Living with Multiple Sclerosis - Emotional Issues

[EricVideoPlace]

@LVP, Yes I learned alot and thanks, because my friend Sarah has this and some of the things you show are so familiar. Many times we had to go back, because she just couldn't do it and her shaking was hard to see. Ever since I have been interested. I'm also learning about Body Dismorphia(if you want to put a name on it.) It's what I deal with and have for over 20 years. So thanks again and your videos help so many young people feel more comfortable after a Dx.

Love ya,

Eric Esposito.

[laurenvparrott]

@EricVideoPlace Thank you Eric! xoxoxo

[EricVideoPlace]

I officialy watched all your videos. I don't know really what to write, but I learned a lot about MS here... Why can't people like me get this shit and not people like you? Life is strange.

Take care, LVP.... and yes...do American Idol lol..... even though I hate that show, I'll watch it if you are on. I can't promise I won't laugh though ha-ha.

bye.

[laurenvparrott]

@EricVideoPlace Thank you for watching! I'm so glad you learned a lot! Hahah, I don't know about trying out for American Idol, but I don't blame you for laughing! Have a great weekend!

[lmhitar]

DO NOT CRY, GIRL!

Read the book of Dianetics to find out what is wrong with you and how to get better, healthy and happy!

Or get on Dianetics web.

Wiuth love from LA!

[laurenvparrott]

@lmhitar Thanks!

[BuzzBait007]

I have been dealing with MS for 15 years. It is so unpredictable and so confusing. Thanks for posting this. I wish I knew how to contact you.

[NikiBoBicki]

This is so true! I studied behavioural neuroscience in university back in the early 2000's and this was one of the phenomenons we studied. I remember being fascinated by it. It happens to people with brain injuries and tumors as well!

[laurenvparrott]

Yeah, I've heard that!

[lmhitar]

@NikiBoBicki Read the book of Dianetics to get the real knowledge about basics of mind, of all negative ,emotions, of all psychosomatic diseases and how to get rid of all this junk forever.

Let all your people to know about it. Be well!

[stemtaz]

i laugh like all the time at like everything and i will b like that was not really funny but whatever. and my friends will always be like k u need to stop now and sometimes it is hard to stop. this was very helpful thanks

[laurenvparrott]

I get like that too! I'm so glad this was helpful :)

[erikahilton]

before i was diagnoised they put me in a mental ward and i went through phychotic stage and bi-polar and split personality disorder and shizo effect disorder.....which they founnd out it was my lesions were so deep and they siad it prolly wouldn't get better.....i'm working hard trying not to go crazy

[laurenvparrott]

Oh my gosh - their crazy for making you go through that. Are you on any medications for MS? Do you talk to other people with MS? I I know that talking to other people who can understand me keeps me sane. I wish you the best!

[sheelea05]

This explains why before I knew I had MS I laughed while crying in court at my divorce in 1995! I didn't know why I was laughing uncontrollably in court. I understood why the tears due to an end of a part of my life and losing my best friend. At the time I couln't explain to my mom why I was laughing. She yelled after court that court wasn't a joke and divorce wasn't a joke.

I'm going to call my mom to explain what happened that day so many years ago.

THANK YOU, Michelle-Ohio

[laurenvparrott]

I laugh at things that aren't funny at all so I can relate.

[medad1]

Thanks Lauren So much for your help

Yes, emotional matters happens for most of the MS patients ‎

I believe it is kind of symptoms of the disease

Regards

Mody :)

[laurenvparrott]

Thanks for writing Mody!

[Whoelsebutmeee]

Hi!

i just wanted to tell you that i appreciate you putting so much effort in making these videos!(i my self am 23 years old and have hade the diagnosis in 10 years now!)

[laurenvparrott]

Oh thank you so much! I hope you're feeling well - please keep in touch!

[Alexknobsob]

I used to stand beside the Barrel Organs in Amsterdam and let the noise rebound through my chest. I was good to lose control emotionally and regain control, and lose and regain.

[laurenvparrott]

Wow, that sounds like an intense experience!

[Alexknobsob]

I worked in Symphony Orchestra for years, so it was rather surprising.

[laurenvparrott]

Wow!

[macycj]

thanks,that will help lots of msers out there.I have had this problem in the past,with my flare in febuary 07,2 years today,BTW!!

My neuro confirmed that I did have lesions in the part of my brain that controls emotions.still to this day,I have problems with emotions. If some even as lil as looks at me wrong I start crying.

Im very touchy in that area.

hugs,

aly

[laurenvparrott]

Thank you for your comment - I'm the same exact way! At least we know that it's not our fault we're so emotional!

xoxo

[abproud]

Thank you so much for deciding to help others learn about MS. I am waiting for an MRI & am more scared they wont find something then if they do. I have been dealing with most every symptom that you have discussed & have heard "its hormones" 1 to many times!! it's taken me 6 months with web searches & print offs to finally get this MRI. Tho my Dr has yet to referre me to a Neuro i'd just like to say that your videos help make me feel so not alone & that there is an answer out there somewhere

[laurenvparrott]

Thank you for your comment! It took 2 years to get my diagnosis, and I needed to get an MRI and a spinal tap. I know it's easy for me to say, but you're going to be fine and I'm sure you'll get the answers you need! Good luck and keep in touch!

[iamasuperwoman]

Hi Lauren thank you for educating me on MS. My best friend has been diagnosed with MS. So far she has been coping with it. I've recently interviewed her on my talk show. When you get a chance check it out. Maybe she has some info you have 'nt come across. I will also inform her of your channel. God Bless.

[laurenvparrott]

Hi! Your videos are great, and your friend who has MS has such a wonderful attitude! Thanks for writing to me! God Bless :)

[BretagneShrew]

Hi Lauren! Its so great you can be so open about stuff that is often swept under the carpet :) When I first got sick I had such bad mood swings. Everyone was really worried :/

And I never heard anyone else talk about the laughing/crying thing! I have that too! A couple of times its been really embarrassing, ie a few weeks back meeting some of my sisters male uni friends at a bar and I started crying while talking to one of them. God knows what he was thinking :S

much love and good health xx

[laurenvparrott]

Thank you! I know, I had horrible mood swings too. And the laughing and crying...no one will ever understand except for other MS patients!! Much love!

[BretagneShrew]

naaw thankyou <3 would you ever do a video on cognitive dysfunction? Its another one of those things there isn't alot out there on. I was thinking of starting a group on facebook "I'm not stupid, I have cognitive problems" :P

[laurenvparrott]

Yes I was definitely thinking about making a video about cognitive problems - that affects all of us and it's really annoying. I hope you're feeling well though!

[LisaSBroderick]

Hi Lauren, love the videos they have been a great help to me. I also love your energy, and honesty, that's great. This sunday I'm am having an MRI, and I'm hoping to finally get some answers. I ended up into the emergency one night with a severe toothache that affected my face lips and arm. The doctor that was on got me to do a few things then he said I'm having you tested for MS. When I did some research however I realized I had many of the sypmtoms. Thanks Lauren

[laurenvparrott]

Thank you so much! I sure hope that your MRI gives you some answers - I know it was so helpful for me to get the answers I was looking for!

Good luck with everything and please keep in touch!

[Boudreau17]

Oh my God, I laugh and cry to myself for no reason all the time too!! It makes sense now! Thanks for all the videos. I officially love you! You are amazing. :)

[laurenvparrott]

Thank you so much!! See, we're not alone!

[mrsfirecracker]

Lauren you have the most inspiring videos. How do you feel about stem cell therapy for MS? I really love your exercise video. I do get frustrated when people who can exercise without difficulty wine about it. I think people take movement for granted. Keep up your great work!

Michelle

[laurenvparrott]

Hi Michelle! Thank you! I am ALL FOR stem cell research. And yes, I get so frustrated when people take advantage of being able to move and choose not to. Thank you and I wish you the best!

[navymuret]

I saw that on "American Idol" too! I knew about Donny's older brother having MS, but but not about his son (Donny's nephew). I just hope he does well in the "Hollywood" phase, because I know it is extremely stressful and full of very long days. We'll see on Tuesday! Nice to see you again!

Ciao

Andy

[laurenvparrott]

Hey Andy! I know I'm thinking about him and the stress that Hollywood brings. We'll definitely see on Tuesday - I'll be watching! Ciao!

[Treeshalee83]

Thanks Lauren for another helpful video!

~Blessings

Tricia

[laurenvparrott]

Thanks Tricia!

[kerrylynn29]

Your timing is perfect on this one! This last week was very emotional for me. It hit me again...I will never be able to do the things I used to do. Most times I am very positive but out of the blue, I fell apart. Now I know why! Thank you for sharing. I also had a video idea for you, have you ever had family or friends treat you different or bad since being diagnosed? How did you handle it? Friends you can walk away from but family is tough.

[laurenvparrott]

Oh good, I'm glad this helped! That has happened to me, too. Luckily for me, my entire family is very supportive, and I just stay away from the people who aren't nice to me. It's not worth one second of my time to be around someone who isn't understanding. Are you ok with your situation?

[risquemonmon]

omg that explains my SEVERE mood swings in the past couple of days going from being soooooooooo happy n excited to being sad n tired

[laurenvparrott]

That's what it is! It happens to me too.

[fpcj1]

Had one emotional melt down about 2 days ago -started crying - out of the blue and couldn't STOP. I hope not to EVER have another relasp and hope that the steroids did the trick.

[laurenvparrott]

I hope you never have a relapse again either!

[fpcj1]

Seem to be responding well - my limbs came back and the numbness left. My left toes still tingle though and feel like they are on fire sometimes. Not know ing what to expect is the worst part

[fpcj1]

Had MRI done and it showed that I had legions on my spinal chord Cervical and Lumbar. Had a spinal tap done which revealed my white blood cells were high indicating that my immune system was attacking my spinal chord - was hospitalized and given a 5 day course of steroids.

[fpcj1]

Hi Lauren,

I had first episode 3 wks ago, left side went numb from mid torso down, right arm had strong tingle and right hand froze up on the last two fingers (pinkie and ring finger), had tingling sensations on the right side of face and right eye began to droop.

[laurenvparrott]

Are you officially diagnosed with MS?

[lizzy890]

This is a great video! I very much so experience many emotional ups and downs, still dealing with depression. I too find myself to laugh at things that do not make sense, uncontrollable short laughing or laughing/do things that dont make sense to my own self. I have a hard time explaining the reason for certain things. Oh well... I'm gonna try not to let his disease get the best of me!! Best wishes! We're not too far away from eachother Lauren, I hope we can meet one day, maybe make a video?

[laurenvparrott]

Thank you so much! I go through exactly what you're talking about. I would love to meet one day...we could definitely make a video together!

[wendell3308]

surprised that you mentioned you're a paid spokesperson for Tysabri....

It's nice that you mentioned it once & said it's helping you tremendously.

Does David Osmond take it for his MS?

Is that what helped him out of his wheelchair?

Why do you suppose there isn't any media attention on how Tysabri is helping MSers get out of wheelchairs?

Could it be Biogen-Idec's inability to market Tysabri well?

[qualisarx]

I know his father , for a fact, went to Europe and had the stem cell therapy. It has temporarily helped him. It is a very costly procedure currently and there is no guarantee. Lauren is the next World idol....

[laurenvparrott]

Thank you so much for your support!! I'm glad you said that about the stem cell therapy...that's encouraging for all of us!

[wendell3308]

Some recent medical abstracts report the use of very aggressive chemo to kill T cells & then reconstitution with stem cells.....

....ironically while abstract says all 8 were ok for 20 months.....Researchers had to put 2 of the 8 on TYSABRI.....to save them! Stem cells can cause cancer & research indicates that cultured stem cells need to cultured in.....TY....to make 'em work better. TY in the culture...won't make the news! Nor that TY helps make stem cells! That's why u get better!

[markolad]

Thanks for an other great video.

I'm due my 7th Tysabri infusion on thursday and thank you from watching your videos it give me the strength to go for the Tysabri and I think it's great the best choice I ever made keep up the good work.

Mark x

[laurenvparrott]

Hi Mark! Thank you so much - I'm so glad you're doing well!!

[muzzleray]

a fellow walks in to a doctors office, the doctor asks him if he wants the good news or the bad news.

the fellow asks for the good news.

the doctor tells him, "well at least, you're not a hypercondreact"

bhom bhom,

hope this finds you cheerful

sry' bout the spello

[laurenvparrott]

Hahahaha that's hilarious!!

[oldcourtbray]

Hi lauren,

love your videos please keep them up.

you will never no how mush you have helped me. Your so strong.god bless you, and all of us with ms.lou x

[laurenvparrott]

Thank you so much Lou! Please keep in touch!

[angelusa73]

Thank you Lauren for talking about the emotional side of MS. Like you said, it's not easy living with this disease, but anything is possible for us too!

We should never put our dreams aside and she should continue to dream...even while having emotional problems like the ones you told us about!

Great job and thank you for doing this!

[laurenvparrott]

Hi Angela! No, we should never put our dreams aside...even though we have emotional problems. It's great hearing from you and I hope you are well!

[angelusa73]

Dear Lauren,

I am doing ok and very soon (and this time it will really happen!) I will have my first Tysabri infusion at my favorite place: at Johns Hopkins! so I am happy...soon, I will be part of the Tysabri club too!

[laurenvparrott]

Yay!!

[gmag44]

this is very interesting and you are such a strong person. your videos are always so informative. thank you and God Bless, lauren :)

[laurenvparrott]

Thank you so much! God Bless!

[OSA503]

I have emotional ups and downs too.

Constant worry about this and that or nothing.

Alot of non-MSers don't understand the feelings we have.

Are you feeling ok other than emotions?

Love to you Lauren!

Jolie

[laurenvparrott]

Hi Jolie! I know, I feel like ALL non-MSers don't understand what we go through. Yes, I am feeling great. How are you feeling?

Love to you!

[teafourtao]

Hi Lauren - thanks for another interesting post! My emotions run rampant, but i thought it was just a New York/cultural/personality thing(maybe partly). But as a 40 yr old single male nursing student recently Dx, I've got a lot to be emotional about. What I'm learning about myself is: We are Large; We contain Multitudes.

By the way, lesions or not, you are the Queen of our community! We're crazy about you!

Ross

[laurenvparrott]

Hi Ross! You are so sweet...thank you for your comment! Just cry when you need to...that's what I do! :)