Added: 3 years ago
From: kayjorooker
Views: 4,855
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  • Thank you for your comment. He will be four in January now. He is a very remarkable little boy. He still has a lot of developmental issues but He is a survivor.

  • aw baby!! :( i kno what ur going thru my cuzin was born with the same thing and is battleing thru it GOD BLESS U AND UR BABY, HIS FUTURE B BRIGHT!!!

  • my son Kayden was born with gastroschisis as well. the hole that the intestines were seeping out of strangulated them and blocked blood flow. Kayden is now seven months old and lost all his small bowel a piece of his large and a piece of his colon he is iv feed 18 hours a day and has a g tube. Youre son is beautiful how is he know.

  • I know very well the battle with this disease. I had two sons born with it. My first in 1981 and second in 1984. I wish I had videos to show the miracles I have seen in these two sons of mine. I need to sit down and write the stories as I have intended to do for years. God Bless and keep you and baby

  • This made me bawl my eye's out my son was born with the worst case of gastrochisis that Johnson city medical center have ever seen along with a mid intestinal atresia he lost half his bowel he was 35 weeks gestation and five pounds 3after intestines were cleaned out.he had six surgeries and after seven months in the hospital he came home for the first time, he's 2 1/2 now, his mic-key button is finally gone if you ever need a picu/nicu talk buddy i'm here cuz i've REALLY been in your spot

  • I have the success video that shows after this. My Warrick is 2 and a half as well and doing very well. Thank you for the invitation.

  • hi, i am 18 years old and after my seconed scan they told me my baby has gastroschisis. its a hard thing to deal with. your video has made me think how beautiful are babies are..

    i am only 28 weeks preganant. and i feel your video has helped thank you

  • Hi Katie, I was born in 1981 with gastroschisis, I don't have to tell you that I'm very lucky to be alive ! the story of your little boy just make me cry so much !!!! Don't worry for the futur of your son, and for the little scar.....Mine is soooooooooo uggly and bigger ..... He's a boy, he's strong and he's full of love..... Continue to be positise !! thanks for your video....

  • Ur son is my my prayers. I, too, had a son born with gastroschesis. We were in the nicu for 2 and a half months and he finally got to come home, but b4 he got to come home he had a partial bowel obstruction which was a real scare. I wish u and ur family well. alexandra, st louis missouri

  • My son was born with gastroschisis in 2007. Fortunately, our miraculous pediatric surgeon at UVA was able to put in all of his intestines after he was born. We were shocked, for we were sure he was going to need a silo. He was in the NICU for three weeks and then was able to come home. He had another surgery at 4 months for a hernia but other than that, he is perfectly healthy now. His weight and height are in the 95-98 percentile and he is developing normally. God Bless you and your family!

  • my daughter imogen was a gastro baby she too had surgerys and was in hospital for 2 months i made a video for her on my page if youd like to see ..god bless your baby he blessed mine

  • you all give me hope to make a video and share my story, my daughter is almost two and was born with gastroschisis. god bless you and your family!

  • I am making another video, but this time a collection of all the Gastroschisis kids that I know. If you are interested send me two pictures. One at birth that shows the most and the most current one. Both with dates when they were taken. Thanks Katie

  • I like this video it reminds me of when my son was in NICU. He's 3 now and we're trying to keep him healthy enough to get him onto the transplant list and like you said we have a long road ahead of us.

  • I pray that your son's recovery goes well. My warrick is now 18 months.

  • "He is beautiful"

    Yes he is. He has strong genes (I worked with his grandmother) and he seems to be a fighter. God bless him and you two, too.

  • I emailed you on yahoo. Please check it, thanks.

    -Samantha

  • I am making another video, but this time a collection of all the Gastroschisis kids that I know. If you are interested send me two pictures. One at birth that shows the most and the most current one. Both with dates when they were taken. Thanks Katie

  • HI! I came across this by accident. My son had many surgeries, TPN, G-tube until almost age 2. He will be 7 years old in April. Thank you for your video.

  • I am making another video, but this time a collection of all the Gastroschisis kids that I know. If you are interested send me two pictures. One at birth that shows the most and the most current one. Both with dates when they were taken. Thanks Katie

  • thanks SO much my daughter is celebrating her 3rd birthday tommorrow! I will be sending you the 2! hang on for me:) amanda

  • Chizzleb4 not all cases are that easy to take care of. Children, even with the best medical care of dying from this defect.

  • It is very scary to find out your baby has gastroschisis, But it is a common birth defect and my doctor said of all the defects out there, gastroschisis is the better one to have... All babies intestines and other abdomonal organs are formed outside their body and during a certain week of pregnancy the stomach forms and as it closes around the organs...."sort of pulling them in." With Gastroschisis, the stomach does not completly form and there is an opening to the side of the umbilical cord.

  • your video was so amazing yet so sad to but im glad he is doing better! my daughter was born with this to her video is named "miah's video on here. i hope he is getting big now

    jessica

  • I am making another video, but this time a collection of all the Gastroschisis kids that I know. If you are interested send me two pictures. One at birth that shows the most and the most current one. Both with dates when they were taken. Thanks Katie

  • i have a son also a gastroschisis baby...he is now 1year old but hes wearing colostomy he have a second operation next year for closure.

  • I am making another video, but this time a collection of all the Gastroschisis kids that I know. If you are interested send me two pictures. One at birth that shows the most and the most current one. Both with dates when they were taken. Thanks Katie

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