so it just comes and goes yeh? (referring to the video where you jumped up and ran to door, with no apparent issue, i do believe that can happen though dont get me wrong, just saying) Also its kinda cool that it didn't effect your shoulders, wrists and hands referring to all the PC usage), so you dont get so bored just sitting around .
@TonyMon16 Once we hit the hallway I twisted my knee and fell, Sammy got pretty mad at me... I'm physically capable of doing things like that, but I suffer repercussions both immediate and long term. Example: I danced ALL night at Sammy's wedding two years ago. I was healthier then, but even so I was in agony, but it was a once in a lifetime event. I also spent the next week unable to get out of bed, and with all my joints horribly swollen. Much of EDS is about prevention. Does that make sense?
I feel the same about my medical problem, it's not half as physically debilitating but does cause me lots of problems. It's called SAD and it causes a lot of issues with my daily life. At it's worst I won't even be able to get myself to step outside my apartment. It's all in my head I know, but I find it hard to tell people about. I look fine on the outside, but to generalize it I am constantly tense and nervous around people. :/
I also have EDS and set up a blog to raise awareness about EDS and invisible disabilities. Copy and paste the following into your browser hideandseekdisabilities.blogspot.com
hey i found you off athenes video this may be a stupid question why do people with complications continually get more and the second question is when you did sports did you feel anything while running like knee pain or some sort
@iluvpvp Yeah actually I had horrible chest pains, shin splints, and pain in my knees, hips, and ankles... but I was raised that pain is mental and you just ignore it, so I did. If I complained I was ignored or punished. I just assumed everyone felt the way I did, yanno?
@ChillAtWill I don't know if i should like or dislike... cause its generally don't think it's very nice but I do like the fact that you are so open is awesome...
I have am sickboy my self so i really understand where u come from and I think its even mor awesome that you have found your center at such a young age...! major props!
Hi Isabelle, I just wanted you to know you are an inspiration. I have Crohn's disease and it's hard to live with as well. Crohn's too is a genetic disorder. Some people get Crohns and they can still live normal lives. Other people, like me, get Crohns and their life stops. I too have to walk with a cane and the time is coming where I'll need a wheel chair as well. Unfortunately though I may not be able to get disability with Crohns even though my condition is severe.
I know exactly how you feel as I too am young, only 33. Like EDS, those who suffer from Crohns also don't always look like they're sick. Most days I can barely move because of the debilitating pain. I can barely eat anything and most things don't stay down when I eat.
Just know that you're not alone and that there are people out there who are by your side. Take care darlin.
There are so many different illnesses that people can have. People who dont have an illness generally dont overy want to know lots about every single one of them. Call it ignorance but its the way it is. You shouldnt get offended if you get accused of joy riding when you look fine and can clearly atleast stand up. 99% of people who can do those things are perfectly healthy so why wouldnt it look like joy riding. Life is alot more fun when your laid back and take life less seriously.
@St3v3z Its one thing to assume I MIGHT be joy riding, and ask me, wherein I would gladly explain... Its another to verbally attack me in public without knowing anything about me. Especially with the kind of language that this particular lady used.
@FragileWithSpunk Well, ofcourse people should always be respectful to others until given a reason to be less gracious. But i mean, you said it yourself, the stereotype of a disabled person, or a person that needs the help of a scooter to get around is a person with a visable disability. Seeing a normal looking ( and pretty ;) ) young girl riding a scooter, stand up to grab something would look like a joy rider on first glance to most people. But yeah, rudeness is certainly not needed at all.
A few of my friends have the same problem. They have invisible diseases, like arthritis or cystic fibrosis, and they run into the same problems you do. They feel guilty about having a friend over with their house a mess.
Your kind of awesome not only have you learnt to cope but i was watching your stream, you should BAWLS of steel whilst playing amnesia, you may be a gamer but your still a girl which a lot of people lose out and they came through two fold during the sims, and finally your geeky you could easily list everything your computer had which not even my Fiancé can do and shes on an advanced computer course. Good Luck and i hope to see more content in the future =D
Man that really sucks, sad freaking story. I mean over night your life is completely changed, thats why everyone should be thankful for that what we have today, cuz some people dont have the luxury
Thank you for the vid. Definitely changes my perspective on a few things (the joyriding thing especially). My girlfriend suffers severe migraines so I've gotten accustomed to the invisible illnesses you speak about. It's a hard thing to relate to people who don't know. Long story short, we should all be more compassionate and inquisitive before passing judgement on others.
@TheShiboe Migraines are so hard, too, because they hit at random, last god knows how long, and can be really hard to treat. Usually caffeine helps, but for me at least, I can't have caffeine! :( Hugs to your lady.
@FragileWithSpunk They actually often have a trigger. For my GF, her life was saved by a holistic center that determined she was allergic to wheat (gluten) and corn (in most everything processed). Now they are mostly under control (stress and light sensitivity still play a part). My cousin also cured his by going vegan. Diet plays a huge role (in many things); I would encourage everyone to be more open w/ their body. Many people have allergies/intollerances and don't know it.
Hey Izzy :) i briefly talked to you on your stream last night, i have eds type 3 too :) i have basically all the symptoms you have, but not as severe. I'm 15 years old and i was put into hospital a while back from an injury that i had sustained in rugby, that kept coming back. So i turned to gaming too ;D! just wanted to say keep on doing what you're doing and you've gained another subscriber :D
It gives me pain watching this. I think about my own problems and what I need to work on but not stressing it. In a way by you speaking about this you're helping me understand how importent some things are in life. I realy want things to become better for you if it helps im listening to your problems. Don't let these selfish immature people stop you from saying you own feelings in the end of the day they can't do the same. They're trying to hide their own.
Hey Kitten - came here from lol vids, but I am a 5th year med student, and this was very interesting to hear - great for learning. Thanks, and best of luck!
People suck. Individual persons may be great, and you'll meet lots. Any one who doesn't want to be friends with you because of EDS will lose the chance to make a great friend. I think you wear your alias well, you have spunk.
i am really glad for you. ive watched the whole thing on athene's stream and i really support you for being so inspiring and strong :) i really like your personality and opinion. congrats on getting money for a wheelchair im really happy about it and i hope to see unboxing vid soon! :D i actaully cant wait for it! B) keep it up i will always be stalking your channel! so i hope to see more and more vids in the future :) im glad to know you.
Izzy, you have given me such inspiration. I too suffer from an invisible illness, and understand completely where you are coming from! No one really understands what its like to deal with the bs of " oh well you don't look like you are hurt or sick". It hurts, especially when it comes out of mouthed of people that are close and supposed to support you no matter what. 3 you too Izzy!!
@FragileWithSpunk Gankplank was my fav char. Or at least was when I played... or maybe I have no idea what is going on... most likely the last. :( Pirates are cool!
@FragileWithSpunk LOL. Well, it does get him out of immobility.. hehe. But I heard that collagen is part of the walls of the blood vessels, and with low vitamin C, it results in leaks. The leaks trigger an increase in cholesterol production from the liver which then results in blocking the leaks, but also heart problems. There's a German doctor who claims to cure heart diseases through vitamin C, a precursor to collagen. I've seen diet reversing diabetes type 1 and 2, I hope this at least helps
Most people with such disease try to hide it and will never talk about it openly and I think like You thats part of the reason why so few people know about these "hidden diseases"
Anyways I wish you the best of luck in the future!
@FragileWithSpunk Hey Issy, Thanks for the great vids and your straight talking. I've learnt something today from you and I thank you for that. Don't let the small minded cretins get you down :) subbed and looking forward to your next vids and wishing you all the best :)
@Maniac742 It's times like this i really love the gaming community and im happy for being a part of such good selfless group of peoples where we (i think) understand eachother much better than other types of groups.
Thanks for sharing this and teaching me something. I feel the greatest block is people making assumptions based upon limited knowledge. The world needs people like you with the courage to educate us.
@Hmiskoumprio fore youre sake i hope not to many people will see youre remark => it can have bad consequenses for u in the near future. it will not take long before people who make bad inhumane remarks to face the consequenses. best fore you to do is to look deep inside youreself and realize that what you put out into this world is what you are inside :-x try to find more love fore youreself => you need it :-) peace
You are a very Strong Person because your taking it well and Learning to Deal with it not like ths WEAK people that go and dislike videos because thr bad at life.Peace out
izzy!! an insparation to us all ,everyone is born diffrent its just unlucky that you have been born with eds but how i think of it is that someone Somewhere will have something worse ,ps your beautiful and also what is ur youtube name about haha :D <3
@generalwhitexoxo You can if you have vascular type of EDS. But Izzy had hypermobility type 3, EDS. That's what I have, I also have some classic. I never seen a vascular case though.
Hey kittey! the video where you get bombed by Athene you were listening to the sorta music i love when trying to relax with a round of LoL, would you mind telling me what radio station you used / and or list a few bands? sorry for the trouble if you need to check your own video to remember! just realy relaxing music
As one who also suffers from a very different 'invisible' disease I can agree with this video extremely strongly I have learnt that people for the most part don't understand and have no interest to.
i very much understand what your talking about and i understand what you feel to, i got an "invisseble illness" to but mine is very diffrend. I got autism if i say it correctly, its not really an illness but it affects the way your brain thinks of certain things and it affects how you react with the outher world. It was very hard for me to learn to live with it so i clearly understand your feelings :) I hope the best for you and i think it is awesome that athene helped you get the wheelchair!!
The way you tell your story is very inspirational, you seem like a very strong and intelligent person. If you start to edit some gameplay or random video's I'm sure you would get plenty of views & new subscribers. I'll be keeping an eye out. Good luck!
Holy shit, saying that so factually, you're strong as hell. I got blinded in one eye, and it still upsets me every day, when I can't get around in the dark, pour drinks, etc. But you're boss-mode. Keep it up!
You know what you are rite I was imbarased about my genetic deasease. Im 27 and just a few years ago I decided to talk about it and stop beeing ashamed. All I can say is keep ya head up and hey there is always somethin to live for. A big hug from Croatia
Stay strong for all of us. You're not the problem. Media and how they impact our society is. Thanks for giving me this behind the scenes look into the problems of invisible sicknesses.
Ever seen Tedtalks? I would love to see this or something like it there. It is also a super great way of reaching people with this. Try and contact them with this clip or something else like it as a introduction. Again, stay strong!
I feel sorry for you, but this just reminds me of the people who bullshit eds in the uk and take my fucking taxes as benefits so they dont have to work
Before I watched this video I would've assumed you were fine, just too lazy to walk but after watching it I understand so much more. Wow I've never even realised, add me to the list of people you educated!
Found this through your stream/Athene's stream. Congratulations on your wheel chair. Definitely going to tune into your stream more often, dorky in a best possible way. =p
Hey can I cuddle you
damiaen92 42 minutes ago
I am very surprised you'd only get affected so late, but that's rare diseases for you.
I hope you get others around you to understand more, and it was a very nice explanation. I've never really thought about it like that before.
Groundhoggies 4 days ago
:(
ZomgZomg007 5 days ago
Who would dislike this video?
carlitosbob 6 days ago
Comment removed
7minutesdead 6 days ago
so it just comes and goes yeh? (referring to the video where you jumped up and ran to door, with no apparent issue, i do believe that can happen though dont get me wrong, just saying) Also its kinda cool that it didn't effect your shoulders, wrists and hands referring to all the PC usage), so you dont get so bored just sitting around .
TonyMon16 1 week ago
@TonyMon16 Once we hit the hallway I twisted my knee and fell, Sammy got pretty mad at me... I'm physically capable of doing things like that, but I suffer repercussions both immediate and long term. Example: I danced ALL night at Sammy's wedding two years ago. I was healthier then, but even so I was in agony, but it was a once in a lifetime event. I also spent the next week unable to get out of bed, and with all my joints horribly swollen. Much of EDS is about prevention. Does that make sense?
FragileWithSpunk 6 days ago
I feel the same about my medical problem, it's not half as physically debilitating but does cause me lots of problems. It's called SAD and it causes a lot of issues with my daily life. At it's worst I won't even be able to get myself to step outside my apartment. It's all in my head I know, but I find it hard to tell people about. I look fine on the outside, but to generalize it I am constantly tense and nervous around people. :/
Lorensoth3 1 week ago
This has been flagged as spam show
I also have EDS and set up a blog to raise awareness about EDS and invisible disabilities. Copy and paste the following into your browser hideandseekdisabilities.blogspot.com
abistaff 1 week ago
You're a warrior, keep that chin up!
blanco420 1 week ago
hey i found you off athenes video this may be a stupid question why do people with complications continually get more and the second question is when you did sports did you feel anything while running like knee pain or some sort
thanks and sorry if i offended you in anyway
iluvpvp 1 week ago
@iluvpvp Yeah actually I had horrible chest pains, shin splints, and pain in my knees, hips, and ankles... but I was raised that pain is mental and you just ignore it, so I did. If I complained I was ignored or punished. I just assumed everyone felt the way I did, yanno?
FragileWithSpunk 1 week ago
I'd like to punch the 9 people who disliked this in the face.
Noldrik 1 week ago
Take care of you :). I would love to visit you ... but I am in another country T_T
ocromiun 1 week ago
Thanks for killing a few of my prejudices :)
Lykkefeen 1 week ago
Miss glass... (ref unbreakable)
ChillAtWill 1 week ago
@ChillAtWill I don't know if i should like or dislike... cause its generally don't think it's very nice but I do like the fact that you are so open is awesome...
I have am sickboy my self so i really understand where u come from and I think its even mor awesome that you have found your center at such a young age...! major props!
ChillAtWill 1 week ago
Hi Isabelle, I just wanted you to know you are an inspiration. I have Crohn's disease and it's hard to live with as well. Crohn's too is a genetic disorder. Some people get Crohns and they can still live normal lives. Other people, like me, get Crohns and their life stops. I too have to walk with a cane and the time is coming where I'll need a wheel chair as well. Unfortunately though I may not be able to get disability with Crohns even though my condition is severe.
MrRavenXavier 1 week ago
I know exactly how you feel as I too am young, only 33. Like EDS, those who suffer from Crohns also don't always look like they're sick. Most days I can barely move because of the debilitating pain. I can barely eat anything and most things don't stay down when I eat.
Just know that you're not alone and that there are people out there who are by your side. Take care darlin.
MrRavenXavier 1 week ago
Inspirational Person. -3
xXMckenzieYouXx 1 week ago
You are a beautiful person. Keep making vids you have a new fan!
TheStanton4 1 week ago
"can't stop the signal" :D
hello from Belgium!!!
'wish you the best!
TheMandoad 2 weeks ago
There are so many different illnesses that people can have. People who dont have an illness generally dont overy want to know lots about every single one of them. Call it ignorance but its the way it is. You shouldnt get offended if you get accused of joy riding when you look fine and can clearly atleast stand up. 99% of people who can do those things are perfectly healthy so why wouldnt it look like joy riding. Life is alot more fun when your laid back and take life less seriously.
St3v3z 2 weeks ago
@St3v3z Its one thing to assume I MIGHT be joy riding, and ask me, wherein I would gladly explain... Its another to verbally attack me in public without knowing anything about me. Especially with the kind of language that this particular lady used.
FragileWithSpunk 1 week ago
@FragileWithSpunk Well, ofcourse people should always be respectful to others until given a reason to be less gracious. But i mean, you said it yourself, the stereotype of a disabled person, or a person that needs the help of a scooter to get around is a person with a visable disability. Seeing a normal looking ( and pretty ;) ) young girl riding a scooter, stand up to grab something would look like a joy rider on first glance to most people. But yeah, rudeness is certainly not needed at all.
St3v3z 1 week ago
A few of my friends have the same problem. They have invisible diseases, like arthritis or cystic fibrosis, and they run into the same problems you do. They feel guilty about having a friend over with their house a mess.
dangthelad 2 weeks ago
Comment removed
monojke 2 weeks ago
She looks like Rachel McAdams
intercorpse789 2 weeks ago
progressive illness..life-long condition...1secbrb w/ cure --
ZoomaKabooma 2 weeks ago
you are amazing!
skogzor 2 weeks ago
Can I just say thank you because it's really interesting to know about these things and good luck in the future
theZbanana 2 weeks ago
:)
peonowns 2 weeks ago
Your kind of awesome not only have you learnt to cope but i was watching your stream, you should BAWLS of steel whilst playing amnesia, you may be a gamer but your still a girl which a lot of people lose out and they came through two fold during the sims, and finally your geeky you could easily list everything your computer had which not even my Fiancé can do and shes on an advanced computer course. Good Luck and i hope to see more content in the future =D
ANDR3WR1CKARD 2 weeks ago
@ANDR3WR1CKARD Showed*
ANDR3WR1CKARD 2 weeks ago
wow EDS sucks hope u survive!
floatgmr 2 weeks ago
Excellent song choice btw. Look forward to the unboxing...
heyniceguy 2 weeks ago
<3 Alot of respect for you. Insportational <3
Pellowe22 2 weeks ago
you are a perfect role model
0Rosario0 3 weeks ago
grettings from mexico :DDD
maggotjonk 3 weeks ago
Such an inspiration.
ImBlurredHD 3 weeks ago
This is why i tell people that the Youtube and gaming community is better than no other, congrats on the wheelchair!
envidiaMCFC 3 weeks ago
<3
gaalen111 3 weeks ago
what a idiot you have to be to dislike this?
MixerGamingHD 3 weeks ago
.....and u r a lovely person^
TheAshtry 3 weeks ago in playlist Altri video di FragileWithSpunk
If you expect nothing from anybody, you’re never disappointed. Sometimes you will get a lot from the unexpected.
Gaawin 3 weeks ago
Man that really sucks, sad freaking story. I mean over night your life is completely changed, thats why everyone should be thankful for that what we have today, cuz some people dont have the luxury
Scuby04 3 weeks ago
Thank you for the vid. Definitely changes my perspective on a few things (the joyriding thing especially). My girlfriend suffers severe migraines so I've gotten accustomed to the invisible illnesses you speak about. It's a hard thing to relate to people who don't know. Long story short, we should all be more compassionate and inquisitive before passing judgement on others.
TheShiboe 3 weeks ago
@TheShiboe Migraines are so hard, too, because they hit at random, last god knows how long, and can be really hard to treat. Usually caffeine helps, but for me at least, I can't have caffeine! :( Hugs to your lady.
FragileWithSpunk 2 weeks ago
@FragileWithSpunk They actually often have a trigger. For my GF, her life was saved by a holistic center that determined she was allergic to wheat (gluten) and corn (in most everything processed). Now they are mostly under control (stress and light sensitivity still play a part). My cousin also cured his by going vegan. Diet plays a huge role (in many things); I would encourage everyone to be more open w/ their body. Many people have allergies/intollerances and don't know it.
TheShiboe 2 weeks ago
ATHENE TTTT
head2fiststyle12345 3 weeks ago
i hope you find a guy that willing to spend alot relax time with you on V-day :) you desver it :)
deathsightofhell 3 weeks ago
Omg how can some1 dislike this..i think youtube should put donate instead of dislike for this video.
drganxta 3 weeks ago
your absoultly beautiful inside and out
ujellybrah1 3 weeks ago
Is your problem something more extreme measures might help, like taking HGH? It would sound like a more effective treatment than vitamin C at least.
PinuyashaRPG 3 weeks ago
thanks.ive never heard of this but i do now
hobobanana6575 3 weeks ago
Hey Izzy :) i briefly talked to you on your stream last night, i have eds type 3 too :) i have basically all the symptoms you have, but not as severe. I'm 15 years old and i was put into hospital a while back from an injury that i had sustained in rugby, that kept coming back. So i turned to gaming too ;D! just wanted to say keep on doing what you're doing and you've gained another subscriber :D
Meyerlad 3 weeks ago
It gives me pain watching this. I think about my own problems and what I need to work on but not stressing it. In a way by you speaking about this you're helping me understand how importent some things are in life. I realy want things to become better for you if it helps im listening to your problems. Don't let these selfish immature people stop you from saying you own feelings in the end of the day they can't do the same. They're trying to hide their own.
RsPrincsce 3 weeks ago
hope u can walk as usual :D
garielorc 3 weeks ago
Check with your doctor to see if you're healthy enough for
omenroc1 3 weeks ago
you are cute. cant get around well? piggy back rides for freeeeeeeeee!!!!
SHEEPOFSATAN 3 weeks ago
:( stay strong
learyan 3 weeks ago
Fuck sake, I think I felt in love,
PropanButan69 3 weeks ago
Hey Kitten - came here from lol vids, but I am a 5th year med student, and this was very interesting to hear - great for learning. Thanks, and best of luck!
hoverflysmiles 3 weeks ago
Respect for you!
MrDauru 3 weeks ago
Your one of many..
Shadeslolz 3 weeks ago
Stay strong!
supercoolwillman 3 weeks ago
Congrats! Never give up!
chefanoe 3 weeks ago
all ways nice to help a beautiful fellow gamer out :)
sp22en22cer 3 weeks ago
People suck. Individual persons may be great, and you'll meet lots. Any one who doesn't want to be friends with you because of EDS will lose the chance to make a great friend. I think you wear your alias well, you have spunk.
marcdepuma 3 weeks ago
i like that little batman symbol in the back lol your inspiring
MsBsftw 3 weeks ago
Man you an such a strong person....inspirational...
789123456789 3 weeks ago in playlist More videos from FragileWithSpunk
Donate for that girl, she have the chair but + help won't be bad
TheBlawfish 3 weeks ago
You're beautiful
Raelimrtn1 3 weeks ago
i am really glad for you. ive watched the whole thing on athene's stream and i really support you for being so inspiring and strong :) i really like your personality and opinion. congrats on getting money for a wheelchair im really happy about it and i hope to see unboxing vid soon! :D i actaully cant wait for it! B) keep it up i will always be stalking your channel! so i hope to see more and more vids in the future :) im glad to know you.
piniginis 3 weeks ago
How are Fpsrussia's videos related to this?
Zenko55 3 weeks ago
@Zenko55 PaintballKitty is part of FPSRussia and has claimed me as hers. :P
FragileWithSpunk 2 weeks ago
o_o... daaaammmmnnnn
kakalaga 3 weeks ago
saw you on athenes channel TTTT
str8shot2020 3 weeks ago
Izzy, you have given me such inspiration. I too suffer from an invisible illness, and understand completely where you are coming from! No one really understands what its like to deal with the bs of " oh well you don't look like you are hurt or sick". It hurts, especially when it comes out of mouthed of people that are close and supposed to support you no matter what. 3 you too Izzy!!
Riverchicky 3 weeks ago
Congrats on the wheelchair. At any rate.. I heard vitamin C helps? Like huge doses?
pnutbutternjelo 3 weeks ago 24
@pnutbutternjelo I am not Gangplank. :)
FragileWithSpunk 3 weeks ago 81
@FragileWithSpunk Gankplank was my fav char. Or at least was when I played... or maybe I have no idea what is going on... most likely the last. :( Pirates are cool!
Ashmantle100 3 weeks ago
@FragileWithSpunk Wait, so oranges actually don't give the magical K vitamin either? You know, the one you have when you are k.
kokoroyer 3 weeks ago
@FragileWithSpunk LOL. Well, it does get him out of immobility.. hehe. But I heard that collagen is part of the walls of the blood vessels, and with low vitamin C, it results in leaks. The leaks trigger an increase in cholesterol production from the liver which then results in blocking the leaks, but also heart problems. There's a German doctor who claims to cure heart diseases through vitamin C, a precursor to collagen. I've seen diet reversing diabetes type 1 and 2, I hope this at least helps
pnutbutternjelo 3 weeks ago
@FragileWithSpunk Isn't there a treatment? I'm sure we can help you raise money.
You're awesome btw.
TortillaGaming 3 weeks ago
@FragileWithSpunk OMG that reference made me laugh :D congratz on chair
MsBsftw 3 weeks ago
@FragileWithSpunk ROFL!
ringforrohan 2 weeks ago
man when i hard about your heart problems i bursted into tears
legitxbz 3 weeks ago
when i watch this i cry every time i really fill sorry for you
legitxbz 3 weeks ago
I rly look up to you!
You are a really strong personality!
Most people with such disease try to hide it and will never talk about it openly and I think like You thats part of the reason why so few people know about these "hidden diseases"
Anyways I wish you the best of luck in the future!
srypWned 3 weeks ago
9 people work at Wallmart.
waxcpc 3 weeks ago
Could you explain the meaning behind "FragilewithSpunk"?
krj2009 3 weeks ago 14
@krj2009 I'm fragile in my body, but my personality is spunky and upbeat!
FragileWithSpunk 3 weeks ago 48
@FragileWithSpunk Hey Issy, Thanks for the great vids and your straight talking. I've learnt something today from you and I thank you for that. Don't let the small minded cretins get you down :) subbed and looking forward to your next vids and wishing you all the best :)
easty971 3 weeks ago
@FragileWithSpunk Thanks! What kind of games do you play?
krj2009 3 weeks ago
So what else can we do to help you out? Wheel chair, check. What's next?
Maniac742 3 weeks ago 98
@Maniac742 YES ATHENE! WE MUST GO FARTHER!
15tgore 3 weeks ago
@Maniac742 It's times like this i really love the gaming community and im happy for being a part of such good selfless group of peoples where we (i think) understand eachother much better than other types of groups.
erthaa 2 weeks ago
Thanks for sharing this and teaching me something. I feel the greatest block is people making assumptions based upon limited knowledge. The world needs people like you with the courage to educate us.
Ashmantle100 3 weeks ago
I just wanted to say...You are beautifull person, inside and out.
spenspuma 3 weeks ago
I share my light with you hun. Be you be true Nameste
CharilaosOvrenovits 3 weeks ago
thank you.. made me cry out of nowhere.. and i don't normally cry of sadness
Darkzakrza 3 weeks ago
Never give up girl. I will always support you. :>
mordorBlue 3 weeks ago
You remind me of my friend Stu who has a type of ME looks fine and great on the surface.
But the pain underneath:(
Glad the chair was sorted out please show us some cool pix of it:)
hugs to all.
oldmordim 3 weeks ago
We got your back, Never give up girl!
TheMadbiz 3 weeks ago
This has been flagged as spam show
9 people out there desperatly need to go jump off a cliff...
Stompxx 3 weeks ago
Comment removed
Stompxx 3 weeks ago
This has been flagged as spam show
go to Oprah bitch and try to qq there
Hmiskoumprio 3 weeks ago
@Hmiskoumprio I seriously hope you die a slow and painful death you fucking piece of shit.
Oiinkment 3 weeks ago
@Oiinkment it wont happen to me,iam healthy,her on the other hand might have a slow and painful death!
Hmiskoumprio 3 weeks ago
@Hmiskoumprio karma is a bitch bro.....
wrt54gl221 3 weeks ago
@Hmiskoumprio Your a nasty piece of work you know that, your health can be taken in an instance remember that!!!
LucaBlightBadass 3 weeks ago
@Hmiskoumprio Question is how long you will be healthy if you keep hating ;) people gonna find you
Tyskjanne 3 weeks ago
@Hmiskoumprio You are a dog
TheMadbiz 3 weeks ago
@Hmiskoumprio fore youre sake i hope not to many people will see youre remark => it can have bad consequenses for u in the near future. it will not take long before people who make bad inhumane remarks to face the consequenses. best fore you to do is to look deep inside youreself and realize that what you put out into this world is what you are inside :-x try to find more love fore youreself => you need it :-) peace
jetunknownactor 3 weeks ago
Great video with a lot of good information.
TheMatriecks 3 weeks ago
You are a very Strong Person because your taking it well and Learning to Deal with it not like ths WEAK people that go and dislike videos because thr bad at life.Peace out
PackoChico2 3 weeks ago
Do they give you Gabapentin(neurontin) Or lyrica(pregabalin), It treats fibromyalgia, I take it for my fibromyalgia and it works wonders.
SrLeena 3 weeks ago
Can't wait to see your wheel chair! I was watching on athenes live strem
SrLeena 3 weeks ago
:)
w00tw00tjon 3 weeks ago
very well said, and yes you are beautiful
mariusMinD 3 weeks ago
Fighting!!
Mudbull 3 weeks ago
izzy!! an insparation to us all ,everyone is born diffrent its just unlucky that you have been born with eds but how i think of it is that someone Somewhere will have something worse ,ps your beautiful and also what is ur youtube name about haha :D <3
50IUTheClan 3 weeks ago
thump up if athene brings u here
thebalool1 3 weeks ago 2
Rock on Izzy !! I now have a hero to look up to . Thank you : )
ian2sexy 3 weeks ago
Show legs plz
AmauryPenseur 3 weeks ago
Do you die from EDS?
generalwhitexoxo 3 weeks ago in playlist Fler videoklipp från FragileWithSpunk
@generalwhitexoxo You can if you have vascular type of EDS. But Izzy had hypermobility type 3, EDS. That's what I have, I also have some classic. I never seen a vascular case though.
Joster07 3 weeks ago
U r sweet and dont give up. =)
codexBiH 3 weeks ago
good luck hopefully you will keep ur head up strong for the rest of ur life
befek 3 weeks ago
Batman! Behind her right shoulder, he is always watching!
JimboLawd 3 weeks ago
What events did you do in track????
Chrisrips123 3 weeks ago
Hey kittey! the video where you get bombed by Athene you were listening to the sorta music i love when trying to relax with a round of LoL, would you mind telling me what radio station you used / and or list a few bands? sorry for the trouble if you need to check your own video to remember! just realy relaxing music
Jahoo89 3 weeks ago
i love how honest you are :) thats really great advice for anyone in any circumstance really.
tally24th 3 weeks ago
R u gna walk again ?
mihailo343 3 weeks ago
As one who also suffers from a very different 'invisible' disease I can agree with this video extremely strongly I have learnt that people for the most part don't understand and have no interest to.
PedanticGamer 3 weeks ago
i very much understand what your talking about and i understand what you feel to, i got an "invisseble illness" to but mine is very diffrend. I got autism if i say it correctly, its not really an illness but it affects the way your brain thinks of certain things and it affects how you react with the outher world. It was very hard for me to learn to live with it so i clearly understand your feelings :) I hope the best for you and i think it is awesome that athene helped you get the wheelchair!!
LHTheBig 3 weeks ago
The way you tell your story is very inspirational, you seem like a very strong and intelligent person. If you start to edit some gameplay or random video's I'm sure you would get plenty of views & new subscribers. I'll be keeping an eye out. Good luck!
Pavlovszky 3 weeks ago in playlist Liked videos
omg this is really touching! im so glad i donated for your wheelchair! thank you!
TheGamezCorner 3 weeks ago
so touchting story:(
roflpofl1337 3 weeks ago
Holy shit, saying that so factually, you're strong as hell. I got blinded in one eye, and it still upsets me every day, when I can't get around in the dark, pour drinks, etc. But you're boss-mode. Keep it up!
killshot123 3 weeks ago
Very nice speech. what you said does not only apply to EDS but a lot of others "invisible" deseases :) and also nice music tastes! Keep that smile
Mysterystardust 3 weeks ago
Your a beautiful girl that has amazing guts to post a video about yourself. Well done. Best of luck in the future with all your videos.
Its great to see people trooping on with life despite the obstacles!
9tThree 3 weeks ago
Hey, im moving to costa rica, if u come down this way, you got a place to stay, no homo.
greenteamgARRETT 3 weeks ago
Keep the amazing attitude that u have. Wishing nothing but the best for u.
jestermh 3 weeks ago
You are my hero.
F0dchaos 3 weeks ago
Will you eventually lose control over certain parts of your body? if so will you still feel them?
SofOuerradi 3 weeks ago
Does make u think.
She loved to be active and sportsy, and I am just a lazy twat who just sits around doing nothing with a perfectly capable body.
PS: I'm not trolling.
KarudasGaming 3 weeks ago
it is unfortunate you could not continue gymnastics. you have a good attitude on everything though so keep it up and you will be fine
rw1993n64 3 weeks ago
gawd i just saw one of ur streamz ! so energetic loved it :D, great sense of humor and trollage :' )
is it possible to announce when u stream id love to support by watching the commercials etc : )
3nd1ng 3 weeks ago
You know what you are rite I was imbarased about my genetic deasease. Im 27 and just a few years ago I decided to talk about it and stop beeing ashamed. All I can say is keep ya head up and hey there is always somethin to live for. A big hug from Croatia
jimmyy13 3 weeks ago
you dont need make up.
TheAdeOfSpades 3 weeks ago in playlist More videos from FragileWithSpunk
Stay strong for all of us. You're not the problem. Media and how they impact our society is. Thanks for giving me this behind the scenes look into the problems of invisible sicknesses.
Ever seen Tedtalks? I would love to see this or something like it there. It is also a super great way of reaching people with this. Try and contact them with this clip or something else like it as a introduction. Again, stay strong!
demottt 3 weeks ago
I liked because I support you!
demottt 3 weeks ago
what kind of animal would dislike this?
supperfley 3 weeks ago in playlist More videos from FragileWithSpunk 59
@supperfley A human, the worst of the lot.
FKProds 3 weeks ago
@supperfley idk maybe a Person like Mr. Burns from Simpsons -.-*
Renadeim 3 weeks ago
@supperfley Troll
Spandex08 3 weeks ago
@supperfley yes they are animals but thr just people that are Scare at Life so they do what they only do best to be a ZERO
PackoChico2 3 weeks ago
@supperfley well surely the ones who are jealous that they cant get any money like she gets.
Cmon people there is reason why she even got that money.
TheCarbon2 3 weeks ago
@supperfley A bieber..
kokoroyer 3 weeks ago
Great video and I completely agree with everything you've said, especially concerning "invisible diseases".
BushidoRei 3 weeks ago
I feel sorry for you, but this just reminds me of the people who bullshit eds in the uk and take my fucking taxes as benefits so they dont have to work
ConstantmimeDK 3 weeks ago
WOOT yay! new wheel chair! U are going to have a happy long life =]
urshelr 3 weeks ago 17
@urshelr Uhm... I wouldn't like to be stuck in a wheel chair for a lot of the time.... But I'm sure it will help ^^
FKProds 3 weeks ago
Wow. Very powerful video! Great job and good luck to you! I will definitely be watching your videos more often. Can't wait to see the chair!
btedesco10 3 weeks ago 2
This has been flagged as spam show
Very clear and well put forward.
I understood every word you said, and I just want you to know that I feel your pain too.
We all do.
Best wishes x
XGOD3210 3 weeks ago
Comment removed
XGOD3210 3 weeks ago
Before I watched this video I would've assumed you were fine, just too lazy to walk but after watching it I understand so much more. Wow I've never even realised, add me to the list of people you educated!
Sk3elly 3 weeks ago
Congrats to the new wheel chair! You deserve it alot!
Sadfac3s 3 weeks ago
Found this through your stream/Athene's stream. Congratulations on your wheel chair. Definitely going to tune into your stream more often, dorky in a best possible way. =p
ShiroshiMajikku 3 weeks ago
Love your youtube name.
ProWithStandards 3 weeks ago
Good video, I wish the best luck!!!
You are awesome <3 we love you
TheAnonrandomguy 3 weeks ago