Transvere Myelitis Video Diary 12,14,08 Part 2

[SCARBAND]

im sorry for your condition. i have no idea the suffering you are going thru. i think your a smart girl and this is a shitty thing to happen to such a beautiful girl. i wish you and your family the best. merry christmas.

[librehidalgo33]

hola soy javi desde españa y tengo mielitis espinal, me kede con 22 años en una cama ahora tengo 27 y hago casi una vida normal pero amo el deporte y la competicion quiero recuperar mis marcas, pero los medicos me dicen que no puedo ni si quierea se preocupan por mi El problema es que me siento culpable por lo que me paso y aun no me he perdonado, cada vez que hago pruebas fisicas lloro, por peder todo mi potencial, que hago? me rindo ? donde puedo encontrar ayuda? siento mucho tu dolor lo compa

[Shrpdrt]

I am 15 years older than you, but i know what pain you are in, I broke my neck in 1987 and still cant get ppl to get close to me. I wish you better luck than I had. I know what you want and what you are missing. being close to your loved ones is as much I can hope for.

[ke5glb]

Ba, I know what your going thought for I suffer from TM myself I was struck in 2005 and not knowing what it was my Doctors had no control over it .This year I lost my Nero. Dr. and was sent to another one I thought I was screwed and it was a blessing for he Knew just what it was I had he ran more test and it was confermed TM but not knowing all these years took a toll and all most killed me twice with the last time causing my lungs to stop. It Sucks I know !!!

[RSDvlog]

Hi...How are you doing tonight? I am so sorry for you!! How are you doing these days? After your Ketamine Infusion. I am here to listen, if you care to talk! It is sites like this that makes people that are inflicted with the same disease, we can go to our computers and a couple of clicks and there we are connected to the world. I really do hope that you are doing much better. Keep Smilin' Lynn

[Tnkr90]

I was diagnosed with TM last year and I know how it feels. Be strong...

[newworldodour]

try cannabis its great for neurological pain and depression, my brother is in a wheelchair and swears by it.

[93MNP]

i was diagnosed july 2006 and i was depressed at first but then a little girl in the room next to me in ICU died. then i relized he it could be worse. yeah i know its sucky but you cant live life sad and depressed. dont dwell on what you dont have. look at what you do have and ask your self do i really have it that bad? because you dont your alive and here on this earth.

[angelusa73]

Oh, sweet Melanie,

I feel your pain and I so wish I could do something to help! I don't have TM, I have MS and while it's different, it's also quite similar and I can understand what you are saying. During my relapses, I wanted to be alone too and I prefered to be alone. Now that I feel better, I am almost back to the person that I was.

I do go to Hopkins to get my care and I know about Dr. Kerr and yes, he is a wonderful person.

I hope you are feeling better now.

Many hugs,

Angela

[paule720]

I was just diagnosed in the April 09. I'm completely paralyzed. I know what are you are going through.

[CarramelApple]

How are you doing now, NeuroDetour?

[Andrea1046]

i know what your going through, i have it too. I got it when i was in 4th grade and im still dealing with it right now. I just have to pray tho it is frustrating at most times for me

[myrical1]

I have had 2 attacks of transverse myelitis and i am here to bring EVERYONE OF YOU INCLUDING THE GIRL IN THE VIDEO MOSTLY hope! I made a full recovery but not til after 2 years of intense therapy there is a gentleman at John's Hopkins Hospital in Baltimore named Douglas Kerr. He is the director wordwide for the transverse myelitis center. I guarantee he can help you guys he did me and he did thousands of others. Keep the positivity, when you think down you feel down.

[WhiteLionness]

I'm so sorry to hear about what you're all going through, my thoughts and prayers will be with you.

[duchessjewell]

Hi,

My name is Sue Dingle I was diagnosed in July 2008 I have a lesion across my spinal cord at T6-T7. You are welcome to contact me on facebook my e-mail address is on there as well. I wish I could say everything is going to be okay but I can't, but things have got better with time. I don't think I could be as physically and mentally well as I am now without swimming, kids and staying in Uni, mentally I find strenght in being busy. I hope you find your way to.

Many regards

Sue