@XxrockAxoxprincessxX hey i checked out your vid good job! thanks for telling me about it, the only thing i dislike bout my vid is ilook like crap in it lol if you are on facebook u should check out my support group for ppl our age and have our disabilty has over 170 members atm. hope to see ya on there :)
It's actually not accurate to call it just '22q' as there are multiple conditions involving 22q. VCFS is 22q11 deletion. There are also 22q13 deletions as well as various 22q duplications.
LOVE THIS! thanks for sharing your story, it really helps me as a mum of a 5 year old with VCFS. keep up the good work :) x
bindipeanut 2 months ago
@XxrockAxoxprincessxX hey i checked out your vid good job! thanks for telling me about it, the only thing i dislike bout my vid is ilook like crap in it lol if you are on facebook u should check out my support group for ppl our age and have our disabilty has over 170 members atm. hope to see ya on there :)
Dub5tep4l1fe 3 months ago
It's actually not accurate to call it just '22q' as there are multiple conditions involving 22q. VCFS is 22q11 deletion. There are also 22q13 deletions as well as various 22q duplications.
Abnormaldiversity 5 months ago