I have a 20 old moths baby and have a big front white patch and her dr. Said he would to keep and eye on her in case she lost her hearing.....very worried and would like to learn more......
My half-brother has Waardenburg Syndrome. His mom has it, too. He's only six months old, but so far we know that he may possibly be profoundly deaf. He does have one green eye and one blue eye. His nose is pretty flat, too, but he doesn't have that patch of white hair. He actually did his first month. Then it disappeared. He seems to be a very happy baby, so right now, it doesn't really bother me.
FYI, I additional in my new account in Facebook. It is called Waardenburg Syndromes in my facebook account. is.
"Waardenburg Syndrome with Deaf. " with end of period. Please spread the words about WS. 1, 2 and 3 or more numbers. I am learning it .. I do not have a WS carrier at all.
helo I'm ecuadorian and I met a guy who had this syndrome I like the eyes...... he has one like honey the other is bright navy blue..... It looks beautiful... but he cannot talk well and He's also a little deaf....... I know that sucks but he rocks his eyes....... I wish I had them Like his.....
hi! i found ur video n i really like it! i have 2 little girls 5yrs n 3 yrs old, they both have that syndrome n they both are deaf as well...im so proud of my lil girls n believe me at first it wz hard 4 me 2 realize everything but now its different...(i wz immature) n now im trying really hard 2 learn sign language 4 them.
I have waardenburg syndrome but I dont have have the things like two different colored eyes but my brother does and my mom is deaf in one ear and we all have the gray hair
hello i as well have this syndrome so does my little brother and my dad .. it goes on even more my dads side has a lot of people who have it as well i personally would like to know more about this is there any way to prevent it ?
I believe my son has the syndrome, we won't know until October that we go to see the geneticist, he has one brown eye, one blue. He has some white spots on his hands, and he is deaf.
this is so touching... my daughter also have waardenburg syndrome and for I have seen the video your children are lucky because is not that obvious. We are asians with brown skin so you really can see a diffrence. do you have a website so I can be a member? thanks... i will share this in my facebook
Nice vid, my son has WS too and was diagnosed to have profound hearing loss. He is now turning 3 but can only do things that a 1 yr old can. I need to raise 1 million pesos (about 20,000 USD) for his cochlear implant. We already bought him a hearing aid but he still cant hear. I know he knows that i love him but its my dream for us to say I love you to each other. Please help us fulfil our dreams.
Hi. Thank you for this video. My son has Waardenburg syndrome. Two different color eyes and loss of pigment in is hair and upper body including his face. My son can others with this syndrome, thank you.
Hello, thanks for sharing this beautiful video. My youngest son was born with spina bifida and waardenburg syndrome. Most Doctors we've met have never heard of waardenburg syndrome. My son's right eye is brown and left is blue and his hearing has tested normal but he is not yet talking at 26 months. Please share any knowledge you have with us. Thanks
@angelboys9 Hi. 3 months ago we found out my son is deaf, he has one brown eye and one blue I believe he has the syndrome. Is your son talking yet? Mine is going to receive double cochlear implant soon.
@inlove0395 Landry's is three and started school this march. His speech is improving and he pretty much immatates any word he wants to. Your son should qualify for early childhood intervention and can start school when he is three! This has made all the difference in Landry! I am so glad your son is receiving cochlear implants and will be able to hear! His whole world will change and he will start talking!
@DanaAllman Dana, he is already receiving the Early Intervention and he will start school when he turns 3 in September. We are learning sign language at home and in October we have the appt with the cochlear implant specialist. Let me ask you, DO anyone in your family has the syndrome? Because we do not know anyone.
@inlove0395 So glad to hear your son is getting Early intervention and will start school in September. You will see a big difference in him once he starts. Landry's hearing is fine but he is still speech delayed. Landry also has spina bifida but has improved so much since starting school in March this year. We do not know anyone in our family that has this syndrome and most doctors have never heard of it unless they are in the audiology field.
Hello , I need to all there is about WS , my daughter has it , we just went yesterday and got fitted for her hearing aids, i'm very scared for her , kids at her school are so mean to her already , and I know this is going to help her but people are so mean , she just turned 8 yrs old and really has no friends at school , she comes home cring almost daily because how they treat her , and the teachers don't do anything about it , she's had it kinda hard at school
Hi! Nice video. I'm very sure my infant has this. He has the vitiligo, heterochromia (blue and brown), and was born with white eye lashes and eye brows. We are in the middle of trying to get the official dx through genetics, and getting his hearing checked (we believe some hearing loss).
I notice that those with heterochromia seem to have their right eye brown, the left blue - like my son. Wonder why that is. Can anyone tell me when their child's eyes 'set' in their colors?
this video is o touching... i was so bothered bfre viewing this because of live birth abortion... Anyway, I have thought of looking for something else to watch... I never knew about this syndrome till my son was born.
Hello, i found your video on "parents of Waardenburg. Thanks for posting it..My Dad had it ,although he wasnt deaf. it was passed on to 3 of my siblings and 1 nephew, My sister and one of my brothers are deaf and my other brother and his son are deaf only in one ear. it was years after my brothers and sister were born that we even knew about the syndrome. They are now in their 50s and lead very happy lives. Seeing the faces of Waardenburg on your video has really touched my heart.. Thank You
I am so pleased that you all are happy with my video, Now I am working on the website regarding WS adults and children, to make people to be more aware and may be helpful for new parents who dont really understand how WS works. I will put up the link of website up on my profile soon hopefully will be finished by summer.
meet another waardenburger, you can notice my feature in one of my videos, i have streaks of white hair, blue eyes, completely deaf, and my sis has blue and brown eye,
She is so beautiful!! I have this too!! Did you know that this is the ONLY youtube video about this??? How amazing huh? I should do a short video of mine, so there will be two :) Take care, ~Kim
beautiful video.....i have this condition i have two different colored eye's and very hard of hearing. Thankfully no other symptoms or problems though.
I have a 20 old moths baby and have a big front white patch and her dr. Said he would to keep and eye on her in case she lost her hearing.....very worried and would like to learn more......
KillerCache 1 month ago
My half-brother has Waardenburg Syndrome. His mom has it, too. He's only six months old, but so far we know that he may possibly be profoundly deaf. He does have one green eye and one blue eye. His nose is pretty flat, too, but he doesn't have that patch of white hair. He actually did his first month. Then it disappeared. He seems to be a very happy baby, so right now, it doesn't really bother me.
xXwAcKoGrRlXx 1 month ago
FYI, I additional in my new account in Facebook. It is called Waardenburg Syndromes in my facebook account. is.
"Waardenburg Syndrome with Deaf. " with end of period. Please spread the words about WS. 1, 2 and 3 or more numbers. I am learning it .. I do not have a WS carrier at all.
matseattle 6 months ago
helo I'm ecuadorian and I met a guy who had this syndrome I like the eyes...... he has one like honey the other is bright navy blue..... It looks beautiful... but he cannot talk well and He's also a little deaf....... I know that sucks but he rocks his eyes....... I wish I had them Like his.....
jeremifrancisco1 11 months ago
Muy lindo video amix ;)
golitoxexi 1 year ago
hi! i found ur video n i really like it! i have 2 little girls 5yrs n 3 yrs old, they both have that syndrome n they both are deaf as well...im so proud of my lil girls n believe me at first it wz hard 4 me 2 realize everything but now its different...(i wz immature) n now im trying really hard 2 learn sign language 4 them.
nonitasophia 1 year ago
I have waardenburg syndrome but I dont have have the things like two different colored eyes but my brother does and my mom is deaf in one ear and we all have the gray hair
Kyrie8612 1 year ago
hello i as well have this syndrome so does my little brother and my dad .. it goes on even more my dads side has a lot of people who have it as well i personally would like to know more about this is there any way to prevent it ?
mon1ca3264 1 year ago
I believe my son has the syndrome, we won't know until October that we go to see the geneticist, he has one brown eye, one blue. He has some white spots on his hands, and he is deaf.
inlove0395 1 year ago
this is so touching... my daughter also have waardenburg syndrome and for I have seen the video your children are lucky because is not that obvious. We are asians with brown skin so you really can see a diffrence. do you have a website so I can be a member? thanks... i will share this in my facebook
pollygeronimo27 1 year ago
This has been flagged as spam show
Nice vid, my son has WS too and was diagnosed to have profound hearing loss. He is now turning 3 but can only do things that a 1 yr old can. I need to raise 1 million pesos (about 20,000 USD) for his cochlear implant. We already bought him a hearing aid but he still cant hear. I know he knows that i love him but its my dream for us to say I love you to each other. Please help us fulfil our dreams.
peachie1124 1 year ago
Comment removed
peachie1124 1 year ago
Heeeyyyy
I love this video so much i have even got it on my Bebo.
I love you
xxxxxx
Rachael
xxxxx
babycakesrachael 2 years ago
whats waardenburg?
kailadabomb 2 years ago
Waandenbrug is genetic, it can be passed from parents to newborns. I will put up my personal website about it soon this month xx
Censoredhoneybuns 2 years ago
Hi. Thank you for this video. My son has Waardenburg syndrome. Two different color eyes and loss of pigment in is hair and upper body including his face. My son can others with this syndrome, thank you.
desgei 2 years ago
Hello, thanks for sharing this beautiful video. My youngest son was born with spina bifida and waardenburg syndrome. Most Doctors we've met have never heard of waardenburg syndrome. My son's right eye is brown and left is blue and his hearing has tested normal but he is not yet talking at 26 months. Please share any knowledge you have with us. Thanks
angelboys9 2 years ago
@angelboys9 Hi. 3 months ago we found out my son is deaf, he has one brown eye and one blue I believe he has the syndrome. Is your son talking yet? Mine is going to receive double cochlear implant soon.
inlove0395 1 year ago
@inlove0395 Landry's is three and started school this march. His speech is improving and he pretty much immatates any word he wants to. Your son should qualify for early childhood intervention and can start school when he is three! This has made all the difference in Landry! I am so glad your son is receiving cochlear implants and will be able to hear! His whole world will change and he will start talking!
DanaAllman 1 year ago
@DanaAllman Dana, he is already receiving the Early Intervention and he will start school when he turns 3 in September. We are learning sign language at home and in October we have the appt with the cochlear implant specialist. Let me ask you, DO anyone in your family has the syndrome? Because we do not know anyone.
inlove0395 1 year ago
@inlove0395 So glad to hear your son is getting Early intervention and will start school in September. You will see a big difference in him once he starts. Landry's hearing is fine but he is still speech delayed. Landry also has spina bifida but has improved so much since starting school in March this year. We do not know anyone in our family that has this syndrome and most doctors have never heard of it unless they are in the audiology field.
DanaAllman 1 year ago
Hello , I need to all there is about WS , my daughter has it , we just went yesterday and got fitted for her hearing aids, i'm very scared for her , kids at her school are so mean to her already , and I know this is going to help her but people are so mean , she just turned 8 yrs old and really has no friends at school , she comes home cring almost daily because how they treat her , and the teachers don't do anything about it , she's had it kinda hard at school
angeleyes01978 2 years ago
Hi! Nice video. I'm very sure my infant has this. He has the vitiligo, heterochromia (blue and brown), and was born with white eye lashes and eye brows. We are in the middle of trying to get the official dx through genetics, and getting his hearing checked (we believe some hearing loss).
I notice that those with heterochromia seem to have their right eye brown, the left blue - like my son. Wonder why that is. Can anyone tell me when their child's eyes 'set' in their colors?
DylanandLukesmum 2 years ago
this video is o touching... i was so bothered bfre viewing this because of live birth abortion... Anyway, I have thought of looking for something else to watch... I never knew about this syndrome till my son was born.
Thanks for posting this video.
peachie1124 2 years ago
Hello, i found your video on "parents of Waardenburg. Thanks for posting it..My Dad had it ,although he wasnt deaf. it was passed on to 3 of my siblings and 1 nephew, My sister and one of my brothers are deaf and my other brother and his son are deaf only in one ear. it was years after my brothers and sister were born that we even knew about the syndrome. They are now in their 50s and lead very happy lives. Seeing the faces of Waardenburg on your video has really touched my heart.. Thank You
grmysgrls444 3 years ago
I am so pleased that you all are happy with my video, Now I am working on the website regarding WS adults and children, to make people to be more aware and may be helpful for new parents who dont really understand how WS works. I will put up the link of website up on my profile soon hopefully will be finished by summer.
Have a lovely night everyone
Honey x
Censoredhoneybuns 3 years ago
Yea, I am wraadenburg syndrome, too. And Thanks for to anyone how understand to explined what anyone have one of this.
SpainStar06 3 years ago
why is your vid no longer available?
ksritter 3 years ago
Hi Ksritter,
Video is still here it hasnt been removed or anything. I think u had problems on ur connection. If you cant still see the video, try to refresh it.
take care
Honey
Censoredhoneybuns 3 years ago
meet another waardenburger, you can notice my feature in one of my videos, i have streaks of white hair, blue eyes, completely deaf, and my sis has blue and brown eye,
shushugah 3 years ago
Unfortunatelly, I'm affected by this syndrome (type II) but I take my life normally!
I have three colours, and hard of hearing (50 decibels)
HalloCharlie 3 years ago
She is so beautiful!! I have this too!! Did you know that this is the ONLY youtube video about this??? How amazing huh? I should do a short video of mine, so there will be two :) Take care, ~Kim
piggybulldog 3 years ago
Shes beatutiful<3 i love her eyes she is so cute<333
xdeedee1234x 3 years ago
beautiful video.....i have this condition i have two different colored eye's and very hard of hearing. Thankfully no other symptoms or problems though.
kimandmattr 3 years ago