Added: 3 years ago
From: nephritina1
Views: 2,424
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  • :( I feel your pain, I had the same problem, I think its a problem with the IV , when they had the IV in my arm, the next day all the fluid was in my arm and my mom made them take the IV out and give me hand shots in my butt, that's might what they have to do with you if it continues, Im so sorry I'm just now seeing this video in 2011..I wish i can turn back time and help you so bad.. I feel your pain. <3

  • you should contact a really powerful pastor to pray for you and all this will go away. try pastor chris or pastor tb joshua from nigeria, theyve prayed for people with all kinds of nasty diseases and had them healed . good luck sweety, youre in my prayers tonight and im sure youl be better soon

  • I mean @truthwillbetoldjig sorry ccisis or watever these peple have suffered enough!

  • @ccisis of course you will be talking like that cause you don't know the pain and suffering these people go through!

  • I cry every single time I watch this video

  • this video made me cry..because i know exactly how you feel and how the nurses and doctors won't listen..they think they know everything because they've been to medical school for 4 years but we;ve been living with it our entire lives...I really hope and pray that you get better <3

  • @truthwillbetoldjig and Haemophilia for you'll satan!

  • @ccisis Fail nigger grammar. Go hang yourself.

  • @truthwillbetoldjig dude, thats fucking bullshit

  • @caleb9608 Nigger-lover. 

  • @truthwillbetoldjig i am by no means a nigger-lover, but that is some bullshit

  • I know this video was awhile back but continue to stay strong, you have a lot of love out here!

  • Sweetheart, I know your pain, I also have sickle cell anemia. I am now 52 years old and living life. I hope and pray they help you. Ask your Doctor to see if you are a good candidate for a Red Cell Exchange. I have been having it since 1997. I have not had a crisis in ten years. If you want to talk to me feel free to email me. And for anyone else that has this disease contact me. I love you and am praying for you.

  • i know what you going trough.

    I got SC to and here in the Netherlands they can't do anything hang in there

  • You are in my prayers, my son has sickle cell ss and has had some very rough times, I will be going to Washington on March 25th for advocacy day. There is so many issues that need to be addressed concerning the treatment of patients suffering from sickle cell disease. I will be making legislators aware that we will fight for the right for better care, treatment, and bringing public awareness. Speak out and keep speaking. Remember you are God's child and keep your head up.

  • my last transfusion was a week ago because my hemoglobin was down to 3 or 4!!!

  • hold strong lil mama...i totally understand your pain..been there many times.

  • i am going to play your video too my father and my doctor in the next two days so they can get a better understanding of what i go through they need too here it from a third party agin an agin thank you sweetheart contact me anytime long beach california my name is miranda a friend with sickle cell anemia

  • hang in there mama i will do any thing i can too hep u i also have sickle cell and understand and have endured everything u r going through im going too get incontact with u asap i live in long beach california u are going too make it sweetheart im praying for u

  • Wow Nephritina this is very powerful!I commend you for finding creative ways to advocate for yourself when you feel that your medical team is not listening, or working with you. Bravo!

  • hang in there sister I have forwarded your info to some SCDAA groups. Someone should be contacting you.

    If they do not reach you call the SCDAA 1-800-421-8453

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