Hi, I know this vid is a few years old but I want to say thank you. This is a very touching video. I have been struggling with an undiagnosed disease for over three years now. I'm disabled by illness, often unable to leave bed. The doctors have no idea what’s happening. Most people have no idea how hard it is to deal with a chronic illness, let alone the struggle of fighting the stigma and fear that go along with being undiagnosed. This is a great cause and an amazing video. Thank you again.
I popped in to see what was up. I watch Carey on her channel and think you two are beautiful together. Here, you had me in tears. What an amazing compilation. Your photographs rock. I am touched.
Google....."Low Dose Naltrexone Homepage." And also here on You tube..."Controlling Lyme Disease," and see the LDN videos by "TropicalDawg" here as well. I have been using LDN, for just over a week now, and feel the need to pass the buzz. This is a drug that helps with the immune system, inflammation and endorphins. Eat as if you had a yeast problem, because Lyme loves what yeast loves. And no sugars of any kind..."Including Fruit!"
Thank you so much for this video - I would love to have a chance to talk with you more about your project and experiences. I have Fibromyalgia and many other diagnosis - but even though I have a great specialist - the treatments weren't helping, finally we found out that I have a very very bad case of Lyme disease - I relate to everything you said on the video. I have had my world destroyed by my illnesses and am fighting for my life.
I am sorry to hear that you have fought this battle too. There are far to many people who have, and Lyme disease is simply not given the attention it deserves!
I wish you the best of luck in your fight!
If you would like to talk to me more you can send me a pm. :)
This is great... I went to an A.C.S relay last weekend and participated in a 30 year study they were doing... They will follow me and MANY others.... Thank you for making this video... Jerlins
the project is not about one specific medical problem, but the fight and the journey people endure when they are undiagnosed: tests, procedures, medication to treat the symptoms, the emotional turmoil that so often plagues those who are undiagnosed. . .
Im so impressed by this video and want to thank you for your words, You hit it right on. I suffer daily and to hear those words was wonderful and I wish all who suffer my heart and warmth and ask god to bless them all.
WOW, really well done. thank you for the insight, for those of us who need to be reminded constantly...and not to take anything for granted. Best wishes to the both of you, you deserve it
I've known a lot of people who've gone undiagnosed...one of them is, at the moment, wasting away without any knowledge as to why it's happening. I've really explored my own reactions to it, never having experienced it, but being somewhat both bewildered and outraged by everything my friends and family have gone through.
At the heart of it, I realize the anger comes from fear of the unknown and fear for having realized we are not as in control as we perceive we are and that knowledge (for me, a tool for empowerment) does little to help, not even collectively.
I want to thak you for taking the time for making this video. Those of us living with such ilnesses can't thank people like you who care, enough. I have celiac disease which will affect me for the rest of my life. Before I was diagnosed my symptoms were so diverse (ranging from seizures to vomiting and anemia) that the people aroung me told me I was faking it. People like you are a godsend. Thank you.
Thank you for posting this wonderful video! I wonder if you're aware of the tremendous service you are doing for people. Probably not, the most generous and caring people are usually thinking of others instead of themselves.....like you! Bravo! Glee :)
What a brilliant eye you have! This is magical, my friend. I want this to be featured. I'm sending it to YouTube. I don't know if they will, but it's worth trying! You're a beautiful soul.
No Truer Words Have Ever Been Spoken. I Admire Your Dedication To Each Other. My Husband Passed From ALS, And I Couldn't Believe That There Were Spouses Out There That Just Left. I Wrote A LONG Reply To Ginas Video, So I'm Not Going To Bore Anyone Anymore. I Wish You Both The Best. ;0)
I think what you and Carey are doing is wonderful. Your photographs shine a light on a problem that many people (myself included) are not aware of. I wish you both a lot of luck.
So true. Whatever we are dealt with in life, it all evens out. It's our job to love what we DO have. I love the title, the narration, the Zoe K, the photography. very nice Jacqueline
Hi, I know this vid is a few years old but I want to say thank you. This is a very touching video. I have been struggling with an undiagnosed disease for over three years now. I'm disabled by illness, often unable to leave bed. The doctors have no idea what’s happening. Most people have no idea how hard it is to deal with a chronic illness, let alone the struggle of fighting the stigma and fear that go along with being undiagnosed. This is a great cause and an amazing video. Thank you again.
MsRauu 1 year ago
Comment removed
itsallinyourheadsun 1 year ago
health is something no one should take for granted. thanks for this video!
skatrrgurl1406 1 year ago
I popped in to see what was up. I watch Carey on her channel and think you two are beautiful together. Here, you had me in tears. What an amazing compilation. Your photographs rock. I am touched.
Clarachk 2 years ago
This has been flagged as spam show
Google....."Low Dose Naltrexone Homepage." And also here on You tube..."Controlling Lyme Disease," and see the LDN videos by "TropicalDawg" here as well. I have been using LDN, for just over a week now, and feel the need to pass the buzz. This is a drug that helps with the immune system, inflammation and endorphins. Eat as if you had a yeast problem, because Lyme loves what yeast loves. And no sugars of any kind..."Including Fruit!"
Prethenie 2 years ago
Thank you so much for this video - I would love to have a chance to talk with you more about your project and experiences. I have Fibromyalgia and many other diagnosis - but even though I have a great specialist - the treatments weren't helping, finally we found out that I have a very very bad case of Lyme disease - I relate to everything you said on the video. I have had my world destroyed by my illnesses and am fighting for my life.
Thank you so much for your work.
April Dawn
Aprildawn2 3 years ago
I am sorry to hear that you have fought this battle too. There are far to many people who have, and Lyme disease is simply not given the attention it deserves!
I wish you the best of luck in your fight!
If you would like to talk to me more you can send me a pm. :)
hugs - jakki
andromaca07 3 years ago
*BEAUTIFUL* i hope your friend gets better
misssiera311 3 years ago
Very beautiful and very moving! Thank you!
Slsy11 3 years ago
This is so surreal, thank you so much for doing this!! You have a wonderful heart, no wonder Carey loves you so much.
alicat4377 3 years ago
my goodness is this a powerful video...
may i ask what music you used? it is just amazing. thanks. :) i subbed!
jennfriedman 3 years ago
This is great... I went to an A.C.S relay last weekend and participated in a 30 year study they were doing... They will follow me and MANY others.... Thank you for making this video... Jerlins
jerlins 3 years ago
P.S
GO BUCKS !!!! :)
jerlins 3 years ago
..... wow. these are amazing.
Herenionn 3 years ago
Thank you so much for doing this.
LymeKerry 3 years ago
the project is not about one specific medical problem, but the fight and the journey people endure when they are undiagnosed: tests, procedures, medication to treat the symptoms, the emotional turmoil that so often plagues those who are undiagnosed. . .
andromaca07 3 years ago
This is amazing and beautiful...wow
shandymonte 3 years ago
this is so beautiful. i'm in tears. thank you.
heiwalove 3 years ago
WOW! Very powerful!
Best wishes to Carrie and you.
SweetpeaGean 3 years ago
Im so impressed by this video and want to thank you for your words, You hit it right on. I suffer daily and to hear those words was wonderful and I wish all who suffer my heart and warmth and ask god to bless them all.
Blueyeshining 3 years ago
I think that's real cool.
ardeego 3 years ago
beautifully made and very moving thankyou for posting
petpplluv 3 years ago
as always...spectacular and moving. keep up the explorations...life is quite the adventure. thanks for sharing this.
*tori*
torigirl35 3 years ago
WOW, really well done. thank you for the insight, for those of us who need to be reminded constantly...and not to take anything for granted. Best wishes to the both of you, you deserve it
daff1959 4 years ago
An eye opening video. I was deeply touched.
Angieanything 4 years ago
I've known a lot of people who've gone undiagnosed...one of them is, at the moment, wasting away without any knowledge as to why it's happening. I've really explored my own reactions to it, never having experienced it, but being somewhat both bewildered and outraged by everything my friends and family have gone through.
U2bianSynic 4 years ago
At the heart of it, I realize the anger comes from fear of the unknown and fear for having realized we are not as in control as we perceive we are and that knowledge (for me, a tool for empowerment) does little to help, not even collectively.
U2bianSynic 4 years ago
You're very talented. Thanks for this.
U2bianSynic 4 years ago
I want to thak you for taking the time for making this video. Those of us living with such ilnesses can't thank people like you who care, enough. I have celiac disease which will affect me for the rest of my life. Before I was diagnosed my symptoms were so diverse (ranging from seizures to vomiting and anemia) that the people aroung me told me I was faking it. People like you are a godsend. Thank you.
halv0420 4 years ago
ur works really good
purpleness1 4 years ago
this was very moving to me.
StephStance 4 years ago
Well done....
StephStance 4 years ago
Thank you for posting this wonderful video! I wonder if you're aware of the tremendous service you are doing for people. Probably not, the most generous and caring people are usually thinking of others instead of themselves.....like you! Bravo! Glee :)
gleegirloz 4 years ago
I understand. A beautiful journey through pain. Take care.
mary234 4 years ago
Great photographs. Have you pitched the book to some of the pharmaceutical companies , many of which are in NJ. Joe
NewJerseyJoe 4 years ago
Amazing...thanks for sharing this.
Daliwolf 4 years ago
LOVE this video, you are so very talented. Thank you for sharing this with us.
debbiez112 4 years ago
Fantastic, a work of art! Thank you.
egonc 4 years ago
Brilliant. Thank you for sharing it.
maryann712 4 years ago
What a brilliant eye you have! This is magical, my friend. I want this to be featured. I'm sending it to YouTube. I don't know if they will, but it's worth trying! You're a beautiful soul.
ItalianStallionette 4 years ago
I really enjoyed watching that...quite a lot.
You're a great photographer and a brilliant person.
You have at that, a brilliant subject as well.
Good luck to you both...although I don't know what those words can honestly do at this point...
If there was honestly anything I could do...go over and pick some stuff up for the dogs or anything...I have a car and I can do it for you.
Excellent work, Jakki. Keep it up.
sascolnik 4 years ago
thanks. remember, you can come visit us at any time. . .not just to run our errands (although it really was a nice offer)
sometimes just having someone to hang out with and talk to is more helpful than having someone to do our chores.
andromaca07 4 years ago
Well...I'd like to hang out with you guys sometime. If that sounds cool...
sascolnik 4 years ago
we do come through C.H. occasionally, and you are always welcome here, just call if you want to come by.
andromaca07 4 years ago
No Truer Words Have Ever Been Spoken. I Admire Your Dedication To Each Other. My Husband Passed From ALS, And I Couldn't Believe That There Were Spouses Out There That Just Left. I Wrote A LONG Reply To Ginas Video, So I'm Not Going To Bore Anyone Anymore. I Wish You Both The Best. ;0)
Roberta
OHTXAZ 4 years ago
I think what you and Carey are doing is wonderful. Your photographs shine a light on a problem that many people (myself included) are not aware of. I wish you both a lot of luck.
thebigpicture3 4 years ago
So true. Whatever we are dealt with in life, it all evens out. It's our job to love what we DO have. I love the title, the narration, the Zoe K, the photography. very nice Jacqueline
grapessss 4 years ago
great ty for sharing with us!
jbba 4 years ago
Incredible work and top-notch production. Excellent.
I hope this project gets the attention it deserves.
LeSaMilano 4 years ago