normal' for many may seem very weird for you ... so dissin the medication isn't always the right thing to do, it may just be making you well! TSH levels of 0.3 - 3 is a good target.

[LithAmoniel]

The site that DrFitt recommend is really helpful. I'm in a similar position at 240 pounds with my wedding coming up in a little over a year, I know how infuriating following all the rules of dieting and not seeing any progress can be. Keep strong, your work will pay off when you find the proper route of treatment. Let your doctors know about the headaches next time, a different form of meds might react differently to your body chemistry. Good luck, thanks for the inspiration to keep going!

[drfittt]

Get book Hypothyroidism Type 2 by Mark Starr MD. Go to Stopthemadness website/Facebook. My experience is that levothyroxine is a poor choice for most patients. I don't see patients physically get to normal until TSH gets below 1.

[kennysteve1]

go to an endocrine doc. they will test t3 t4 rt3 rt4, anti tsh and iodine deficiantcy. plus most doc just want to just give meds that just have t4. you need t4 t3, and you need to find out why your having thyroid problems any way. its kinda like this....... you have a fever you take meds to lower the fever. you dont take meds for the infection. just the fever...... but if you took meds that fixed the infection then you will eliminate the fever and symptoms.

[kennysteve1]

hey i am just getting to know about the thyroid gland, i have hypo, the main thing you should really research is iodide. without iodide you cannot make the t4 or t3. or any thyroid hormone.please save your self alot of suffering and look into seing if your iodide deficient. iodide is derived from mostly sea water life. the further from the sea the worse the problem. that is why the started iodizing salts. theres you a Little bit to get you started

[Postofficejoe]

Hey Girl

Look at this video... The Tao of Diet - My Best Kept Secret:) ...from morningmayan

I just eat off my plate in Order, veggies first meat last, just because it made sense, I lost over 20 pounds, Im not trying to loose weight, only other thing i did was change my chip habbit to Indian snacks..and I'm not true to that.

Im drinking beer at night to try and slow this effect down, I was 190 droped to 165 its kinda scary, I thought i was sick or something, I feel like that guy in Thinner.

[VickyGoss]

I was HypErthyroid, and had the RAI and I can tell you that being HYPO is worse.

You don't want to go there believe me and you will go hypo. Trust me , you don't watn that. I would go with the Anti Thyroid Drugs, don't let them give you a "Quick fix". I would NOT have had it, it has changed my life forever and I'll never be the same. It robbed me of my life.

[goodgriefyou]

hi, please let us know how you are doing. I haver HYPERthyroidism, and I'm about to to the RAI treatment and I'm scared to death, and desperately trying to find an alternative - I'm worried that I'll go through what you're going through if i take the radioactive iodine and go HYPO. Just don't know if the hypo symtoms are worse than the HYPER.

[beckoninglight16]

So are you from London or America? I hear a slight accent, but you also sound somewhat American. :P Good luck on this tyroid thing. Hope it all works out!

[cinemachair]

Your medication is still way too low. Try and get your TSH below 1.

[VickyGoss]

I can tell you that an Endo will not know any more than a GP. I had Radioiodine I-131 at 30 MCuries 4 years ago to destroy my thyroid as my Thyroid was overactive. After 3 months my thyroid stopped working, it doesn't work at ALL. I am on 88 mcg of Synthroid and had my dosage changed 12 times, I still feel awful. I can't hardly walk now.

[goodgriefyou]

@VickyGoss - I'm about to take the RAI treatment, and I'm scared to death. If you knew then what you know now, would you have done the radioactive iodine? I'm desperatley trying to find an alternative! Are you doing any better now?

[drinkontbijt1982]

Hi there, are you also taking extra vitamine D? My specialist has me on 10 drops a day (or 4 tablets) and they say you really benefit from it. I am lucky to have little symptoms, I started with a tsh of 17,5 and am on 3 now. So check out the vit D, maybe it will help you feel better! (obviously I also use medication for my thyroid, the vitamin D is extra).

[Wish1104]

my friend has recently been diagnosed and is finding it so hard, its nice to know that other people are going through the same thing.

[faybia17]

I have a very similar situation. I was diagnosed 6 months ago with a massively underactive thyroid. I also live in the countryside an hours drive from London, i was immediately put on levothyroxine. I reached "normal" levels at 100mcg a month ago. However i also felt terrible. Similarly again, i went to my doctor and begged him to increase my dosage to 125mcg. i still feel awful. i have no energy and likewise on the headaches. The only major difference seems to be that i am 18 years old.

[cujothekitten]

I'm a year into my diagnosis and I'm still not to my normal range. I was put on 175 mmg of Synthroid (Levo wasn't working well) and it's still not right. On top of that I lost my health insurance about 2 months ago so now I'm out of pills and back into crazy land.

It takes a while to get leveled out but once you do you feel fine. Keep pushing until your symptom free. You might want to think about switching to a different brand if your Levo doesn't work properly.

[slammyjammy38]

read Eat to Live by Dr. Joel Fuhrman... changed my life!

[luisgarciaalanis]

Why wait so long to go to an endo? you should go girl, that is the thyroid expert... :(

[faybia17]

@luisgarciaalanis i have an endocrinologist- he seems to know nothing about hypothyroidism. although i still feel awful he says im fine.

[luisgarciaalanis]

@faybia17 get a new doctor ;) hope you get well soon

[mangomaxxx]

I hope you can visit the TPA website and help yourself to get will. Max

[mangomaxxx]

Kept me ill my ignoring my symptons and treating my bloods. Now I have sorted myself out and I am taking T3 Armour Thyroid. One of your vids you say you will cut calories, but this will not help until you sort out your slow metabolism. If you reduce calories, your body will go into a 'reserve' state and this will slow down you metabolism, resulting in........ you guessed it, even worse symtons. The only way to lose weight is to have the right dose that will elimenate all symptons. I hope

[mangomaxxx]

There is so much information and support from the Thyroid Patient Advocacy website. Here you will find help if you post your blood results. You will find that Levothyroxine is not the ONLY treatment and does not work for everyone. The blood tests are flawed and the NHS specialists have to abide by a stupid set of rules. Google Dr Barry Durrant Peatfield, the author of 'The Great Thyroid Scandal and How to Survive it'. He runs a practice in Surrey. My GP and Endo kept me ill by ingoring my

[mangomaxxx]

Hi Justcameragirl,

There are many things to consider when treating thyroid conditions. First, you have to establish that you do not have an adrenal problem. Healthy adrenals are necessary and should be treated beforehand. Secondly, you have to establish that you do not have systemic candida and treat this. Then you would need to make sure that you have all the necessary vits and mineral/supplements. GP's tend to treat the blood test results, rather than the symptons.

[Noorghamwaw]

ive got Hashimotos and all these staff that u ve got, feel so tired, all body in pain... anyone can help me, just staying in my bed and crying,,,,, so tired.... helppppppppp:(((((

[wiccan987]

Hey, next time you go to your doctor you should ask to have your thyroid anti-bodies checked because that will tell you if you have hashimotos. Also free T3 and reverse T3 are also good to know your numbers for. Have you read the thyroid book yet? It is really good and eye opening. Hope this helps.

[aurialee]

I would HIGHLY recommend supplements. These are underrated and are so good for you. These take a good 5 weeks before you notice a difference, but it will be a huge difference.

google "vitamins and supplements health check." Its the first link from webmd.

this will ask you a thorough amount of questions. they give you a resource guide at the end (printable too) that gives you an overview of what is good for your particular symptoms and an explanation

[solidice242]

i take 109mcgs and i get really bad stomach cramps it should get better in two weeks though. there is this book called the Thyroid Diet i cant remember the name of the author but it has a lot of helpful information in it. especially about the three different types of diets that helps people with thyroid problems lose weight. For me a low glycemic diet helps me

[Noorghamwaw]

@solidice242 hi have u got hashimotos desease? i have 3 deseases of thyroid, do u have stomack problem also with this desease? :)

[solidice242]

@Noorghamwaw actually I had Graves Disease, I had hyperthyroidism first get the Radioactive Iodine Treatment made me hypo.... My stomach problems I think is caused by the levo.. Whenever I miss a few days of the meds and i take it again i get really bad stomach pains.

[solidice242]

@solidice242 thats supposed to be 100mcgs

[Noorghamwaw]

i was suffering like you and got same story, just got married and got health problem, had panic attacks almost every day, embulances, couldnr walk, couldnt breath normally, in uk my gp sent me to mental clinika like i has dipression, after suffering all year my husband sent me to my moms home in Ukraine, Simferopol, there is big medical university and there is a doctor he found out what problem i ve got straight way, everything u say on videos same happened to me, im 27, married

[trissel13]

best of luck to you-- I have diabetes and a number of other problems (not hypothyroidism) but I know how frustrating everything can get.  Hope ur feeling better soon!

[mermaidjana]

you are helping more people than you know by making these videos. my only advice t you is to check out natural dessicated thyroid, as many people seem to react better on this than synthetics. I don't want to push ideas on anyone, just giving options.

For exercise, I recommend Jillian Michaels. Love her, lover her workouts, and coincidentally, she also went through hypothryoidism and looks absolutley amazing. she went the bioidentical hormone way, another option.

stay strong.

[1Sunrose]

Thanks for the up-date video. I don't think the doctors know how to help us through this. The want to help but I think they need to try to see the big picture. I feel better because of changes in diet and some stuff I read on the internet ...like toothpaste with Floride is no good for people with Hypothyroid. Soy is also bad for us. I just keep making small changes and I am starting to feel better.

[GazMaddogJones]

Hi - you pickin' up the accent, thats cool x all the best to you X

[paul20072007]

I can relate to the control thing. Hang in there.

[taytay2befit]

oh sorry hun

i hope the drs get it figured out...r they giving you something for the pain? this can be a hard thing to figure out as so

I was told anyway...