Seems like you have a great family. We too are trying to help researchers find cures for these rare diseases. For rare disease day and In conjunction with the Children's Rare Disease Network RemedyMD is giving away a rare disease research registry worth $50,000 to the winner of a video submission contest and the organization of their choice. Visit RemedyMD's website and click on the "About" section to read about this partnership and for more details.
awwww !!!!!! and mum, I completlely forgot about these vids haha :')
Gemloouise 4 months ago
Seems like you have a great family. We too are trying to help researchers find cures for these rare diseases. For rare disease day and In conjunction with the Children's Rare Disease Network RemedyMD is giving away a rare disease research registry worth $50,000 to the winner of a video submission contest and the organization of their choice. Visit RemedyMD's website and click on the "About" section to read about this partnership and for more details.
RemedyMD 1 year ago
He is sooooo cute! Both of them are, actually. Wishing you all the best from Texas.
KennyandGretel 1 year ago
Ben is adorable and lovely ,,hope that doctors will find a cure for Nimean Pick
RemaFahed 2 years ago