He has Spinal Muscular Atrophy, a genetic neuromuscular disorder that affects all of his voluntary muscles - head, neck, breathing, swallowing. It does not affect his mind. He's a normal little boy trapped in a body where his muscles don't work.
@rer3family I may sound stupid but what is the difference between SMA1 and SMA2 because someone was so glad to hear SMA2 instead of SMA1. My thinking was SMA is just bad like Cancer is bad with stage 1 stage 2 stage 3 stage 4 being the worst A.L.S. is very close to SMA both end with wheelchairs, ventilators, feeding tubes, can't talk , major disability then death. Do SMA and ALS patients feal any pain needing morphine and or methadone pain killers.? Thanks
What a beautiful boy. Are you able to take Nate on outings or overnight stays away from home? He's not heavy to manuever right now, but in the future you may want to check out my Lift-A-Life patient transfer. It may be helpful for you.
Sorry for your loss <3
Vanillamoon22 4 months ago
how did he die
ChineseFirework 7 months ago
He is SOOO adorable.
17juicycouture 11 months ago
What does he get for food? What is the dark, black thing you give? I also fed probe
through a Mic-Key button, but we do in a different way.
Emmixen 1 year ago
I'm so sorry for your loss. SMA is such a terrible disease.
Imnotdumbimjustcrazy 1 year ago
Yes, the thing on his face is a bi-pap mask that helped him breathe. Nate passed away 4/28/10.
rer3family 1 year ago
@offspring199
I'm pretty sure it helps him breathe. It looks like a ventilator that's hooked up through his nose. I might be wrong though.
Imnotdumbimjustcrazy 1 year ago
@Imnotdumbimjustcrazy yes the thing on his face is a mask to the bi-pap ventilator which helped him breathe. Nate passed away 4/28/10.
rer3family 1 year ago
what is this thing on his face??
offspring199 1 year ago
@offspring199 yes the thing on his face is a mask to the bi-pap ventilator which helped him breathe. Nate passed away 4/28/10.
rer3family 1 year ago
best wishes to all of you, god bless
hockeyqueen 2 years ago
way don,t you get bed straps
bigtomky 2 years ago
whats does he have
MaddieTights13 2 years ago
He has Spinal Muscular Atrophy, a genetic neuromuscular disorder that affects all of his voluntary muscles - head, neck, breathing, swallowing. It does not affect his mind. He's a normal little boy trapped in a body where his muscles don't work.
rer3family 2 years ago
@rer3family
I may sound stupid but what is the difference between
SMA1 and SMA2 because someone was so glad to
hear SMA2 instead of SMA1.
My thinking was SMA is just bad like Cancer is bad
with stage 1 stage 2 stage 3 stage 4 being the worst
A.L.S. is very close to SMA both end with wheelchairs,
ventilators, feeding tubes, can't talk , major disability
then death. Do SMA and ALS patients feal any pain
needing morphine and or methadone pain killers.?
wheelslarbac 1 year ago
wheelslarbac 1 year ago
so sweet:)
jonasklj 3 years ago
What a beautiful boy. Are you able to take Nate on outings or overnight stays away from home? He's not heavy to manuever right now, but in the future you may want to check out my Lift-A-Life patient transfer. It may be helpful for you.
Wishing you the best,
Sindy
help2caregivers 3 years ago
Oh god honey, get better soon.
Crazydog7 3 years ago
What a sweet boy!
diggs1976 3 years ago
Wow was that filling for your tummy. You are very handsome boy sweet pea. Bless your heart
corky4343 3 years ago
Very cute video.
Your son, has really REALLY touched my heart.
1992peter 3 years ago