OMG my heart is just breaking for you and Jamey. What a nightmare you both are living. Mom fighting so hard for Jamey to be treated decently and with care and compassion, and Jamey locked in a world where he cannot make people understand his needs and desires. Dear God your strength is unmeasurable and amazing. I only hope you get the medical profession to stop 'back-burnering' you and Jamey and start doing what needs to be done to actually be a help to you. God Bless you and Jamey.
I'm glad to see that they let him stop when he is done, I have had people try to make my son "finish".............HA! He is just about like this young man, but my son is 18 and very active, never sits down except to eat or sleep. Always pacing and folding things :)
1st off Jamey is very handsome :). Have you heard of safespace UK? It's like a room inside a room where persons who self harm or fall a lot etc can be safe. Never seen one in person but I saw them online the other day, maybe an idea for Jamey? Not sure if there is a USA version? But things can be added for autistic persons to interact with plus the small space is supposed to help some to focus more on whats inside the space and not on hurting themselves.
thank you for your videos, and don't let anyone judge you. I am in the same situation as you, my son is just like Jamey and I have another guy at the other endof the spectrum, plus I myself have ms... so hang in their, what they need are excellent group homes, that have loving people, still waiting.... thanks again..
I work as a behavioral therapist and have been for awhile. And almost always the most difficult part of the job is dealing with the parents, but I dont let it bother me because the clients i work with are very severe in thier diagonosis and it is stressful for the parents, I work with thier child for 8 to 4 hours out of the day and they live with him and most likely will have thier child live with them the rest of thier lives. Its a hard situation to live with and i try to keep that in mind.
What's the name of the musical peice in the background? Where did you find the picture of the octopus? I know, a stupid question but I'm autistic myself and octopi are one of my obsessions. Your son is lucky to have you for his mother. A lot of people would just throw him away in a group home or instution and forget about him.
i appreciate your strong effort to support your son, but i think the person working with jamie must have a very hard job. watching your videos left me an impression that you think you know everything about your son. if anyone working with him makes a mistake you'll be angry (got this impression from the hospital video). again i understand your burden, but please also consider other people's feelings. those people are there to help and they don't know everything about ur son. please be nice.
@reasonedful Okay, I get what you are saying, but I am nice to people and NICE doesn't save your child's life when someone is doing things wrong that could kill him. Sometimes you have to be assertive and bold and confront people when they are doing things that could seriously HARM your autistic child. NIce doesn't get you anywhere, I've tried it and been burned too many times in situations where my son's life is on the line. Not that you have to mean cruel, but being brutally honest to protect
@CDFoakley understandable. i work with kids in the spectrum and i hate some of the parents i work with. they give you the impression that because their sons are disabled, the world needs to revolve around them. they don't understand that we've got a hard job too. it's hard for both the parents and professionals to put themselves into each other's shoes.
@reasonedful That's true. Parents like myself can become so mentally and physically exhausted we forget that others who are helping us are most likely just as frustrated and want to help. And yes I agree, I have met too many parents of mildly autistic children who think their children require the same services of severely-autistic children. It just blows my mind. It'd be like stomping into the ER room with a blister and demanding same level of care as a person with a head trauma.
@CDFoakley I totally agree with what you are saying. people just don't listen to you when it is about your child. my son is 21 and autistic and if we dont speak for them, who will.
@reasonedful mi hermano le tenemos un cuaderno con marcadores pa que escribe lo que quiera. porque no le proponene que le baje un poco el medicamento lo veo muy decaido...
I like the person who is working with him, seems to be up on his behavior and not at all reactionary to Jamey's SIB...he just keeps him going matter of fact. I know sometimes a strong reaction is good and works for some, but I think this way of going about it, seems to be better for Jamey, but then again I'm just watching Youtube....what do I know?
@baaker1 We do occasionally bring him to cinema, depends on his behavioral and medical status. He's also been to Disneyland and Knotts Berry Farm and a Water Park.
Good points but these crayons are really hard to use because they require more strength/ pressure applied to make a mark. Better use filter pens, as fat and short as possible for a tripod finger grip. + Much better also to use paper without shape for free drawing, or if you want color in, use much simpler shapes. I would not call the behaviour you refer to SIB. There are clear gradations.
@Skymaker69 He was trying to punch himself in the head, I'd call that SIB. We took him off swing because he had been sittting there for over an hour and we thought, Okay, that's enough, he's happy and focused, so NOW is the time to get him to color. He didn't want to be moved from swing, so he used SIB to avoid coloring task. This is common with severe autism. They at first resist a new task, and may try SIB to get out of it. However, it is often necessary to persist, even for short time...
@CDFoakley A behaviour that is his usual behaviour when in distress but not with the intensity he can display. It is more like habituation rather than a display of SIB per se. We see this often indeed with those who display more severe SIB- but we do not evaluate this sort of behaviour in the same way. It could be seen in this context as avoidance, and/or stress. The coloring task is advance.
I love this video. I have been watching the videos of Jamey for and this one is so funny he looks like he is thinking, Im so board with coloring I wish he would stop.You are such a good mom. we never stop trying.
He is like im on my chew neclace go away.
Rokinroxy1 2 months ago
OMG my heart is just breaking for you and Jamey. What a nightmare you both are living. Mom fighting so hard for Jamey to be treated decently and with care and compassion, and Jamey locked in a world where he cannot make people understand his needs and desires. Dear God your strength is unmeasurable and amazing. I only hope you get the medical profession to stop 'back-burnering' you and Jamey and start doing what needs to be done to actually be a help to you. God Bless you and Jamey.
Susanlucena 2 months ago
He's so handsome(: Great video!
mariahdances15 2 months ago
Where did get that purple rope?
Shoes454 3 months ago
I'm glad to see that they let him stop when he is done, I have had people try to make my son "finish".............HA! He is just about like this young man, but my son is 18 and very active, never sits down except to eat or sleep. Always pacing and folding things :)
raspberrymary67 4 months ago
1st off Jamey is very handsome :). Have you heard of safespace UK? It's like a room inside a room where persons who self harm or fall a lot etc can be safe. Never seen one in person but I saw them online the other day, maybe an idea for Jamey? Not sure if there is a USA version? But things can be added for autistic persons to interact with plus the small space is supposed to help some to focus more on whats inside the space and not on hurting themselves.
PromosbyRicochet 4 months ago
thank you for your videos, and don't let anyone judge you. I am in the same situation as you, my son is just like Jamey and I have another guy at the other endof the spectrum, plus I myself have ms... so hang in their, what they need are excellent group homes, that have loving people, still waiting.... thanks again..
Jesusfreak3378 4 months ago
What is he chewing on?
blackpager 4 months ago
I work as a behavioral therapist and have been for awhile. And almost always the most difficult part of the job is dealing with the parents, but I dont let it bother me because the clients i work with are very severe in thier diagonosis and it is stressful for the parents, I work with thier child for 8 to 4 hours out of the day and they live with him and most likely will have thier child live with them the rest of thier lives. Its a hard situation to live with and i try to keep that in mind.
EricMcIntyre7 5 months ago
What's the name of the musical peice in the background? Where did you find the picture of the octopus? I know, a stupid question but I'm autistic myself and octopi are one of my obsessions. Your son is lucky to have you for his mother. A lot of people would just throw him away in a group home or instution and forget about him.
misspinkpunkykat 6 months ago
i appreciate your strong effort to support your son, but i think the person working with jamie must have a very hard job. watching your videos left me an impression that you think you know everything about your son. if anyone working with him makes a mistake you'll be angry (got this impression from the hospital video). again i understand your burden, but please also consider other people's feelings. those people are there to help and they don't know everything about ur son. please be nice.
reasonedful 7 months ago
@reasonedful Okay, I get what you are saying, but I am nice to people and NICE doesn't save your child's life when someone is doing things wrong that could kill him. Sometimes you have to be assertive and bold and confront people when they are doing things that could seriously HARM your autistic child. NIce doesn't get you anywhere, I've tried it and been burned too many times in situations where my son's life is on the line. Not that you have to mean cruel, but being brutally honest to protect
CDFoakley 6 months ago 4
@CDFoakley understandable. i work with kids in the spectrum and i hate some of the parents i work with. they give you the impression that because their sons are disabled, the world needs to revolve around them. they don't understand that we've got a hard job too. it's hard for both the parents and professionals to put themselves into each other's shoes.
reasonedful 6 months ago
@reasonedful That's true. Parents like myself can become so mentally and physically exhausted we forget that others who are helping us are most likely just as frustrated and want to help. And yes I agree, I have met too many parents of mildly autistic children who think their children require the same services of severely-autistic children. It just blows my mind. It'd be like stomping into the ER room with a blister and demanding same level of care as a person with a head trauma.
CDFoakley 6 months ago
@CDFoakley I totally agree with what you are saying. people just don't listen to you when it is about your child. my son is 21 and autistic and if we dont speak for them, who will.
pshepherd58 6 months ago 2
@CDFoakley mi hermano autista es obeso el es delgado como le haces
Nancyportilla 3 months ago
@reasonedful mi hermano le tenemos un cuaderno con marcadores pa que escribe lo que quiera. porque no le proponene que le baje un poco el medicamento lo veo muy decaido...
Nancyportilla 3 months ago
Does he always have to chew on the rope?
Shoes454 7 months ago
Does he like or dislike doing new things?
Shoes454 7 months ago
I like the person who is working with him, seems to be up on his behavior and not at all reactionary to Jamey's SIB...he just keeps him going matter of fact. I know sometimes a strong reaction is good and works for some, but I think this way of going about it, seems to be better for Jamey, but then again I'm just watching Youtube....what do I know?
Aluapay 7 months ago
@Aluapay Good observation. I agree, this nurse is really patient , firm and kind. A great match for my son.
CDFoakley 7 months ago
im touched by your videos... i realized the way he sat cross-legged resembles my autistic cousin. how old is he by the way?
snowygurl87 7 months ago
Why is he not going to the theme parks, cinemas even holidays?
baaker1 7 months ago
@baaker1 We do occasionally bring him to cinema, depends on his behavioral and medical status. He's also been to Disneyland and Knotts Berry Farm and a Water Park.
CDFoakley 7 months ago
I'm very happy to see Jamey doing so well. It was nice to see him swing himself. He looked relaxed and contented.
genmama1955 7 months ago
CDFoakley ,, hello to Jamey .. Soo glad thAt he is doing soo good. Big trooper. Just hang in there.
TypesEvilAspieEyes 7 months ago
thats awsome to see him doing so well
rslnvss 7 months ago
Good points but these crayons are really hard to use because they require more strength/ pressure applied to make a mark. Better use filter pens, as fat and short as possible for a tripod finger grip. + Much better also to use paper without shape for free drawing, or if you want color in, use much simpler shapes. I would not call the behaviour you refer to SIB. There are clear gradations.
Skymaker69 7 months ago
@Skymaker69 He was trying to punch himself in the head, I'd call that SIB. We took him off swing because he had been sittting there for over an hour and we thought, Okay, that's enough, he's happy and focused, so NOW is the time to get him to color. He didn't want to be moved from swing, so he used SIB to avoid coloring task. This is common with severe autism. They at first resist a new task, and may try SIB to get out of it. However, it is often necessary to persist, even for short time...
CDFoakley 7 months ago
@CDFoakley A behaviour that is his usual behaviour when in distress but not with the intensity he can display. It is more like habituation rather than a display of SIB per se. We see this often indeed with those who display more severe SIB- but we do not evaluate this sort of behaviour in the same way. It could be seen in this context as avoidance, and/or stress. The coloring task is advance.
Skymaker69 7 months ago
I love this video. I have been watching the videos of Jamey for and this one is so funny he looks like he is thinking, Im so board with coloring I wish he would stop.You are such a good mom. we never stop trying.
pshepherd58 7 months ago
@pshepherd58 Thank you. Yes, you must keep trying, because every autistic person has potential to do so much more than we are led to believe...
CDFoakley 7 months ago