Dystonia and Parkinson's PSA

[Masormy]

This ad is really bad. Small children for making everyone sad, like everywhere. The piano music, some "great" person, who speaks and some hope here and there.

[1petelee]

Thank you for this video. (Cute girl!) Creating awareness among people who don't have dystonia is half the battle. Even most doctors are unable to properly diagnose it. I have cervical dystonia, and one way I fight back against public ignorance and medical misdiagnosis is by posting ads on craigslist and elsewhere as follows: Title: "Twisted neck with spasms and pain?" Text: "You may have Spasmodic Torticollis, also known as Cervical Dystonia. Visit (website address of national support group)."

[xxxAlphaxxx5]

to me that girl seems normal

[brittbo2006]

i find it ironic how they get ACTORS to do PSAs....

[aeropostale1023]

my dad has parkinsons his medication gave him dystonia

[toobaka]

alright ill be honest i laughed

[barry1baker]

That's really insensitive. Even if you laughed (and probably in privacy), you could have kept that thought to yourself. By actively returning to post your reaction, are you telling us that you want us to know that you're unempathetic and insensitive? I'd think you would have preferred to keep something like that to yourself.

[toobaka]

unempathetic and insensitive is my middle name

[jemjean]

@toobaka Hey, me too. I wish Dystonia find it's way to you or those you care about because it could really help you become a humane human. The suffering of others seems funny until you have to face it yourself. That's when you find out what character and compassion are all about. Until you find that person.....you're a waste of space.

[toobaka]

@jemjean \_/ <-- this is my give a shit cup.... notice how its empty

[jemjean]

@toobaka  I did notice how empty you are and that's too bad because there's no fix for that. Good luck with that.

[toobaka]

@jemjean not me, my cup... kthxbai

[MrBooojangles]

I have dystonia it mainly affects my body muscles in the few hours in bed before I get up in the morning and leaves me really worn out like I have done a 24 hour gym workout. But I also get the eye spasms in the day. Having seen this video links dystonia with parkinsons gets me a bit worried as I quite often have small hand tremors, like small vibrations which can make holding a camera steady, difficult and my handwriting changes each time I write.

[jstark069]

Found out I have Dystonia 2 days ago. They thought I had MS because I had tremors, but then my whole body went into a spasm so hard I almost broke my own back! Before that incident, had the same issues in the morning, feeling like I'm numb or coming out of anethesia. Also sweating like crazy at night, my left leg randomly gave out, and I have no reflex reaction in my left side, but have feeling. I get random spasms in my neck. I got an EMG and my CK levels were high to verify this. Bad stuff...

[jstark069]

I feel for anyone with this disorder, let alone how rare it is. I almost wish I had MS. My 4 year old daughter helps me on a daily basis, which breaks my heart, because this came out of nowhere. Luckily, my right arm isn't much affect, so I can still paint and draw, otherwise, I would truely be lost. My heart goes out to all with this condition, and try to have good reliable people around you, because this is deffinately something you can not go at alone. I tried, and failed. Swallow your pride.

[stevodoire]

i experienced a dystonic reaction yesterday, i was trying to sleep then my legs started having spasms

i was having spasms that much i near collapsed and whacked my head but my dad saved me from falling

glad i went to hospital to get the antidote

was not a nice feeling sitting in casualty for about 2 hours, the neck and was the worst, tried to keep my head straight but kept going to the side

then my mouth started twitching away

also sweated a lot too

not touching anti-psychotics again

[RandomMillie1991]

@stevodoire There is no antidote for dystonia.

[LedByTheLamb]

A lot of movement disorders are caused by chronic Lyme disease. I have Dystonia and it is caused by Lyme.

[bpyjktgiuk]

Brain chip - CHECK MY SITE.

[Dottilicious]

I have Dystonia and personally, I find this video a little bit overly dramatic (especially that piano music).... Yes, Dystonia is horrible and yes, people should do what they can to help. But the video made me feel like having Dystonia makes you weak and pathetic and that is so not the case at all!!

[jstark069]

I agree with you 10000000%

[Mr15apple]

@Dottilicious how are you typing this and not flipping out?

[sahiba415]

hi i saw this video and i don't now what dystonia really is i now what Parkinson's and i now what Huntington's disease if you dont mind telling me what is it like having this disease and how do you now you have this disease please if dont mind i didnt wanted to affend you thanks :)

[bellinghamken]

Please view my serious but hopefully humourous film about the cure for Parkinson’s. You might find it out of this world! In July 2011 received a commendation from the Mervyn Peake award competition organised annually by Parkinson’s UK.. It is called "IT HAPPENED ONE NIGHT...?". Just look under "bellinghamken”

[sfinkx]

@Dottilicious that's the whole point. drama sells. you make people feel more sympathy and they donate more. if they showed a bunch of people with dystonia sitting around drinking coffee no one would think anything of it

[littlelorimarie]

does christian hoff have this disease?

[MrAndrew47]

Looks like this video is about Idiopathic Torsion Dystonia

[organcomposer]

Very nice video. I am 56 yo and I have parkinson disease too.