Fibromyalgia and Depression - getting through the sad times

[MisTreeeGirl]

I can help you get rid of this! Look me up Aprile Plummer. Doctors aren't there to cure it!

[oldskinny1]

This really touched me. I also suffer with Fibromyalgia and depression flare ups. Panic and anxiety attacks,phobis just a little bit of everything. It really sucks. I feel like i am the only on with it. Sorry to hear of your loss. I lost a family member too a couple years ago, while going through my worst part of my illness. LONG STORY! Please keep the videos coming!!!

[nkerio]

However, something does tell me it's probably a symptom for some fibromyalgics as opposed to part of the cause. The osteoarthritis in my back, to my knowledge, cannot be explained by a shrunken brain. Same goes for my sinus issues, mouth ear nose etc. The cellular theory of St. Amand's, however incomplete, does make sense in the sense that it surpasses the neurological dimension of fibromyalgia.

[dianacwolf]

Yes, I agree with you that the theory is incomplete. The way I see it, many of the doctors who have written books on fibromyalgia have offered up little pieces of the fibromyalgia puzzle. Yet, none of them have the whole picture. At this point, we only have the outline edges of the puzzle. There is still so much we don't know. As you point out, fibro affects the neuorlogical, pyschological, sinus, mouth, ear, etc. etc. With so many areas affected, it is a very difficult disease to treat.-D.

[nkerio]

I actually forgot to mention. I also came across research a while ago about shrunken brain findings for people with chronic pain which probably excluded fibromyalgia patients. So it seems like the shrunken brain might be directly related to chronic pain as opposed to the condition itself. I wonder whether the overwhelming pain signals play a part.

[nkerio]

Sorry about your brother. May he rest in peace. Have you yourself had an MRI for your brain. It'd be interesting to find out whether the shrinking brain is a sign for some or all fibromyalgics. I had one about 4 years ago and there wasn't anything about shrinkage in the report. There wasn't a report of lesions, but I keep wondering whether information about shrinkage was eliminated or it simply wasn't observed.

[dianacwolf]

Hi nkerio. Thanks for your comments. In answer to your question, yes, I've had loads of brain MRIs. CAT scans, too. But, they were unrelated to my fibro. I have a non-cancerous type of brain tumor called a colloidal cyst of the third ventricle. I need to get the thing monitored periodically to make sure it is not causing any trouble. No, never heard anything about shrinkage. But, then again, they were never looking for such things. The scans were always specifically targeting the cyst.

[100lemon]

sorry about your brother . thank you for the video and yes it is hard to admit when depression hits . hopefully this condition will be cured some day . I too suffer from depression from fibro when i have flareups such as today ., it is good to know that as fibro sufferes we are not alone that many others have the same or similar symptoms . all the best cheers

[dianacwolf]

Hi lemon, thanks for the note. Yes, the fibro-related depression can be difficult to manage. Are we depressed because we hurt? Or, is the depression another symptom of a body imbalanced by a disease of chronic pain? I don't have an answer to that. But, as you said, the best part is knowing that we are not alone. Meeting people in the online fibromyalgia community has been the one truly positive part about getting fibromyalgia. I've met some great people I wouldn't have met otherwise. - D.

[fibrofighters]

((((Diana))) I am so sorry for your loss of your brother(  You are such an inspiration to me! Keep on keeping Fibro sister<3

[dianacwolf]

Thanks so much! Love your screenname! - Diana

[elixergtarist]

Hi Diana. It's me, Paul. Just wanna tell u how so very sorry I am about the loss of your brother. It's no surprise that your going through the physical pain you've been experienciing lately. My thoughts and prayers are with you and your family. By the way if you have a bible I want you to look up Isaiah26:19 when you get a chance. Very comforting and enlightening.

[dianacwolf]

Hey Paul! Good to hear from you again. Thanks for the note. Yeah, I've been totally bummed about the loss of my brother. Great guy. I'm really missing him. No shortage of bibles in this house. I'm a Sunday school teacher. I'll check out the passage you mentioned. Thanks. Email me offline when you get a chance and let me know what you've been up to. Warm Regards, Diana

[mygr8flws]

Hi Diana, sorry to hear about the loss of your dear brother. I've watched many of your videos and appreciate the time and effort you put in to them. I also suffer with FM and have done for the last 9 yrs. It's a tough condition to cope with. Good luck with your appointment & take care, Gentle Fibro Hugs, Marianne

[dianacwolf]

Hi Marianne-

thank you for the note. Always nice to hear from other folks with FM. I enjoy doing the Youtube videos and touching base with other fibro folks. Appreciate the gentle hugs. Never know when those fibro muscles are going to be sore to the touch. :) Interested to hear what the folks at Stanford have to say. Hopefully it won't be just another letdown of an appointment. But, if it is, well, whatever, life goes on. I can deal with it. Take care! - Diana

[nancyann1963]

Diane, All you have to do is ask God to heal you, and he will IF your FAITH is stronge enough, he has to know this, before he can heal you. I was losing my life to Pain killers, and I asked God to take me home or Heal me, he said get off the pills, I said but Lord the pain, he said get off the Pills, I did with my Faith believing that God was going to do something, after a month there was no more Pain. If he can heal me, he can heal you. I will be praying for you.

Nancy Ann

[dianacwolf]

What an amazing story. Thank you so much for sharing. Glad to hear you are off pain pills. I know they are a real double-edged sword for a lot of people. Thanks to doing a lot of research, and belonging to online support groups, I learned about how pain pills actually make your pain levels worse. I haven't been on pain pills (except briefly for a knee surgery) for a long time now. But, everything you say is most inspiring. Thank you. - Diana

[thornekatt]

What a great looking guy...it looked like he

lived life to its fullest.

I'm so very sorry for your loss.

Gentle Hugs,

Sheri~

[dianacwolf]

Hi Sheri-

Thanks for the hug. A hug feels good right about now. Mike sure lived life to the fullest, and that is a great comfort right now. I am trying to live my life to the fullest to honor his memory. - Diana

[nancyann1963]

Diane, It wouldn't let me put in all my words, I found you by the post you posted on my video, since then I have been doing better.

and I wanted to tell you to hang in there that time dies heal all wounds.

Nancy Ann

[dianacwolf]

Hi Nancy Ann-

Thank you for your kind words.  I am glad you are doing better. I think you are right. Time does heal all wounds. Each day does get a little bit better, and life does go on, even though sometimes it feels unfaithful to those that we have lost when we go on with the business of living. But, life does go on. I see so much of my brother's personality reflected in my son, and I remind myself I still have two brothers and I must make the most of every day of what I still I have.-D.

[nancyann1963]

Diane, I am so sorry for your lose, I too lost a brother. he has been gone now for over 16 years, I know his in Heaven and I will see him again. Since then I have gotten off all the pain killers and the Lord healed me from FMS & CFS. Now I have gained back some weight and I feel great. May God send his Angels down to give you some peace sweetie, and heal you from FMS as well. Nancy Ann

[dianacwolf]

Nancy Ann- It is amazing that you have been healed from your FMS and CFS. I hope the same happens for me. I am excited about the possibilities of the new treatments, especially things like L.D.N. I have a lot of hope for the future. I know I will conquer FMS. I know my future is very, very bright. Thanks so much for your kind words. - Diana

[treetopteresa]

Im so sorry for your loss Diane. I totally understand about the depression. I tried to commit suside last month because I was tired of the pain; now Im working through that. And I also exprenced a loss; my granma died on the 25th of this month from a stroke. My mother and I sat with her for a week. Gentle hugs to you and your family.

[dianacwolf]

Teresa- Wow. I guess you do know about depression. I am so sorry to hear about what you are going through, and about the loss of your grandmother. The pain sure has a way of wearing us down, doesn't it? Let's touch base and talk about some treatments, OK? There's some new stuff out there that might help you. Stanford has done some very exciting research. Let's talk again. - Diana

[Euterperocks]

I'm mourning too, and yes, it greatly exacerbates the symptoms. May you experience peace in your heart & soul. God bless you my Friend. Thank you for sharing with such bold and tender honesty.

[dianacwolf]

Thank you for your beautiful words. Well, I decided to share because one of my online fibro friends, Helen, told me it was better to share what I was going through right now than to hold it all bottled up inside. I thought about it and realized she spoke good sense. But, I sure do appreciate the kind words. Thank you.