Moderate/Severe Autism at 28 Months Progresses to High Functioning Autism at Age 6

[wonderamaze]

Bravo..well said, I totally agree with everythig you have written!

[christschool]

@PinkPixie74 If you would like to see some reports from the educational psychologist on my son, you can watch this video: watch?v=lXk6Yfnptco

You can also get a clearer understanding of my views on this by reading the description on this video. My son is currently enrolled in a private autism only school.

[christschool]

@PinkPixie74 You can also view more of my views on labels here:

watch?v=98E7xIemyN8

My son is 7 and still can't use a fork if that makes you feel better.

[gnomederwear]

Your little boy is SO bright!

My daughter was diagnosed this past March, a month before she turned 3. We did try dietary intervention first and we saw some very significant changes. I think with ASD, the causes are different...there is no one cause. I really believe my daughter's was triggered by a reaction to soy. 3 days after removing casein, she was with us. Now, 4 weeks after removing soy, she has made huge strides in language acquisition (8 new words in a week).

[christschool]

@gnomederwear We also took my son off of milk shortly after the diagnosis and saw the exact same changes you described. Within days he could say words again and got back some of the "skills" he had lost at 18 months. It sounds like your daughter is progressing like my son. However, this was only a very short reprieve and progress. It's not the end all and he has significant delays in language compared to typical peers. He also has learning disabilities and CAPD.

[gnomederwear]

@christschool I'm certain my daughter has CAPD, as well, although it hasn't been diagnosed yet. She likes everything excruciatingly loud, although some dietary changes (removing soy entirely) seems to have alleviated that a little. She would have the TV and CD player both on full volume at the same time sometimes. She never had words to begin with, so no words were ever lost. I think this is one of the scariest times in my life ever. So much uncertainty.

[lamplitbridge]

good video!

[jenxjen46]

Your son is so lovely! We, and most parents in our area of the UK, don't get given an actual indication of high/mod/low F, simply there is just no way of giving an accurate prognosis for any, so why define? My son attends a class once a week with 2 other children with mod ASD but the difference in each and every one of them is immense! It's almost like all the characteristics of autism have been equally shared out between them all, with a few overlaps. Each have their own strong points too...

[christschool]

@jenxjen46 Yes, I am seeing this as well. I see some boys in my son's autism class and I ask "how do they have autism?" when they present so differently and more abled than my son in some areas? The more I learn about autistic disorder the less I understand. It's the same in Asperger's. I seem to be really high functioning in my support group but I am not nearly as functioning as others "labeled" with AS I find on the internet.

[kgaccount]

Your son is adorable! I like what you wrote about brain is complex and how things like Down's are obvious. Not like that with most cases of autism. For example, I was so desperate for understanding what happened with my son I demanded every test under the sun..mercury, lead, fragile x , angelmans, prader willi, lesch nyan, several genetic tests for familial seizures, etc...and not one ever came back positive. And dozens of docs from No- So. CA do not know why he's severely-profoundly autistic.

[jelly0belly]

he's cute :D but I don't see severe, he seems like a pretty normal kid to me.

[kgaccount]

He does seem hf, but that's the point of this father's video. He's saying: while his son and my son at times, have had the same diagnosis, if you see my son, you'd fall off your chair in comparison to this child, as surely they are not the same autism. Yet, due to the lack of concrete diagnostic criteria, or perhaps the confusion of what autism is, we have children mislabeled or misdiagnosed with autism, when perhaps it's something else. Given the dad is Aspergers, it could be aspie traits. ?

[momofxantyce]

I can understand what you are saying. I am knee deep in DAN protocol with my son, but I don't claim that 100% of his gains came from treatment. Other things obviously factor in. Some things were immediate (gfcf was huge and immediate-no more vomitting, no more tantrums within days) but things like chelation are harder to scale because it is a long process. Remember that some kids look better at 3 than they do at 8. Some decline and some autism is auto-immune, which explains medically necessity.

[CJEB4]

I knew nothing about autism and my son was diagnosed at 15 months, hes 5 now. still profoundly autistic, thinking about chelation. Ive seen videos of others journeys and yearn for my son to stop biting himself, smearing feces,bolting etc. Some people are just lucky Im scared that my baby could be this way forever, he cant follow even a one step command- school tells us he is progressing, this said after the special ed teacher told us "He Cant learn" sympathetically. Were finding a new school.

[christschool]

"He can't learn" just means "I don't know what the hell I'm doing" if you ask me. Blame it on the child is what she is doing. I hope you can find the right school and a teacher that "gets it" for your child.

[Shyloxmom]

Wow! He is doing so well! I smiled through this whole video. My granddaughter was dx at 18 months with mild to moderate Autism. I wouldn't be surprised to hear a dx of high functioning after next eval. No biomedical here either.

Thanks for the update.

[christschool]

Wow, that's pretty young. You must have had someone who knew a lot about autism.

[Shyloxmom]

We took her to a local Child Psychologist who specializes in ASD. We were aware of the issue beforehand because of a paternal uncle who is severly autistic.

[Saguaro24]

In regards to your video discription- I think having an understanding, caring and envolved parant such as yourself in a stable environment has the most to do with his devolopmental progress. That, of course, is my personal opinion.

[christschool]

I think that helps.  I wish he had a brother or sister too like Phil Commander's son.

[CJEB4]

I would put myself and my husband in the same category, and my son is not progressing like his, hes been in a special private school since 18 months, now 5 yrs old, he cant communicate, and while he seems very happy, doesnt understand language, cant understand safety. Every child is differently affected, no matter how wonderful thier parents are. Some of the worst parents Ive seen can have children showing excelent progress, and the reverse. Autism isnt cured by good parenting.

[christschool]

So much of a kid's progress I think is determined by their own innate ability and is independent of the parents, school and teacher (though a good teacher, parent, school can help). I've seen "parents" that do nothing and have very easy to handle children. My son was in an autism school for 2 years before public and I think it taught us as much as it did him.

[Saguaro24]

Very cute :) In our house we had the book "If you give a mouse a cookie"

[christschool]

There are some others in the series, you should check them out. If You Give a Mouse a Cookie was the first story he read in this video, but I decided to just upload this one. He's not as familiar with this story and the mouse cookie book he has memorized so it really didn't demonstrate reading I thought.

[drmaier]

Chase demands apprval the way Alexander does. "Say I'm a good boy, mom."

Chase's development has been very similar, he's very good at some things, not so good at others, different and the same from other kids. *shrug*

[christschool]

nod :-)

[navywife1977]

Colin is in a regualar gen-ed class with an aid this year. Kinder is going well. I think...

[christschool]

Awesome. I'm like you though. While Alexander is said to being doing good, I wonder.