Hello Cheryl, I have the same problem. Your speech is much better than mine. Like you, the cause was encephalitis. Did you know that your speech gets better the longer you speak? From my observation of my own speech, mine gets worse because I stop concentrating on my enunciation.
@Parker2100 mine has gotten worse this was 2 years ago, often I can't speak or just sounds, on/off, recently for 2 weeks, will have to learn sign language , I have dystonia in my vocal cords.throat as well as the brain and cns damage first, I didn't realize it when I made this, they dystonia is severely progressive, and throughout my body and full body paralysis since last october, in for the fight of my life with no medical care still 7yrs holding on, all th e best to you Namaste
@CherylSpeaksOut - I am sorry to hear that Cheryl I saw another of your videos but I assumed it was an earlier one without checking. No medical care? I understood when you couldn't get a therapist because your speech was too good. Do you Social Security Disability? It comes with Medicare. If anyone qualifies you do. They say my speech is too good so no therapist for me. Oh well, it only keeps me unemployed.
Thank you for posting this video. I'm doing a monologue for my theatre class and the one I chose the guy has a few conditions and Dysarthria is one of them. Hearing you speak is helping me get the voice for this piece down. :)
@Boondoggleman2008 make sure to listen 2 one I can't speak or on/off prior. wanted 2 do video of drugs that cause this also, but have worsend greatly, many drugs cause permanent, some you get out of your system -detox, proper withdrawal- & it improves , or u get voice back or still interminment, speech therapy is needed & 2 find out drugs causing it or other possibilites as in vid, most doc's dont wnat 2, cause u been damaged by drugs they give without informed consent
I was diagnosed with MS and I also have CP and now I have noticed that I have been having symptoms that I can not describe all that well. The only thing that I can tell you is that I get a cold feeling like a chill and then my neck just spasms out on me, So I was just wondering if it would be possible for us to correspond please. So I do not know if this sound anything like what you might have experienced at all.
@DenaGoodin2010 I don't have CP, mine is 1st from brain damage and probably to my CNS from medications (I was damaged repeatedly all of me for life), I also have severel types of dystonia (generalized spasmodic & mycolonus mixed with dyskenisa) & in my neck cervical dystonia which made it worse over the years. All my muscles & ligaments were shortened & stiff first, also when my speech was first affected/damged, medications can cause it as well while u r on them.
@CherylSpeaksOut Thank you for getting back to me. The situation that I am facing right now is that they have me on steroids and I have noticed that since they started me on the meds in the past week my speech is getting really bad. I have been having a difficult time trying to talk at times with it feels like my brain is stopping and then I can not get what I need to get out of my mouth without stuttering real bad. So I just wanted to let you know this.
@DenaGoodin2010 talk to ur doc/neruo asap, med's can & do cause permanent damage to your speech, often when ur off them your speech will return, not always. healing blessings to you Namaste
I was diagnosed with MS and have this problem with getting some kind of since of I would say kind of like getting a cold chill and the my neck just jerks violently and I can not find anything online about this. I came across your video and I was wondering when you first started to have the condition did you get some of the symptoms like I am having? Did not mean to bother you, but I also have CP since birth due to my mother doing cocaine when she was pregnant with me and I was born at 1lb8oz.
this is a nice speech sample, she's doing a good job describing her experience. this helps me. I'm a researcher trying to cure this. Thank you. - P.S. I was just curious ... before your Chronic Fatigue Syndrome kicked in - did you ever get a flu? Can you recall when CFS kicked in? Did you have a flu, before it?
@turner3rentz it's worsened often I can't speak @ all I have had a bit of improvement lately I think because of a medication I got I was cut off of in 2004 that is dopamine antagnoist
myalgic encephalomyelitis started with polio like flu March 15/16 1991, I was diagnosed by infectious disease specialist 6 months later & again in 1994. ME/CFS didn't KICK IN After, it started with the extreme flu that attacked my brain, CNS, lungs, and muscles, including paralysis, with no sputum
@turner3rentz I am glad it helped you, look up dystonia as well, I have it throughout my body including my neck, there is no cure for that. I watched vid that u watched Silverman method didn't show much of the method just the improvement. I will go back and save it now that I am logged in. I was refused any help for my speech since 1st brain body damage of many since Jan/03 as well as any for all the damage, STILL @ time of writing
Hello Cheryl, I have the same problem. Your speech is much better than mine. Like you, the cause was encephalitis. Did you know that your speech gets better the longer you speak? From my observation of my own speech, mine gets worse because I stop concentrating on my enunciation.
Parker2100 4 months ago
@Parker2100 mine has gotten worse this was 2 years ago, often I can't speak or just sounds, on/off, recently for 2 weeks, will have to learn sign language , I have dystonia in my vocal cords.throat as well as the brain and cns damage first, I didn't realize it when I made this, they dystonia is severely progressive, and throughout my body and full body paralysis since last october, in for the fight of my life with no medical care still 7yrs holding on, all th e best to you Namaste
CherylSpeaksOut 4 months ago
Comment removed
Parker2100 4 months ago
This has been flagged as spam show
@CherylSpeaksOut - I am sorry to hear that Cheryl I saw another of your videos but I assumed it was an earlier one without checking. No medical care? I understood when you couldn't get a therapist because your speech was too good. Do you Social Security Disability? It comes with Medicare. If anyone qualifies you do. They say my speech is too good so no therapist for me. Oh well, it only keeps me unemployed.
Parker2100 4 months ago
Thank you for posting this. I am a Functional Neurologist near Chicago and this helps more than I can express in words. My best to you!
AuggieX1 9 months ago
Spinocerebellum..
SlightlyVisible 1 year ago
Spinocerebellum..
SlightlyVisible 1 year ago
Thank you for posting this video. I'm doing a monologue for my theatre class and the one I chose the guy has a few conditions and Dysarthria is one of them. Hearing you speak is helping me get the voice for this piece down. :)
Boondoggleman2008 1 year ago
@Boondoggleman2008 make sure to listen 2 one I can't speak or on/off prior. wanted 2 do video of drugs that cause this also, but have worsend greatly, many drugs cause permanent, some you get out of your system -detox, proper withdrawal- & it improves , or u get voice back or still interminment, speech therapy is needed & 2 find out drugs causing it or other possibilites as in vid, most doc's dont wnat 2, cause u been damaged by drugs they give without informed consent
CherylSpeaksOut 1 year ago
I was diagnosed with MS and I also have CP and now I have noticed that I have been having symptoms that I can not describe all that well. The only thing that I can tell you is that I get a cold feeling like a chill and then my neck just spasms out on me, So I was just wondering if it would be possible for us to correspond please. So I do not know if this sound anything like what you might have experienced at all.
Thank You
Dena G
Norman, Ok
DenaGoodin2010 1 year ago
@DenaGoodin2010 I don't have CP, mine is 1st from brain damage and probably to my CNS from medications (I was damaged repeatedly all of me for life), I also have severel types of dystonia (generalized spasmodic & mycolonus mixed with dyskenisa) & in my neck cervical dystonia which made it worse over the years. All my muscles & ligaments were shortened & stiff first, also when my speech was first affected/damged, medications can cause it as well while u r on them.
CherylSpeaksOut 1 year ago
@CherylSpeaksOut Thank you for getting back to me. The situation that I am facing right now is that they have me on steroids and I have noticed that since they started me on the meds in the past week my speech is getting really bad. I have been having a difficult time trying to talk at times with it feels like my brain is stopping and then I can not get what I need to get out of my mouth without stuttering real bad. So I just wanted to let you know this.
Dena G
Norman, OK
DenaGoodin2010 1 year ago
@DenaGoodin2010 talk to ur doc/neruo asap, med's can & do cause permanent damage to your speech, often when ur off them your speech will return, not always. healing blessings to you Namaste
CherylSpeaksOut 1 year ago
@DenaGoodin2010 note the comment below many with MS get this
CherylSpeaksOut 1 year ago
I was diagnosed with MS and have this problem with getting some kind of since of I would say kind of like getting a cold chill and the my neck just jerks violently and I can not find anything online about this. I came across your video and I was wondering when you first started to have the condition did you get some of the symptoms like I am having? Did not mean to bother you, but I also have CP since birth due to my mother doing cocaine when she was pregnant with me and I was born at 1lb8oz.
DenaGoodin2010 1 year ago
this is a nice speech sample, she's doing a good job describing her experience. this helps me. I'm a researcher trying to cure this. Thank you. - P.S. I was just curious ... before your Chronic Fatigue Syndrome kicked in - did you ever get a flu? Can you recall when CFS kicked in? Did you have a flu, before it?
turner3rentz 1 year ago
@turner3rentz it's worsened often I can't speak @ all I have had a bit of improvement lately I think because of a medication I got I was cut off of in 2004 that is dopamine antagnoist
myalgic encephalomyelitis started with polio like flu March 15/16 1991, I was diagnosed by infectious disease specialist 6 months later & again in 1994. ME/CFS didn't KICK IN After, it started with the extreme flu that attacked my brain, CNS, lungs, and muscles, including paralysis, with no sputum
CherylSpeaksOut 1 year ago
@turner3rentz I am glad it helped you, look up dystonia as well, I have it throughout my body including my neck, there is no cure for that. I watched vid that u watched Silverman method didn't show much of the method just the improvement. I will go back and save it now that I am logged in. I was refused any help for my speech since 1st brain body damage of many since Jan/03 as well as any for all the damage, STILL @ time of writing
CherylSpeaksOut 1 year ago
thank u
drmam17 1 year ago
Comment removed
louisjacquemet 1 year ago
Thank you for sharing this...
bennasdwarf 1 year ago
This is very common for those of us who have Multiple Sclerosis. Very good description thank you.
MSVlogSupport 2 years ago
are as nervous tic?
bibbiroma82 3 years ago
turn your ratings off, you're not here to get rated, stay your course cheryl
riverriver45 3 years ago