I was also suffered from same disease,these type of surgeries need an expert neurosurgeon as in my case.Now i am cured and loss all my excess weight and all remaining symptoms without any side effects.But even i am cured i have to go for yearly checkups to keep monitoring the cortisol level.
I'm so sorry that you have had to go through all of this.
I understand ur feelings, thanks for sharing ur story.
I am so sorry that you are still struggling. I had Cushing's Disease for many years before being diagnosed, and also had 2 pituitary surgeries and a bilateral adrenalectomy before being cured. Thank you for sharing your story! I agree that there are probably many more like us out there. :)
Thanks for sharing your story. I also had Cushing's. After 3 failed pituitary surgeries and a bilateral adrenalectomy, I think (knock on wood) that I'm now cured. It doesn't seem right to me that you should have severe chronic pain a year after being cured. Have your doctors followed up with your pituitary hormones to see if they declined due to the three pituitary surgeries? Low pituitary hormones are common after pituitary surgery and can definitely cause a lot of pain. Good luck!
I'm so sorry that you have had to go through all of this. :( I'm currently trying to get diagnosed with Cyclical Cushing's. It's such a devastating disease. Thank you for posting this. The more awareness there is, the more people might be able to find help.
Omg! The doctors only said one operations thru the nose and its done, but what if I go though what you went thru. You went through so much.
lunasangria 1 week ago
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I was also suffered from same disease,these type of surgeries need an expert neurosurgeon as in my case.Now i am cured and loss all my excess weight and all remaining symptoms without any side effects.But even i am cured i have to go for yearly checkups to keep monitoring the cortisol level.
I'm so sorry that you have had to go through all of this.
I understand ur feelings, thanks for sharing ur story.
VISHNUVARDHAN814 3 weeks ago
I have Cushing's too, thanks so much for sharing your story.
arubiana 9 months ago
I have had pituitary surgery and a BLA, also. I understand. Hugs...
staticnrg9 9 months ago
I am so sorry that you are still struggling. I had Cushing's Disease for many years before being diagnosed, and also had 2 pituitary surgeries and a bilateral adrenalectomy before being cured. Thank you for sharing your story! I agree that there are probably many more like us out there. :)
dreszenski 9 months ago
i have Cushing's, 2 pituitary surgeries, God bless you
senoralili 9 months ago
Thanks for sharing your story. I also had Cushing's. After 3 failed pituitary surgeries and a bilateral adrenalectomy, I think (knock on wood) that I'm now cured. It doesn't seem right to me that you should have severe chronic pain a year after being cured. Have your doctors followed up with your pituitary hormones to see if they declined due to the three pituitary surgeries? Low pituitary hormones are common after pituitary surgery and can definitely cause a lot of pain. Good luck!
saberlowe 9 months ago
Hello mate. I have the same disease, Cushing's Disease, and your story could replace mine almost to a tee. I still am not cured.
sowens0074 9 months ago
God bless you sir!
tnwar330 10 months ago
I'm so sorry that you have had to go through all of this. :( I'm currently trying to get diagnosed with Cyclical Cushing's. It's such a devastating disease. Thank you for posting this. The more awareness there is, the more people might be able to find help.
pianogirl2976 10 months ago