POTS - Mayo Clinic

[joyceyrose]

This is all true except the part where she claims the age cut-off is about 20...it is possible that the worst stops but the dysautonomia issues can continue.I am 52 years young and I got worse as I got older.

[nette12181]

If you have POTS or another dysautonomic nervous system disorder, there is a new group on FB called Postural Orthostatic Tachycardia Syndrome (POTS) where you can share your stories and what you've learned.

[SahrethsShow]

A friend of mine had been really sick for a while. During that time, I traveled to Mayo Clinic for my own health problems and was diagnosed with POTS. I had never heard of the disease and neither did anyone back home, but we realized that a lot of my friend's symptoms coincided with those of POTS and were worse than mine. Afterwards, she was diagnosed with and treated for the illness.

[RichardBri]

Enterovirus infections causes POTS. look up Dr John Chia and CFS. Most patients with POTS have gastrointestinal issues. Enterovirus infects the stomach nerves and travels up the nerve to the brain stem where it causes POTS. The virus lives inside the nerve cells where it is protected from the immune cells, but does not destroy the cell, noncytopathic. We need an Enterovirus Antiviral medication!

[Pizzazz80]

This is informative but I don't like how it implies that only teens can get it and they can just "grow out of it."

That's preposterous!

[Timburtonrox11]

I am thinking about getting tested for this. I have been in and out of the hospital for two weeks with extensive spells of chronic fatigue, dizziness, tremors and muscle weakness. I have been put through the ringer with brain scans and blood work, and they are coming up with nothing but the possibility of too much stress. I don't want to buy that diagnosis. Has anyone had a similar experience?

[TheMushroomDrummer]

@Timburtonrox11 yea I've been having symptoms like u and wat the video is saying for two months now I have had so far had an MRI, blood work, and an EEG which all came back normal the only strange thing was tht after giving blood i felt sick and passed out they keep saying its vertigo but it doesnt show fluid in my ears like wat would happen during vertigo this all started slowly after i got the flu so believe me u are not the only one who has had an experience like this :) I hope u get better

[casserilla331]

@TheMushroomDrummer .. That sounds like me a long time ago (10 years now). I was lucky enough to have a doctor who finally figured out the problem. It gets better with the right treatment. Good luck!

[SuperSaxophoneplayer]

i got diagnosed with this last friday, it's so hard to live with

[mikeer222]

food allergies!!! celiac disease , check wheat, milk, soap, medicines, gluten intlerance!!

[couragegirl1]

@mikeer222 POTS isn't caused by food allergies.

[couragegirl1]

@couragegirl1 I should add, I have POTS.

[jsavino96]

I am 14 years old. I went to the cardiologist yesterday, and i was diagnosed for this horrible disease. I faint ALL OF THE TIME!!!!!!!!

[dancamp009]

I've had a very serious case of POTS for the last six years and I think I finally figured out the cause in my case. It was processed sugar. I quit ALL processed sugar and now I have a perfect 56 heart beat and I feel great. Believe me I tried everything without success until I finally removed all processed sugar and for the last seven days I've held out at 56 HBs per minute. Hopefully this will last. I'm confident this time that it will. Good luck to you.

[squishedlizard]

I'm glad to hear about this video. I've had it my entire life. This is great to hear someone is talking about it.

[ddominatedd]

I had this since I was 14 (19 now) and I still have it but have been a little better these past 2 years. I am hoping that I wont have this anymore in about a year or 2. im in michigan and had to go out to mayo clinic in MN to find this. Since my last visit 2 years ago i have slowly been getting better. I hope that you guys also start to get better as I have.

[coolgirlee]

only 4,166 views.... people need to watch this.

People need to know that such a thing exists. That it is not in our head! I am so angry!

Why so many doctors have to be so stupid?

I had to teach my doctors what POTS is! There is more people who need to know what this is . . .

We need a cure!

[DeathEdible]

I have POTS, but I have lots of other conditions too. Lupus, Chronic Fatigue, and Fibromialgya.... but I don't know how to spell that last one. So I go in and out of depression and stuff. My mom always tells me I'll grow out of it.... I sure hope you're right about this.

[mvflyhalf]

You can "grow-out" of POTS? I am guessing there is no explanation for why this is? Seems we keep allocating our scientific resources toward treating hair loss, acne and ED over understanding stuff like this.

[sundoober]

Have a daughter with EDS (Ehlers/Danlos Syndrome) who suffers with POTS too. NOT FUN. So sad about all the times we didn't understand.

[vitz072]

I love Megan!!! :)

shes a friend of mine I met freshman year. and she really battled with the symptoms. but she is better now. and I'm so happy for that!!!!

[coolgirlee]

@vitz072 She doesn't have POTS anymore?

[rabidmonkeyjoe]

@coolgirlee most people that have it and don't have a permanent physical injury or disorder that causes grow out of it, the cycle is around 5 to 15 years from what i've read, sometimes longer, i myself am far less symptomatic at this point, not symptom free mind you but no where near as bad as it was a few years ago.

[lauriloubird]

I am 37 and still have this. Why do they say she will grow out of it at 20. I know their is an elderly and childhood. I got the elderly type at 7 fainting started and no meds help. I wonder why they don't know why they do not explain why so many of us have it as old as we are? Like Sarah who was a marine. Your vagus nerve does not just get fixed???

[DeathEdible]

This is what I'm most afraid of. I'm 13. Mom says ill grow outa it. I never believe her though. I have a feeling I'm gonna be just like you. No offense.

[dne8]

man all these years I forced myself though this with whining parents and now they say it's a syndrom? I should check with a doctor ...

[eurotrancemixes]

My pulse is 137 standing on video on beta blockers. (SEE on youtube: ME patient demonstrates Dysautonomia/POTS)

At my worst my pulse was 180bpm after a 5 min stand.

POTS is serious, yet most doctors have no idea what it is or how to treat it.

Good upload, thanks for sharing.

[DeathEdible]

My doctor, when I was first a POTS patient, put me on a beta blocker and it sent me to the hospital for a week. The doctors never believe me that I need fluids to feel better, for whatever reason. One time, in my sleep, I kicked the blanket off my leg because I was getting hot, and my heart rate went from 110 to 180 like THAT. It helps to eat salty snacks and drink TONS of fluids. I'm there for you.

[sniper710c]

my pots syndrome is very severe in the fact that blood pressure goes up insted of down while standing. pulse stops dead wile fralling to sleep i need to ware a difibulator just to go to bed. mine was trigger by a lithotripsy. a treatment for kidney stones. they over did it damaged the kidney and as a result pots syndrome developed. i think that my job had sumthing to do with it too. lots of solvents and chemicals. they say pots will be the cause of my death. its that extream im a rare case.

[DeathEdible]

I have POTS, Lupus, Chronic Fatigue, and.... that thing you use Lyrica for. My life sucks, too. But you are one of the first people with POTS I can truly feel sorry for. Hang in there.

[jilly9]

I have POTS due to Ehlers Danlos syndrome. Won't outgrow it.

[kamajiboy]

What treatments work best to relieve symptoms?

[Lameeeee]

Try the Beta-Blocker, Metoprolol

[luminescentfeeling]

Good to see this video out in public.

POTS is more than tiredness though and stomach problems.

It's primarily chest pain, pulse rate episodes of over 180bpm, being bed-ridden, being wheelchair and house-bound etc, seizure

Good start, but we need to know more about the severe nature of the illness.

I spent 9 years being unable to leave my house.

I made improvement on MIDODRINE and BETA BLOCKER, and VASCULAR TIGHTS.

But there is no cure, and my life is still ruined.

Thank you.