i have (neuro) sarcoidosis. diagnosed back n 06. mine got caught early.. neuro cuz it made me blind n my left eye. prednisone is not da answer. it INDUCED my panic attackz that i was already havin goin thru this. got off dat and took methotrexate, also not good. it got on my liver too much. FINALLY, I got on mychophenolate aka "cellcept" da real name. been on it since 07 and doin great. hope this info helpz and im prayin for u all. im so thankful for my docz and to be alive..
I worked at the Hanford site In Richland Wa. back in the late 70's now I am suffering with many health issues May of 2006 what I was diagnosed with sarcoidosis & at the same time I was diagnosed with sarcoidosis I was also diagnosed with Sjogren's syndrome. Is there anyone else out there like me? JPTL2
@jptl2 for more information, check out inspire[dot]com, group for sarc sponsored by the same group this video shows (Foundation for Sarcoidosis Research).
it is caused from mold, bacteria and yeast...that is why it runs in families...sarcoidosis can also be misdiagnosed but really Lyme disease, could be many things really...keep your blood alkaline and cleanse your digestive system of toxins
i know thats right some thing s just should not run in the family ..because me and my mom have it and her mom had it ..i got it when i was a sr in high school i could not g to my class trip almost miss my finals and prom ..and that predisone is a TRIP but god love us and i am thank ful for my life
We need to increase the awareness of this condition. Bernie Mac's PR person says the Pneumonia had nothing to do with Sarcoidosis. If this person were a physician and not a PR person I would be less reluctant to believe that the 2 conditions were unrelated to one another.
GREAT VIDEO! I've had sarcoidosis for the past 8 years. I was on prednisone for 2 years..got off of it...the Sarcoidosis stayed in remission for 4 years..and came back with a worse. So I've been on Prenisone for 2 years..it is doing ok but the prednisone is effecting me in other ways. Does anyone know what else works other than prednisone
would love to share...prednisone messed with my mood these last 2 times I took it. at an earlier stage, i was given methotrexate, but that messed with my hormones. I, too, was diagnosed around 2000, and my life has changed ever since...
i have (neuro) sarcoidosis. diagnosed back n 06. mine got caught early.. neuro cuz it made me blind n my left eye. prednisone is not da answer. it INDUCED my panic attackz that i was already havin goin thru this. got off dat and took methotrexate, also not good. it got on my liver too much. FINALLY, I got on mychophenolate aka "cellcept" da real name. been on it since 07 and doin great. hope this info helpz and im prayin for u all. im so thankful for my docz and to be alive..
40mbooh 1 year ago
This has been flagged as spam show
15 minutes ago
I worked at the Hanford site In Richland Wa. back in the late 70's now I am suffering with many health issues May of 2006 what I was diagnosed with sarcoidosis & at the same time I was diagnosed with sarcoidosis I was also diagnosed with Sjogren's syndrome. Is there anyone else out there like me? JPTL2
jptl2 1 year ago
@jptl2 for more information, check out inspire[dot]com, group for sarc sponsored by the same group this video shows (Foundation for Sarcoidosis Research).
Wavewolfaroha 8 months ago
it is caused from mold, bacteria and yeast...that is why it runs in families...sarcoidosis can also be misdiagnosed but really Lyme disease, could be many things really...keep your blood alkaline and cleanse your digestive system of toxins
baseballwrestling 2 years ago
my mom has this shit
PockeyProductions 3 years ago
i know thats right some thing s just should not run in the family ..because me and my mom have it and her mom had it ..i got it when i was a sr in high school i could not g to my class trip almost miss my finals and prom ..and that predisone is a TRIP but god love us and i am thank ful for my life
telly2482 3 years ago
We need to increase the awareness of this condition. Bernie Mac's PR person says the Pneumonia had nothing to do with Sarcoidosis. If this person were a physician and not a PR person I would be less reluctant to believe that the 2 conditions were unrelated to one another.
m0ny 3 years ago
GREAT VIDEO! I've had sarcoidosis for the past 8 years. I was on prednisone for 2 years..got off of it...the Sarcoidosis stayed in remission for 4 years..and came back with a worse. So I've been on Prenisone for 2 years..it is doing ok but the prednisone is effecting me in other ways. Does anyone know what else works other than prednisone
blkcountrywesterngal 3 years ago
I've hear some forms of chemo work.
ciws14 3 years ago
would love to share...prednisone messed with my mood these last 2 times I took it. at an earlier stage, i was given methotrexate, but that messed with my hormones. I, too, was diagnosed around 2000, and my life has changed ever since...
euniqua74 3 years ago
plaquinel
brittt9292 2 years ago
Sarcoidosis, fibromyalgia, CFS, etc. can be beat...
two words: MARSHALL PROTOCOL
read about it on
bacteriality . com
fetymann 1 year ago
Or: Take two placebos and call me in the morning - just as effective as this "protocol"!
shirah601 1 year ago
@shirah601 Sure, whatever you say! Tell that to a microbiologist (Amy Proal) that had to do the protocol.
(remove the spaces)
oneradionetwork2 . com/mp3/health/challenges/proal_amy_marshal_protocol_l_form_bacteria_jan_11_10_one.mp3
oneradionetwork2 . com/mp3/health/challenges/proal_amy_marshal_protocol_l_form_bacteria_jan_11_10_two.mp3
fetymann 1 year ago
This has been flagged as spam show
Thank you so much for your video. It is very touching. I hope you will consider posting your video at our new website at thelungchallenge . com
We're trying to start a new outlet for people with lung disease in the hopes of educating others. egray @ lungfla. org orlando, FL
ericbriangray 4 years ago