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From: darlingtester1982
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  • Fibromalgia is one form of Tension Myositis Syndrome. It's very curable. Please look up Tension Myositis syndrome. This will save your life. I am willing to give you all the money in the world if you look this up and decide that this isn't right. Look this up. Save your life. Do it! Please just do it! It'll take 5 minutes. Just google Tension Myositis syndrome. From there you'll find out more. Please do it. I don't know how to tell people to do it. 5 minutes that's all I ask. It'll save you!!!

  • us wt hms get the symptoms plus many many more than fibro also so we know what these guys go thru and more........it is hard going but no cure uv got it u need to jus deal with it ..it sucks assssssss

  • there is no answers to the CAUSE i have MS and we have no answers they can only GUESS they say lack of vit d eh so why r ppl in hot sunny countries getting it then......they say it runs in family noone in MY WHOLE FAMILY has MS and never has done.....mine was triggered by a VIRUS .......one minute u have perfect health the next all it takes is a bit of bad luck and u dont........

  • I have fibromyagila. I acquired it by injury and let me tell you I wouldn't wish it on anybody. I'm also autistic, so my life isn't that great.

  • @JigglesJingle I just got diagnosed... what form of austism do you have? -i have A.S

  • @2202katie I have Aspergers, It's not so bad but more of a challenge. Do you have facebook or anyhing ?

  • @JigglesJingle whats your add?

    

  • Poor baby!

  • have you had any amalgam fillings done by the dentists lately? (the silver fillings they put over cavitys) those have 50 percent MERCURY in them, which is really really bad and leads to Mercury Toxicity, which also is a big cause for people having Fibromyalgia. But there is good news if you have them REMOVED the right way, it will go away. please look it up..best of luck,

  • from what i have gathered it's an elevated level of " substance p" in the spinal fluid. see" intrinsic brain connectivity".. like too much amperage in the brainpan..not enough insulation in the insular cortex..it plagues me - nuerontin helped. tramadol is ok . i smoke plenty of pot. no caffine nicotine two drink maximum. i spent months up in the hills and ate " shrooms" -like a cup each day .. fresh out of the cowpie..and now i feel remarkably better , not for everyone but look up the studies.

  • you look high on weed. get help immediately.

  • @silfern1111

    What's your problem?

  • @silfern1111 shut up asshole.

  • I am so sorry for this diagnosis. Please know you are not alone. I have been involved with someone with fibro for 16 years. She has gone through the gamut of treatments that you have or will. Find a good doctor that believes you and a positive support group. This will help you so much as time goes by. Never, ever lose hope. Sometimes, it will be hard. Sometimes, in the bad times, you will find amazing strength and gifts that you never knew you possessed.

  • Please visit my facebook page McKinnee Health Group. I have information on there about a product called NCD. My good friend Kathleen used it and all her symptoms were gone within 2 months. Please contact me from my page. :) andrea I will be glad to help you or anyone else dealing with the condition.

  • They switched me to gabapentin now and I take 300mg three times a day. It seems to work pretty good. i dont know if it's the gabapentin or the morphine thats working though. lol

  • i've had fibromyalgia for 11 years..i started using a supplement last week that has only been on the market for 3 months.within the first hour i was able to get out of the bed..pain,fatigue,brain fog...GONE.i just did videos,too..the stuff i am taking is called MitoSynergy.they are on facebook,too! please feel free to friend me on facebook,if you like.this supplement is changing people's lives. :)

  • I've been fighting fibro for about 17 years now...only things I've ound to help me are painful massages that spread out the pain so it's not localized, taking at least 1000 IU of Vitamin D daily (if the pain is high I increase my dose to as much as 4000 IU for the day and wean myself back to 1000 IU, canabis helps me to get moving just enough so I can stretch and work the pain around to dull it, and medications don't help me. You are not alone, there are more of us than they think. Many Hugz!

  • I think he is high on weed als

  • @57kjohn You stupid hater. People with fibro also suffer from Fibro "fog" and they have trouble with cognitive processess, including speech during certain times of the day, and when they have over-done it. This poor kid has a lot of GUTS to post what he is going through, and I respect him. I don't have the guts, so far, to put up a video of me when I'm "crashing" from fibro and ME/CFS. I can't even keep my eyes open, or make ANY sense when I talk. Try being kinder.

  • @MaschelleM I just saw ur vid. I feel for u. I have fms also. I can't bring myself to tell u about mine- can't do that yet. I think u need to see "Fibromyalgia one solution" on utube. I think ul find it is a reason to have hope. I saw it, and it's the 1st time I've had any hope. U look so young. I hope u find this dr has good info. Good luck.

  • I have been dealing with fibromyalgia for over a decade and was diagnosed in 2003. After being on high doses of pain killers, muscle relaxers and ibuprofen, I have found a better way to deal with fibromyalgia!! I feel better than I have in years and I am 100% prescription drug free!!! I am taking all natural products with NO side effects!! I am truly loving life again! Please feel free to contact me on facebook if you would like to know more! Rebecca Sprague Day

  • look up Dr. Robert Rowen on Youtube about Fibromyalgia

  • I can help you get better from fibro,cfs..please ad me on facebook so i can get more info on u my.this is my email squirrelsguywelsh@yahoo.com...­Not saying i can get u 100% well,but get u better,i need to know more about u, my name is Tommy welsh....I have got better from cfs and fibro..

  • Someone needs to find an answer for the cause of FM. Fibromyaglia is a NEUROLOGICAL illness. It is NOT a type of arthritis nor should a rhuematologist treat this condition. Chemicals in the brain are messed up which causes central sensitization. Also immune abnormalities are present and sleep is disturbed. That is about all we know which is a damn shame. Write a letter to the CDC saying FM should not be categorized under arthritis, because that is how it is right now. We need CHANGE! thumbs up

  • @jumb0mumb0 investigators suggest it could be a form of diabolical learning, that is the nerve circuits become locked into this hypervilligant state, the ultimate cure would be to reverse this,

    tho there are other causes of dysfunction in the nerves and in the brain

  • I've never heard of this drug

  • Please be more clearly. When you talk. Thanx

  • You may wish to view my facebook wall Kristin Davies Visalus 

    Thank you.

  • I have the same thing I take 120 oxy's per month, I am trying to get off them. there is a new drug out for this type of pain. I will pass the name of it along to ya' after my doc appointment. end of this month..I have a nuerological disorder. and Fibromialgia' too... good luck with your issue. I will keep in touch.. I will do a video response tomorrow a.m.,,, and tell you more.. take care now... Timothy.

  • That's why England is going down, thank you for that.

    Greetz from mighty Germany

  • FAKE AND NOT FUNNY...........(check out his other videos)

  • Hi, I have been reading about magnesium to help with fibromyalgia and ME/CFS. I have ordered the spray from amazon and I am waiting for it to arrive. Epsom Salts are a good way to get magnesium into the body, just add a couple of handfuls to a bath twice per week. It is supposed to help sleep and the pain. Hope that helps you.

  • I smoke weed to help ease the pain, perhaps it's something you could take up ;)

  • @theyspar That's disgraceful, advising someone to smoke weed.

    Shame on you

  • @anglosaxons100 What's disgraceful is not accepting that different people have a lot of different ways of working with and reliving their pain. I'm not a marijuana smoker due to it not being covered in my pain program, but I've seen it work for other people in my state (where it has some legal status) and I'd never suggest to someone who gets their relief from severe pain that they have anything to be ashamed of just because it's not my chosen method. Shame is a sloppy construct that ends lives.

  • God bless you. My son was diagnosed with this a few years ago. I know the mental and physical suffering it can cause. Be sure to ask your doctor if he can give you some prescription vitamin D. My son was just put on it, and we're really hoping it's going to help.

  • I wrote too much the first time, the comment below and erased a lot, then I forgot to add back that I am a massage therapist. I got through the massage class on pain pills and was all dizzy and drugged to do it. But I made it, and finished. Then I learned how to do it, still while on the drugs. Later I learned how to do my own massage. Why? Massage therapists TRADE-massages. But THEY never listened to me and really hurt me. So I decided I had better learn to do this myself and I did, read next..

  • Hello there. I am a fellow FMS sufferer. I TOTALLY GET everything you are saying. Your video really inspired me, since I have FMS too. So, since other therapists only hurt me, I decided to learn to do it myself. And I have, in the easiest way possible. I have developed new tools, and techniques that no one else knows. Also, people who do not have FMS don't care for this, but it helps me with my pain immensely. I got off the pain pills. and now I only do my own massage. Want to know how to do it?

  • If you're still suffering, you might want to check out Dr. R. Paul St. Amand's Guaifenesin Protocol. I've had FMS symptoms since age 23, pain since age 34 or so. I'm 6 weeks in to the treatment, and it's the first thing in 16 years that's actually helping!

  • many people with fibromyalgia use medical marijuana to treat their pain and it is supposed to work very well when a strong dose of edible medical marijuana is ingested

  • I really hope doctors(though my faith in them is gone)discover you actually have something else after all and can cure you of whatever it is.Fibromyalgia is a daily struggle and you never quite know how your day is going to be except one thing you can expect for sure,pain and exhaustion.

    Hope you have loving family and friend who support you,this is vital,otherwise this condition can erode your soul.

  • I have been labeled with fibro also and I found this video to be very helpful.

    Fibromyalgia-Part 2-7 things to avoid.flv on youtube

  • I can help you! Aprile Plummer. Its a trinchella larvae that settles in the muscles. My mom has it too. I got a book called: The cure for all diseases. All you need to do is build a zapper! We all work on unique frequencies. I became an Author this year - Spirituality! Look me up.. All it takes is a 9volt battery to zap those parasites. We're all one & awakening together!! Namaste!!

  • ******Seriously... type in this into youtube- "Fibromyalgia one solution"

    Thought about seeing an osteopath sweety, looking at you it could be nerve problems due to bad posture- head too far forward, meds make this worse as relaxes muscles too much. Please look at this guys video on 'johnbchiro's Channel.

    x

  • It takes great courage to ask for help and because of your courage I know you have and will continue to inspire others. This is your gift to the world. I have lived with FM now for 20 years. I have a wonderful and full life that I live within my abilities. Acceptance is key. Self-care is key. Love and be loved. Focus on the good days and let the bad ones pass by as they will. I do hate it when my pain is heightened, but, I let it ride and celebrate the tolerable days. Best wishes my friend.

  • @darlingtester1982 dont listen to people like iscuba11! You didnt do ANYTHING wrong that would cause you to suffer through this. No god, if one exists, would put this on you just because you did a couple bad things! Dont let those religious BIGOTS get to you man! Just stay strong!

  • Jesus can cure you if you repent of your sins and believe Jesus is God and Jesus paid your penalty for sins and sickness on the cross. For the wages of sin is death.

    Jesus is the Great Physician - Everybody that had faith and belief in Jesus were healed. You too can be healed. I had cancer and Jesus healed me. Read Mark 16, versus 17-18 in the Bible. This is a direct promise from Jesus / God. I have in my Ministry took authority over Fibromyalgia and called out Jesus to heal it - Done!

  • Hi i also have Fibro,good days and bad,but i started taking sudafed cold talbets as a tip from my doc and it really helps i take 4 daily every day also heat packs about 2 or 3.

    Anyone else get the pain in the ribcage thats the worst pain for me with fibro feels like a 20 foot python crushing round the body lol.

    anyway good luck.

  • Jesus can cure you if you repent of your sins and believe Jesus is God and Jesus paid your penalty for sins and sickness on the cross. For the wages of sin is death.

    Jesus is the Great Physician - Everybody that had faith and belief in Jesus were healed. You too can be healed. I had cancer and Jesus healed me. Read Mark 16, versus 17-18 in the Bible. This is a direct promise from Jesus / God. I have in my Ministry took authority over Fibromyalgia and called out Jesus to heal it - Done!

  • @iscuba11 FUCK YOU RELIGIOUS BIGOT! FUCK YOU! HOW DARE YOU SAY THIS MAN IS SUFFERING BECAUSE HE "SINNED" FUCK YOUUUUU!!!!!

  • Hi buddy, I can feel your pain and would like to know how you're doing now. I thought FM was incurable, but that isn't true. After following a non-allopathic treatment, now I am free from all the FM symptoms, believe it or not! E-mail me if you'd like to hear an advice from me. I really want to do something for you. Recovering from FM is an experience you can also enjoy!.

  • give NUCCA a shot. correction of primary disaffrentation and elimination of asymmetrical dural tension and compression can do wonders!

  • Heavy metals in the body cause pain. Detox with a natural remedy and drink a lot of lemon water with honey. Whatever you do, do not get on any prescription meds. Loaded with chemicals. Use only homeopathic remedies grown in natures pharmacy.

  • EFT ,"Emotional Freedom Technique" cures Fibromalgia. If you really want to help your self, find out about this. It has changed my life forever. You can do it yourself, and if you contact a practioner it will help you even more. This WILL help you, but you haveft to take the first step. :)

  • Hope you are hanging in there. here's a GREAT check list of FIBROMYALGIA symptoms... things I am certain you, as a sort of 'newbie' to the subject matter, might not have EVER been told.

    nfra.net/Symchart.htm

  • We have to learn to live with it..

    I know the pain, I`ve had it since since 1991..

    Pain clinic twice, but in the end, we put our faith in Christ....

    Carry on as best ya can, even if it means your in bed some days for 22 hrs.

    Even the bottom of my feet never stop burning now, this has gotten so bad...

    That I don`t do much walking these days

    Good luck anf God bless to you

  • i strongly recommend neo-reichian methods like alexander technique, feldenkrais also rolfing and reflexology. no quick fix but they changed my life.

  • Please buy Kratom from a organic supplier like source1herbs just google them, you need to take 3 grams of powder in a glass of any liquid like orange juice, water, smoothies and drink in 5 mins. It taste like crap but it works for pain big time and is a leaf from the kratom tree, it's been used for over 4000 years. Head shops in UK sell it as an herbal high, don't buy it. Only source1herbs or another global trusted organic supplier. Kratom is like Oxycontin but from Mother Nature instead, Trust!

  • @cryinghippy I gotta say this person is correct! I have tried and used kratom when I was running low on my opiates (which work for me far better than the gaba drugs do) and it has helped somewhat, along with changing my diet and light exercise using the Miranda Esmonde White Classical Stretch program on PBS.

  • there is no medicine what really works.. get to know your body, experience the pain , listen and cope, accept, do not get yourself be made into a zombie...

  • Caused by sugar and vaccines. 

  • @cottoncandypoms FUCK YOU!!

  • i truly don't believe that you have been diagnosed with the correct disease. I have fibromyalgia, since 2001. The symptoms you are displaying are extremely familiar, as i had a cousin who had dystonia, which is also called "the mystery illness". The movements of your facial muscles, speech and body movements, mimic the exact effects that dystonia caused in my dear cousin. Change doctors, please! One that specializes in dystonia. God Bless you and heal you with His gracious mercy. <3

  • i truly don't believe that you have been diagnosed with the correct disease. I have fibromyalgia, since 2001. The symptoms you are displaying are extremely familiar, as i had a cousin who had dystonia, which is also called "the mystery illness". The movements of your facial muscles, speech and body movements, mimic the exact effects that dystonia caused in my dear cousin. Change doctors, please!

  • your annoying to listen too, where u from , lol

  • hi there dear...I can't hear u very well but i want to tell you i've been dealing with this disease since i was 14 and there's no magic pill :( U have to learn to become stronger mentally in order to get by. I often tell myself "pain shall never triumph over my life" The pain comes in many forms from chronic upset stomach to headaches to shooting and buring pain all over ect. causing other health problems but you have to find somthing you enjoy enough that keeps U from drwonding in the pain

  • Dearest Boy! I understand completely, and want to assure you that you do not need to continue living with FMS any longer. I am a recovered fibromyalgic who understands this illness from the inside and back out again. Do not give up from failed hope. Keep going, and you can cure this horrific disorder!!!

    Valerie Lumley, Recovered Fibromyalgic and author of "Curing Chronic Fibromyalgia - Choosing What Works"

  • There is no medical cure, no medical treatment. Remedial treatment remain the only way to resolve your problem . There are people as young as 15 with severe Fibromyalgia muscular disorders. Just follow the link and if underage, let your parents search this link and get in touch. Alll guarantee is given. No scam, no trick. is real.

  • please visit dr jhon sarno here in youtube

  • "Dr. Steve´s Banjo" seems to work for many patients, as a pretty natural medicine. Let´s check it out.

    God bless!

    Mikel

  • There is a treatment for Fibro and many other nervous system disorders. Please reseach the drug Low Dose Naltrexone. Loads of videos on Youtube. Watch the Dr Chris Steel ( GMTV ) Video on Youtube.

  • do you take a lot of medicine?

    greetings!

  • I have Fibromyalgia since i was 12 years old, now im 16 and still being a hell -.-'

  • I understand. been this way for 26 of 30yr. like the flu x10 all the time. cant sleep, nights are worse. the pain riddles you all the time. quality of life just isnt there anymore.  I have kids and cant play with them. i feel like i have acid running through my veins, i pray that u find something that helps. i have found little to help but narcatics, then the docs just took them away which was much worse. there are few doc that get it. be careful who you see and what you take. research!!!

  • @shy5556879

    I was just reading your post and wanted to say thank you for sharing.... i can relate because i too have 2 little ones whom i can't hold nor play with nor hold or carry for long periods of time which breaks my heart so when you said 'it takes away the quailty of life' .....well you couldn't of said it better.......

  • check out stopthethyroidmadness

  • Las enfermedades tienen cura, todo esta en saber alimentarse, me refiero a que el c uerpo reciba NUTRIENTES, como sales minerales, vitaminas, proteinas, aminoacidos, antioxidantes, etc, y veras como la enfermedad va desaparecindo, espero haberte podido ayudar en algo.

  • NubNizzle: I totally agree, and also have FM. Natural remedies really do help. Like vitamins and minerals, light exerise (if you can) and eating right.

  • i am always in pain, i thought it was just me, but its the fibromyalgia. i have learned to live with it. seek natural remedies and dont take the prescriptions the doctors give they just want to make money there are natural ways

  • keep strong and try your hardest to stretch and do minor excercises when u can god bless u

  • hi there good vid i have fibro i hurt every day i suffer just like a lot of people and what i wood say is put your faith in christ god bud he is full of love and loves u and wnts u to know this just ask him to come in ur life and mean it with everything u hve

  • The only thing that helps my pain was to watch youtube tapes. It takes your mind off the pain. I still have the pain. No baths. You should try some music tapes. take up a language course. It takes your mind the pain about 20 per cent. I just got a hobby, it helps some.

    I wish you well, May;be go to school part time. If the pain leaves you, at least you some job skills. Love you. take care. I know that it is hard. It is hard for me too.

    Harp music is good.

  • I was diagnosed with it. It hurts so bad I cant even use blankets on my skin. My muscles hurt to the bone and I'm always tired. One drug does help alot though, and it's called Lyrica. Ask your doctor for that...it helps with the pins and needles and muscle pain. I couldnt live without it! plus, it's non-narcotic..I'll do a video response for you!

  • lyrica u dont wanna touch that medication it really messes with your head , i have tried lots off medications from doctors and alternative treatments to find no help, i have suffered with this condition for nearly 5years and will never settle until i find a cure. at the moment i am going to cut out certain things in my diet and will a diary and keep u posted, my heart goes out to all who suffer with this frustrating horrible hateful disease xx

  • @pvampire my Grandmother has fibromyalgia and she used to take Lyrica but stopped because she noticed that her memory was being effected."I couldn't remember the simplest words I used to use all the time" She asked the doctor and was told that the drug induces memory loss in some patients. Eventually she decided that her ability to carry on a conversation was more important to her than the pain relief. I wish you well :)

  • @pvampire lyrica does NOT work for everyone. Some of us still need the coctail of nuerontin and something else like an anti depressant, Please do not push that medicine especially with someone who has any kind of depression. It can cause suicidal thinking as one really bad side effect. Thats only 1 of them

  • @danibg81 I'm not pushing any medication, just stateing my experiences. Im prettty sure I have the right to do that just as you do. Further, if you look at nuerontin and just about andy SSSRI you will find depression and suicide are all side effects of them. I'm saying lyrica helped me is all. Not that anyone else should take it. Thats just my humble opinion. Anyone who is in serious pain of that type..ie nerve or immune sys. should give it a try at least.

  • @pvampire what dosage were u on as im taking it and the spasms pins and needles and muscle pain have got worse im also taking naproxen, tramodol, amitriptilin and an anti sickness

  • Honey, I am sooo sooo sorry to hear about you having fibro, it's a personal fight, you must be strong as your life changes, it could be slow or could be fast, but it's worth fighting. don't forget lots and lots of water, vitamins, good food, fiber and exercise when you can.

  • CHECK OUT FIBROHELL MICHELLE! watch her video's! And fight!

    mcertonio user.

  • check vit D levels, lack of vit D can cause the preception of pain to be more severe

  • fybro bloody hurts i'm on gabapentine and co-codamol which don't bloody work any oyther ideas welcome please thanks, just one snag , i have to drive so legal drugs only =/

  • ppl with minor or major diseases(might have misspelled it)or even normal ppl dissapointed with their lives, and cannot achieve any satisfaction ar a goal sometimes tend to start living a so called second life on the internet and thats what happened to this guy.....

  • and what are you doing right now? you have 12,ooo videos watched for gods sake dont make fun of people for things that you do just as well

  • People with EDs often aren't getting enough electrolytes. Not having enough calcium and magnesium in your diet (especially in the correct ratio) can exacerbate FMS symptoms.

    As for Lyrica being the same as Neurontin, yes and no. They both work on GABA transmission, yes, but experiencing side effects (or not experiencing side effects) on one does not mean you'll be fine on the other. Just like people can take one SSRI like Zoloft and feel fine, but respond very badly to Prozac.

  • Hi Stewart,

    I don't know how to put video on youtube. But, I have had fibro and its different from chronic fatigue in that with FM there are symetrical tender points down the body in specific places. If you have pains there then you have FM. Elavil has worked to relax muscles. I took it for something else but it worked for FM. Do NOT take Lyrica. Its a new drug on the market in USA and has caused people to become suicidal so much so that we see ads on tele for legal representation for clients.

  • Your totally wrong about Lyrica it is a new version of and old drug Nueronton It

    Has done wonders for me and many others. The only side effect I have had is it makes you tired. It has done wonders for my shoulder, leg and arm pain. All drugs can have bad side effects. Just read your aspirin bottle. If you are in enough pain giving Lyrica a try is not going to Kill you and it may help you

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