CFS/ME - Questions

[randomfreak699]

I really admire you, you are also giving alot of people out there that doesn't know what CFS/ME feels like an idea.

I personally have had moderate boarding severe CFS since i was 10years old. The doctors all said it was all in my mind.

[darlingtester1982]

I know how you feel, I having it very serve also, FMS/ME/MS/ I hate it xxx

[angelahallinan]

It seems by your comments that you r doing great. I would love to chat and know what you did to get better.

[ThingsToMakeAnDo]

You have a wonderfully strong personality ,YOU ARE DOING ALOT OF GOOD FOR PEOPLE !!! XXXXXXXX

[Auriclama]

Look up XMRV and it's link between CFS, i putted a link on my channel. Hope this helps pEAce.

[rbealey1]

Thank you Natalie. Im with you and also have had for years. I wish people could understand!. Is so frustrating. Get well hun asap.Take careX

[floydgirl7]

Wow im so glad found you!Im in pain 24/7 on meds,went from being hyper to sick,Pple dont get it the always tired aching bones,dont look sick so im not type stigma,Do you have periods of remission?I have ie a week or two when can manage,then bang bed ridden,,never 100% well,,and pple just don;t get it do they?Godbless you &one day a cure huh?xox toots

[jesusluvskeeter66]

Thanks Natalie! Have you had a chance to try any medicine? I am going to start on something called: Immunovir tomorrow. It is from Canada. We CFS don't all have the same viruses & so its trial & error type thing, but I heard from one of the best CFS doctors in Miami that Isoprinosine (also know as) Immunovir gives the CFS a 90% recovery rate. Thats a high # & worth trying I think. I hope you get better so soon. I got sick when I was 15 almost 16 years old. In August 1982. God bless you, Ana <3

[obscenely]

@jesusluvskeeter66 Hi Ana, yes, I've been on the same treatment protocol for coming up on 3 years which I talk about in another video. I agree that different things work for different peoeple and I wish you the world of luck on your new path! x

[londonsteve]

this is very good for suffers, they can all network!

:)

[neil1758]

Hi Natalie just watched your most recent video your looking much better. I was wondering if you could tell me more about the marshall protocol? how old are u?

[obscenely]

@neil1758 Hi Neil, I have another video which talks about the Marshall Protocol. I'm currently 23 - 24 in September. To answer your below question I feel fantastic, I'm even considering trying out part time work =)

[neil1758]

Hi i liked your video, i have had cfs for a year now and i can relate to the struggles. i was wondering how you were feeling now?

[obscenely]

Really good. I'm starting to drive again and even considering part time work. If you look on my channel I have another more recent video up.

[kaazoom]

Well done for making this video Natalie. There is a great need to get the right information about ME out to the general public. There is so much misinformation out there

[tsookman]

Natalie, thank you for doing this video. I learned a lot from it and hopefully more people will understand these illnesses in future.

It was nice of you to mention FM and Fibromyalgia Awareness Day. Few people know what this is about as well.

From an FM sufferer, thank you. Gentle hugs.

[creesey26]

Fantastic video, it was worth every ounce of energy you used. Having had the illness since 2003 myself i understand how hard that must have been for you to do. The more we get our voices heard the more chance we may have of getting funding into research for this awful illness. As i have been up all night in pain i have started a facebook group literally in the last few hours for fellow sufferers, ill post a link to your video on there. Thankyou natalie, great job :)

[inuk2600]

Fun? Ummmm.... LOL

I totally understand. It's a miserable horizontal existence. You just can't allow yourself to have too much fun, or else...

[Suzanne42]

I love that the dentist came to your house! Wish we had that here in America!

[hgiertler]

Thanks Natalie from a fellow Melbourne sufferer. You sound pretty huffy puffy there. Take it easy girl!

I am gonna go and watch your other video...

[landofhealth]

thanks for making this.. i have had severe me for 9 years too , since glandular fever. hugs bluebell x

[claikenaiken]

Great idea for a video!

your also lucky that you lost weight having CFS. I have it also (3.5 years) and I find that i cant do as much, but i still have just as much appetite, so im actually gaining weight from not 'working it off'.

im a moderate sufferer. luckily, i can do what needs done (school, part time work) but its rare that i go out for fun. its like an energy budget. id rather save my 'money' for things needed. i envy ppl my age who can pull all nighters & feel fine!!

[antares4141]

Thanks for the video, I think a lot of the medical profession has dehumanized us by labeling our illness psychological and implying were doing this to ourselves somehow like the drunk that can't put down the drink. This tends to make our friends and relatives not feel sympathetic in the least. It really is criminal of them to do this. Have you ever tried leaving your home for an extended period?Say 2 weeks. I have suffered for 12 years and know you can improve dramatically through mold avoidance

[fogggygyrl]

Thank you for making this video.  You did a great job explaining how it is for those of us who are severely affected. I hope you find some relief.

[E101D]

Hi natalie well done for making the video, I find it so tiring I don't try to explain anymore. It's like trying to explain music to someone who's deaf, or colour to a blind person. I think people can empathise and that's good but who'd be strong enough to really understand if they didn't have to. best wishes ed

[GBCOne]

Mental health treatment and research has blighted the world of CFS/ME IMHO. My gut feeling is that many people have been put into a bin marked "M.E." or "C.F.S." when the medical profession have given up on them. There is nowhere near enough physiological research and there should be clearer definition of who has what. Definition will not be achieved if the medical profession throw people into a bin almost in an admission of defeat. PWMEs are not going to go away.

[BretagneShrew]

such a good idea to ask healthy people questions and answer them like this. it answers alot of the questions I get asked on a regular basis.

[karandmohan]

Hello Natalie, very well done again....it's inspiring when people like you fight life's difficulties to further a cause. I wish I found these earlier so i could do more for CFS awareness day. Keep it up!

[faisalk1]

well done for making this video Natalie. I'm in my 3rd year of M.E. too and I've found that you get stronger on the outside once you've become stronger on the inside. It's a long, cruel process but stick it out and good luck.

[Primeurtjuu]

I think it's great you posted this video!

People really should know more about CFS/ME hole arround the world (I live in Holland and also here, a lot people don't even know dat CFS/ME excists, unfortunately I do know becaus I've got it too). I hope you will get some better soon, and live a bit off a normal live again (as I do, after a few years).

Take care and thanks for posting!

[deadgirldreaming]

Hair... I go into the bathroom with a pair of scissors.

Dentist - haven't been able to go for years.

Thank you so much for doing this.

[obscenely]

Exactly, some people don;t realise 'can't' go out doesn't mean 'it would be too tiring to go out'.. it means physically impossible.

Keep avoiding the dentist! I just foudn out I have another un-delyable filling that needs to be done next month :S

[nunnone]

Thank you for taking the time to make this Natalie. It's really important that people understand just how serious this "tiredness" can be. I wish you all the best.