I wish I could tell my husband too that his little aches and pains from working a JOB where he gets a paycheck doesn't make him hurt worse than me because he gets a paycheck. I mourn the life I lost, and what I had to adapt to. You have to be very careful about hot and cold water. The climate is an issue to. I found myself a bit better in the desert, but if I over do it, I pay for at the very least 4 to 5 days!
It validates me to know i am not alone. There is no excuse for the rude comments below, If only people DID understand, they would never say things like that. @Wordey123 YALL EVER HEAR ABOUT SENSITIVITY TO OTHERS FEELINGS? This disease makes a person depressed enough, not to mention pretty damn moody. Flood my inbox, I don't care, I don't read immature comments. YOU FEEL BETTER CUZ YALL AINT NEVER HAD IT. Damn.
Yall hear of aspartame poisoning? Yall hear about long term gluten sensitivity? Fasting? Thats what cured me from my pains, now I'm normal like I never had it. Weird shit.
i was reasently got diagnosed with this and lupus and its vary hard i wish it dident happen to any of us it fricken sucks all u can do is move day buy day and keep moving forward thats all we can do. it sucks well i will talk to u again keep your head up thanks for the video it was good.
Hot and cold baths with help with many types of pain. I don't have FM but I am 48 Male with pains from hard work and injuries all my life...and I hurt "everywhere"!!
There is not nearly a joint or muscle that isn't hurting for a moment. Only good thing about the pain center in your brain...you can only feel pain in one area at a time :-) Thank God!!
Michelle, I talking about something THEY don't know about. I know some different treatments. What the others know is nothing like what I am talking about. If you will use contact me at my email, I'm on G mail, I will give you more info, that can help you : )
I also have all the same symptoms, or did. I studied massage and then learned how to get rid of a lot of the pain. Then I got off the pain pills. Would you like to know what I learned? I "invented" a lot of the techniques, because I have to do them for myself. When my friend who does massage touches me, she kills me, so I HAVE to do it alone, we can't trade. You can ask me at a a h h massage at g mail, and I will respond the best I can. I am planning to make videos to show what I do-soon.
Much of medical community does not know what to do to resolve auto-immune diseases...sadly...there is a doctor who wrote a book on the major cause of all these au diseases...its still very controversial and only recognized by alternative medicine....Candida...try Amazon.com for book called the Yeast Connection by Dr. Cook. This infection takes over entire body and caused by past use of antibiotics and sugar.
I've had people telling my husband I'm a hypochondriac "because that's really what fibro is" or that I "must be fine because she was just laughing and smiling"...when I tell him I'm tired after a day of trying to help out at an outdoor event in the summer sun. To me, it's even worse that they're putting him in the middle because he's getting sick of trying to stick up for me to these idiots...and he shouldn't have to. I'm taking today (awareness day) to try to cram it down some throats!
I myself have fibromyalgia I was diagnosed when I was 24 however I think I have suffered since childhood u have inspired me to make a vid to. Comin soon in the meantime check out sonkisst mr landlord.
I can help you get rid of this! I am an Author - Spirituality My mom has this. THIS IS A PARASITE THAT SETTLES IN THE MUSCLES! Called trinchinella larvae, caused by chemtrails. Build a zapper, and all it takes is a 9 volt battery. We all work on unique frequencies. I have reached out to over 15 people tonight to get this information out to help others. My name is Aprile Plummer and you can find me on Facebook - Lightworker, rainbow warrior!! We're all one & and awakening as one! Namaste!!!
Got "fibro"? Do yourself a favor and check your medical records to see if you'd taken Cipro, Levaquin, Avelox or any other quinolone antibiotics in the weeks or months prior to your symptoms arising. Doctors give out these terribly poisonous drugs like they're candy, and they are known to cause DELAYED REACTIONS that mimic fibro symptoms nearly perfectly. Because of this delay in reaction time, many people never make the connection between the drugs and their new mysterious health problems.
This is caused by inflamation and can be stopped by eliminating sugar in your diet number one. You also should eliminate as much as possible heavy metals and toxins from vaccines, metal fillings, and as many other environmental toxins as possible. Don't overlook those in soaps, shampoos, cloths detergents, etc.
A great help to undo and strengthen your immune system is taking a good quality omega 3 fish oil,. Shaklee Omega Guard is a good one. Go to mercola.com for more information.
I HAVE HAD FIBRO FOR YRS NOW,ITS BECOMES VERY DEPRESSING ,THANK YOU FOR POSTING THIS,MORE PEOPLE NEED TO BECOME AWARE OF THE PHYSICAL AND MENTAL HELL WE GO THROUGH NONSTOP!
I HAVE HAD FIBRO FOR YRS NOW,ITS BECOMES VERY DEPRESSING ,THANK YOU FOR POSTING THIS,MORE PEOPLE NEED TO BECOME AWARE OF THE PHYSICAL AND MENTAL HELL WE GOO THROUGH NONSTOP!
I feel so bad for everyone going trough chronic pain because I know what they're going through. Ive been having chronic headache pain, everyday for over four years and in the last year or so ive developed fibromyalgia. It hurts when people tell me im alright just because i look okay on the outside.
I had almost no pain in 6 weeks and from one day on the other I'm sick again for 3 weeks already!! ...Now I just hope to feel better soon..I want those 6 weeks back!!!
The pain of knowing you feeled better and the waiting on a better day is harder for me then my back or my neck..
I am a recovered fibromyalgic who left the medical profession to discover the cause and cure of this horrific condition, and I understand it completely from the inside and back out again. Symptoms are mistaken for the cause and treatments that can help do not cure it. Please, do not give up from failed hope! I am living proof your can cure this and take your life back. Keep going!!!
Valerie Lumley, Recovered Fibromyalgic and author of
"Curing Chronic Fibromyalgia - Choosing What Works"
About a year ago I introduced this video to my husband...it really expressed everything I was feeling and wanted him to know. I am on Savella now x 1 month and it has been a miracle drug for me! This video still makes me cry........
I'm a 27 year old guy whose been suffering from fibro for years unknowingly, I just recently began treatment for it and I can't even explain how much better I feel. My heart goes out to anyone who has to live with this, I thought I was destined to be exhausted and in pain forever, though I'm sure my symptoms aren't nearly as bad as some they were, at times, unbearable. I hope you all find a cure that works for you. Stay strong.
the most insensitive comment i come across is,,, if you just accepted jesus he would heal you of this. as if i have a choice. and how dare someone assume what my spirituality is.
gentle hugs. xx chris i dont have fm and me and millions others need to learn from you all. it may be an ivisible illness but i know its not a made up thing to get off work, or sympathy, it makes me cry seeing my friend who has it going through so much, and people saying you look fine. found a great saying. isnt it funny that i dont look ill and you dont look stupid.
@cjbrittain ...don't look stupid. good one! I've been through it and come out the other side. There is hope even though we are inundated with toxins that cause FM and many other autoimmune diseases. It takes time, and those in pain need good company and positive people surrounding them as much as they need good whole foods and natural "medicine".
I don't give a damn about what other people think, I don't care if they think i'm faking. One day i'll die and no one will give a damn. All I hope for is divine justice for all the uncaring assholes. Please let me be the hammer the crushes human ignorance.
BIG TIP!! Follow this..It is working wonders for me!
Don't eat to much sugar, fruit, milk, cheese or chocolat, everyrhing that has the color red is bad!!! This causes infections in the body and U and me, people with fibro don't have a normal immunsystem! If you can walk every day 2 times for 10minutes, only if you can! I'm going to a new doctor in Belgium..and i'm feeling so much better... looking for a treament. Everybody stay strong please!
@MiekeK13 Good advice! Keeping in mind things like red dye slowly poisoned and helped create FM should make you want to run from it. I threw out all things with preservatives and artificial color, all artificial sweeteners like aspartame and things with strange names I couldn't pronounce. Mold is very toxic to some (not just black mold) so moldy cheese should be avoided. It may not only cause a migraine but will tax the immune system.
21 diagnosed a few months ago, saw many different doctors from my 16th till now... im lucky to live with my boyfriend who picks me up from the floor everytime... thnx for this video, it helps us fibromyalgia patients
@isiaiowin when you say picks me up from the floor I almost thought you meant figuratively until I remember those times my legs did not work, they were a knot of throbbing jumping muscles and I had to crawl my way from the chair or bed to the bathroom because I was alone. It's good to hear you have someone who understands. I hope he is always patient and understanding for you.
@MiekeK13 i have set up a group on facebook called FIBROMYALGIA:someone i love needs a cure and am inviting people to join. its for people with or without fm, and is mainly for making people without it more aware. hope your well, and hope you can help by asking some of your friends to join. gentle hugs. xx chris
good video!! feel your pain! i am diagnosed 5 yrs now. been a stay at home mom but recently had to go back to work after 16 yrs. i never thought i could do the work required of a two year old preschool teacher!!!! i cant believe after four months i am still at it. i still hurt so bad and still have all fatigue and weakness,ectmm but i am too busy too feel it! lol i wouldnt recommend this for anyone!~ :) but moving around does wonders. getting out has helped with my depression also.
im tearing up right now!! this is my life too..sitting in my bedroom in pain...feet...fore-arm...knees...head...back...hands...chest..stomach..i feel your pain:/ <3
I have been in bed with muscle pain for 5 yrs. 2 months ago I inadvertently discovered a supplement that completely took away all my muscle pain after only 4 days. The supplement contains all the amino acids. This tells me that I must have a metabolic disorder in which I am not able to break down protein into the amino acids. The product is only sold at In Shape Gyms or ordered on line. This is the name of the co. Craig Nutraceuticals, Inc Amino Focus. It is the one in the purple label
this made me cry, because it is so close to my life. i am nineteen, and was diagnosed a year ago.
i love that you pointed out how a person can look "fine" on the outside, but be completely torn apart on the inside. i think that is one of the reasons people think it's a "fake" disease.
thank you so much for making and posting this. it is beautiful.
did you know if you go to a vector born disease dr he or she may be able to help you . also did you know the same treatment that is for lyme disease only from a lyme specialist can also help people with fibromyalgia please look into it . I don't like seeing people suffer like me. we have similar symptoms some would say the same symptoms please see my video I have chronic lyme disease
Beautiful video, it really captures the way FM can really sap the youth out of the young sufferers. I am a 23 year old female fighting FM every day since my childhood.
Same here - 23 and have suffered all my life though only just got diagnosed last year when it did the big flare-up that doesn't go away. I was so, so active and now it's all I can do to get downstairs! I hate it..
There is this other guy Alex Chiu with his Immortality Rings, he treated lots of fybro myalgia cases. I had his Immortality Rings on and it certainly did help my pain a lot.
Peoples. Brice E Vickery has several viseos on youtube about the easiest answer to Fibro. I took his Supernutrients and after a month, boom boom, all good again. Do watch them please.
Join or check the Fibromyalgia Network; a clearinghouse for all & any treatments, (inc'g info on the hyped-up "Guai", which they've NOT found to work-sorry). You can trust them to not let you waste your precious time & resources.
I was just diagnosed with lupus a month back. I was diagnoised with Fibromyalgia when I was in 6th grade. My symptoms and my normal life all changed in 5th grade. I am now a Freshman in college. I don't remember what its like to not be in pain or feel healthy and rested. On top of lupus and Fibro. I also have 3 sleeping disorders that don't help with the equation.
My mother has Fibro and MS. I wish they would stop bitching about its a "fake" disease and take action!
It is a difficult road and I am one of the ones that suffer with you..Heres hoping you have a good day soon..Those are the ones we look to to keep the hope alive.
Very moving...thank you. It sux when you hear "well, you don't look sick"....but sometimes the pain is so bad, you wonder how others could doubt it. I hope you are surrounded by love and support...it's what gets me through it all!!
This video is wonderful... all the pain, frustration, tears, lethargy, and pills pills pills. I HATE fibro :( Why don't doctors even believe the agony we're in?!
through my own experience of alternative medicine i have seen a great improvement in my FM. Go and find your locla accupunturist or cupping therapist. things will get alot better for you. They have with me
This isn't the same as a gallbladder removal.. I'm sorry you are having constant pain, but there is nothing you can do .. not even see a naturopath to help. I am too one of many.. there's no cure, and barely even any recognition that it exists..
"It's such a waste!" he sings, & I can't agree more. Someone said: Without suffering there can be no compassion. Maybe that's true, but do we have to suffer SO much? Like a very. slow. death.
I have had accupuncture and cupping and believe me i am 50% better if not more.I do recommend this. i do not take any medicines for my FM.The cronic fatigue has NOT hit me for at least 3 months
You are so beautiful even through the pain. I too suffer from this devastating illness. I hardly ever smile or laugh anymore. Even my own boyfriend does not understand my pain. He attributes it to being out of shape. Thanks for the video.
I've had fibro for 2 years lost 20 pounds and now pregnant and can barely move feel like i'm dying I hate this disorder the pain is all to real!!!! I'm only 31 and keep thinking why me??????
Only take what the dr's gives you as far as pain killers, If you only take what they give you and don't increase it on your own they will still continue to work
I could feel the pain, I have had fibro for over thirty years, sorry you also have to go thru it. Finally a Dr gave me enough pain pills to get through the day, it's helpful but a cure would be awesome.
hello the pain you feel is a byproduct of inproper brain functions. and inproper understanding of how your spirt body works. your organs and brian cells regenerate every few years. a blue print of your perfect brain exists within you. focus your healing on all the brian functions and with help from up above they can oversee this recovery. etc etc. replies are welcomed
what are you talking about? i believe in the mind-body connection, but i think you're overstating it. i've learned to be skeptical of everyone who says they have the answer, so i'm asking more out of curiosity. thanks.
I share my exp. with people. chew on the info and get better. I don't offer pills or stuff for sale. no items no books. I met with that person and after 15min her pain stopped. If you email i will answer any questions you have. jamespowelson use yahoo search
I am so confused. I might have to post this in several posts since there has to be a stupid word limit. I was diagnosed with Reflex Sympathetic Dystrophy when I was eleven, although I probably had it since I was nine. The pain was unbearable, I was in a wheelchair, and my heel hurt so bad. Then my entire foot hurt, than my leg, than my other leg. The pain was only getting worse, never any better. My leg was turning purple and no one knew what was wrong with me.
I eventaually got out of the wheelchair with the help of several nerve blocks and physical therapy. It was hell, but I was able to take control of my pain. My pain wasn't gone, but it was better. Than over the years the pain has only gotten worse. I spreads throughout my entire body. I no longer have the discoloration I did when I was diagnosed. Every moment of my life i hurt. If it isn't my legs it is my wrist, if it isn't my wrist it's my back. I get really bad headaches nearly every day.
My pain gets worse with bad weather. I am hypersensitive to touch. I get sick all the time. I am alway tired...but can never sleep at night. I know have Irratable Bowl Syndrome which sucks and I also have an idiopathic cystosis...I can't remember what it means but it's unexplained bladder pain. I get really bad heartburn. I get dizzy spells. My whole body aches from the time I wake up to the time I go to bed. It's so hard being 17 with this condition. But I wonder if I have RSD or fibromyalgia.
I was 17 when I was diagnosed with Fibro and probably had it since I was like 9. I'm 23 now.. ( 24 on Christmas Eve) and I'm still here. granted, every day is a struggle, but here I am.
So many things are wrong I always feel sick. My daughter does more so and her fb is worse than mine. Tell me about I.B.S. OH, MYGOD. They think I have gall bladder problems, incredible heartburn. I get dizzy. I slip and trip and fall. I always ache. You need to go to a specialist to be diagnosed.
I have had fibro for 6 years and just stopped working due to it.I have to have Gallbladder out in 2 weeks no previous symptoms is it conected to my fibo?
I had my gallbladder taken out. Wish I hadn't. There were no stones, it was just emptying too slowly. But I hadn't had any bother from it before. Now I have a lot of pain in that area almost constantly. Talked to 2 naturopaths who were sorry to hear that I had my gallbladder taken out because now my condition had worsened, and described a few treatments that could have helped me avoid surgery. See a naturopath/homeopath. Sometimes they can help you a lot for chronic conditions.
FM is caused by mycoplasma!!! and is very treatable I have learned about this since I was diagnoised with lyme disease and tested pos for mycoplasma. mycoplasma is a free cell bacteria that is treatable with long term abx in the tetracycline family. myco is man made and is patented by the US ARMY it was orig used as biowarfare and tested on the public withour knowlendge google garth nicolson his website has great info! you guys can get better please read and if u have any ques please email me
Just watching you, it was like looking at myself go through the physical and mental pain FM. Im 33 and have had this since I was 18. I have four kids and everyday is a living hell, I feel so sorry for my husband and kids more than myself. I am not on any meds at this time as just recently my doc told me I just have to live with it! So I'm going through a bad stage where I feel like giving up, but that is what it is, a stage. I would never do that to my family. 1 day I will feel better......maybe
my name is jamespowelson I met someone with fibro I felt her pain and I talked with her for 10 min told her somethings and her pain stopped. thank god I got to meet with her she and 1 other are fine.
YOU are welcomed to contack me and I will answer all you question for free.
Theres a great support group that I also go to on mdjunction dot com. Just click on the F in support groups until you find the fibro one. It's totally free and a wonderful place to talk to people who are going through it also.
no worries on the -1, its clearly a muscle pain and not a spinal problem. Its much closer to the surface. Feels a little like muscle soreness - but not quite.
I have fibromyalgia and CFS, I also had the cervical stenosis... I was hoping for the one that can be fixed :0(
very important to find a doctor that really really knows about the fibromyalgia, you can click in "fibromyalgia" on google and there is a place that will show you the doctors that specialize in it nearest to you. good luck and god bless.
no worries on the -1, its clearly a muscle pain and not a spinal problem. Its much closer to the surface. Feels a little like muscle soreness - but not quite.
OMG my eyes well up reading the comments and i can see im not alone. not only do i have Fm but i aslo have Sle lupus as well. its going on 3 days with a massive flareup and no help no relief from the drs. i have a myspace look up my profile my name is johanna holman my screen name is livinglupieandfibroishell. feel free to contact me. i need more people who understand what im going through maybe we can help eachother. thanks. johanna
OMG my eyes well up reading the comments and i can see im not alone. not only do i have Fm but i aslo have Sle lupus as well. its going on 3 days with a massive flareup and no help no relief from the drs. i have a myspace look up my profile my name is johanna holman my screen name is livinglupieandfibroishell. feel free to contact me. i need more people who understand what im going through maybe we can help eachother. thanks. johanna
Guai helps "de-calcify" kidneys, organs, muscles and blood vessels (calcium phosphate). So of course the insurance companies quit paying for it. Gotta take calcium and magnesium with it, or grow your own guai tree.
Wow, My name is Leia also.... I have had FM for 5 years now. It ruins your life. Nobody seems to understand how this disease can take such a large part of you away. Your mind says do it, but your body just won't cooperate.
Wow, My name is Leia also.... I have had FM for 5 years now. It ruins your life. Nobody seems to understand how this disease can take such a large part of you away. Your mind says do it, but your body just won't cooperate.
I have suffered with FM for 17 years. It's devestating. I found releif here: wanttogethealthy(dot)com and so can you. I got of 9 serious meds in only 2 weeks. It's amazing what your body can do given the right things. Check it out and BE WELL! Hugs!
I hate my doctor. I'm addicted to pain killers, and have been for almost 5 years, & I'm only 22. I tried to quit on my own numerous times, but I can't. Not yet, but I need a new doctor. I'm just too scared to find out if 'I' have Fibromyalgia. My sister was diagnosed, (by the same doctor) and yet he said he "doesn't believe in Fibromyalgia." (Direct quote.) He thinks we're both fakers. But it doesn't stop him pumping us up with dangerous painkillers that he KNOWS we're hooked on.
I hate my doctor. I'm addicted to pain killers, and have been for almost 5 years, & I'm only 22. I tried to quit on my own numerous times, but I can't. Not yet, but I need a new doctor. I'm just too scared to find out if 'I' have Fibromyalgia. My sister was diagnosed, (by the same doctor) and yet he said he "doesn't believe in Fibromyalgia." (Direct quote.) He thinks we're both fakers. But it doesn't stop him pumping us up with dangerous painkillers that he KNOWS we're hooked on.
I hate my doctor. I'm addicted to pain killers, and have been for almost 5 years, & I'm only 22. I tried to quit on my own numerous times, but I can't. Not yet, but I need a new doctor. I'm just too scared to find out if 'I' have Fibromyalgia. My sister was diagnosed, (by the same doctor) and yet he said he "doesn't believe in Fibromyalgia." (Direct quote.) He thinks we're both fakers. But it doesn't stop him pumping us up with dangerous painkillers that he KNOWS we're hooked on.
I wish I knew that if I showed this video to my family, they would all burst into tears and say how sorry they were for not being there for me, but I have lost hope. Quite simply, they don't want to understand. My only friends are those that have the same illness - but I will get by with them alone. I will not give up. xx
I know EXACTLY how you feel. My dad doesn't believe, I don't think my boyfriend really understands it, (he just puts up with it) and the doctor that "treats" me doesn't believe or even care either.
my mum had fibro. its ruined her life. she was hit by a speeding car 6 years ago. i often find her crying late at nitesayin shes sorry for the trouble shes put our family through. but its not her fault. she cant take me and my wee sister out because she is often tired or sore or her tablets havent 'kicked in'. its harder for me than it is for her. i help her do normal things such as tidying up and vaacuming and looking after my sister.
i am so with you girl! i have been diagnosed with fibro for the last 3 years, also have Crohn's disease, OCD, arthritis....etc.. the part where you send the pills flying i so felt!!!!tlc
In response to mecq80... we're not alone. You explained it well for me. I can still work but the last few months have been hell. If any one wants to contact me they can. buttery_steam on yahoo, email is the same. We need to support each other.
What a beautiful video. God bless you for making it and showing the YouTube world. It brought back so many memories of myself. I have picture of me in my wheelchair on my desk as a daily reminder of where I was and where so many people are today. My heart is big and it's reaching out with a life saver ring to all who want to grab hold. I'll do my best to help in whatever way I can.
I learned how to swim in order to cope with the chronic pain and I never would have believed how much better I am now. Swimming works for my severe Fibromyalgia.
Sometimes I feel soo alone with this. I think I am actually in denial. Telling and showing people that I am "alright" when in reality it's killing apart of my spirit. I have soo many goals and dreams that I want to come true. But having FM makes things go in slow motion. Thanks for the video and wish you and everyone else lots of patient and hope.
thank you i am not alright, but this does tell are story of the pain and suffering we all go though i am not alright but now fill like some one knows, thank you deeply man with fibro!!!
I loved your video....I am just recently diagnosed, but have been suffering for a year or so before the fm diagnosis....you did a wonderful job with the clips and the song.
Fantastic video , which relays a snapshot of the hell people with FM are in and how they gain a hopelessness of can anybody hear me, see me. The level of currrent understanding from every view falls so short. this clip is touching.
im supposed to die in like 4 years because i have this and they didn't find out soon enough and it made my immune system break down to the point where i can't be healthy lol
this made me cry, I've had fibromyalgia for 13 yrs. now and had to go to the ER due to a bad flare up a couple nights ago. I know the PAIN all too well.
This really expresses what I feel about my fibromyalgia. My husband actually watched the entire video! And the song is great! Fibromyalgia, has taken all too many VERY happy, enthusiastic, active people and turned them into what feel like useless (I was going to say lumps of clay) grumpy thorns. It IS such a waste.
The first time I saw the video I almost had to stop watching because it brought back a lot of memories of my life. Then I played it for my husband & I couldn't hold back the tears. I used to have FM for 20 yrs. & after so many tears & prayers I found a doctor to help me. It's like a miracle!! Please reply.
How do I handle my fibro? Stretching, Mild aquatic exercize, occasional theraputic massage and nututritional suppliments to keep blood more PH balanced (most fibro patients have very acidic blood) This has kept my "hard" meds to a minimum and 75% of the time my condition is very tolerable. I will take small doses of prednisone for 7 days to get through the rougher times.
I really like your video. It was very emotional to watch. You accurately reflected how I feel. I want to thank you for raising awareness. I will share your video with many other people I know.
Thank you so much for this film. I have felt this way for over 20 years. Someone has got to help us. I live in the US but really think the real research is going on in the UK. God please give someone the wisdom to help us.
what an excellent video .. 2 years on I am still on the rollercoater of acceptance and denial of this poxy illness . People dont see how much pain im in they dont realise just because im smiling .. that smile doesnt quite reach my eyes
I'm so tired of being misunderstood by my family, friend, co-workers. I so tired of being told that I'm lazy, crazy, depressed, or its all in my head. I'm so tired of the pain. I'm tired of being told by doctors that I don't look sick :0
Loved it. I,too,am a broken woman. I understand the frustration,confusion,PAIN,fatigue,IBS,migraines and all the other wonderful things fibro has to offer. Thank you for letting me know that I am not alone anymore. Diagnosed Jan 06
I think I'm on the verge of something big on how to permanently get rid of Fibromyalgia. I tried a form of meditation I just invented while dealing with the pain and it completely started to drain the energy out of my system.
I unfortunately just lost 2 jobs because of it. I could barely sleep.
thanks for making this vid! i know what you're going through. im 17 and it took 3 years to diagnose me with fibro *huggles* for you and hope yopure feeking good!
I have listened to this several times and it is so moving. So true and really I hope this gets some big time attention. I am a fibro sufferer. Although a sad song it is also beautifully composed. K9cathy
This video doesn't discuss poor countries or thier many diseases (or issues). It's about fibromyalgia. I pity the other video posts where you have left your mark. Bitter!!!
I wish I could tell my husband too that his little aches and pains from working a JOB where he gets a paycheck doesn't make him hurt worse than me because he gets a paycheck. I mourn the life I lost, and what I had to adapt to. You have to be very careful about hot and cold water. The climate is an issue to. I found myself a bit better in the desert, but if I over do it, I pay for at the very least 4 to 5 days!
MultiReesy1 2 months ago
It validates me to know i am not alone. There is no excuse for the rude comments below, If only people DID understand, they would never say things like that. @Wordey123 YALL EVER HEAR ABOUT SENSITIVITY TO OTHERS FEELINGS? This disease makes a person depressed enough, not to mention pretty damn moody. Flood my inbox, I don't care, I don't read immature comments. YOU FEEL BETTER CUZ YALL AINT NEVER HAD IT. Damn.
MultiReesy1 2 months ago
Yall hear of aspartame poisoning? Yall hear about long term gluten sensitivity? Fasting? Thats what cured me from my pains, now I'm normal like I never had it. Weird shit.
wordey123 5 months ago
i was reasently got diagnosed with this and lupus and its vary hard i wish it dident happen to any of us it fricken sucks all u can do is move day buy day and keep moving forward thats all we can do. it sucks well i will talk to u again keep your head up thanks for the video it was good.
sadihymas 6 months ago
Hot and cold baths with help with many types of pain. I don't have FM but I am 48 Male with pains from hard work and injuries all my life...and I hurt "everywhere"!!
There is not nearly a joint or muscle that isn't hurting for a moment. Only good thing about the pain center in your brain...you can only feel pain in one area at a time :-) Thank God!!
XRayCam 6 months ago
Michelle, I talking about something THEY don't know about. I know some different treatments. What the others know is nothing like what I am talking about. If you will use contact me at my email, I'm on G mail, I will give you more info, that can help you : )
bfinfinity 6 months ago
I also have all the same symptoms, or did. I studied massage and then learned how to get rid of a lot of the pain. Then I got off the pain pills. Would you like to know what I learned? I "invented" a lot of the techniques, because I have to do them for myself. When my friend who does massage touches me, she kills me, so I HAVE to do it alone, we can't trade. You can ask me at a a h h massage at g mail, and I will respond the best I can. I am planning to make videos to show what I do-soon.
bfinfinity 6 months ago
@bfinfinity I Have tried ALL types of massage & Cranial Sacral seems to help-- FOR A SHORT TIME!
When you have Auto Immune Disease--Most FIBRO HELL have Chronic Fatigue--Which is A
STUPID Name for A disease That STEALS your entire LIFE!. This The new HIV
AND like the 1980's wehave NO funding, awareness, help, or -"Spokes Models" LOL
Fibro HELL Michelle
mcertonio 6 months ago
Much of medical community does not know what to do to resolve auto-immune diseases...sadly...there is a doctor who wrote a book on the major cause of all these au diseases...its still very controversial and only recognized by alternative medicine....Candida...try Amazon.com for book called the Yeast Connection by Dr. Cook. This infection takes over entire body and caused by past use of antibiotics and sugar.
THEdowntowndoll 9 months ago
I've had people telling my husband I'm a hypochondriac "because that's really what fibro is" or that I "must be fine because she was just laughing and smiling"...when I tell him I'm tired after a day of trying to help out at an outdoor event in the summer sun. To me, it's even worse that they're putting him in the middle because he's getting sick of trying to stick up for me to these idiots...and he shouldn't have to. I'm taking today (awareness day) to try to cram it down some throats!
bordsyko 9 months ago
I myself have fibromyalgia I was diagnosed when I was 24 however I think I have suffered since childhood u have inspired me to make a vid to. Comin soon in the meantime check out sonkisst mr landlord.
sonkisst 9 months ago
I can help you get rid of this! I am an Author - Spirituality My mom has this. THIS IS A PARASITE THAT SETTLES IN THE MUSCLES! Called trinchinella larvae, caused by chemtrails. Build a zapper, and all it takes is a 9 volt battery. We all work on unique frequencies. I have reached out to over 15 people tonight to get this information out to help others. My name is Aprile Plummer and you can find me on Facebook - Lightworker, rainbow warrior!! We're all one & and awakening as one! Namaste!!!
MisTreeeGirl 10 months ago
FM(L)
lemongirlohyeah 1 year ago
This has been flagged as spam show
Got "fibro"? Do yourself a favor and check your medical records to see if you'd taken Cipro, Levaquin, Avelox or any other quinolone antibiotics in the weeks or months prior to your symptoms arising. Doctors give out these terribly poisonous drugs like they're candy, and they are known to cause DELAYED REACTIONS that mimic fibro symptoms nearly perfectly. Because of this delay in reaction time, many people never make the connection between the drugs and their new mysterious health problems.
papatoony 1 year ago
Virasyl was created by a medical clinic specializing in fibromyalgia and chronic fatigue syndrome. Check it out. Amazing results!!
instituteforwellbein 1 year ago
if only ppl could understand.... we dont need to get ridiculed for this yet i am i dont know about yall...:(
Beck92188 1 year ago
if only ppl could understand.... we dont need to get ridiculed for this yet i am i dont know about yall...:(
Beck92188 1 year ago
if only ppl could understand.... we dont need to get ridiculed for this yet i am i dont know about yall...:(
Beck92188 1 year ago
This is caused by inflamation and can be stopped by eliminating sugar in your diet number one. You also should eliminate as much as possible heavy metals and toxins from vaccines, metal fillings, and as many other environmental toxins as possible. Don't overlook those in soaps, shampoos, cloths detergents, etc.
A great help to undo and strengthen your immune system is taking a good quality omega 3 fish oil,. Shaklee Omega Guard is a good one. Go to mercola.com for more information.
cottoncandypoms 1 year ago
This has been flagged as spam show
i know i toke care of people for 28 years hethe but now what:) talk to me i know and want you to to be ok kellilynB@gmail.com
BlondBatman1 1 year ago
This has been flagged as spam show
I HAVE HAD FIBRO FOR YRS NOW,ITS BECOMES VERY DEPRESSING ,THANK YOU FOR POSTING THIS,MORE PEOPLE NEED TO BECOME AWARE OF THE PHYSICAL AND MENTAL HELL WE GO THROUGH NONSTOP!
foodgirl427 1 year ago
I HAVE HAD FIBRO FOR YRS NOW,ITS BECOMES VERY DEPRESSING ,THANK YOU FOR POSTING THIS,MORE PEOPLE NEED TO BECOME AWARE OF THE PHYSICAL AND MENTAL HELL WE GOO THROUGH NONSTOP!
foodgirl427 1 year ago
I feel so bad for everyone going trough chronic pain because I know what they're going through. Ive been having chronic headache pain, everyday for over four years and in the last year or so ive developed fibromyalgia. It hurts when people tell me im alright just because i look okay on the outside.
cla0singer 1 year ago
I had almost no pain in 6 weeks and from one day on the other I'm sick again for 3 weeks already!! ...Now I just hope to feel better soon..I want those 6 weeks back!!!
The pain of knowing you feeled better and the waiting on a better day is harder for me then my back or my neck..
MiekeK13 1 year ago
I am a recovered fibromyalgic who left the medical profession to discover the cause and cure of this horrific condition, and I understand it completely from the inside and back out again. Symptoms are mistaken for the cause and treatments that can help do not cure it. Please, do not give up from failed hope! I am living proof your can cure this and take your life back. Keep going!!!
Valerie Lumley, Recovered Fibromyalgic and author of
"Curing Chronic Fibromyalgia - Choosing What Works"
ValerieLumley 1 year ago
About a year ago I introduced this video to my husband...it really expressed everything I was feeling and wanted him to know. I am on Savella now x 1 month and it has been a miracle drug for me! This video still makes me cry........
utube2relax 1 year ago
My sister MiekeK13 has fibro...everybody stay strong!!!
hemopje 1 year ago
Beautiful. Honest.
brisbanette 1 year ago
I'm a 27 year old guy whose been suffering from fibro for years unknowingly, I just recently began treatment for it and I can't even explain how much better I feel. My heart goes out to anyone who has to live with this, I thought I was destined to be exhausted and in pain forever, though I'm sure my symptoms aren't nearly as bad as some they were, at times, unbearable. I hope you all find a cure that works for you. Stay strong.
MrChrismakesbeats 1 year ago
the most insensitive comment i come across is,,, if you just accepted jesus he would heal you of this. as if i have a choice. and how dare someone assume what my spirituality is.
babsygirl1 1 year ago
gentle hugs. xx chris i dont have fm and me and millions others need to learn from you all. it may be an ivisible illness but i know its not a made up thing to get off work, or sympathy, it makes me cry seeing my friend who has it going through so much, and people saying you look fine. found a great saying. isnt it funny that i dont look ill and you dont look stupid.
cjbrittain 1 year ago
@cjbrittain ...don't look stupid. good one! I've been through it and come out the other side. There is hope even though we are inundated with toxins that cause FM and many other autoimmune diseases. It takes time, and those in pain need good company and positive people surrounding them as much as they need good whole foods and natural "medicine".
FarmerJaneUSA 1 year ago
I don't give a damn about what other people think, I don't care if they think i'm faking. One day i'll die and no one will give a damn. All I hope for is divine justice for all the uncaring assholes. Please let me be the hammer the crushes human ignorance.
hoturtu87 1 year ago
Six years ago i thought i was finisheddue to my pain.
five years ago i was totally disabled.
Four years ago i began having carers.
Three years ago i attened a chonic pain clinic and learnt to walk again.
Two years ago my carer took me to college to ease my depression and find some directio.
I began a sports course.
Today i am a support trainer for carers and have a career.
There is hope. Dont fight it. Let everyone know you live it, and share the burden, so you can be supported x
t0pt0tti1 1 year ago 2
BIG TIP!! Follow this..It is working wonders for me!
Don't eat to much sugar, fruit, milk, cheese or chocolat, everyrhing that has the color red is bad!!! This causes infections in the body and U and me, people with fibro don't have a normal immunsystem! If you can walk every day 2 times for 10minutes, only if you can! I'm going to a new doctor in Belgium..and i'm feeling so much better... looking for a treament. Everybody stay strong please!
MiekeK13 2 years ago 2
@MiekeK13 Good advice! Keeping in mind things like red dye slowly poisoned and helped create FM should make you want to run from it. I threw out all things with preservatives and artificial color, all artificial sweeteners like aspartame and things with strange names I couldn't pronounce. Mold is very toxic to some (not just black mold) so moldy cheese should be avoided. It may not only cause a migraine but will tax the immune system.
FarmerJaneUSA 1 year ago
21 diagnosed a few months ago, saw many different doctors from my 16th till now... im lucky to live with my boyfriend who picks me up from the floor everytime... thnx for this video, it helps us fibromyalgia patients
isiaiowin 2 years ago 2
@isiaiowin when you say picks me up from the floor I almost thought you meant figuratively until I remember those times my legs did not work, they were a knot of throbbing jumping muscles and I had to crawl my way from the chair or bed to the bathroom because I was alone. It's good to hear you have someone who understands. I hope he is always patient and understanding for you.
FarmerJaneUSA 1 year ago
The most heart wrenching comment I get is "your a hypochondriac" it hurts to the core, along with everything else.
smo200 2 years ago 17
This comment has received too many negative votes show
Another video with heaps of potential runied by shit music.
ScruffyRanger 2 years ago
@ScruffyRanger Can you do better? Judgemental people Are the problem. Sned me your video SO I CAN JUDGE YOU!
FIBRO HELL MICHELLE
mcertonio 2 years ago
I wish I could scream this to the people around me..I'm not alright so stop demanding so much from me...
I'm sick of people telling "but you look okay so you are okay"...
MiekeK13 2 years ago 27
@MiekeK13
maybe it would help to explain that there are many illnesses and conditions, that look good outwardly...
some people have cancer- and you don´t see a thing!
so calmly explaining things in the right moment, esp. to those who are open makes sense...
keep up the good fight, Mieke!!
Micha
FallaciesDetective 1 year ago
@MiekeK13 i have set up a group on facebook called FIBROMYALGIA:someone i love needs a cure and am inviting people to join. its for people with or without fm, and is mainly for making people without it more aware. hope your well, and hope you can help by asking some of your friends to join. gentle hugs. xx chris
cjbrittain 1 year ago 2
good video!! feel your pain! i am diagnosed 5 yrs now. been a stay at home mom but recently had to go back to work after 16 yrs. i never thought i could do the work required of a two year old preschool teacher!!!! i cant believe after four months i am still at it. i still hurt so bad and still have all fatigue and weakness,ectmm but i am too busy too feel it! lol i wouldnt recommend this for anyone!~ :) but moving around does wonders. getting out has helped with my depression also.
babsygirl1 2 years ago
AWESOME VIDEO! I too suffer from this horrid disease!
energyila 2 years ago
wow...exactly.....i'm not alright.. ..but i'm alright.
it is what is is - dear husband - just try to understand what it is......half as well as i can......
sumthinzup 2 years ago 4
im tearing up right now!! this is my life too..sitting in my bedroom in pain...feet...fore-arm...knees...head...back...hands...chest..stomach..i feel your pain:/ <3
hacsince91 2 years ago 5
everyone thinks its sooo easy.
getbennt 2 years ago 4
I have been in bed with muscle pain for 5 yrs. 2 months ago I inadvertently discovered a supplement that completely took away all my muscle pain after only 4 days. The supplement contains all the amino acids. This tells me that I must have a metabolic disorder in which I am not able to break down protein into the amino acids. The product is only sold at In Shape Gyms or ordered on line. This is the name of the co. Craig Nutraceuticals, Inc Amino Focus. It is the one in the purple label
firasismylove 2 years ago
this made me cry, because it is so close to my life. i am nineteen, and was diagnosed a year ago.
i love that you pointed out how a person can look "fine" on the outside, but be completely torn apart on the inside. i think that is one of the reasons people think it's a "fake" disease.
thank you so much for making and posting this. it is beautiful.
socoamarettojustine 2 years ago 3
i basically had same response. :)
im 18..was just diagnosed.<3
hacsince91 2 years ago
same here! am 18, diagnosed at 17 .... i think ive had it since well, since i can remember X support <3
SexiSez 2 years ago
did you know if you go to a vector born disease dr he or she may be able to help you . also did you know the same treatment that is for lyme disease only from a lyme specialist can also help people with fibromyalgia please look into it . I don't like seeing people suffer like me. we have similar symptoms some would say the same symptoms please see my video I have chronic lyme disease
mitchbguitars 2 years ago
Beautiful video, it really captures the way FM can really sap the youth out of the young sufferers. I am a 23 year old female fighting FM every day since my childhood.
shannygirl183 2 years ago
Same here - 23 and have suffered all my life though only just got diagnosed last year when it did the big flare-up that doesn't go away. I was so, so active and now it's all I can do to get downstairs! I hate it..
SableCatDog 2 years ago 2
There is this other guy Alex Chiu with his Immortality Rings, he treated lots of fybro myalgia cases. I had his Immortality Rings on and it certainly did help my pain a lot.
alexapollo22 2 years ago
i have Polymyalgia doctors may think and im only 23
melinmove 2 years ago
Peoples. Brice E Vickery has several viseos on youtube about the easiest answer to Fibro. I took his Supernutrients and after a month, boom boom, all good again. Do watch them please.
Squabbles10 2 years ago
Join or check the Fibromyalgia Network; a clearinghouse for all & any treatments, (inc'g info on the hyped-up "Guai", which they've NOT found to work-sorry). You can trust them to not let you waste your precious time & resources.
LindazEyes 2 years ago
get your asses to a Fibro and Fatigue center and or read from Fatigued to Fantasic. Stand by for my video.
kruseman44 2 years ago
Comment removed
Tawnka 3 years ago
I was just diagnosed with lupus a month back. I was diagnoised with Fibromyalgia when I was in 6th grade. My symptoms and my normal life all changed in 5th grade. I am now a Freshman in college. I don't remember what its like to not be in pain or feel healthy and rested. On top of lupus and Fibro. I also have 3 sleeping disorders that don't help with the equation.
My mother has Fibro and MS. I wish they would stop bitching about its a "fake" disease and take action!
Tawnka 3 years ago
You are expressing your pain so beautifully. Stay strong my friend.
I am working hard to help as well.
We are in this together! We WILL get better!
DrFrankyDolan 3 years ago
It is a difficult road and I am one of the ones that suffer with you..Heres hoping you have a good day soon..Those are the ones we look to to keep the hope alive.
debradillon 3 years ago
thank you.
MaryanLuise 3 years ago
Very moving...thank you. It sux when you hear "well, you don't look sick"....but sometimes the pain is so bad, you wonder how others could doubt it. I hope you are surrounded by love and support...it's what gets me through it all!!
rosadshi 3 years ago
This video is wonderful... all the pain, frustration, tears, lethargy, and pills pills pills. I HATE fibro :( Why don't doctors even believe the agony we're in?!
lucylepley 3 years ago 2
through my own experience of alternative medicine i have seen a great improvement in my FM. Go and find your locla accupunturist or cupping therapist. things will get alot better for you. They have with me
2271sabirah 3 years ago
This isn't the same as a gallbladder removal.. I'm sorry you are having constant pain, but there is nothing you can do .. not even see a naturopath to help. I am too one of many.. there's no cure, and barely even any recognition that it exists..
ohwebber 3 years ago
"It's such a waste!" he sings, & I can't agree more. Someone said: Without suffering there can be no compassion. Maybe that's true, but do we have to suffer SO much? Like a very. slow. death.
LindazEyes 3 years ago
A real video of how FM patients feel,look,smiles disappear,lonelyness,hopelessness,tired,
tired of doctors,
It moves from one spot to another
It hurts,the lights,sound,touch,stiffness,memories fade,vision,low sugar,meds make us sick
...Lane* One of Many
Lanesteepee 3 years ago
I noticed you had bottles from the FFC, I go there too. Atlanta location.
yolospat 3 years ago
Thank you so much for making this video! it's like my life exactly. I suffer from it too...
Dreama1212 3 years ago 2
I have had accupuncture and cupping and believe me i am 50% better if not more.I do recommend this. i do not take any medicines for my FM.The cronic fatigue has NOT hit me for at least 3 months
2271sabirah 3 years ago
A Truely touching video, i can so relate, wish you a speedy recovery x
xxfriskykittyxx 3 years ago
You are so beautiful even through the pain. I too suffer from this devastating illness. I hardly ever smile or laugh anymore. Even my own boyfriend does not understand my pain. He attributes it to being out of shape. Thanks for the video.
plclemens 3 years ago
...i feel your pain.
sportagirl12 3 years ago
I've had fibro for 2 years lost 20 pounds and now pregnant and can barely move feel like i'm dying I hate this disorder the pain is all to real!!!! I'm only 31 and keep thinking why me??????
joyce71922 3 years ago
Soon as i saw this it reminded me what i felt like in 2002 when i was diagnosed....Well Done you hit the nail on the head
lilybet59 3 years ago
Thank you for sharing that powerful video...It is just good to know I am not alone in this...
kyndsister 3 years ago
I have had fibromyalgia almost all of my life. thank you for this video that speaks so loudly for the silent sufferer.
sisterfire777 3 years ago
how do you know theres no such thing as FMS? have you had personal experience with the disorder or conducted clinical research?
I don't have it but I have ME and ppl say similar things about it. If only these ppl could walk (or try to walk) a day in the shoes we wear..
BretagneShrew 3 years ago
my sympathy... a fellow NOT ALL RIGHT patriot
eyez2cwith 3 years ago
I feel her pain always and forever
debbieramirez08 3 years ago
how many of you were tested for lyme disease? how many of you asked to be tested for lyme and got shot down by the doctors?
decoweeds 3 years ago
Only take what the dr's gives you as far as pain killers, If you only take what they give you and don't increase it on your own they will still continue to work
Sandeshells 3 years ago
I could feel the pain, I have had fibro for over thirty years, sorry you also have to go thru it. Finally a Dr gave me enough pain pills to get through the day, it's helpful but a cure would be awesome.
Sandeshells 3 years ago
Be careful of painpills.
gatheamatthews 3 years ago
hello the pain you feel is a byproduct of inproper brain functions. and inproper understanding of how your spirt body works. your organs and brian cells regenerate every few years. a blue print of your perfect brain exists within you. focus your healing on all the brian functions and with help from up above they can oversee this recovery. etc etc. replies are welcomed
723j32 3 years ago
what are you talking about? i believe in the mind-body connection, but i think you're overstating it. i've learned to be skeptical of everyone who says they have the answer, so i'm asking more out of curiosity. thanks.
sureshotjeff 3 years ago
I share my exp. with people. chew on the info and get better. I don't offer pills or stuff for sale. no items no books. I met with that person and after 15min her pain stopped. If you email i will answer any questions you have. jamespowelson use yahoo search
723j32 3 years ago
I am so confused. I might have to post this in several posts since there has to be a stupid word limit. I was diagnosed with Reflex Sympathetic Dystrophy when I was eleven, although I probably had it since I was nine. The pain was unbearable, I was in a wheelchair, and my heel hurt so bad. Then my entire foot hurt, than my leg, than my other leg. The pain was only getting worse, never any better. My leg was turning purple and no one knew what was wrong with me.
rebafanatic16 3 years ago
I eventaually got out of the wheelchair with the help of several nerve blocks and physical therapy. It was hell, but I was able to take control of my pain. My pain wasn't gone, but it was better. Than over the years the pain has only gotten worse. I spreads throughout my entire body. I no longer have the discoloration I did when I was diagnosed. Every moment of my life i hurt. If it isn't my legs it is my wrist, if it isn't my wrist it's my back. I get really bad headaches nearly every day.
rebafanatic16 3 years ago
My pain gets worse with bad weather. I am hypersensitive to touch. I get sick all the time. I am alway tired...but can never sleep at night. I know have Irratable Bowl Syndrome which sucks and I also have an idiopathic cystosis...I can't remember what it means but it's unexplained bladder pain. I get really bad heartburn. I get dizzy spells. My whole body aches from the time I wake up to the time I go to bed. It's so hard being 17 with this condition. But I wonder if I have RSD or fibromyalgia.
rebafanatic16 3 years ago
I was 17 when I was diagnosed with Fibro and probably had it since I was like 9. I'm 23 now.. ( 24 on Christmas Eve) and I'm still here. granted, every day is a struggle, but here I am.
princesslaura2384 3 years ago
You have some of the same things I do.
So many things are wrong I always feel sick. My daughter does more so and her fb is worse than mine. Tell me about I.B.S. OH, MYGOD. They think I have gall bladder problems, incredible heartburn. I get dizzy. I slip and trip and fall. I always ache. You need to go to a specialist to be diagnosed.
gatheamatthews 3 years ago
I have had fibro for 6 years and just stopped working due to it.I have to have Gallbladder out in 2 weeks no previous symptoms is it conected to my fibo?
lilybet59 3 years ago
I had my gallbladder taken out. Wish I hadn't. There were no stones, it was just emptying too slowly. But I hadn't had any bother from it before. Now I have a lot of pain in that area almost constantly. Talked to 2 naturopaths who were sorry to hear that I had my gallbladder taken out because now my condition had worsened, and described a few treatments that could have helped me avoid surgery. See a naturopath/homeopath. Sometimes they can help you a lot for chronic conditions.
sportagirl12 3 years ago
I now have something on fibro on my web. Use Yahoo search and look for jamespowelson. This will help.
723j32 3 years ago
FM is caused by mycoplasma!!! and is very treatable I have learned about this since I was diagnoised with lyme disease and tested pos for mycoplasma. mycoplasma is a free cell bacteria that is treatable with long term abx in the tetracycline family. myco is man made and is patented by the US ARMY it was orig used as biowarfare and tested on the public withour knowlendge google garth nicolson his website has great info! you guys can get better please read and if u have any ques please email me
rmwagoner03 3 years ago
Just watching you, it was like looking at myself go through the physical and mental pain FM. Im 33 and have had this since I was 18. I have four kids and everyday is a living hell, I feel so sorry for my husband and kids more than myself. I am not on any meds at this time as just recently my doc told me I just have to live with it! So I'm going through a bad stage where I feel like giving up, but that is what it is, a stage. I would never do that to my family. 1 day I will feel better......maybe
bec74anne 3 years ago
Swim. If you don't know how, learn.
maggielaneink 3 years ago
True
bec74anne 3 years ago
my name is jamespowelson I met someone with fibro I felt her pain and I talked with her for 10 min told her somethings and her pain stopped. thank god I got to meet with her she and 1 other are fine.
YOU are welcomed to contack me and I will answer all you question for free.
723j32 3 years ago
I also have Fibromyalgia.
Theres a great support group that I also go to on mdjunction dot com. Just click on the F in support groups until you find the fibro one. It's totally free and a wonderful place to talk to people who are going through it also.
brokestove 3 years ago
I have tmj; my neck constantly hurts from the back of my head to my shoulders. Been this way for 1yr+. Fibro?
twebb72 3 years ago
I am so sorry I hit the wrong button and somehow placed a -1 on your post, was wanting to respond (anyone know how I can fix it?)
You may need to get an MRI, you may have cervical stenosis, it can cause all of those problems.
nlovwithu77 3 years ago
no worries on the -1, its clearly a muscle pain and not a spinal problem. Its much closer to the surface. Feels a little like muscle soreness - but not quite.
twebb72 3 years ago
I have fibromyalgia and CFS, I also had the cervical stenosis... I was hoping for the one that can be fixed :0(
very important to find a doctor that really really knows about the fibromyalgia, you can click in "fibromyalgia" on google and there is a place that will show you the doctors that specialize in it nearest to you. good luck and god bless.
nlovwithu77 3 years ago
no worries on the -1, its clearly a muscle pain and not a spinal problem. Its much closer to the surface. Feels a little like muscle soreness - but not quite.
twebb72 3 years ago
This has been flagged as spam show
2 yrs check out my video
BrownEarth12 3 years ago
Thank you for posting this.
I've lived with FM for 15 years now and it's such a struggle....
jtwig 3 years ago
Super powerful great Job!!!!!!I have had fibro for 5 yrs I know your pain
mel456789 4 years ago
OMG my eyes well up reading the comments and i can see im not alone. not only do i have Fm but i aslo have Sle lupus as well. its going on 3 days with a massive flareup and no help no relief from the drs. i have a myspace look up my profile my name is johanna holman my screen name is livinglupieandfibroishell. feel free to contact me. i need more people who understand what im going through maybe we can help eachother. thanks. johanna
jojolvsscottibre 4 years ago
OMG my eyes well up reading the comments and i can see im not alone. not only do i have Fm but i aslo have Sle lupus as well. its going on 3 days with a massive flareup and no help no relief from the drs. i have a myspace look up my profile my name is johanna holman my screen name is livinglupieandfibroishell. feel free to contact me. i need more people who understand what im going through maybe we can help eachother. thanks. johanna
jojolvsscottibre 4 years ago
Guai helps "de-calcify" kidneys, organs, muscles and blood vessels (calcium phosphate). So of course the insurance companies quit paying for it. Gotta take calcium and magnesium with it, or grow your own guai tree.
apolloscam 4 years ago
Wow, My name is Leia also.... I have had FM for 5 years now. It ruins your life. Nobody seems to understand how this disease can take such a large part of you away. Your mind says do it, but your body just won't cooperate.
MizzKKW 4 years ago
Wow, My name is Leia also.... I have had FM for 5 years now. It ruins your life. Nobody seems to understand how this disease can take such a large part of you away. Your mind says do it, but your body just won't cooperate.
MizzKKW 4 years ago
I have suffered with FM for 17 years. It's devestating. I found releif here: wanttogethealthy(dot)com and so can you. I got of 9 serious meds in only 2 weeks. It's amazing what your body can do given the right things. Check it out and BE WELL! Hugs!
GoodGregg 4 years ago
ALERT: Fibro can in some cases be caused by pinched nerves. I went and got x-rays and now it's being corrected w/a machine called the Proadjuster.
MaestroBABrimer 4 years ago
This is a beautiful video, a very powerful message.
<33
Jenngem 4 years ago
I'm crying.
I hate my doctor. I'm addicted to pain killers, and have been for almost 5 years, & I'm only 22. I tried to quit on my own numerous times, but I can't. Not yet, but I need a new doctor. I'm just too scared to find out if 'I' have Fibromyalgia. My sister was diagnosed, (by the same doctor) and yet he said he "doesn't believe in Fibromyalgia." (Direct quote.) He thinks we're both fakers. But it doesn't stop him pumping us up with dangerous painkillers that he KNOWS we're hooked on.
SpeedBumpRump 4 years ago
I'm crying.
I hate my doctor. I'm addicted to pain killers, and have been for almost 5 years, & I'm only 22. I tried to quit on my own numerous times, but I can't. Not yet, but I need a new doctor. I'm just too scared to find out if 'I' have Fibromyalgia. My sister was diagnosed, (by the same doctor) and yet he said he "doesn't believe in Fibromyalgia." (Direct quote.) He thinks we're both fakers. But it doesn't stop him pumping us up with dangerous painkillers that he KNOWS we're hooked on.
SpeedBumpRump 4 years ago
I'm crying.
I hate my doctor. I'm addicted to pain killers, and have been for almost 5 years, & I'm only 22. I tried to quit on my own numerous times, but I can't. Not yet, but I need a new doctor. I'm just too scared to find out if 'I' have Fibromyalgia. My sister was diagnosed, (by the same doctor) and yet he said he "doesn't believe in Fibromyalgia." (Direct quote.) He thinks we're both fakers. But it doesn't stop him pumping us up with dangerous painkillers that he KNOWS we're hooked on.
SpeedBumpRump 4 years ago
I wish I knew that if I showed this video to my family, they would all burst into tears and say how sorry they were for not being there for me, but I have lost hope. Quite simply, they don't want to understand. My only friends are those that have the same illness - but I will get by with them alone. I will not give up. xx
leanne18leanne18 4 years ago 3
I know EXACTLY how you feel. My dad doesn't believe, I don't think my boyfriend really understands it, (he just puts up with it) and the doctor that "treats" me doesn't believe or even care either.
I'm sorry, Leanne.
I wish we were ALL cured.
I wish the pain would stop.
And sometimes, I wish that I'll never wake up.
SpeedBumpRump 4 years ago
my mum had fibro. its ruined her life. she was hit by a speeding car 6 years ago. i often find her crying late at nitesayin shes sorry for the trouble shes put our family through. but its not her fault. she cant take me and my wee sister out because she is often tired or sore or her tablets havent 'kicked in'. its harder for me than it is for her. i help her do normal things such as tidying up and vaacuming and looking after my sister.
thank you for the video
best wishes
me
AoiifeMariie123 4 years ago
i am so with you girl! i have been diagnosed with fibro for the last 3 years, also have Crohn's disease, OCD, arthritis....etc.. the part where you send the pills flying i so felt!!!!tlc
urnotalone38 4 years ago
I just checked, you can download Dying To Get Well for free at Shelley's website rawandjuicy dotcom.
guploo 4 years ago
Dying To Get Well by Shelly Keck has all the answers.
If you can't find the book, search for 'healing with raw foods' and 'juice fasting'.
Great video btw!
guploo 4 years ago
In response to mecq80... we're not alone. You explained it well for me. I can still work but the last few months have been hell. If any one wants to contact me they can. buttery_steam on yahoo, email is the same. We need to support each other.
butterysteam 4 years ago
What a beautiful video. God bless you for making it and showing the YouTube world. It brought back so many memories of myself. I have picture of me in my wheelchair on my desk as a daily reminder of where I was and where so many people are today. My heart is big and it's reaching out with a life saver ring to all who want to grab hold. I'll do my best to help in whatever way I can.
BobnMarlyneMonroe 4 years ago 2
I learned how to swim in order to cope with the chronic pain and I never would have believed how much better I am now. Swimming works for my severe Fibromyalgia.
maggielaneink 4 years ago
Sometimes I feel soo alone with this. I think I am actually in denial. Telling and showing people that I am "alright" when in reality it's killing apart of my spirit. I have soo many goals and dreams that I want to come true. But having FM makes things go in slow motion. Thanks for the video and wish you and everyone else lots of patient and hope.
mecq80 4 years ago
thank you i am not alright, but this does tell are story of the pain and suffering we all go though i am not alright but now fill like some one knows, thank you deeply man with fibro!!!
dan38s 4 years ago
Love it.
The definition of Fibromyalgia should just be ::Not Alright::
=(
SoSoSugar86 4 years ago
Beautiful. That's all. Beautiful.
JeffKellySophie 4 years ago
I loved your video....I am just recently diagnosed, but have been suffering for a year or so before the fm diagnosis....you did a wonderful job with the clips and the song.
artemis302005 4 years ago
Fantastic video , which relays a snapshot of the hell people with FM are in and how they gain a hopelessness of can anybody hear me, see me. The level of currrent understanding from every view falls so short. this clip is touching.
nanoman7 4 years ago
im supposed to die in like 4 years because i have this and they didn't find out soon enough and it made my immune system break down to the point where i can't be healthy lol
ipodkiller6 4 years ago
this made me cry, I've had fibromyalgia for 13 yrs. now and had to go to the ER due to a bad flare up a couple nights ago. I know the PAIN all too well.
lorijdep 4 years ago
help help..... No one can help!!!
dellistt 4 years ago
This really expresses what I feel about my fibromyalgia. My husband actually watched the entire video! And the song is great! Fibromyalgia, has taken all too many VERY happy, enthusiastic, active people and turned them into what feel like useless (I was going to say lumps of clay) grumpy thorns. It IS such a waste.
jmcdelaney 4 years ago 2
The first time I saw the video I almost had to stop watching because it brought back a lot of memories of my life. Then I played it for my husband & I couldn't hold back the tears. I used to have FM for 20 yrs. & after so many tears & prayers I found a doctor to help me. It's like a miracle!! Please reply.
BobnMarlyneMonroe 4 years ago
what helped? it's hard to trust that anything will help. buttery_steam at yahell
butterysteam 4 years ago
This comment has received too many negative votes show
hey, you got your attention. You happy now?
playaj313 4 years ago
How do I handle my fibro? Stretching, Mild aquatic exercize, occasional theraputic massage and nututritional suppliments to keep blood more PH balanced (most fibro patients have very acidic blood) This has kept my "hard" meds to a minimum and 75% of the time my condition is very tolerable. I will take small doses of prednisone for 7 days to get through the rougher times.
jacktheripoff1888 4 years ago
I really like your video. It was very emotional to watch. You accurately reflected how I feel. I want to thank you for raising awareness. I will share your video with many other people I know.
Sincerely,
Laura McCabe
unknowndiva 4 years ago
Thank you so much for this film. I have felt this way for over 20 years. Someone has got to help us. I live in the US but really think the real research is going on in the UK. God please give someone the wisdom to help us.
luckyneko1 4 years ago
what an excellent video .. 2 years on I am still on the rollercoater of acceptance and denial of this poxy illness . People dont see how much pain im in they dont realise just because im smiling .. that smile doesnt quite reach my eyes
Sparklemuff 4 years ago 2
I'm so tired of being misunderstood by my family, friend, co-workers. I so tired of being told that I'm lazy, crazy, depressed, or its all in my head. I'm so tired of the pain. I'm tired of being told by doctors that I don't look sick :0
youdontlooksick 4 years ago 4
Loved it. I,too,am a broken woman. I understand the frustration,confusion,PAIN,fatigue,IBS,migraines and all the other wonderful things fibro has to offer. Thank you for letting me know that I am not alone anymore. Diagnosed Jan 06
writerAF 4 years ago
I think I'm on the verge of something big on how to permanently get rid of Fibromyalgia. I tried a form of meditation I just invented while dealing with the pain and it completely started to drain the energy out of my system.
I unfortunately just lost 2 jobs because of it. I could barely sleep.
Magicmanny 4 years ago
I have had fibro for 10 years. Thank you for sharing this video.
earth2pluto 4 years ago
oh so can relate to this video this is such a well done video thankyou for expressing it so well. chanin
fmsgirl 4 years ago
I have had fms for 27 yrs and i lov your video, what song are you using and where can i find it . Love penny
penwill65 4 years ago
Great video!
ParanoidKitty 4 years ago
I cried for you today!
Thank You for this video!
I'm a man and I have FIBRMYALGIA.
kentek2007 4 years ago
thanks for making this vid! i know what you're going through. im 17 and it took 3 years to diagnose me with fibro *huggles* for you and hope yopure feeking good!
Blink182mestfan 4 years ago
Well done. You have truly captured the fibro realm. Applause to you and may your days be pain free.
VaBreeze 4 years ago
I have listened to this several times and it is so moving. So true and really I hope this gets some big time attention. I am a fibro sufferer. Although a sad song it is also beautifully composed. K9cathy
k9cathy 4 years ago
Thank You!
Excellent video!!
Persons who do not suffer from Fibro just dont know!
DivinityDecorators 4 years ago
awsome, simply awsome.
don4121 4 years ago
This comment has received too many negative votes show
everybody's got it so damn tough, eh? describe these symptoms to someone from a poor country, they'd call it "a good day"
pipinki 4 years ago
This video doesn't discuss poor countries or thier many diseases (or issues). It's about fibromyalgia. I pity the other video posts where you have left your mark. Bitter!!!
VaBreeze 4 years ago
This is in response to pipinki's remarks.
VaBreeze 4 years ago