I must respond to the comment below about being "cured". I am not cured of this disease. I use an electric wheelchair but I do now have treatment that controls further attacks since the finding of my genetic mutation. The permanent muslce loss that occured prior to this time cannot be changed.
im christopher arban from philippines and now suffering from hypokalemic periodic paralysis since i was 25 years old..i hope and pray you could help me to be cured too..my email add is chrisarban@yahoo.com..thank you so much and god bless
Linda, I just emailed you and happened to find you on here as well. My husband and I just finished listening to your story! Wow! While I am not yet sure if this is what I have, your story is inspiring. I am so blessed to be in contact with you and hope there is something I can contribute, while sharing my story. Continued success in providing patients with guidance and hope. Sincerely, Kara and Dave
You are hope personified. Your wisdom, kindness, honesty, and humble humanity has made the worst days possible to get through. When we are facing Courage Under Fire in the medical community; you are the light that shines us home: PPA.org is a vital organization to donate to. It's especially vital to give hope to the youngest amongst us. Bless you.
I must respond to the comment below about being "cured". I am not cured of this disease. I use an electric wheelchair but I do now have treatment that controls further attacks since the finding of my genetic mutation. The permanent muslce loss that occured prior to this time cannot be changed.
PPAPeriodicParalysis 1 month ago
dear madam linda..
im christopher arban from philippines and now suffering from hypokalemic periodic paralysis since i was 25 years old..i hope and pray you could help me to be cured too..my email add is chrisarban@yahoo.com..thank you so much and god bless
jenjen2174 1 month ago
Linda, I just emailed you and happened to find you on here as well. My husband and I just finished listening to your story! Wow! While I am not yet sure if this is what I have, your story is inspiring. I am so blessed to be in contact with you and hope there is something I can contribute, while sharing my story. Continued success in providing patients with guidance and hope. Sincerely, Kara and Dave
christystgermain 1 year ago
Linda,
You are hope personified. Your wisdom, kindness, honesty, and humble humanity has made the worst days possible to get through. When we are facing Courage Under Fire in the medical community; you are the light that shines us home: PPA.org is a vital organization to donate to. It's especially vital to give hope to the youngest amongst us. Bless you.
HKPPresearchandcure 1 year ago