Added: 3 years ago
From: mayoclinic
Views: 33,675
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  • God bless the community! I hope every child gets same care when needed

  • hello everyone here ..... i need some help from any doc here .... my niece born with myelomeningocele in neck ..so here in algeria we havent who do the operation for here

    so i need information about that and if she will be ok after this operation ....i will sent some pictr and scan if any doc need this

    i wait for answer plz soon

  • @Dawoudkhalifa

    salam ya ahl essalam.

  • @Dawoudkhalifa

    Salam !

  • mollypop01 im very sorry for your baby,i really have spina bifida but in my country death out of spina bifida is just %2 but if you live it its %100 for you...im very sorry to i made you unhappy....yes spina bifida has 3 kinds and mine is mmc one...i have 2 problems in live:1-i have no job 2-i have no girl friend (there are more problems but i dont mind other them) in my opinion if a man doesnt make fun of himself,life makes fun of himself

  • omg that poor boy! :( i have Spina bifida as well. i was born with a hole in my back tho. its amazing how well he does after the surgery! :)

  • Ya gotta love stories like this !

  • oh thanks god finally im so so happy for u mounib

  • I to was born with spina bifida. i have heard there are 3 types now. one with the shunt 2nd is the shunt and a walker. then there is the 3rd type which is much severe you have to be in a wheelchair. thank god for the doctors at henry ford. i am one of the lucky one. the doctors always gave me the worst senarios but i always pulled thru. as of this little boy i wish him all the best.

  • Man, it is a total miracle that he could feel his legs. I have spina bifida also. I have a very mild form and except for my feet going numb sometimes, I have full sensation... but most people with spina bifida that I know have little to no feeling in their waist down. I guess I was wrong at thinking severe SB would mean he couldn't walk. I love this story! God Bless You, Moneev (not sure if that's right) and family!

  • God Bless u too, i read ur comment... thanks for sharing ur story too.

    By the way, his name is moneeb, an arabis name.

    ;)

  • it hurts 2 c this my baby has spine abifida shes 1 n i love her all the same shes normal n of course had surgery wen she 1st came out n the doctors say she will b able 2 walk i am so happy

  • my nephew had a spina bifida too meningomyelocele, sad to say like mollypop01's baby, he passed away he only lived 5 days... it's really sad...

  • why unbelievable? i have spina bifida too :D in my opinion its funny :D

  • well, if you really have spina bifida.. you probably know there are 3 types, and maybe you have a less severe type. Its really not funny.. I lost a baby due to spina bifida. I used to pray and pray that she would live, but she didnt.

  • @MollyPop01 i'm sooo sorry to hear of ur loss! i have Spina bifida, and untill recently when i started researching a little about it online, i had no clue how deadly it could get! and even more so how deadly Hydrocepholous is (wich 90% of people born with spina bifida also have hydrocepholous). and i have learned just how lucky i am to be alive! again SOOO sorry to hear about ur loss! that must have been a terrible thing to go thru and i couldnt even begin to imagine!

  • Feel so grateful for our life..realize what's it meant by "health is wealth"...It's great he's saved!!..Thanks to the community for their kindness..& most of all thank God!!

  • What about Canada, you don't think we get help as soon as we are born.

  • qu'ALLAH te guerrisse notre trés cher mounib !

  • @Boulkhodra Allah yahafdak,alhamdoulillah Mounib va trés bien.

  • Unbelieveable!

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