Love this, thank you for posting this, I am living with lupus and am currently in a flare. This gives me hope that the reach for a cure continues, Mahalo Nui Loa, Shailee Couch
I have all the classic Lupus symptoms. Rash on chest. Malar rash, low grade fevers, bad joint pain, chest pain. My hand swell at times. My ANA is negative. Is it possible to have all the symptoms and be neg on the ANA and still have Lupus? I have been on just about every drug. I have a really bad flare last week and the Dr put me on Cohcholine. It really helped with the joint pain! I am waiting now for a new drug called Cimzia. The other ones stopped working. Hope you respond. I am tired!
@lgdofa I was diagnosed 10+yrs ago with Lupus (SLE) & Sjogren's disease in the moderate to severe stages. To answer your question, there IS NO CURE AVAILABLE YET for Lupus. But, there are foundations like Alliance for Lupus, Lupus Foundation of America, & an International Lupus Foundation working on a cure as well as meds to make life living w/lupus better, less painful, & lengthening our lives so we may be around when the cure is discovered, hopefully b4 lupus does too much damage to our bodies
I lost a very good friend of mine on thursday to Lupus. Rest in Peace Sharon Tyner I love you.
kwile77 1 month ago
This is a great way to show people to give them some understanding of Lupus
cgdicicco 9 months ago
Love this, thank you for posting this, I am living with lupus and am currently in a flare. This gives me hope that the reach for a cure continues, Mahalo Nui Loa, Shailee Couch
shaiz169 11 months ago
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I have all the classic Lupus symptoms. Rash on chest. Malar rash, low grade fevers, bad joint pain, chest pain. My hand swell at times. My ANA is negative. Is it possible to have all the symptoms and be neg on the ANA and still have Lupus? I have been on just about every drug. I have a really bad flare last week and the Dr put me on Cohcholine. It really helped with the joint pain! I am waiting now for a new drug called Cimzia. The other ones stopped working. Hope you respond. I am tired!
Beezlebubbers 1 year ago
Comment removed
Beezlebubbers 1 year ago
Good to learn and have alot of eucational material on here. Someone could have that!!
purebrownsugar77 1 year ago
If you would, please submit your health question via our secure form at muschealth . com /medunurse. Thanks.
muschealth 1 year ago
could lupus killl you even though u treat it, thanks in advance
lgdofa 1 year ago
@lgdofa - Yes, you can. Many die of this ailment. It doesn't matter what drugs you take. Sometimes it can help, sometimes it doesn't.
I was diagnosed with SLE (Systemic Lupus Eurythomatosis) in 2003. I know more than the doctors! ;o)
cupofjoy777 1 year ago
@lgdofa I was diagnosed 10+yrs ago with Lupus (SLE) & Sjogren's disease in the moderate to severe stages. To answer your question, there IS NO CURE AVAILABLE YET for Lupus. But, there are foundations like Alliance for Lupus, Lupus Foundation of America, & an International Lupus Foundation working on a cure as well as meds to make life living w/lupus better, less painful, & lengthening our lives so we may be around when the cure is discovered, hopefully b4 lupus does too much damage to our bodies
PaisleyPlace 1 year ago