CFS (ME) - Intro Chronic Fatigue Syndrome/ ME/ CFIDS

[jujujoyseeker]

Nait--

TY for the info. We live in Oregon (USA) and are looking for more help for a family member. We have poured thousands of dollars into medical care with little if any improvement. TY for sharing info & encouragement!!

[4mrrich5]

how do you get it....i have the logitech but can you show me

[SharkBateNait]

First put your legs in, then your arms, then pull on the head and zip it up at the back.

[SharkBateNait]

Dunno how I managed to not respond to this comment, sorry SBL, I EXPECTED me to, anyway, how're things? thanks for your support and hope you were able to raise some awareness, Cheers

[SAMMYBABYLOVE]

Good vid!!diffrent!!I just want to let you i go through m.e each day! ive had it since i was 13 im 23 now!but i am a mild suffer now!, i know what you go through ive been there!i was house bound for over a year but now im a little better im gunna make a change...i hope you will support my cause!!! Next year im doing a big campaign for awareness for m.e/cfs...so watch this space!! take care everyone!!

[fortunmakr]

Great video! Keep up the great work and getting the awareness out.

I have a son named Nate. LOL

Best wishes-

Amy Living happily with CFIDS/ME for over 27 yrs now

PS I have a good video I'm working on- on my main page about living with CFIDS u might like

[SharkBateNait]

Thanks Amy, I'll check out your vid :)

[fogggygyrl]

I like the shark! It's very creative. I'm glad you didn't wait to make this either. I keep waiting to feel better to make one about FMS which I also have and it's been almost a year gone by now...

CFS sux!

[SharkBateNait]

Thanks, and yup

Watching your video and some of your favorites is already on my to-do list.

[neelubird]

You're right to not wait for a better day to upload the vid. I've been meaning to do so many things (inc making an M.E vid) but never get round to it.

[SharkBateNait]

Thanks neelu, Often you just have to push on through, but now and then it pays off to just be really patient and do something right. Just don't count on making a habit of it, eh? :) Found anything interesting on YouTube you'd recommend for me to see?

[neelubird]

Someone called 'Luminescent feeling' has made some excellent youtube vids about ME and someone called 'Satori5' has a set of youtube vids by Professor Malcolm Hooper (my hero) which I think are really good.

[SharkBateNait]

I've watched a little of Hooper's videos, definitely brought up some new thoughts for me. I'm starting to wonder about the connections between so many very similar illnesses. I was a little reluctant to watch Luminescent's videos because she(?) looks pretty angry and that makes me nervous, but I'll make myself check them out. Thanks for the tips neelu :)

[SharkBateNait]

I've watched a couple of Luminescent's videos, you're right, some good stuff, well "good", you know what I mean, what a mess in the UK! I'm learning a lot about all the trouble over there.

[neelubird]

I think luminescent is a 'he'. I know what you mean, I've sensed some anger too but a lot of it is justified when you think of what happened to sophia mirza and the vid abt 'training drs to neglect' is something many here have experienced first hand. What is canada like diagnosis/treatment wise?

[ptharcourt]

Great.  Waiting for episode 6.

[SharkBateNait]

I can't take credit for the shark, but thanks, hope things are going your way today. As for the video, I'll get around to it, but if you don't want to wait the website address is on my channel.

[SharkBateNait]

Actually it might be faster to use the site link in the "more info" part of the first video.

[ptharcourt]

Thank you. Loved the shark outfit and what a great idea to teleconference. Look forward to the next installments.