Young Onset Parkinson's Disease, John Crossley-Stanbury

[viorelaismeralda]

My mum is a fighter and like you said she had to embrace the fact that she is who she is and she has a great quality of life despite all the changes in her life. I suppose it is us the family that have to get used to the idea. How did your family cope with your diagnose, because most of the times I think I am the one who needs moral support, not my mum.

[infona001]

@viorelaismeralda Hello, I think that although I am positive most of the time, everybody has a down-day once in while, but it's your ability (and your own responsibility) to step out of that miindset. I can appreciate how you feel, and to help you, please ask yourself the following questions, in order, and whilst making sure you're happy with the question and your answer before moving on.

1. What is it about how you feel, that makes that particular problem, a problem for you?

[infona001]

2. What is it that you need to change within yourself to make that partiucular problem a problem for you?

Now i need you to answer honestly for yourself, your answers are your answers. Perhaps you need a helping hand to help care for your mother. I know that what my fiance does for me is fantastic and i also know that her work and her caring for me is exausting for her and we speak about everything we feel to one another. You both need moral support. We all do.

[infona001]

1. Move the negative into a positive and realise that instead of losing something (a part of your mum's health) you are both gaining new experiences and insights that improve you as peeople and can help others who find themselves in similar circumstances. Life gives us many challenges and it's how we conduct ourselves and overcome those challenges that defines us.

I am here for you :D

[infona001]

2. You need to speak to your mum about how you feel Life happens and unfortunately we can't control everything. Accept this situation because your mum needs you and you need your mum. Embrace the change and go and give your mum a hug.

It's not easy sometimes, I know. But I have faith in you.

Always here, John

[infona001]

Try realising that you may have changed as a person - you may be more appreciative of life, more caring, more patient, more understanding or maybe even more positive. Has your relationship with your mum improved and has your bond become stronger?

You both have Parkinson's (metaphorically) in all fairness (but only one of you feels the symptoms) and so you must both accept the diagnosis. In my opinion you have two options,

[viorelaismeralda]

Hi John, My mum has been diagnosed with Parkinson's a few months ago. She was 54 when diagnosed and she had been suffering from Diabetes for 13 years. But I guess the worst part is that her father died from complications from Diabetes and her mother had Parkinson and she had bee diagnosed at 54 as well.

[hendersonheywood]

Hey John! wanted to add my comments to the many that no doubt you have had over the years. We both have a voice and we use it in the best way we know how. Sometimes provoking, sometimes controversial, but always from the heart. We are on the same team. What you do is so good, has helped so many, and is supportive and inspirational to us all. I keep embracing the change and I know you do.... my love to you always x

[infona001]

@hendersonheywood - Thank you Colleen, your comments are priceless. To be able to embrace the change is sometimes the only option we have available. I am honoured to be able to pass on your advice to others - it has helped so many :) All my love to you too, always x

[infona001]

@009norge I am upset that my video has offended you. I am only trying to help others and if you look at the comments (apart from yours) I believe I'm achieving that. If it turns out that you do have Parkinson's i hope you are able to deal with the diagnosis in your own way and I sincerely hope it isn't Parkinson's.

[singinheart]

THANK YOU>

[infona001]

@adma8D Go see your doc asap. If necceasary and by the sound of it, it may be, he will refer you to a neurologist. Tests they may do include EMG + Nerve conduction studies, MRI, DAT Scan, and they may wish to have urine samples. The tests are nothing to be afraid of but please only get information from a reliable and dedicated source - Parkinson's UK. ONLY AFTER YOU HAVE BEEN DIAGNOSED: dont scare yourself.

[adma8D]

@infona001 Thank you so much for replying! I've already calmed down a bit lol and will consult a doctor asap... Thank you!

[adma8D]

Hello! I've just came across your story after a quick search on Parkinson's. Why was I searching? Well, since a few months ago I've been having this trembling in one of my hands, yet not constantly, and stiffness in my arm. I also have cramps only on my left side of the body. Today I even had cramps in my face! Like you, I searched online and got scared. I know little of the disease and you taught me something. I think I should go to a doctor... btw, I'm 19. lol?

[infona001]

@adma8D 

[scoobydru1979]

love the speach john keep up the good work old chap

[greg555]

I seen your story on the BBC but there wasnt a link to this on youtube? tut tut BBC. Your a total Inspiration. I have definately learned something today about parkinsons. Great work!

[infona001]

@greg555

Thanks mate - that means alot pal :)