I know what you are going through and I'm sorry you are suffering too. I have had chronic pain since 2007 when I had a shoulder surgery that went wrong. They can not figure out what is wrong with me and I too have undergone hundreds of tests. It is so frustrating but I force myself to remember how far they have come treating other diseases and pray that one day they will have an answer for pain too. Most importantly don't lose hope
I just heard from you what I have been fighting to express. My husband doesnt get why I say its hard to hope. I have POTS, and it's not your struggle, but the feelings are the same. I would give anything to know that I would be able to wake, and live a day without this struggle! But I can't. For all I can see, I will likely have these symptoms for years, if not the rest of my life. Its so hard to see hope, and you explained that so well! Thank you so much for sharing!
@TheMrsrick I'm glad that my video could help you in some way, I just try to share my life and my struggle in hopes that people can relate or learn from it. hope is a very hard thing to hold on to with chronic illness but when you have it, it makes all things seem possible. i just try to live in the moment and enjoy the life that i have and the people and things that i love. i'm not perfect, i have shitty days and bad moods but i fight to not let life pass my by, no matter what.
Omg i feel the same way when it comes to seizures. Some day's Im proactive about my life but then other days i feel like life isn't even worth waking up for. Mind blowing that im not the only one. I keep trying to explain to my bf and he just thinks im lazy but im not...
The way you told this was amazing, your very well-spoken, and I can't believe that your around my age. Please keep your head up, I wish I had something to say to help. Best of Luck..
I am a nursing student and I am presenting on Chronic Illness and I am wondering if you would be okay with me sharing your video with my class. You provide an amazing opportunity for others to peak into the world of a person with a chronic illness. I think that is important for people to see, especially if they are going to be in the health care profession. You are a wonderful example to many people. Thank you for posting this video. Holly
Not a problem, thank you so much for asking. I hope that my once voice can represent the many many people that suffer each day. Thank you for wanting and learning to go into medicine, we need more or you people around. Thanks.
You have probably heard it all... and I respectfully ask if you have tried an all protein diet? I have read a lot of success stories with Fibro and a high protein diet... apologies if you know this already, I am moved and touch by your vid, my love and thoughts, gloria
yes, and many times. tried but with little success, it did a number on my digestive system and did not increase my energy. I eat a lot of protein and try to steer clear of caffeine and sugar, even though my body craves carbs and sugar. Thank you for the suggestion.
Your story really inspires me. It's amazing how much we are alike. This video makes me cry because the feelings expressed in it are exactly what I feel on a daily basis. You are one of the strongest people I've ever met. Thank you for having the courage to post your story on here. You are an inspiration to everyone you come in contact with throughout your life.
You are a wonderful person, with so much hope inside you despite your situation. I hope to continue to stay in contact with you and I wish you the best, despite how bad life seems.
Great video. It's real, it's honest, and it's informative. What you are doing with both your blog and your videos is very important to so many people that are suffering as you are. Most people with CFS and FM get little to no support from the people that surround them, for many of them coming to a site like yours can make them feel they are still able to be a part of the outside world. It's the "cyber-world", but it's a compassionate world, and a place we can all find support. Good luck.
lol. I just left a comment on you blog last night after another friend with FM told me about it. I lost one of your comments when deleting another. Please feel free to check out my blog at tomcollins dot wordpress dot com. Thanks for watching.
WOW! I am totally touched by your story. I'm going to look into a couple things for you...and share with you some of my experiences with fibro.. Yeah.. I got it too. I'm subscribing to you. I wanna help. Do you mine if I try to figure out how to ease some of your suffering? My friendship, gina
I have no problem with that at all. I have found that other people with fibro often have the most advice. They've tried so many things in the process of finding what works for them that they themselves are often great resources. I look forward to it. :)
I just wanted to touch base..it's very late/early and i need some sleep but i wanted to say your are brave. we both are. look to the future with hope.enjoy the people around you and do what you can :) i think i will make a follow p to my vid and let you know hat i have been thinking....
I just sent you a message. You should be sleeping! Rest well, you deserve it. You are my hero, hanging in like you do. Good to hear from you as, always.
I hear of this happening more and more often. Doctors who write patients off because they are young, and the ideal that youth brings perfect health. I''m sorry for your loss and hope that the doctor(s) take a way a valuable lesson to prevent this from happening again. I wish you the best and thanks for watching.
Stumbled upon this vid, but I'm really grateful that I did. Our community lost a very talented 24 year old woman to breast cancer a few years back. If they had treated her early enough, she might be alive today, but they dismissed it at first because they were sure she was too young for breast cancer. It wasn't until she was stage four that they began treatment, too late. A shame. Love to you.
I can in no way begin to feel what you're going through - my mother was stricken with chronic illness when she was my age now - 25 years ago - fibromalgia, CFiDs, etc, and I know how debilitating and how much you suffer, and how misunderstood you are.
Thank you for watching. I'm glad to hear that your mom is better. There are so many people who suffer and it is nice to find individuals who are willing to understand the devastation of any chronic illness both mentally and physically. I enjoy your videos and wish you the best.
I know what you are going through and I'm sorry you are suffering too. I have had chronic pain since 2007 when I had a shoulder surgery that went wrong. They can not figure out what is wrong with me and I too have undergone hundreds of tests. It is so frustrating but I force myself to remember how far they have come treating other diseases and pray that one day they will have an answer for pain too. Most importantly don't lose hope
wishing4miricles 1 year ago
I just heard from you what I have been fighting to express. My husband doesnt get why I say its hard to hope. I have POTS, and it's not your struggle, but the feelings are the same. I would give anything to know that I would be able to wake, and live a day without this struggle! But I can't. For all I can see, I will likely have these symptoms for years, if not the rest of my life. Its so hard to see hope, and you explained that so well! Thank you so much for sharing!
TheMrsrick 1 year ago
@TheMrsrick I'm glad that my video could help you in some way, I just try to share my life and my struggle in hopes that people can relate or learn from it. hope is a very hard thing to hold on to with chronic illness but when you have it, it makes all things seem possible. i just try to live in the moment and enjoy the life that i have and the people and things that i love. i'm not perfect, i have shitty days and bad moods but i fight to not let life pass my by, no matter what.
peterpauliepan 1 year ago
check your clothes in the laboratory, you may be exposed to drugs through your clothes
vonhatenfeld 3 years ago
Omg i feel the same way when it comes to seizures. Some day's Im proactive about my life but then other days i feel like life isn't even worth waking up for. Mind blowing that im not the only one. I keep trying to explain to my bf and he just thinks im lazy but im not...
xtheatrechic19x 4 years ago
The way you told this was amazing, your very well-spoken, and I can't believe that your around my age. Please keep your head up, I wish I had something to say to help. Best of Luck..
CutTheFat 4 years ago
I am a nursing student and I am presenting on Chronic Illness and I am wondering if you would be okay with me sharing your video with my class. You provide an amazing opportunity for others to peak into the world of a person with a chronic illness. I think that is important for people to see, especially if they are going to be in the health care profession. You are a wonderful example to many people. Thank you for posting this video. Holly
Holl6y 4 years ago
Not a problem, thank you so much for asking. I hope that my once voice can represent the many many people that suffer each day. Thank you for wanting and learning to go into medicine, we need more or you people around. Thanks.
peterpauliepan 4 years ago
You have probably heard it all... and I respectfully ask if you have tried an all protein diet? I have read a lot of success stories with Fibro and a high protein diet... apologies if you know this already, I am moved and touch by your vid, my love and thoughts, gloria
Mum2Ana 4 years ago
yes, and many times. tried but with little success, it did a number on my digestive system and did not increase my energy. I eat a lot of protein and try to steer clear of caffeine and sugar, even though my body craves carbs and sugar. Thank you for the suggestion.
peterpauliepan 4 years ago
Your story really inspires me. It's amazing how much we are alike. This video makes me cry because the feelings expressed in it are exactly what I feel on a daily basis. You are one of the strongest people I've ever met. Thank you for having the courage to post your story on here. You are an inspiration to everyone you come in contact with throughout your life.
miraclemoments 4 years ago
You are a wonderful person, with so much hope inside you despite your situation. I hope to continue to stay in contact with you and I wish you the best, despite how bad life seems.
peterpauliepan 4 years ago
Great video. It's real, it's honest, and it's informative. What you are doing with both your blog and your videos is very important to so many people that are suffering as you are. Most people with CFS and FM get little to no support from the people that surround them, for many of them coming to a site like yours can make them feel they are still able to be a part of the outside world. It's the "cyber-world", but it's a compassionate world, and a place we can all find support. Good luck.
catherinemarie66 4 years ago
lol. I just left a comment on you blog last night after another friend with FM told me about it. I lost one of your comments when deleting another. Please feel free to check out my blog at tomcollins dot wordpress dot com. Thanks for watching.
peterpauliepan 4 years ago
WOW! I am totally touched by your story. I'm going to look into a couple things for you...and share with you some of my experiences with fibro.. Yeah.. I got it too. I'm subscribing to you. I wanna help. Do you mine if I try to figure out how to ease some of your suffering? My friendship, gina
ItalianStallionette 4 years ago
I have no problem with that at all. I have found that other people with fibro often have the most advice. They've tried so many things in the process of finding what works for them that they themselves are often great resources. I look forward to it. :)
peterpauliepan 4 years ago
I just wanted to touch base..it's very late/early and i need some sleep but i wanted to say your are brave. we both are. look to the future with hope.enjoy the people around you and do what you can :) i think i will make a follow p to my vid and let you know hat i have been thinking....
wishing for you all that is good..
aNewYorkMinute 4 years ago
I just sent you a message. You should be sleeping! Rest well, you deserve it. You are my hero, hanging in like you do. Good to hear from you as, always.
peterpauliepan 4 years ago
I wish you well dear. hugs, Chris
bugsinrug 4 years ago
I hear of this happening more and more often. Doctors who write patients off because they are young, and the ideal that youth brings perfect health. I''m sorry for your loss and hope that the doctor(s) take a way a valuable lesson to prevent this from happening again. I wish you the best and thanks for watching.
peterpauliepan 4 years ago
Stumbled upon this vid, but I'm really grateful that I did. Our community lost a very talented 24 year old woman to breast cancer a few years back. If they had treated her early enough, she might be alive today, but they dismissed it at first because they were sure she was too young for breast cancer. It wasn't until she was stage four that they began treatment, too late. A shame. Love to you.
Torpedo
torpedofish 4 years ago
You speak wisdom well WELL beyond your years.
I can in no way begin to feel what you're going through - my mother was stricken with chronic illness when she was my age now - 25 years ago - fibromalgia, CFiDs, etc, and I know how debilitating and how much you suffer, and how misunderstood you are.
Mom is much much better now. Each day at a time.
Peace and health to you.
Lesley:)
LeSaMilano 4 years ago
Thank you for watching. I'm glad to hear that your mom is better. There are so many people who suffer and it is nice to find individuals who are willing to understand the devastation of any chronic illness both mentally and physically. I enjoy your videos and wish you the best.
peterpauliepan 4 years ago