Added: 4 years ago
From: andromaca07
Views: 1,834
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  • Hi, I know this vid is a few years old but I want to say thank you. This is a very touching video. I have been struggling with an undiagnosed disease for over three years now. I'm disabled by illness, often unable to leave bed. The doctors have no idea what’s happening. Most people have no idea how hard it is to deal with a chronic illness, let alone the struggle of fighting the stigma and fear that go along with being undiagnosed. This is a great cause and an amazing video. Thank you again.

  • Comment removed

  • health is something no one should take for granted. thanks for this video!

  • I popped in to see what was up. I watch Carey on her channel and think you two are beautiful together. Here, you had me in tears. What an amazing compilation. Your photographs rock. I am touched.

  • Thank you so much for this video - I would love to have a chance to talk with you more about your project and experiences. I have Fibromyalgia and many other diagnosis - but even though I have a great specialist - the treatments weren't helping, finally we found out that I have a very very bad case of Lyme disease - I relate to everything you said on the video. I have had my world destroyed by my illnesses and am fighting for my life.

    Thank you so much for your work.

    April Dawn

  • I am sorry to hear that you have fought this battle too. There are far to many people who have, and Lyme disease is simply not given the attention it deserves!

    I wish you the best of luck in your fight!

    If you would like to talk to me more you can send me a pm. :)

    hugs - jakki

  • *BEAUTIFUL* i hope your friend gets better

  • Very beautiful and very moving! Thank you!

  • This is so surreal, thank you so much for doing this!! You have a wonderful heart, no wonder Carey loves you so much.

  • my goodness is this a powerful video...

    may i ask what music you used? it is just amazing. thanks. :) i subbed!

  • This is great... I went to an A.C.S relay last weekend and participated in a 30 year study they were doing... They will follow me and MANY others.... Thank you for making this video... Jerlins

  • P.S

    GO BUCKS !!!! :)

  • ..... wow. these are amazing.

  • Thank you so much for doing this.

  • the project is not about one specific medical problem, but the fight and the journey people endure when they are undiagnosed: tests, procedures, medication to treat the symptoms, the emotional turmoil that so often plagues those who are undiagnosed. . .

  • This is amazing and beautiful...wow

  • this is so beautiful. i'm in tears. thank you.

  • WOW! Very powerful!

    Best wishes to Carrie and you.

  • Im so impressed by this video and want to thank you for your words, You hit it right on. I suffer daily and to hear those words was wonderful and I wish all who suffer my heart and warmth and ask god to bless them all.

  • I think that's real cool.

  • beautifully made and very moving thankyou for posting

  • as always...spectacular and moving. keep up the explorations...life is quite the adventure. thanks for sharing this.

    *tori*

  • WOW, really well done. thank you for the insight, for those of us who need to be reminded constantly...and not to take anything for granted. Best wishes to the both of you, you deserve it

  • An eye opening video. I was deeply touched.

  • I've known a lot of people who've gone undiagnosed...one of them is, at the moment, wasting away without any knowledge as to why it's happening. I've really explored my own reactions to it, never having experienced it, but being somewhat both bewildered and outraged by everything my friends and family have gone through.

  • At the heart of it, I realize the anger comes from fear of the unknown and fear for having realized we are not as in control as we perceive we are and that knowledge (for me, a tool for empowerment) does little to help, not even collectively.

  • You're very talented. Thanks for this.

  • I want to thak you for taking the time for making this video. Those of us living with such ilnesses can't thank people like you who care, enough. I have celiac disease which will affect me for the rest of my life. Before I was diagnosed my symptoms were so diverse (ranging from seizures to vomiting and anemia) that the people aroung me told me I was faking it. People like you are a godsend. Thank you.

  • ur works really good

  • this was very moving to me.

  • Well done....

  • Thank you for posting this wonderful video! I wonder if you're aware of the tremendous service you are doing for people. Probably not, the most generous and caring people are usually thinking of others instead of themselves.....like you! Bravo! Glee :)

  • I understand. A beautiful journey through pain. Take care.

  • Great photographs. Have you pitched the book to some of the pharmaceutical companies , many of which are in NJ. Joe

  • Amazing...thanks for sharing this.

  • LOVE this video, you are so very talented. Thank you for sharing this with us.

  • Fantastic, a work of art! Thank you.

  • Brilliant. Thank you for sharing it.

  • What a brilliant eye you have! This is magical, my friend. I want this to be featured. I'm sending it to YouTube. I don't know if they will, but it's worth trying! You're a beautiful soul.

  • I really enjoyed watching that...quite a lot.

    You're a great photographer and a brilliant person.

    You have at that, a brilliant subject as well.

    Good luck to you both...although I don't know what those words can honestly do at this point...

    If there was honestly anything I could do...go over and pick some stuff up for the dogs or anything...I have a car and I can do it for you.

    Excellent work, Jakki. Keep it up.

  • thanks. remember, you can come visit us at any time. . .not just to run our errands (although it really was a nice offer)

    sometimes just having someone to hang out with and talk to is more helpful than having someone to do our chores.

  • Well...I'd like to hang out with you guys sometime. If that sounds cool...

  • we do come through C.H. occasionally, and you are always welcome here, just call if you want to come by.

  • No Truer Words Have Ever Been Spoken. I Admire Your Dedication To Each Other. My Husband Passed From ALS, And I Couldn't Believe That There Were Spouses Out There That Just Left. I Wrote A LONG Reply To Ginas Video, So I'm Not Going To Bore Anyone Anymore. I Wish You Both The Best. ;0)

    Roberta

  • I think what you and Carey are doing is wonderful. Your photographs shine a light on a problem that many people (myself included) are not aware of. I wish you both a lot of luck.

  • So true. Whatever we are dealt with in life, it all evens out. It's our job to love what we DO have. I love the title, the narration, the Zoe K, the photography. very nice Jacqueline

  • great ty for sharing with us!

  • Incredible work and top-notch production. Excellent.

    I hope this project gets the attention it deserves.

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