Prayers to your family. Our son is at the end of his journey now at 9 years old with late-infantile Batten's. It's very hard and just not fair. Finding strength is getting harder to do. We will continue to fight this disease once our little boy loses his battle with it :(
Thank you for the prayers. I will be praying for your family that you find the strength to get through this. I miss my son very much but I am happy is in Heaven living life the way he should.
Prayers to your family. Our son is at the end of his journey now at 9 years old with late-infantile Batten's. It's very hard and just not fair. Finding strength is getting harder to do. We will continue to fight this disease once our little boy loses his battle with it :(
Brycesmummy 1 year ago
Thank you for the prayers. I will be praying for your family that you find the strength to get through this. I miss my son very much but I am happy is in Heaven living life the way he should.
God Bless!
msleslyb 1 year ago