HeIlo I saw your video while searching for a report of muskular dystrophy - In fact
before I saw it I had no idea how much this disorder is influencing the daily life
and what kind of a struggle it is. I think you are really very strong person and I have deep respect for you. Wish you all the best and a lot of strength
Hello, My name is Meg. I am 23 and I have Limb-Girdle still testing to see if its 2a. I am so touched to see how you have opened up your life to show the world the struggle of this disease. I am a single mom of a two year old, I am now in a manual wheelchair but still struggle with many of the same issues. Thank you, its always nice to feel like I am not alone.
Hi. My name is Tori. I'm 17 and on the 9th I'm going to be tested for limb girdle. My doctor already told me I probably have it, so I'm prepared. But I just wanted to say thank you. These videos were some of the only videos we could find related to limb girdle-other then hereisjamz and JDBoogy510. My mom and I couldn't find any other videos on it, so thank you for sharing. I only ask if you know anything else about it, and if you explain it or tell about it in your vids instead? Thank you!! =]
why do you go down the stairs like that?! Can you not bend your knees or something? Did you ever fall going down the sairs like that?
dshopperz001 5 months ago
HeIlo I saw your video while searching for a report of muskular dystrophy - In fact
before I saw it I had no idea how much this disorder is influencing the daily life
and what kind of a struggle it is. I think you are really very strong person and I have deep respect for you. Wish you all the best and a lot of strength
farah2345ify 6 months ago
Hello, My name is Meg. I am 23 and I have Limb-Girdle still testing to see if its 2a. I am so touched to see how you have opened up your life to show the world the struggle of this disease. I am a single mom of a two year old, I am now in a manual wheelchair but still struggle with many of the same issues. Thank you, its always nice to feel like I am not alone.
MegaCutenerd 11 months ago
Hi. My name is Tori. I'm 17 and on the 9th I'm going to be tested for limb girdle. My doctor already told me I probably have it, so I'm prepared. But I just wanted to say thank you. These videos were some of the only videos we could find related to limb girdle-other then hereisjamz and JDBoogy510. My mom and I couldn't find any other videos on it, so thank you for sharing. I only ask if you know anything else about it, and if you explain it or tell about it in your vids instead? Thank you!! =]
TimeforTori 1 year ago
Thanks for this explanation .. you are or seem a really guy to me .. will look at your other new clips when more time
Wish you a Christmas of Peace, Joy and Love, John
mapleclose 1 year ago