Thank you for your concern. Charlie has seizures because of the severe brain damage she suffered. Her formula also doesn't appear to have any wheat/gluten in it.
You should get her tested for Celiac commonly associated with Myoclonic seizures. I have them as well. I would get thousands a day. They are a symptom of an autoimmune disorder. Mine are controled now by going on a gluten free diet, completely med free. I only had 2 today, a small flare up, but have gone a few months without any thanks to a strict wheat free diet. Worth looking into, it could give needed relief. Search Celiac & myclonic, find a celiac specialist in your area & get her tested.
I am so sad to see this. Seizures are so scary for the child and parents, I pray she gets better soon. Bless her dear heart, she is beautiful..
navywife1977 2 years ago
Thank you for your concern. Charlie has seizures because of the severe brain damage she suffered. Her formula also doesn't appear to have any wheat/gluten in it.
Shaunam83 3 years ago
You should get her tested for Celiac commonly associated with Myoclonic seizures. I have them as well. I would get thousands a day. They are a symptom of an autoimmune disorder. Mine are controled now by going on a gluten free diet, completely med free. I only had 2 today, a small flare up, but have gone a few months without any thanks to a strict wheat free diet. Worth looking into, it could give needed relief. Search Celiac & myclonic, find a celiac specialist in your area & get her tested.
pamelamadindong 3 years ago