Infantile Spasms and Tuberous Sclerosis Complex

[germanyf]

My 9 month daughter have been diagnosed with infantile spasm and will be put on Vigabatrin. I would appreciate anything you can share. My email is germanyf at yahoo dot com. Thanks.

[abbysmommy1216]

My daughter does exactly that! Her EEG came back normal though.. did the seizures show up on your sons EEG?

[RussShan]

Did she have an episode during the EEG? We did a 23 hour Video EEG and he had several episodes that were recorded. But our neuro, diagnosed it as infantile spasms just by looking at this video. He's currently seizure-free on a drug called Sabril - Vigabatrin.

[RussShan]

Did she have an episode during the EEG? We did a 23 hour Video EEG and he had several episodes that were recorded. But our neuro, diagnosed it as infantile spasms just by looking at this video. He's currently seizure-free on a drug called Sabril - Vigabatrin.

[hoopgirlby]

omg he is so cute glad his seizures are better :)