:( I feel your pain, I had the same problem, I think its a problem with the IV , when they had the IV in my arm, the next day all the fluid was in my arm and my mom made them take the IV out and give me hand shots in my butt, that's might what they have to do with you if it continues, Im so sorry I'm just now seeing this video in 2011..I wish i can turn back time and help you so bad.. I feel your pain. <3
you should contact a really powerful pastor to pray for you and all this will go away. try pastor chris or pastor tb joshua from nigeria, theyve prayed for people with all kinds of nasty diseases and had them healed . good luck sweety, youre in my prayers tonight and im sure youl be better soon
this video made me cry..because i know exactly how you feel and how the nurses and doctors won't listen..they think they know everything because they've been to medical school for 4 years but we;ve been living with it our entire lives...I really hope and pray that you get better <3
Sweetheart, I know your pain, I also have sickle cell anemia. I am now 52 years old and living life. I hope and pray they help you. Ask your Doctor to see if you are a good candidate for a Red Cell Exchange. I have been having it since 1997. I have not had a crisis in ten years. If you want to talk to me feel free to email me. And for anyone else that has this disease contact me. I love you and am praying for you.
You are in my prayers, my son has sickle cell ss and has had some very rough times, I will be going to Washington on March 25th for advocacy day. There is so many issues that need to be addressed concerning the treatment of patients suffering from sickle cell disease. I will be making legislators aware that we will fight for the right for better care, treatment, and bringing public awareness. Speak out and keep speaking. Remember you are God's child and keep your head up.
i am going to play your video too my father and my doctor in the next two days so they can get a better understanding of what i go through they need too here it from a third party agin an agin thank you sweetheart contact me anytime long beach california my name is miranda a friend with sickle cell anemia
hang in there mama i will do any thing i can too hep u i also have sickle cell and understand and have endured everything u r going through im going too get incontact with u asap i live in long beach california u are going too make it sweetheart im praying for u
Wow Nephritina this is very powerful!I commend you for finding creative ways to advocate for yourself when you feel that your medical team is not listening, or working with you. Bravo!
:( I feel your pain, I had the same problem, I think its a problem with the IV , when they had the IV in my arm, the next day all the fluid was in my arm and my mom made them take the IV out and give me hand shots in my butt, that's might what they have to do with you if it continues, Im so sorry I'm just now seeing this video in 2011..I wish i can turn back time and help you so bad.. I feel your pain. <3
FiendHYPE 4 months ago
you should contact a really powerful pastor to pray for you and all this will go away. try pastor chris or pastor tb joshua from nigeria, theyve prayed for people with all kinds of nasty diseases and had them healed . good luck sweety, youre in my prayers tonight and im sure youl be better soon
gugulethu1000 11 months ago
I mean @truthwillbetoldjig sorry ccisis or watever these peple have suffered enough!
osamede1 11 months ago
@ccisis of course you will be talking like that cause you don't know the pain and suffering these people go through!
osamede1 11 months ago
I cry every single time I watch this video
osamede1 11 months ago
this video made me cry..because i know exactly how you feel and how the nurses and doctors won't listen..they think they know everything because they've been to medical school for 4 years but we;ve been living with it our entire lives...I really hope and pray that you get better <3
nashea305 1 year ago
This comment has received too many negative votes show
Nigger cell anemia slowly doing it's job.
truthwillbetoldjig 1 year ago
@truthwillbetoldjig and Haemophilia for you'll satan!
ccisis 1 year ago
@ccisis Fail nigger grammar. Go hang yourself.
truthwillbetoldjig 1 year ago
@truthwillbetoldjig dude, thats fucking bullshit
caleb9608 11 months ago
@caleb9608 Nigger-lover.
truthwillbetoldjig 11 months ago
@truthwillbetoldjig i am by no means a nigger-lover, but that is some bullshit
caleb9608 11 months ago
This has been flagged as spam show
@caleb9608 So you hate niggers?
truthwillbetoldjig 11 months ago
I know this video was awhile back but continue to stay strong, you have a lot of love out here!
MsNikNasty 1 year ago
Sweetheart, I know your pain, I also have sickle cell anemia. I am now 52 years old and living life. I hope and pray they help you. Ask your Doctor to see if you are a good candidate for a Red Cell Exchange. I have been having it since 1997. I have not had a crisis in ten years. If you want to talk to me feel free to email me. And for anyone else that has this disease contact me. I love you and am praying for you.
may52able 1 year ago
i know what you going trough.
I got SC to and here in the Netherlands they can't do anything hang in there
gilamonster1e 1 year ago
You are in my prayers, my son has sickle cell ss and has had some very rough times, I will be going to Washington on March 25th for advocacy day. There is so many issues that need to be addressed concerning the treatment of patients suffering from sickle cell disease. I will be making legislators aware that we will fight for the right for better care, treatment, and bringing public awareness. Speak out and keep speaking. Remember you are God's child and keep your head up.
witupraise 1 year ago
my last transfusion was a week ago because my hemoglobin was down to 3 or 4!!!
MerryJ3000 1 year ago
hold strong lil mama...i totally understand your pain..been there many times.
EmpressNea 2 years ago 2
i am going to play your video too my father and my doctor in the next two days so they can get a better understanding of what i go through they need too here it from a third party agin an agin thank you sweetheart contact me anytime long beach california my name is miranda a friend with sickle cell anemia
TWILIGHTBLUXTC1975 2 years ago
hang in there mama i will do any thing i can too hep u i also have sickle cell and understand and have endured everything u r going through im going too get incontact with u asap i live in long beach california u are going too make it sweetheart im praying for u
TWILIGHTBLUXTC1975 2 years ago
Wow Nephritina this is very powerful!I commend you for finding creative ways to advocate for yourself when you feel that your medical team is not listening, or working with you. Bravo!
Camonil 3 years ago
hang in there sister I have forwarded your info to some SCDAA groups. Someone should be contacting you.
If they do not reach you call the SCDAA 1-800-421-8453
nazaire73 3 years ago