Added: 3 years ago
From: porphyria2
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  • i have aip i am a blogger and have show my battle with this illness and this is so brave of you

  • What type of Porphyria is this?

    What you've posted does not work for all types of Porphyria.

    There are world wide organizations that can help.

    Best of luck to you, I have a child who is borderline, my Mom has it also...

  • What type of Porphyria is this? What you've posted does not work for all types of Porphyria.

  • cute cat.

  • Can you write the products you use for porphyria. Your video is hard to see some of your products. I like your video and comments

  • I read your clip on the crap margellons nano disease man i laughed so hard that was a trip... Glad you feel beetter i just got over Pancreatis for the 4th time in 1year from drinkin which i guit almost died .drunken fool the acid reflux burned a hole in me. Alex Jones got good stuff. look out for 2012 aliens bugs fish you say it lbetter later peace out...........................­....

  • That wasn't my clip. I know what causes morgellons. I found the University study trying to make these fibers stable. They use these nano fibers for high temp kilns lined with ceramic nano fibers to take the heat. You can even see this unstable sol gel alumina rock on the Morgellons research center web. I emailed them the lab study I found and pointed to the Co.'s that use this to make kilns & I didn't get a reply. The university study is in the same state with some of the first out breaks.

  • The first outbreaks was at a Vinagar kiln the workers got morgellons.

    Is everyone so fogged they forget what was on the news? I gave the study to the research center with the proof from there own lab study to match 100%. for them to ignore makes you think its cover up. because billions are at stake. Even the CDC and nasa use this tec and who over see's the sol gel being stable for these high temp kilns? I pulled my Utube vid with the info because its to risky. These other people are in a fog

  • @porphyria2 would like to see the clip if you want to email me let me know.

  • @porphyria2 Please send me whatever info you have.Im in orlando fl

  • If you want to blow the cover up on this I'll give you the info. I'm sure at least a thousand scientists know about this and are to afraid to talk. They have these people picking at there skin running in circles. I did see someone on Utube find it in there gas and in there car. I found that lab study where they were testing these nano fibers to extend gas in cars. Its the sol gels stability is whats causing them to break and do there magic in people.

  • Study your living conditions and research. Even your mattress can make you sick if it has fire retardant in it, If you have a chem sensitive condition why drink aspartame. Its in everything also called artificial flavor. Most dont know aluminum is in there salt. Lysol is the same chem compound as agent orange. Radiation food in microwaves & eating plastic. Fluoride cause porphyria in rats I seen that study, but thats not all. Find a wood phone with a long cord. Just find healthier ways to live.

  • The book Healing the shame that binds you. Moving forward physically when trapped emotionally can be hard. Children are shamed trapped repeating the patterns that was told to them. It starts with you cant. Then I cant. We are kept from exploring. We are told to trust Dr's & not eleswear. We are told not to trust ourselves & told that foods are safe, told to trust the FDA. Products do make a big difference. You decide how much you want to suffer in the end if you don't want to sacrifice.

  • If you want to know what Im talking about Look up the video's Food Inc.. Flow for the love of water. Sweet Misery - A Poisoned World .The future of food. The Disappearing Male. Dont Swallow Your Toothpaste. The Beautiful truth. Big Bucks, Big Pharma: Marketing Disease & Pushing Drugs. Genetically Modified Food Panacea or Poison. Vaccination The Hidden Truth. Earthlings. You will find some on net flix and free on : h t t p : / / topdocumentary films. com / watch -online /

  • I have epp and have been dealing with it for 40 yrs. There is a need for saturated fats as many enzymes and antigens that we lack are in the fats of animals in comparison to vegetation. I find using medical marijuana a great help in dealing with the neurological pain and associated depression.

    Many blessings to all suffers.

  • Hi, my husband just started to eat cheese and ice cream. He couldnt for a long time. He says he's so happy he can tolerate it now. He says it has helped lower the pain. He eats Hemp powder everyday. I dont sugest being a vegetation but if your collon is dieing and if your having attacks no meat for a few years stopped the attacks. He lost his gull bladder and was a cronic meat and junk food eater. Hope your not having attacks. I agree with the green. Hope you are attack free allways ....

  • Well thank you very much. I know most porphyria patients don't like being called a vamp but I have the added hemophilia and it caused hemotaphagia so I have a shit load more nasty symptoms to deal with other than the EPP which is bad enough on its own. You can all point at me if someone calls you a vamp, I'll take that shit, its ok, and sorry if you guys are getting the stigma of it.

  • We like vampire movies. My fave is interview with the vampire. Why doesn't the vampire sleep with anyone and they are difficult in real life. I didn't like it when he wanted me to track down fresh cows blood to make blood pudding and a few times I was very worried for my safety. Now I worry about other peoples safety. Going lacto vegan has made a big difference. We embraced the horror like you. He scares neighborhood kids I tell them and say look at his teeth if you don't believe me.

  • ROLMAO, ya the teeth, I know all about that problem, now I have a new set with far less problems. What makes me laugh is these idiots that go out and have fangs put in like you really need them to drink. I can't go vegan in anyway because of the hemotaphagia, I need the proteins and lipids that comes from haem that isn't in veggies or all dairy products.

  • I ended up with a few teeth in my hand he pulled his own teeth. Are you lost in redrum thoughts to? How common is this? Guess it helps vocalizing creatively. My bathroom doesn't look like a slaughter house from draining his own blood anymore. Dr's look at you crazy for that. I see you got shut down on utube. We were thinking about selling vamp blood in a amulet on EBay but that might be illegal unless its properly sealed. I'll look up lipids maybe he gets some from bread cooked with eggs.

  • Be careful about going veg. not having saturated fats from animals has shown a high rate of degenerative disorders in older age.

  • Hey... I just came home from the hospital last night. I for another week. I'd be most interested in ANYTHING you have to share :(... I'm so so tired

    GOD Bless

    Kim

  • i have aip for 21 years now....thank you!

  • Thank you...I have AIP, diagnosed for 20+ years now...

  • I will make a new video. I didnt explain how going vegan can really help. Do you still have attacks? My husband had to cut all sulfa foods out of his diet. He says you couldnt pay him to eat meat or drink coffee. He doesnt ever want to go back to that kind of pain. Hope your doing good. Its known that Fluoride & pesticides causes Porphyria in mice. Makes me sick that its put in water & used on foods. Big Pharma is makeing allot of money off porphyria but not any money from us. They can kiss off.

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