I have H.S and it hurts. :(( Just my armpits and my area.... :l
I just wish I can meet a person (face to face) who knows what the pain feels like, because people DON'T know until they've felt it. :( Ive had it since........before 7th grade and Im in college now. :O It sucks, but I try not to let it get to me. I do go to a dematologist. She has helped me soooo much. (duh, lol) :l I dont like this disease.... makes me sad having it and not being able to talk about it with a person who has it too
@junebugg045 I also have HS. It started late 7th grade and I was too embarassed to tell anyone til 8th grade. The medicine didn't work. My experience with my doctor was the reason I didn't go back til 10th grade, and by then it had spread. My chest is now mostly scar tissue, and I have it on other places now as well (including my underarms) I'm 18 turning 19 And I feel like I've missed out on being a teenager. I'm in pain 24/7. I relate completely! If you ever need someone to talk to msg me! :)
@mnluver Awww!! Im sorry!!! Wish I could hug you right now!! Dx I actually think Im outgrowing it. I actually turned 19 in June, and Im just thankful that its not as bad as it was. :) I hope yours gets better. If you need anything either, message me too. :)
I need to be there working out with you. I have HS too and have had to have both armpit, a chunk across the neck, an area under my right breast, the groin, labia and buttocks done in two seperate surgery. Each was too much surgery at one time, but didn't want to jeopardize my with more than two medical leaves one year after another. Thanks for sharing. Stay strong.
Hi everyone! I too suffer from HS for over 25 yrs. On 9/5/10 a pharmacist recommended "Zinc Oxide" and I think I hit the jackpot! In just 3 days of usage the boils/lesions under my left armpit and groin areas no longer hurt, they're drying up and no more oozing. I hope you too try it and have the same wonderful results as me. Good luck and God bless! Annie from FL
TNF blockers have proved most effective in helping keep the inflammations infrequent and from spreading. While I have taken all the antibiotics, Accutane, herbal supplements and diet changes, the only major help I've gotten was from Humira and surgeries.
If you would like any help in gathering information, getting a doctors recommendation in South Florida or have any concerns, feel free to email me at cory.kronheim@gmail.com
I'm so happy to have found people who I can relate to with this disease. I had surgery on my neck in april 2010 and just had surgery august 16,2010 on both arm pits. I am sick of it and ready to tackle this awful disease.
Good job. I lost 50 lbs but unfortunately the weight lost did not help my HS what so ever..it's gettign worse and I don't understand why. That is a beautiful song playing while the words are on the screen, can you please tell me who sung that? Thanks.
I also suffer from HS. I have been battling this disease for the last 6 years and this last year has been the toughest. I have recently started treating areas of inflammation with tea tree oil. It seems to really be helping! If I catch it early enough they are going away in about 3 -4 days treating the area twice a day. I don't know if you have tried this but I highly recommend it for anyone suffering form this debilitating disease.
I am going to have my second surgery soon. I had the one under my right arm removed but just in the area and i now have a new flare up where the scare is and in the cress of my arm. Now I am about to have the left armpit done but it is much larger. After talking to my plastic surgyen we decided not to have my whole armpit removed. This is so scary and annoying to me. My mom and sister get them as well as a few other family members. I am trying to get healthier to see if it helps some.
I can relate to your situation. HS runs in my family all well. Good luck with your next surgery. If this helps any, I have had surgery near the leg/buttock area and never had another problem. Knock on wood.
Sweeite, I am a lot like you..I have had 2 surgeries, comtiplating on surgery number 3. My arm pits look like a road map to hell and the pain is well unbearable. But, my condition could be much worse...keep up the good work...and thanks.....
Get some pure aloe vera leaf and apply it to your open sores. That will help close them. But if you don't change your diet they will keep coming back.
lol girl you just changed it all up, I started looking around. Let me get up and do something b4. You are pushing away all the pain with your healthy life and workouts. Keep up the great job
LOL@ the end!! I was actually sitting and combing my hair when you started your military talk LOL!! Keep inspiring sweetie you are doing an excellent job!!
Girlfriend, just when I think you are doing an awesome job...Just like Emeril...BAM!!! You take it up a notch!!!!
Truly your transparency will help many people with their struggles. I believe this is in divine order that you began this journey on YouTube and although you are helping others you will reap the reward -- health, healing, peace, friendships, self-worth, motivational skills,.....the list will abound. Keep doing it girl!!!
What I like about you is that in spite of your HS and the pain you may be experiencing, you are always smiling and are very pleasant..... What a great example you are for others! I'm praying that God keeps that smile on your face while He works on your healing your physical, mental and social state as it relates to HS.
You know..... I watched the beginning of the vid ready to post a serious comment and get to the end of the vid and you have me cracking up!! No I'm not eating cake, but I came here to get motivated to get my workout on tonight!
As always, a brilliant job!! I've been doing a hour and 15 for the past 3 days - don't know how long it will last but I'll just think of the hard work you're doing and hope that it will keep me on the right path!
Oh no...I had no idea what you go through. Thank you so much for sharing that with us. I am going to research it and see what i can come up with. Between you, Ahmad and me...I think we can help you overcome this! Thanks again for being an open book. You are a beautiful person and your name fits your perfect....abeautifulpattern!
wow now that is great intensity...I feel the flares will cease...and you will be perfectly fine. Lets you and I do a little study and posting foods and teas that can naturally help the healing process--no matter what the ailment. I want to really start studying more of that...healing with smart foods...good job on clip!!~ahmad
You know what I love you. I was sitting here feeling a little down and you made me smile. You are doing an awesome job and I can see the difference. I believe by faith that God will heal you. I was diagnosed with a very painful condition called Trigeminal Neuralgia which affects the facial nerve causing pain and God healed me. I read healing scripture 2-3 times a day like I was taking medicine and I was healed. God is no respector of person. He did for me. He will do it for you....Blessings
This is why I decided to spill because we are all going or have been through something. We all need and can use support thank you for giving it to me.
The thing that impresses me about you....is that you could totally use this disease as an excuse and you don't. You are that much more motivated! You are looking so good, by the way! I meant to say that in my last comment......Sher
Well I try and cut out process foods like white sugar/ flour, added sodium. I try and make sure I eat lean meats such as chicken and fish. I have been giving juicing a try to see if it will help with the inflammation. I'm still learning how and what agrees and doesn't agree with my body. Doing the videos hold me accountable to making a change.
She knows that if she doesn't...I'm coming to look for her. She doesn't live that far from me. LOL I will be pounding on her door, if she doesn't keep up the good work she's been doing.
Thank you for being soo forthright about your diagnosis. I know you are christian and I am believing the flareups will be a thing of the past. God Bless you.. and keep on keeping on! :)
Look how much support you have and how many people truly care about you. It doesn't matter if we are people you haven't met in real life...we've come to know you and love you! And we definitely care!
Thanks for sharing your story. I pray God's healing power over your body. Keep moving and stay focused on the reason why you're doing it. I see your strength in each video. Peace and blessings.
Hey, do the boxing. My personal trainer told me anyone lose a lot of weight along with brisk walks and jogging. Nice video.
Just did cardio at home for the first time and it felt weird because I'm used to doing it at the gym. i bought dumbells, a stepper. It feels funny doing it at home, but I'm working it girl.
I will start very soon doing what you are doing. I can see your progress. How long have you been doing this or should I say How long have you changed your eating habits.
FOXYJA47....watch her earlier videos. I remember when she first started. This is her 4th week. She has come such a long way. But it's not just about the working out....she also eats right and eating and exercise go hand in hand. Good luck with your journey as well!
Keep moving girl, you're doing great!
GRLNXTDR06 2 weeks ago
I have H.S and it hurts. :(( Just my armpits and my area.... :l
I just wish I can meet a person (face to face) who knows what the pain feels like, because people DON'T know until they've felt it. :( Ive had it since........before 7th grade and Im in college now. :O It sucks, but I try not to let it get to me. I do go to a dematologist. She has helped me soooo much. (duh, lol) :l I dont like this disease.... makes me sad having it and not being able to talk about it with a person who has it too
junebugg045 11 months ago
@junebugg045 I also have HS. It started late 7th grade and I was too embarassed to tell anyone til 8th grade. The medicine didn't work. My experience with my doctor was the reason I didn't go back til 10th grade, and by then it had spread. My chest is now mostly scar tissue, and I have it on other places now as well (including my underarms) I'm 18 turning 19 And I feel like I've missed out on being a teenager. I'm in pain 24/7. I relate completely! If you ever need someone to talk to msg me! :)
mnluver 4 months ago
@mnluver Awww!! Im sorry!!! Wish I could hug you right now!! Dx I actually think Im outgrowing it. I actually turned 19 in June, and Im just thankful that its not as bad as it was. :) I hope yours gets better. If you need anything either, message me too. :)
junebugg045 4 months ago
I need to be there working out with you. I have HS too and have had to have both armpit, a chunk across the neck, an area under my right breast, the groin, labia and buttocks done in two seperate surgery. Each was too much surgery at one time, but didn't want to jeopardize my with more than two medical leaves one year after another. Thanks for sharing. Stay strong.
shaykika 1 year ago
Hi everyone! I too suffer from HS for over 25 yrs. On 9/5/10 a pharmacist recommended "Zinc Oxide" and I think I hit the jackpot! In just 3 days of usage the boils/lesions under my left armpit and groin areas no longer hurt, they're drying up and no more oozing. I hope you too try it and have the same wonderful results as me. Good luck and God bless! Annie from FL
annieviera1 1 year ago
In case you haven't seen it yet, check out the website for earthclinic (com) lots of stuff about HS
JeweledSunshine1 1 year ago
This has been flagged as spam show
I have had HS for 9+ years now.
Best treatment - Humira, 40mg, q/14d
TNF blockers have proved most effective in helping keep the inflammations infrequent and from spreading. While I have taken all the antibiotics, Accutane, herbal supplements and diet changes, the only major help I've gotten was from Humira and surgeries.
If you would like any help in gathering information, getting a doctors recommendation in South Florida or have any concerns, feel free to email me at cory.kronheim@gmail.com
acad21 1 year ago
I'm so happy to have found people who I can relate to with this disease. I had surgery on my neck in april 2010 and just had surgery august 16,2010 on both arm pits. I am sick of it and ready to tackle this awful disease.
colasy1 1 year ago
Good job. I lost 50 lbs but unfortunately the weight lost did not help my HS what so ever..it's gettign worse and I don't understand why. That is a beautiful song playing while the words are on the screen, can you please tell me who sung that? Thanks.
XStacee 1 year ago
I also suffer from HS. I have been battling this disease for the last 6 years and this last year has been the toughest. I have recently started treating areas of inflammation with tea tree oil. It seems to really be helping! If I catch it early enough they are going away in about 3 -4 days treating the area twice a day. I don't know if you have tried this but I highly recommend it for anyone suffering form this debilitating disease.
sadistickitty1977 1 year ago
You go girl !! I admire your great spirit and teaching about this painful disease...
julie1300 2 years ago
Comment removed
silver760 2 years ago
ive been suffering with this for three years and im 16, im having both of my armpits operated on come december.
dethklokwhoknows 2 years ago
I am going to have my second surgery soon. I had the one under my right arm removed but just in the area and i now have a new flare up where the scare is and in the cress of my arm. Now I am about to have the left armpit done but it is much larger. After talking to my plastic surgyen we decided not to have my whole armpit removed. This is so scary and annoying to me. My mom and sister get them as well as a few other family members. I am trying to get healthier to see if it helps some.
diannamarie1 2 years ago
I can relate to your situation. HS runs in my family all well. Good luck with your next surgery. If this helps any, I have had surgery near the leg/buttock area and never had another problem. Knock on wood.
amongallothers 2 years ago
Rifampicin and Clindamycin
Both 300mg twice a day for 3 months
Look it up on PubMed. Works in >3/4 of people
dinkbus 2 years ago
Sweeite, I am a lot like you..I have had 2 surgeries, comtiplating on surgery number 3. My arm pits look like a road map to hell and the pain is well unbearable. But, my condition could be much worse...keep up the good work...and thanks.....
wayyonder 2 years ago
@wayyonder
Get some pure aloe vera leaf and apply it to your open sores. That will help close them. But if you don't change your diet they will keep coming back.
FreedomGale 2 years ago
lol girl you just changed it all up, I started looking around. Let me get up and do something b4. You are pushing away all the pain with your healthy life and workouts. Keep up the great job
eluvg1975 2 years ago
Thats funny
abeautifulpattern 2 years ago
LOL@ the end!! I was actually sitting and combing my hair when you started your military talk LOL!! Keep inspiring sweetie you are doing an excellent job!!
mzebony 2 years ago
Girlfriend, just when I think you are doing an awesome job...Just like Emeril...BAM!!! You take it up a notch!!!!
Truly your transparency will help many people with their struggles. I believe this is in divine order that you began this journey on YouTube and although you are helping others you will reap the reward -- health, healing, peace, friendships, self-worth, motivational skills,.....the list will abound. Keep doing it girl!!!
zetayogi 2 years ago
What I like about you is that in spite of your HS and the pain you may be experiencing, you are always smiling and are very pleasant..... What a great example you are for others! I'm praying that God keeps that smile on your face while He works on your healing your physical, mental and social state as it relates to HS.
Introduction08 2 years ago
You know..... I watched the beginning of the vid ready to post a serious comment and get to the end of the vid and you have me cracking up!! No I'm not eating cake, but I came here to get motivated to get my workout on tonight!
Introduction08 2 years ago
Now you know I had to lighten the air lol
abeautifulpattern 2 years ago
LOL! Yep........... I love it!
Introduction08 2 years ago
As always, a brilliant job!! I've been doing a hour and 15 for the past 3 days - don't know how long it will last but I'll just think of the hard work you're doing and hope that it will keep me on the right path!
milkchocolatebiggy 2 years ago
I am so proud of you. You can do it just take it one day at a time. Thats what I do.
abeautifulpattern 2 years ago
What you have shared makes you hard work that more inspiring! thanks for sharing and for fighting for a healthier you!
TotallyShrinkingTee 2 years ago
It really lights a fire. I really need to find away to stop being sick.
abeautifulpattern 2 years ago
my prayers and encouragement are with you.
TotallyShrinkingTee 2 years ago
You go girl!!
FindingTee 2 years ago
Oh no...I had no idea what you go through. Thank you so much for sharing that with us. I am going to research it and see what i can come up with. Between you, Ahmad and me...I think we can help you overcome this! Thanks again for being an open book. You are a beautiful person and your name fits your perfect....abeautifulpattern!
Hugs....Sher
SherLynn40 2 years ago
Thanks Sher!
abeautifulpattern 2 years ago
Anything for you...You're my girl! Love ya!
Sher
SherLynn40 2 years ago
wow now that is great intensity...I feel the flares will cease...and you will be perfectly fine. Lets you and I do a little study and posting foods and teas that can naturally help the healing process--no matter what the ailment. I want to really start studying more of that...healing with smart foods...good job on clip!!~ahmad
makingthebest09 2 years ago
You know what I love you. I was sitting here feeling a little down and you made me smile. You are doing an awesome job and I can see the difference. I believe by faith that God will heal you. I was diagnosed with a very painful condition called Trigeminal Neuralgia which affects the facial nerve causing pain and God healed me. I read healing scripture 2-3 times a day like I was taking medicine and I was healed. God is no respector of person. He did for me. He will do it for you....Blessings
GodsFavor4sure 2 years ago
This is why I decided to spill because we are all going or have been through something. We all need and can use support thank you for giving it to me.
abeautifulpattern 2 years ago
The thing that impresses me about you....is that you could totally use this disease as an excuse and you don't. You are that much more motivated! You are looking so good, by the way! I meant to say that in my last comment......Sher
SherLynn40 2 years ago
hey girl u r doing wonderful :) that weight is falling off you girl
aprilynnboo 2 years ago
Oh so you gave your channel a face lift huh all the free time you have now lol. Thanks for checking on me it means alot
abeautifulpattern 2 years ago
yea girl lol:)
aprilynnboo 2 years ago
do you do any particular meal plan? what gives you the determination to workout everyday and be able to record it, that is remarkable!
cutechoclatechip 2 years ago
Well I try and cut out process foods like white sugar/ flour, added sodium. I try and make sure I eat lean meats such as chicken and fish. I have been giving juicing a try to see if it will help with the inflammation. I'm still learning how and what agrees and doesn't agree with my body. Doing the videos hold me accountable to making a change.
abeautifulpattern 2 years ago
She knows that if she doesn't...I'm coming to look for her. She doesn't live that far from me. LOL I will be pounding on her door, if she doesn't keep up the good work she's been doing.
SherLynn40 2 years ago
man, you are looking so nce! God bless you!
cutechoclatechip 2 years ago
You look amazing and are doing a wonderful job. It is my prayer that God will heal your body. You are truly an inspiration. Keep up the good work.
sistahonamission 2 years ago
<-------Smiling big time over here.
abeautifulpattern 2 years ago
You my friend, are a true CHAMPION!
LovinMeHealthy 2 years ago
Sometimes LOL
abeautifulpattern 2 years ago
Thank you for being soo forthright about your diagnosis. I know you are christian and I am believing the flareups will be a thing of the past. God Bless you.. and keep on keeping on! :)
provie31at44 2 years ago
Thanks I thought It was time I shared.
abeautifulpattern 2 years ago
Look how much support you have and how many people truly care about you. It doesn't matter if we are people you haven't met in real life...we've come to know you and love you! And we definitely care!
SherLynn40 2 years ago
Thanks for sharing your story. I pray God's healing power over your body. Keep moving and stay focused on the reason why you're doing it. I see your strength in each video. Peace and blessings.
OneLuv63130 2 years ago
Thanks for looking and showing support.
abeautifulpattern 2 years ago
girl u are funny. Sucking down some soda... lol lol
blakkandi 2 years ago
You must have had one in your hand lol
abeautifulpattern 2 years ago
My sister-n- law has the same thing. She also had both arm pits removed. I admire you for hanging in there. You're doing awesome.
blakkandi 2 years ago
Really trying not to get the other one done. It's moving around to different parts then back again..Thanks feel good to know your not alone.
abeautifulpattern 2 years ago
Hey, do the boxing. My personal trainer told me anyone lose a lot of weight along with brisk walks and jogging. Nice video.
Just did cardio at home for the first time and it felt weird because I'm used to doing it at the gym. i bought dumbells, a stepper. It feels funny doing it at home, but I'm working it girl.
Kimberlene 2 years ago
ok thanks for the information. You can do this at home you just have to be determined. Which I know you are
abeautifulpattern 2 years ago
Keep up the awesome work. Thanks for sharing your story.
Truth578 2 years ago
Your Welcome! thanks for watching
abeautifulpattern 2 years ago
I will start very soon doing what you are doing. I can see your progress. How long have you been doing this or should I say How long have you changed your eating habits.
FOXYJA47 2 years ago
FOXYJA47....watch her earlier videos. I remember when she first started. This is her 4th week. She has come such a long way. But it's not just about the working out....she also eats right and eating and exercise go hand in hand. Good luck with your journey as well!
SherLynn40 2 years ago