Added: 1 year ago
From: Beautybutterfly89
Views: 4,912
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  • you're awesome :) honest and full of information and happy :)

  • :-) its nice to see someone with eb on YouTube, I have eb simplex

  • There is nothing wrong with you we are all diffrent and that makes us special in our own way

  • I love your videos

  • Your video just brightened my day :) We should all aspire to have an outlook on life like yours. xoxo

  • You are an amazing, beautiful soul inside & out. May God bless you always.

  • You are such an inspiration to me and many others. To see you there so confident made me cry because I know I wouldn't cope in your situation but you've shown me that you're extremly strong both inside and out. You've really opened my eyes to many things with this video alone. Never stop being you :) ♥

  • dear Beautybutterfly89 you are a beautiful soul. i can recommend this from 25 years' personal experience. read "Your Own Perfect Medicine" by Martha Christy (amazon.com) try "your own perfect medicine" on your skin. i am confident it will help. God bless you my dear. charles ranalli albuquerque
  • You are beautiful and intelligent! Thanks for your videos love fron Argentina

  • @mariaynez Thanks So Much! x

  • You are such an inspiration and such a beautiful person, inside AND out. Thank you for sharing your story with us<3

  • @welldressed91 Thanks so much for those very kind words! xx

  • watched this after watching the f.a.b video. u are selfless and have a fantastic attitude... all the best from england.

  • @andycasdmx Lovely to meet you and thanks so much! x

  • Watched a F.A.B video liked it so I decided to come here and check out your video. I am very glad I came. I wish you the best of luck and one last thing ~hugs~ best of wishes for you hon.

  • You have NOTHING wrong with you at all,

    you're gourgeous ( spelling error!? ) the way you are, and your PERFECT!

  • very brave, keep up the good work

  • you seem like a really sweet girl no matter what you look like on the outside and i think her vocie is cute (:

  • Sorry about saying that thing... I didn't realize you were different until I saw this video, I only saw the GHD at the start... So i thought it was one of those cover up voices but then I saw this video and delted my comment... I'm really sorry! I can be really ignorant sometimes! I get It from my mum! Hehe!

  • @apesoncrack Thats ok :-)

  • have you ever been in dolly mag? cuz i thought i read an article or something in the "Real Life" section about EB.... please get back to me! :)

    btw!! I TOTALLY ENVY YOUR STRENGTH!! if i were you i would've given up long ago.... i have ezcema, so i know it isnt the same.... its like a really ugly rash that you're usually born with, and i have to go through all the people asking me "What's that white stuff around your mouth?" or "EWWW!! What's that bloody stuff on your arms??? so, be strong babe!!

  • @apesoncrack Hey, Thanks for ur comment No im sorry i was not in dolly :-( lol

    I have to deal with lots of terrible stuff although these things only make us stronger!!

    Btw yes this is my real voice!! :-/

  • Butterflys are beautiful and so are you darlin.. a total inspiration =)

  • Hello Beauty. FAB sent me to say hi. What a great pleasure to meet you. Congratulations on your videos darl. You may not believe you are an inspiring person but I think you are. God bless you and keep on walkin the walk, and talkin the talk.

  • FAB sent me, and you are such an inspiration,

  • FAB sent me and I am so glad he did, your fantastic and such an inspiration.

    Wish you all the very best for the future.... 

  • Your amazing what an inspiration you are keep it up.

  • your sucha a great person! i love your attitude! and your very pretty..(:

  • your awesome thanx for sharing that with us. i learnt alot :)

  • FAB express got me here

  • @trentWHY Why thanks you!!

  • F.A.B sent me here and i'm so glad i did!

  • @XtremeEnigma1784 welcome xx

  • All butterflys are unique in some way..... but the one thing they have in common is that they are all beautiful.

    I'll tell ya my butterfly story one day.

    Thanks for explaining EB too...we all learn something everyday.

    Oh btw..Hi, Im Simon.

    (arrived via the F.A.B. bus)

  • FAB sent me tooooooooooooo

  • FAB SENT ME HERE IS THE BEST

  • Oh and 1 more thing... FAB sent me hear.

  • I'm so proud of you girl, but I never heard of E.B. before, just watching and listening to made me cry and my heart goes out to you. You have a wonderful spirit. God Bless You, dear.

    Cameron

  • i think you are definitly inspiring :) it shows that everyone is unique and that no matter how different we're all still normal people inside

  • HI Stevi - FAB suggested I take a look at your video ! You are an inspiration ! I too am super girlie and am a hairdresser by trade but also love makeup and playing around with it ! My daughter does modelling and I love it when I get to do her hair and makeup in weird wonderfull ways - (ill try and fwd u some that i have done :) ) I wish you the very best and look fwd to seeing your other vids and see what you have created .. Maaah <3

  • You have made me very thankful for everything I have, you are a true inspiration!

  • remarkable stevie, i have never heard of this condition b4 and i know a few conditions and the struggles people go through with them, i see it everyday but you are just so upbeat about it and that is incredible and courages and i think you are brilliant. keep up the awesome work and i hope ur party with FAB goes gr8... FAB sent me here :)

    all the best for now and for the future

  • Fab sent me and i think that you are the strongest girl ever

  • hey, you're aninspiration, and alot stronger than most

  • Fab send ^^

  • hey fab sent me i want to see u at fabs party but i cant get there :( :( ur still very pretty

  • good on ya

  • Fab sent me here. People like u make me grateful for what I have.

  • Inspirational stuff. Go kiddo. Came via FAB.

  • FAB sent me here hehe hiii!

  • Hello,

    FAB sent me and I subscribe to your video goodluck :)

  • You're beautiful!

  • FAB sent me to say hi :D. Also the 4 people who disliked this video should dont have a heart :).

  • FAB sent me too - and you are awesome and I agree with benchwarmer too! Really enjoyed this vid Thanx

  • thanks for sharing

  • FAB says hi. Wish you the best nice to see you enjoy life

  • you are very lovely. thanks for sharing

  • Fab sent me :)

  • Hello Darlin all the way from Ontario Canada not far from Toronto,s CN tower. FAB got me onto your link and I,m glad to see your doing so well ,you mentioned "insperational " yes indead you are . Have yourself a very Happy New Year !!!!

  • You're an amazing soul.

  • FAB sent me, but still I wish you all the best in the new year!

  • YOU ARE BEAUTIFUL AND DON'T LET ANYONE ELSE TELL YOU OTHERWISE GIRL!!!!!!

    HAPPY NEW YEAR :)

    SKY XXX

  • Fab sent me here (:

    Keep doin' your video's (:

  • FAB sent me , ermm well that was amazing , found it insperational (cant spell to save me life haha_

  • FAB Sent me......Gday from Portland VICTORIA..stay strong girl...:-) and have a great new year as well.

  • fab sent me !!!!! ya the best:) three people in this world should die grgrrrrrrr

  • You are so inspiring. <3 I love your channel!

  • FAB Sent me. :) Hi.

  • Hi Stevie, I found you via FAB and you are without doubt a lovely person - you come across so well and I enjoyed listening to you in this Youtube vid.

    And I LOVE make-up, so what you are doing is great and I am going to subscribe! Best wishes to you and have a happy new year.

    Hugs, Caz xxxxxxxxxxxxxxxx

  • Hey! =) KEEP UP THE GOOD WORK, FAB sent me.<3333

  • Hey, FAB sent me

  • You are such a beautiful girl I'm so glad FAB told me about you! Hi I'm Rosie I'm a guru myself I've subscribed to you, subscribe back to me if you like :)

    You are so brave and so full of life way to go Stevie! Btw my neices name is Stevie!

    Love Rosie xoxox

  • hii ,well done to you stevie :) FAB sent me :) i love your makeup videos :) xo

  • best wishes hun, very informative video, thanks :)

  • FAB sent me and not to be rude at all how do you type?

  • Despite everything life has thrown at you, you have such a fantastic outlook on life! You really are a beautiful butterfly!

    I found you thru FAB..... and the three people who disliked your video need a personality implant. AND a pulse!!

    Subscribed!!!!! =D

  • FAB Sent me here,i like ur videos alot and it takes alot of guts to talk about and share your problem with us not alot of people can do that!

    Stay at it kid (:

  • FAB sent me, It taked a lot of courage to do this you have my respect :)

  • :) x

  • Have an AWESOME new year Kiddo...I,ll give u a buzz soon....luvya....

  • You're very pretty, it's a shame that you have EB. =( stay strong and keep on fighting!

  • you are an inspiration..

    and yes...FAB sent me too!!!!!

  • FAB sent me i think that is cool that you come out and tell us about your disorder and it is really cool that you arn't afraid to be in the public stay stong hun and god bless and i will pray that they find a cure for the EB and you just caught me =)

  • Fab sent me and you just got another subscriber :D any idiot that could dislike this video should be ashamed of themselves they are huge idiots and shouldn't even be alive :P thats sad how people can do that great videos keep it up i expect to see more videos from you (:

  • FAB sent me. I watched a couple of your tutorials and I really liked them. I love to look at make-up (sitting in their containers and wrappers lol), I just don't know what to do with it! So I hope your tutorials help me!

  • Was touched by what you said, god bless you and may you find happiness continuing doing what you love.

  • Inspirational and heart warming are only words unable to describe your spirit. I don't generally reply to any videos on youtube but you my dear are so wonderful! I wish their were more people in this world with half as much enthusiasm. You are truly a wonderfull girl in both mind and spirit. omg you are awsome please keep up the good work!!! JD

  • Merry Christmas and God Bles to you and thank you for being so brave.

  • Well my dear, millions of women wish they had a voice as enchanting as yours & eyes as dazzling. Youre a beautiful person, no doubt, & i am inspired by you. May God bless you without end! *HUGS!*

  • You're beautiful!

  • I have a question for you, I don't want to seem like I'm prying or god forbid being rude. But I would like to know the emotional side to your disease?

    I get the strange feeling that you are a very deep person, and that you realize that life is precious.

    As Budha said;

    The most beautiful lotus grow's from the deepest mud.

    Please, do not lose what makes you the beautybutterfly.

  • you are awesome

  • @masonstheidiot Yeo Its sure is My dad has signs of having EB although both my mum and dad have to be carriers for me to have this form of EB!!

  • You look on the bright side of life but also appear quite realistic too, great attitude everyone could live by.

  • @JustOner12 Why Thank you, You cant oil paint things these's days, it the beat way to be!! xx

  • fab sent me your way. I think your an inspiration to so many. blessings your way

  • @Blueyeshining Thanks you and thank you FAB!! Your comment means the world to me!

    Stevie }i{

  • FAB sent me, well done (:

  • @imYoMonki Thank you so much!!

    Stevie }i[

  • great video, from a very confident, strong young lady

  • @freaksville01 I feel like I've said this to Everyone But........ Thank you so much!! I am a very strong willed person.......Thats the way i was made hehe! Stevie }i[

  • FAB sent me to say hi :D.

    Also the 3 people who disliked this video should die :).

  • @Benchwarmer13 HI!!! Agreed 100% hahah Thank you!! xx

  • @Benchwarmer13 i wouldnt say they should die,but they should be ashamed of themselves

  • Fab sent me well done :)

  • @tonyhenfrey Well Hey and Welcome its great to see such fantastic people!!

    Stevie }i{

  • i watch fab, which led me to watch u hun, i have dermatitis and its really itchy, but i wouldnt have a clue what ur going through. all i know is that ur disease doesnt make u, its urs awesome and brave personality and the choices u make. keep up the vids and do what makes u happy =)

  • love your smile

  • fab sent me, keep up the vids.

  • Fab sent me and he said to say Hi :P

  • you are a great person and fab did send me but i understand living with a special thing that makes you different so keep it up you got a lot of people and can relate

  • FAB sent me over to see your video. Great video and you are very brave. I never heard of this condition until today.

  • That Fat fella' sent me so ou are a Darlin' god bless!

  • Hi FAB sent me. Thanks for making this video and talking about EB I had never heard of it. Shopping in the kids department for clothes must be a real pain, luckily kids clothes these days are looking so adult. You are a gorgeous girl with a personality that really shines brightly.

  • FAB sent me here, you are wonderful !!

  • Gday Stevie, well i have never ever seen anyone with such a nice warm personality.

    and you're a very strong girl with a enormous big hart, so a big thumbs up from me, and subbing :) .

    Pete/Fab said hi.

    take care Stevie.

  • Pete/FAB sent me over. I have to say WOW. you're so positive about the EB on this vlog. It's such a good thing. I can only imagine it's not that easy at times, but you seem to smile through. Thank you for telling the world you are just as equil as everyone else. A true inspiration. :)

  • there shud b more poeple like u in this world

  • You are one brave lady! FAB sent me on over

  • you are an incredible woman. xD

  • Wow. You have to be the most amazing and inspirational girl I have ever seen on youtube. Keep up the amazing work.

  • I saw you on FAB's video and I subscribed. You have a great spirit keep smiling your beautiful inside and out. I also watched some make up videos and I also do some make up videos. YOU ROCK.

  • originally i wrote a comment about a page long about how inspirational you are but obviously theres a character limit so im just gunna say this. I truly respect you alot. You are definitely and inspiration to the world. Thank you for giving me my hope back that there are good people in the world. x

  • originally i wrote a comment about a page long about how inspirational you are but obviously theres a character limit so im just gunna say this. I truly respect you alot. You are definitely and inspiration to the world. Thank you for giving me my hope back that there are good people in the world. x

  • You are so brave and inspiring! Thank you for sharing your story.

  • hey, saw you on FABs channel. just wanna wish u good luck and i'll send a friend invite. happy holidays

  • f.a.b sent me you are so brave you are a inspirtaion to everyone darling

  • hugs! keep posting... F.A.B sent me.

  • You are a fantastic, strong person.

    FAB sent me over. Glad he did.

  • This may sound selfish, but your condition, and the way that you handle it, has given me a lot of insight and eased my own mind with a phsyical blemish I have. Namely, the disfiguration of my ribcage.

    In comparison though, I can barely compare my situation to yours, and your confidence and ability to talk about it and share it has given me a lot more clarity and eased some of my ridculous self-conciousness.

    Thank you for being an inspiration to me.

  • You're awesome young lady! Very inspirational indeed!

  • Fab sent me. Much love little Sister.

  • Sent here by FAB. This video touched me deep and made me smile. And you are such a beautiful woman; don't let anybody tell you different! Cheers, darlin. Hope you had a great Christmas.

  • You're incredibly inspirational. Your personality and optimism makes you beautiful, don't ever forget that :)

  • You are a wise young woman, your attitude is a gift. Pete refered me, best wishes for 2011!

  • Truly an inspirational beautiful human being x

  • Wow..i wish i had your wonderfully optemistic and happy outlook on life!!

    I honestly don't know what else to say! I'm lost for words at your wellspokeness (is that even a word??), and your acceptance of your condition is seriously awe-inspiring!! i have subscribed so i can get a little stevie ray of sunshine into my day!

    oh and the FAB sent me!

  • What a courageous video. Very inspirational indeed. It takes a lot to bring a lump to the throat of this big, ugly thug, but you did. Both our kids have life threatening conditions. I can't wait to show them your channel. Keep up the good fight darlin'!

    Oh, I'm not really into makeup, but if you could do a Gene Simmons, that would be cool lol.

  • May I disagree with something you said? You are not a very small person. You are a giant. You do what the rest of us only give lip service to.

  • Girl, you seriously are a inspiration,

    Love that you're putting yourself out there..

    Not letting your epidermolysis bullosa get in

    the way of your work.

    Keep up the good work.

    Lots of love,

    -Pat

  • FAB sent me! You go girl! keep doing your thing!! :D

  • As a guy I don't need make up tutorials, but I loved this video.

    like - favorite - subscribed

  • From FAB and subs

    You have sure a positve outlook on live and u are inspiration

    many people complain about the little things in life but they have no idea

    it has been an honor to learn about u and

    i shall be a long time further subcriber

    subed

    thank you and i hope to c many more video's !

  • E.B.means extra beautiful for you gal your totally  awe inspiring ya got me

  • I'm really proud of what you're doing here. It takes alot of courage to make videos for YouTube, especially when there's alot of haters and trolls around. I just wanted to say Congratulations on your success and I really hope that you go far. God Bless You.

  • Hello darling,seen you on fabs channel.

  • Nick again (comment below)

  • Such a positive outlook there. You are an inspiration!!

  • Such a Beautiful Person, i have never heard of your condition. love the fact you are so happy and positive :) Keep up the good work, i'll be watching

  • U Go girl. keep it up :)

  • you go girl I mite not watch you video but hope you get lots of people how would like to watch your video keep up the good work

  • Truly inspiring :D

    This is a clear statement that no matter what affliction you have, you can still be sucessful.

    Bravo Stevie. Bravo.

  • Completely feel for you.... keep up the vids... and yes FAB sent me!

  • You brought tears to my eyes your such an inspiration your so strong i am so glad that i found your channel thanks to Pete for the link and thank you for being on youtube xD

  • fab sent me, never EVER stop doing what your doing :)

  • makeup tutorial is not my thing or saying tears hugs and all that blah blah but the best i can do is, may you live a happy life, unlike some "normal" people that are miserable love your video and yeah..

  • your no different from any other person, you are beautiful

  • Stevie, You are beautiful honey.....and so so brave to be doing these vids. I love ya honey...am subscribing...

  • this makes me so sad!!!!

    and also TheFatAussieBastard sent me!!

    Go aussies!!!!!!

    im aussie too btw!!!

    your a true miracle!

    and anybody who doesnt like you because of your desease doesnt deserve to be walking this earth!!!

  • i can see why FAB was sad after watching this video cause i have a tear coming to my eye

  • fab sent me, theres nothing wrong with you your just diffrent girl :)

  • Good job.

  • your a brave person for sharing your story, best wishes in the future

  • you are strong and always should be

  • you are a very inspirational woman :)

  • Be strong girl from the BOZMAN!!!

  • fab sent me good video

  • Who was the fool that thumbed this video down? Whoever you are, you ought to be ashamed of yourselves...

  • FAB sent me...your very awesome

  • Thank you for sharing your story with us... Keep smiling :)

  • Theres nothin wrong with you darlin. hope u had a good chrissy. :-) FAB sent me.

  • FAB sent me, take care

  • I met you this morning on FAB's BlogTv. So pleased to meet you and thanks for explaining what condition you have. But I ll watch you for other reasons to get to know a beautiful soul.

  • FAB sent me..nice video :)