Walking on fire (Living with chronic pain) (HD) | A film by the Wellcome Trust

[krypekeeper]

have you tried cannabis?

[mrsbrunomars8]

I have EM, I am 14, and I was diagnosed a at least 3 or 4 years ago. No one in my family has this, I am the only one. It affects my everyday life.

[JohnnyX1239]

I have chronic fatigue syndrome..always tired and muscle cramps. Psychiatrists think I'm just crazy...Yea my life is so fucked up...

[krypekeeper]

@JohnnyX1239 stop drinking tap water

[JaedaBarbie]

I appreaciate this video, i live with chronic pain, i am losing my walking ability as well

[xSimplyAmusedx]

i have somatoform pain disorder, chronic pain in my feet so i understand what they are living with!

[clb877]

I have been diagnosed with EM and still struggle with the pain, despite being on medication. I hope to get the genetic test for this mutation some day soon. I want to have children, and if I do have the mutation, it will definitely effect my decision to have kids. I wish I could be one of those people who just has the normal problems in life, without any medical issues. For whatever reason, I have this disorder and will have to live with it for the rest of my life.

[LivingWithEDS]

I don't have erythromelalgia but I do have EDS and I understand being in pain and having people not believe you because you look fine to them. Its wonderful that they found this doctor that didn't turn them away.

[therealdealdoc]

How incredible that such a small genetic change can alter lives so much...

[ashley060189]

I really appreciate this video. I was diagnosed with erythromelalgia (aka: EM) when I was seven years old (I'm 20 now), & I inherited it from my mother (who was born with it). It's really refreshing to see that I'm not alone in this.

[tianaxlaney]

ughhh