he will continue to bless u...u are alive and a fighter and he takes care of his own...he has carried u thus far and will not leave u...just keep up the faith at all cost no matter what...:) he maybe chose u because he knew your strength and the message u would send...God bless u angel!
@TheFra1111 thank you for sharing such words filled with hope and belief with me. I am not always very positive about my future. I was but then this happened and now I am wondering why so much pain is given to us in this earth and why we deserve it. I will take your blessings and I am thankful for them. I will think about the resst tomorrow...i go on this way, a moment at the time...hoping that, someday soon, the pain will start to be less and I will be able to see the reason for fighting more:)
@TheFra1111 if I was an Angel, I would hope that God would take care of them better than he is oing with me, then because suffering like this is really not fun at all and I hope that he is helping all the other patients that took Tysabri and that ended hurt more like me...I am very confused because I thought that I could be blessed without all this pain...anyway, he knows that I am strong and that I can fight this new challenge, and it would be nice to have a break once in a while) thanks,
@GNMWroclaw ho provato ad andare su questo sito, ma mi viene detto che non e` esiste, per cui non so come fare per trovarlo...mi potete scrivere privatamente e dirmi come mai non funziona? di cosa parla? sono pronta a provare ancora, ma se non scrivol altro` e` perche` non trovo nulla e non so cosa dire...buona notte a tutti :)
@GNMWroclaw sono andata a leggere quello che c'e` scritto , non so perche` ma questa volta funzionava tutto e ti posso dire che, andsndo ds un nutrizionista che segue la mia malattia e che mi vuole aiutare a stare meglio, sto mangiando cibi biologici, non carne rossa e poca carne in genere,
ma la frutta e la verdura che mangio sono sempre e slo biologiche. Grazie del sito...adesso so che e` molto utile e lo terro` trai favoriti per vederlo, rivederlo e controllarlo ancora. Grazie per l'aiuto,
@tazscott14 yes, we did, ear Bill, you are absolutely right, if it's not one thing, it will be another and e\we have ( AND WE ARE) real fighters because we deal with so much eanch and every day and we find new ways to cope with pur n\many struggles...and we don't give up, but we keep on fighting...something that you do too, quite well, my dear friend. Thank you for coming here too. It is nice to hear from you every day,
@88whynot than you! I love the musi so very much too! and I love the Italia artist that wrote it and sings it. He ia aswesome in English, in Italian ,in English and in Spanish, ge loves languages and he is very good with all of them. I admire him so much and the fact that he is very cute ( I have to remind myself that I am still a woma after all) and he ha a very caring heart, makes him even more special.I am very happy that you liked the music. I felt that it was perfect for my message.Angela
I have not looked online very often for a while but I came on today and thought of you, checked to see if you had any videos and here you are! Better than you were! I am so happy for you.
When you say you hate every day, you dont live at all, I can relate to you, it is what I think too most days, I like your honesty!
It is really great to see your new video Angela.
I promise I will message you again soon!! Keep on going with your amazing strength! You beat it :D
@HitMeWithIt Do you know how much I missed you and I pushed myself not to bother you because you need to rest and take rime to think of your health too. I hope you are feeling sort of ok, I know it's never percfet, I know, but I wish you you can have some datys that are a little than the others... I don't ask you if I disappointed you with my video, first of all, the italian one where I show my anger more and also, I know that you understand me. It's so good to see you here! I am glad you came
@BrendaRaven1 hi! I missed you so much! As you know, I was sort of busy, sort of battling and winnig against the PML. I felt the video was important because of the many people that worried about me and because of so many want to take Tysabri and I felt they had the right to know the risks they would be taking in putting that drug in their body. I will always pay the price of such a choice and people have the right to know what it can happen if they take it,nice to hear fom you,
Thank you for continuing to share your story, you should be proud, you are sharing purely from your heart and experience - no one should ever judge that. I hate what PML has done to now 202 beautiful people who most likely would never have suffered with their MS as much as they are with PML. Not to mention their families and friends. You are a shining light in a pretty dark world and I think and talk of you often. Sending you love and strength. Kerri xx
@kezzcass oh, sweet Kerri! Here you are! and it's good to hear from you! I often think \of you ( even if with half a brain :) and I ;pray that you continue to see improvements nd feel better and better each and every day...one thing tha the stupid PML doidn't do.it didn't take my heart away from me, it might have tried to change it and make me more cinical and hurt, but my desire to help others is still there and they better not try to mess \with that or they will see me really mad! take cake!
@ToriUTK oh, I lpooked all over for your message, but I kept on losing it and, afer searching and searching and not giving up( we never do it anywhere, right?) about being beautiful, you are very sweet, but I think I feel a little better when and iof my cheeks become more normal and less piggy :)which will not be for a while longer because I will hsve to have an IV steroid ifusion a month so I have to be patient a bit longer...
it's so nice to find you here and thank you for being my friend :)
Hi Angela, it is so great to see and hear you! You sound much better then you think you do. I agree that all sides of the affects of Tysabri should be addressed. There are good and bad stories and we need to hear them to make informed choices. You know that I have started it, I am afraid not going to lie about that. Not sure how long I will stay on it? I am also afraid of doing nothing, so don't know where to turn. I think about you often and your fighting spirit. Much Love
@MSVlogSupport finally, my dear Andrea, I get yto your kind message/ comment and I have to apologize to be late in responding to everyone but I am gld that I read yoirs and that I am coming to tell you that your words help and that I know how you feel. It's hard to make a decision about our future, and it's really up to you and no one else to make the decision because it is YOUR BODY and Tysari is a very dangerous drug and people need to know about it take good care, my thought are with you too
@rickileeway Hi, Rick, your comment made me laugh, so the chubby cheeks have a plsce in my daily life because I think they are funny and, if they have to, they can stau with me for a while. Thank you so much for sharing the himor in this with me. I like making jokes of myself because it helps make light on things that, otherwise, wouldn't be funny at all...life goes on and it's better to go on trying to laugh about it...
Oh dear, It's so comforting to hear your voice and that perky Italian attitude :) Slap that word Tysabri against the wall along with PML. The public needs to know the evil side of the medicines they ask us to take. I was not directed to ANY INFO REGARDING PML, instead I was told to ignore the internet! Am a lucky soul that things went the way they did and my bad reaction w/Tysabri I can't imagine what you go through! You made my day :) Prayers to all.
@ThePennygirl it's so wonderful to hear from you again and sorry for not keeping in touch. As I often say to everyone: I was kind of busy trying not to die( ha, ha!) so I hac\ve a vry good reason for being very quite for a while...i did miss writing and keeping in touch and thank you for coming to me to say hi,
@ThePennygirl I agree witj you when you say that people need to know the truth about this drug because, as you can see, Biogen is not very open to discuss risks and they don't mention them the way they they should, so I fel it was extremely important to sho the public evertothing that is happening taking this drug, the PML might be be rare, but it fdoes happen and its happening more and more each day. plese, inform yourself and think about it well becfore taking this. thank you for writing:)
@picinela sei fin troppo gentile, mia dolce Reginetta. Ed e` bello sentirti anche in questo modo perche` ammetto di aver bisognp di tanto supporto, dato che pensavo di sembrare troppo arrabbbiata nel video, cosa che non accade mai perch` sono sempre stata una persona molto diversa da come sono ora...ceerto che questo vleleno no dovrebbe prenderlo nessuno. E` bello trovarti qui, mia cara amica, fiorellino e manager di Flowers4MS. Io preferisco chiamarti amica perche` sei la migliore:)
@christinedavi I am pushing forward big time: I am so mad at what happened to me that there is no way I will let it ruin my whole life! Biogen definately tried to do it by makinf\g what I call" the poison" but I keep on hoping that no oe will have to live throug what I went through and I am glad I was able to make the video for all of you that were worried about me. I appreciate you coming to say hi and I would love to know how YOU are doing and if you are feeling any better, hugs,
wishes from the UK are very special to me and I thank you so very much for writing to me and for sending megood wishes and good thoughts from my wonderful Europe that I miss every day,
thank you dor writing and for thinking of me. I wish I could find better words to tell you what I feel, but that would be asking for too much, so I will thank you again and tell you that I appreciate your kindness. Bring my greetings to the UK for me,
Angela! It's so good to see you again! You are so dearly missed among our facebook world of MS friends. You have had one hell of a a fight to live because of tysabri and it's just not right, this could've been prevented if the drug companies and neuro's cared about what happens to people. Thank God you are a strong and determined woman and have a husband to stand by your side and help you fight for your life! I thank God again and again for your strength and fight! Love you!
@9gabbycats imiss being on facebook too, but I am g\having trouble doing the things I love now and I usuallky have to chose an do one thing per day, so when I write e-mails or anser comments, I can't make dinner and if I make dinner, I can't do much else so I have to pick and choose...something to get used to doing and then I will be fine... \I am super organized stiil and that helps a lot :)
Keith thanks you a lot for your kind words, he has been through hell with me these past years.
@omexmc80 thank you, sweet friend. I feel bad for not keepin in touch...I was kind of busy, as you know, trying for Biogen not to kill me and I disn't let the dug and the company get me, so I am happy and looking forward...I was wondering if I could use the MS Family song at the end of one of my videos because I love it so much and I still listened to it all the time. You did an awesome job with it and I will always be grateful for letting me be a part of it
@omexmc80 thank you, yoou know me, I try to be polite every chanceI get and only Yopkins told me to ns the people at Hhopkins told me to stop saying thank you...can Uu believe that? I should have been yelling at nurses and doctors instead of being polite, they actually told me to dtop saying thank you and that shocke me quite a but...about our song, I wanted to make sure that it was ok for you to use it, I didn't want to assume it ,but I fknew that you woukd have been ok with my question
@omexmc80 thank you for understanding me and the way I feel. I was worried that bople might be wrried seeing a different person in me now, not calm, patient any more, and I do have to say that I have changed a lot and my only way to deal with what happened to me is trying to laugh about the silliest things and the anger that I know it's not good to carry inside but tat, at the moment, I still feel and it will take time to release it and get rid of it, but I hope I will do that too thank you!!
Hi Angela, I'm so glad to see you made a video with an update. I think of you often and was watching for you to make a video for a long time. I've had you in my prayers for a long time. I appreciate your honesty and I don't blame you for thinking and feeling the way you do. I think if I were in your place I'd feel the same way. Right now I'm not on any MS therapy and I'm not sure I'll be on any in the future.
@Desinie thank you for the prayers and my delay in making the video took quite some time because of the many problem that were caused by the PML and that I am still tring to learn how to live with like the incontinence, seizures, the troblem with swallowing, understanding and much, much more. I have plenty to talk abou this and I will do it in the series of videos to share more abou it because it could be helpful to thers.I hope I will be able to do them, if I can feel ok enough.
Oh yeah, Angela. Do not worry about responding. I just want you to know that I think about you a lot and will continue to have you in prayer. I think this may be the most powerful video I have seen in a long time.. iT SHOULD BE MANDATORY FOR EVERY PATIENT AND DOCTOR TO WATCH THIS VIDEO BEFORE SIGNING TO CONSENT TO TREAT WITH TYSABRI. They could call it Angela's Law. Godspeed in your recovery. Mark
you are right with everything you said and I thank you from the bottom of my heart for understanding my anger and for being there for me. I f\do have the fire still inside of me and my heart is happy when I hear that more am\nd more people don't take Tysabri and, if they really have to, they think about really carefully. I feel that what happened to me was for a reason that Biogen might never get, which is their loss, not ours, right? thank you for the support
YOu were on my heart and mind before I fell asleep last night (along with others) My wife Angela said in my sleep I said, "You can give people a hug who are far away without touching". I just want you to know I gave you a huge spiritual hug last night. I am proud of you for speaking out and being brave. I honestly have faith that you can feel well again. Hold on to love, hope, faith, and peace my friend.(I think you iknow where I found miine). Keith, thanks for being her rock.
@irishbear76 once again, my dear Bear, I think you had the smartest dea and I would love for everyone to see the video before making the decision to take this drug. Unfortunately, G\Biogen might not allow this to happen because they don't care about their patient, only about thei bank account. I will explain how bad they are in another video. As you see, even if I use only one fingerto write, it is a srong one and it doesn't give up :) I will follow its example :)
@irishbear76 thank you, I needed to hear that because I usually am a very different peron, I am very patient, understanding and calm, but now and not any more...they played with fire hurting me, I will let people know about this drug and I hope they will get the right information and make the right decision and whatever happens, be trong everyone because you can do it and you ca beat the evil PML caused by Tysabri! we are really dtrong inside and we can bat anything bad in life! hugs
Can you use the fair use act or whatever it is called?
I know people can post up vids I like saying they are educational because I learn a lot from music. It speaks to the heart. Particularly this song, it has power!
@irishbear76 time to go and ask my husband about this...I have no clue, but I can tell you that this song does have power and that it makes me stronger and stronger and willing to keep up the work I have to do...the singer is not only a cute Italian ma, but he is very smart and very talented and, most of all, he has the most sensitive heart and he always knows what to write in his songs. I will try to find out how I can add that the video o\is educational because it really is! great idea, Mark!
Angela. You are prayed for much. You sound better and believe it or not, I think you can still get better.because I see it with my eyes and feel it in my heart. That drug hurt you, but you have fire in your belly, spreading awareness, probably saving countless lives. That spiritt Italiano is something to behold. FIGHT FIGHT FIGHT for those who have been damaged by a drug that is far more dangerous thank rewarding. Nothing makes sense but I know one thing. THEY MESSED WITH THE WRONG GIRL Love U
@irishbear76 the record company that made the song told me that I had to take the video down because of the song, but everything os too important to take it off, the song is amazing, it was healing for me and it still is and the video can help people so it'importan too...so I will not touch anything. Let's hope there is some people that has heart and that ubderstand how vital is to have the video on the internet...it's trying to spread hope and love and help people FIGHT...I am glad you liked it
:) While you may not feel it, you spoke VERY well in this video. I do think of you every single day. I'll try to call you tomorrow. I've wanted to call, but my MS/CCSVI is totally destroying how I feel. I was doppler tested again. I meet 3 of 5 of Zamboni's criteria. I've restenosed & the evil ones are blocking treatment now in the US. Anyway, Love you very much. I will not stop speaking out about Tysabri and PML. I hate how much it has destroyed you and the pain you are in. Hugs, Judy
I gave you so much work before making tyou translate my italian video and I am glad that you you found this one and that I explained myself good enough to spread my message out. I felt I had to do it and you were one of the posh that got me to move and do it, no matter how bad I feel I speak. I know I don't feel and see what others do and I am still learning to deal with this change. I feel like I live in my own world. I so pray that you can improveyour life Angela
@angelusa73 It was no work at all. :) I just used Google translator. I hope it was understandable. I received word I am to be retreated. I will need a stent, but I will do a video on it. I just wish that you could also pursue treatment for your CCSVI as I believe it would help you a lot. I now have vertebral reflux, just like you do. From your video, I can see they still have you on steroids. To all of us you are beautiful. Will try and call and hope you pick up the phone.
Well I for one am very glad you are still here. Jesus has a plan and a purpose for you. I am sorry you are suffering so badly...You bring an important other side to the whole Tysabri debate. Yes Vern has done well and I am happy for him, but what are the risk with Tysabri...you know first hand and I agree with you. No tysabri for me ever again. I had 8 infusions and felt worse not better...so I stopped taking it much to my Neuroligist disappointment. I am now taking LDN and copaxone
@Stacy9286 at the moment, my relashionship with God is not the strongest, but he is patient and he knows that I need time to heal both physically and emotionally. And I am patient and ready to work on that expect of my life and my recovery too, It's a long journey but the worse has passed and He dudn't want to take me yet, so I am still here with you all :) thank you for the kind words of your message and thanks for thinking of me. I hope what you will win your fight too. Best wishes,
he will continue to bless u...u are alive and a fighter and he takes care of his own...he has carried u thus far and will not leave u...just keep up the faith at all cost no matter what...:) he maybe chose u because he knew your strength and the message u would send...God bless u angel!
TheFra1111 1 week ago
@TheFra1111 thank you for sharing such words filled with hope and belief with me. I am not always very positive about my future. I was but then this happened and now I am wondering why so much pain is given to us in this earth and why we deserve it. I will take your blessings and I am thankful for them. I will think about the resst tomorrow...i go on this way, a moment at the time...hoping that, someday soon, the pain will start to be less and I will be able to see the reason for fighting more:)
angelusa73 1 week ago
I JUST WANT YOU TO KNOW....I THINK YOU ARE AN ANGEL...GOD BLESS U!
TheFra1111 2 weeks ago
@TheFra1111 if I was an Angel, I would hope that God would take care of them better than he is oing with me, then because suffering like this is really not fun at all and I hope that he is helping all the other patients that took Tysabri and that ended hurt more like me...I am very confused because I thought that I could be blessed without all this pain...anyway, he knows that I am strong and that I can fight this new challenge, and it would be nice to have a break once in a while) thanks,
angelusa73 1 week ago
La sclerosi multipla -> w w w.nuovamedicinagermanica.it/content/view/126/55/
GNMWroclaw 1 month ago
@GNMWroclaw ho provato ad andare su questo sito, ma mi viene detto che non e` esiste, per cui non so come fare per trovarlo...mi potete scrivere privatamente e dirmi come mai non funziona? di cosa parla? sono pronta a provare ancora, ma se non scrivol altro` e` perche` non trovo nulla e non so cosa dire...buona notte a tutti :)
Angela
angelusa73 1 month ago
@GNMWroclaw sono andata a leggere quello che c'e` scritto , non so perche` ma questa volta funzionava tutto e ti posso dire che, andsndo ds un nutrizionista che segue la mia malattia e che mi vuole aiutare a stare meglio, sto mangiando cibi biologici, non carne rossa e poca carne in genere,
ma la frutta e la verdura che mangio sono sempre e slo biologiche. Grazie del sito...adesso so che e` molto utile e lo terro` trai favoriti per vederlo, rivederlo e controllarlo ancora. Grazie per l'aiuto,
angelusa73 1 month ago
I like the song very much. We all have to fight something or someone one way or another don't we?
tazscott14 1 month ago
@tazscott14 yes, we did, ear Bill, you are absolutely right, if it's not one thing, it will be another and e\we have ( AND WE ARE) real fighters because we deal with so much eanch and every day and we find new ways to cope with pur n\many struggles...and we don't give up, but we keep on fighting...something that you do too, quite well, my dear friend. Thank you for coming here too. It is nice to hear from you every day,
looking forward to hearing from you
thank you for being my friend
Angela
angelusa73 1 month ago
**hugs** bless you for the making the video - great music!
88whynot 1 month ago
@88whynot than you! I love the musi so very much too! and I love the Italia artist that wrote it and sings it. He ia aswesome in English, in Italian ,in English and in Spanish, ge loves languages and he is very good with all of them. I admire him so much and the fact that he is very cute ( I have to remind myself that I am still a woma after all) and he ha a very caring heart, makes him even more special.I am very happy that you liked the music. I felt that it was perfect for my message.Angela
angelusa73 1 month ago
HELLO!!!!!!!!!
I have not looked online very often for a while but I came on today and thought of you, checked to see if you had any videos and here you are! Better than you were! I am so happy for you.
When you say you hate every day, you dont live at all, I can relate to you, it is what I think too most days, I like your honesty!
It is really great to see your new video Angela.
I promise I will message you again soon!! Keep on going with your amazing strength! You beat it :D
HitMeWithIt 1 month ago
@HitMeWithIt Do you know how much I missed you and I pushed myself not to bother you because you need to rest and take rime to think of your health too. I hope you are feeling sort of ok, I know it's never percfet, I know, but I wish you you can have some datys that are a little than the others... I don't ask you if I disappointed you with my video, first of all, the italian one where I show my anger more and also, I know that you understand me. It's so good to see you here! I am glad you came
angelusa73 1 month ago
you are so often on my mind, I just had this feeling I should check youtube and there you were!! So wonderful to see and hear you again Angela xo
BrendaRaven1 1 month ago
@BrendaRaven1 hi! I missed you so much! As you know, I was sort of busy, sort of battling and winnig against the PML. I felt the video was important because of the many people that worried about me and because of so many want to take Tysabri and I felt they had the right to know the risks they would be taking in putting that drug in their body. I will always pay the price of such a choice and people have the right to know what it can happen if they take it,nice to hear fom you,
thank you :)
angelusa73 1 month ago
Thank you for continuing to share your story, you should be proud, you are sharing purely from your heart and experience - no one should ever judge that. I hate what PML has done to now 202 beautiful people who most likely would never have suffered with their MS as much as they are with PML. Not to mention their families and friends. You are a shining light in a pretty dark world and I think and talk of you often. Sending you love and strength. Kerri xx
kezzcass 1 month ago
@kezzcass oh, sweet Kerri! Here you are! and it's good to hear from you! I often think \of you ( even if with half a brain :) and I ;pray that you continue to see improvements nd feel better and better each and every day...one thing tha the stupid PML doidn't do.it didn't take my heart away from me, it might have tried to change it and make me more cinical and hurt, but my desire to help others is still there and they better not try to mess \with that or they will see me really mad! take cake!
angelusa73 1 month ago
Hi Angela! I have missed you and your videos. I am looking forward to hearing your story. You look beautiful as always. :-)
Take Care!
Love,
Tori
ToriUTK 1 month ago
@ToriUTK oh, I lpooked all over for your message, but I kept on losing it and, afer searching and searching and not giving up( we never do it anywhere, right?) about being beautiful, you are very sweet, but I think I feel a little better when and iof my cheeks become more normal and less piggy :)which will not be for a while longer because I will hsve to have an IV steroid ifusion a month so I have to be patient a bit longer...
it's so nice to find you here and thank you for being my friend :)
angelusa73 1 month ago
Hi Angela, it is so great to see and hear you! You sound much better then you think you do. I agree that all sides of the affects of Tysabri should be addressed. There are good and bad stories and we need to hear them to make informed choices. You know that I have started it, I am afraid not going to lie about that. Not sure how long I will stay on it? I am also afraid of doing nothing, so don't know where to turn. I think about you often and your fighting spirit. Much Love
Andrea
MSVlogSupport 1 month ago
@MSVlogSupport finally, my dear Andrea, I get yto your kind message/ comment and I have to apologize to be late in responding to everyone but I am gld that I read yoirs and that I am coming to tell you that your words help and that I know how you feel. It's hard to make a decision about our future, and it's really up to you and no one else to make the decision because it is YOUR BODY and Tysari is a very dangerous drug and people need to know about it take good care, my thought are with you too
angelusa73 1 month ago
Hey Angela! It's so good to see you and hear your voice.
Sandy
CANSANDY2 1 month ago
@CANSANDY2 thank you, it's so nice to hear from you again, I missed being close to everyone and I HOPE YOU are doing well,
take good care,
hugs
Angela
angelusa73 1 month ago
Angela, you're humour is wonderful & must help you get through this terrible ordeal. Glad you know that so many of us care about you.
Btw I think your "pork chop" chubby cheeks are cute.
rickileeway 1 month ago
@rickileeway Hi, Rick, your comment made me laugh, so the chubby cheeks have a plsce in my daily life because I think they are funny and, if they have to, they can stau with me for a while. Thank you so much for sharing the himor in this with me. I like making jokes of myself because it helps make light on things that, otherwise, wouldn't be funny at all...life goes on and it's better to go on trying to laugh about it...
thank you SO MUCH:)
have a good day and take care,
ciao
Angela
angelusa73 1 month ago
Oh dear, It's so comforting to hear your voice and that perky Italian attitude :) Slap that word Tysabri against the wall along with PML. The public needs to know the evil side of the medicines they ask us to take. I was not directed to ANY INFO REGARDING PML, instead I was told to ignore the internet! Am a lucky soul that things went the way they did and my bad reaction w/Tysabri I can't imagine what you go through! You made my day :) Prayers to all.
susan
ThePennygirl 1 month ago 3
@ThePennygirl it's so wonderful to hear from you again and sorry for not keeping in touch. As I often say to everyone: I was kind of busy trying not to die( ha, ha!) so I hac\ve a vry good reason for being very quite for a while...i did miss writing and keeping in touch and thank you for coming to me to say hi,
have a great day,
warm hugs
Angela
angelusa73 1 month ago
@ThePennygirl I agree witj you when you say that people need to know the truth about this drug because, as you can see, Biogen is not very open to discuss risks and they don't mention them the way they they should, so I fel it was extremely important to sho the public evertothing that is happening taking this drug, the PML might be be rare, but it fdoes happen and its happening more and more each day. plese, inform yourself and think about it well becfore taking this. thank you for writing:)
angelusa73 1 month ago
SEI BELLISSIMA ARRABBIATA!!!!!
picinela 1 month ago
@picinela sei fin troppo gentile, mia dolce Reginetta. Ed e` bello sentirti anche in questo modo perche` ammetto di aver bisognp di tanto supporto, dato che pensavo di sembrare troppo arrabbbiata nel video, cosa che non accade mai perch` sono sempre stata una persona molto diversa da come sono ora...ceerto che questo vleleno no dovrebbe prenderlo nessuno. E` bello trovarti qui, mia cara amica, fiorellino e manager di Flowers4MS. Io preferisco chiamarti amica perche` sei la migliore:)
grazie:)
angelusa73 1 month ago
Welcome back Angela! We've been waiting to hear from you and I am so glad you did this video. You're pushing forward :-)
christinedavi 1 month ago
@christinedavi I am pushing forward big time: I am so mad at what happened to me that there is no way I will let it ruin my whole life! Biogen definately tried to do it by makinf\g what I call" the poison" but I keep on hoping that no oe will have to live throug what I went through and I am glad I was able to make the video for all of you that were worried about me. I appreciate you coming to say hi and I would love to know how YOU are doing and if you are feeling any better, hugs,
Angela
angelusa73 1 month ago
Angela well done for doing this video and best wishes from me here in UK good english thankyou x
Lynneheal 1 month ago 2
@Lynneheal
wishes from the UK are very special to me and I thank you so very much for writing to me and for sending megood wishes and good thoughts from my wonderful Europe that I miss every day,
thank you dor writing and for thinking of me. I wish I could find better words to tell you what I feel, but that would be asking for too much, so I will thank you again and tell you that I appreciate your kindness. Bring my greetings to the UK for me,
warm hugs,
Angela
angelusa73 1 month ago
Angela! It's so good to see you again! You are so dearly missed among our facebook world of MS friends. You have had one hell of a a fight to live because of tysabri and it's just not right, this could've been prevented if the drug companies and neuro's cared about what happens to people. Thank God you are a strong and determined woman and have a husband to stand by your side and help you fight for your life! I thank God again and again for your strength and fight! Love you!
9gabbycats 1 month ago
@9gabbycats imiss being on facebook too, but I am g\having trouble doing the things I love now and I usuallky have to chose an do one thing per day, so when I write e-mails or anser comments, I can't make dinner and if I make dinner, I can't do much else so I have to pick and choose...something to get used to doing and then I will be fine... \I am super organized stiil and that helps a lot :)
Keith thanks you a lot for your kind words, he has been through hell with me these past years.
grazie
angelusa73 1 month ago
I'm happy to hear that you've beat pml and I wish you continually improving health and well ness.
thepasture 1 month ago
@thepasture THANK YOU! I count on working to improve too! It will take time, but I will do it one step at the time...
thank you for the kind message and support.
have a good night and lots of sweet dreams,
hugs
Angela
angelusa73 1 month ago
its great to see you Angela, always praying for u..
omexmc80 1 month ago 2
@omexmc80 thank you, sweet friend. I feel bad for not keepin in touch...I was kind of busy, as you know, trying for Biogen not to kill me and I disn't let the dug and the company get me, so I am happy and looking forward...I was wondering if I could use the MS Family song at the end of one of my videos because I love it so much and I still listened to it all the time. You did an awesome job with it and I will always be grateful for letting me be a part of it
thank you for thinking of me
Angela
angelusa73 1 month ago
@angelusa73 Angela, yes u can use the ms family song and u dont have to ask :)
omexmc80 1 month ago
@omexmc80 thank you, yoou know me, I try to be polite every chanceI get and only Yopkins told me to ns the people at Hhopkins told me to stop saying thank you...can Uu believe that? I should have been yelling at nurses and doctors instead of being polite, they actually told me to dtop saying thank you and that shocke me quite a but...about our song, I wanted to make sure that it was ok for you to use it, I didn't want to assume it ,but I fknew that you woukd have been ok with my question
THANKS
angelusa73 1 month ago
@angelusa73 just for future reference, anything i have that is in ur reach u can have and u dont need my permission.. :)
omexmc80 1 month ago
@omexmc80 thank you for understanding me and the way I feel. I was worried that bople might be wrried seeing a different person in me now, not calm, patient any more, and I do have to say that I have changed a lot and my only way to deal with what happened to me is trying to laugh about the silliest things and the anger that I know it's not good to carry inside but tat, at the moment, I still feel and it will take time to release it and get rid of it, but I hope I will do that too thank you!!
angelusa73 1 month ago
Hi Angela, I'm so glad to see you made a video with an update. I think of you often and was watching for you to make a video for a long time. I've had you in my prayers for a long time. I appreciate your honesty and I don't blame you for thinking and feeling the way you do. I think if I were in your place I'd feel the same way. Right now I'm not on any MS therapy and I'm not sure I'll be on any in the future.
Desinie 1 month ago 2
@Desinie thank you for the prayers and my delay in making the video took quite some time because of the many problem that were caused by the PML and that I am still tring to learn how to live with like the incontinence, seizures, the troblem with swallowing, understanding and much, much more. I have plenty to talk abou this and I will do it in the series of videos to share more abou it because it could be helpful to thers.I hope I will be able to do them, if I can feel ok enough.
thank you:)
angelusa73 1 month ago
Oh yeah, Angela. Do not worry about responding. I just want you to know that I think about you a lot and will continue to have you in prayer. I think this may be the most powerful video I have seen in a long time.. iT SHOULD BE MANDATORY FOR EVERY PATIENT AND DOCTOR TO WATCH THIS VIDEO BEFORE SIGNING TO CONSENT TO TREAT WITH TYSABRI. They could call it Angela's Law. Godspeed in your recovery. Mark
irishbear76 1 month ago 6
@irishbear76 thank you much, Mark,
you are right with everything you said and I thank you from the bottom of my heart for understanding my anger and for being there for me. I f\do have the fire still inside of me and my heart is happy when I hear that more am\nd more people don't take Tysabri and, if they really have to, they think about really carefully. I feel that what happened to me was for a reason that Biogen might never get, which is their loss, not ours, right? thank you for the support
angelusa73 1 month ago
@angelusa73
YOu were on my heart and mind before I fell asleep last night (along with others) My wife Angela said in my sleep I said, "You can give people a hug who are far away without touching". I just want you to know I gave you a huge spiritual hug last night. I am proud of you for speaking out and being brave. I honestly have faith that you can feel well again. Hold on to love, hope, faith, and peace my friend.(I think you iknow where I found miine). Keith, thanks for being her rock.
irishbear76 1 month ago
@irishbear76 once again, my dear Bear, I think you had the smartest dea and I would love for everyone to see the video before making the decision to take this drug. Unfortunately, G\Biogen might not allow this to happen because they don't care about their patient, only about thei bank account. I will explain how bad they are in another video. As you see, even if I use only one fingerto write, it is a srong one and it doesn't give up :) I will follow its example :)
hugs
THANK YOU,
Angela
angelusa73 1 month ago
@angelusa73
You are welcome and THANK YOU for not taking down the video. We need to get a little angry. This is just, righteous anger.
irishbear76 1 month ago
@irishbear76 thank you, I needed to hear that because I usually am a very different peron, I am very patient, understanding and calm, but now and not any more...they played with fire hurting me, I will let people know about this drug and I hope they will get the right information and make the right decision and whatever happens, be trong everyone because you can do it and you ca beat the evil PML caused by Tysabri! we are really dtrong inside and we can bat anything bad in life! hugs
Angela
angelusa73 1 month ago
@angelusa73
I know about being a different person now.
Can you use the fair use act or whatever it is called?
I know people can post up vids I like saying they are educational because I learn a lot from music. It speaks to the heart. Particularly this song, it has power!
irishbear76 1 month ago
@irishbear76 time to go and ask my husband about this...I have no clue, but I can tell you that this song does have power and that it makes me stronger and stronger and willing to keep up the work I have to do...the singer is not only a cute Italian ma, but he is very smart and very talented and, most of all, he has the most sensitive heart and he always knows what to write in his songs. I will try to find out how I can add that the video o\is educational because it really is! great idea, Mark!
angelusa73 1 month ago
Angela. You are prayed for much. You sound better and believe it or not, I think you can still get better.because I see it with my eyes and feel it in my heart. That drug hurt you, but you have fire in your belly, spreading awareness, probably saving countless lives. That spiritt Italiano is something to behold. FIGHT FIGHT FIGHT for those who have been damaged by a drug that is far more dangerous thank rewarding. Nothing makes sense but I know one thing. THEY MESSED WITH THE WRONG GIRL Love U
irishbear76 1 month ago 2
@irishbear76 the record company that made the song told me that I had to take the video down because of the song, but everything os too important to take it off, the song is amazing, it was healing for me and it still is and the video can help people so it'importan too...so I will not touch anything. Let's hope there is some people that has heart and that ubderstand how vital is to have the video on the internet...it's trying to spread hope and love and help people FIGHT...I am glad you liked it
angelusa73 1 month ago
:) While you may not feel it, you spoke VERY well in this video. I do think of you every single day. I'll try to call you tomorrow. I've wanted to call, but my MS/CCSVI is totally destroying how I feel. I was doppler tested again. I meet 3 of 5 of Zamboni's criteria. I've restenosed & the evil ones are blocking treatment now in the US. Anyway, Love you very much. I will not stop speaking out about Tysabri and PML. I hate how much it has destroyed you and the pain you are in. Hugs, Judy
donotconcede 1 month ago
@donotconcede my dear Judy,
I gave you so much work before making tyou translate my italian video and I am glad that you you found this one and that I explained myself good enough to spread my message out. I felt I had to do it and you were one of the posh that got me to move and do it, no matter how bad I feel I speak. I know I don't feel and see what others do and I am still learning to deal with this change. I feel like I live in my own world. I so pray that you can improveyour life Angela
angelusa73 1 month ago
@angelusa73 It was no work at all. :) I just used Google translator. I hope it was understandable. I received word I am to be retreated. I will need a stent, but I will do a video on it. I just wish that you could also pursue treatment for your CCSVI as I believe it would help you a lot. I now have vertebral reflux, just like you do. From your video, I can see they still have you on steroids. To all of us you are beautiful. Will try and call and hope you pick up the phone.
donotconcede 1 month ago
Well I for one am very glad you are still here. Jesus has a plan and a purpose for you. I am sorry you are suffering so badly...You bring an important other side to the whole Tysabri debate. Yes Vern has done well and I am happy for him, but what are the risk with Tysabri...you know first hand and I agree with you. No tysabri for me ever again. I had 8 infusions and felt worse not better...so I stopped taking it much to my Neuroligist disappointment. I am now taking LDN and copaxone
Stacy9286 1 month ago
@Stacy9286 at the moment, my relashionship with God is not the strongest, but he is patient and he knows that I need time to heal both physically and emotionally. And I am patient and ready to work on that expect of my life and my recovery too, It's a long journey but the worse has passed and He dudn't want to take me yet, so I am still here with you all :) thank you for the kind words of your message and thanks for thinking of me. I hope what you will win your fight too. Best wishes,
Angela
angelusa73 1 month ago