HEY MAN IM FROM JAX FL. IM 29 N I HAVE MOEIBUS TOO. TILL LAST WEEK I NEVER SAW ANYBODY ELSE WIT IT. SO ITS BEEN... A REAL EYE OPENER 4 ME. IT SEEMS TO ME WE ALL HAVE A COMMON BOND CAUSE WE ALL BEEN THROUGH OUR OWN UPS N DOWNS. ME? I HAVE NO COMPLAINTS I AM A HAPPY GUY INSPITE OF EVERYTHING I HAVE/AM GOIN THROUGH. JUST WANNA TELLU N EVERYBODY I CAN WIT MOEBIUS "KEEP YA HEAD UP N BRUSH OFF NEGATIVE PEOPLE AROUND U"
Thanks for sharing your story, I am 28 and have moebius like you i have a mild case of it, same things apply to me as you. I too roll my eyes in the back of my head, and i also have no smile. It does not effect who i am, or what i do. The only time i have noticed its effect is when i am at a bar and a cute girl looks my way i cant shoot her a smile. Hey other than that no big deal. Way to stay strong and i want to offer support for all of us
Nicely done. I notice that you roll your eyes up much like I do. I do this without realizing it . . . and ppl take it as me being "disgusted" . . . and it is a bit freaky. I've tried hard to control it, but sometimes it just happens!!
I'm 37 years old and have Moebius, Although It bothers me sometimes especially when other people stare at or make fun of me, It doesn't affect me too much, I'm otherwise pretty normal.
I have Moebius Syndrome and Polands Syndrome. I gave you 5 stars for sharing your story. The sound was very low even when I turned it on High but what I did make out sounded great.
you look extremely serious lol
joejacksonriley 1 year ago
It doesnt show much on you I think , good efforts !
artemis900 1 year ago
your strong and a good role model for others with Mobius Syndrome
kemykat100 1 year ago
can you cry?
kemykat100 1 year ago
@kemykat100 yes we can cry
TechPepsi 1 year ago
@TechPepsi Thanks just educating my self on the syndrome stay strong and proud ;-)
kemykat100 1 year ago
Also -_-
Cakerolled 1 year ago
Aspergers
Cakerolled 1 year ago
HEY MAN IM FROM JAX FL. IM 29 N I HAVE MOEIBUS TOO. TILL LAST WEEK I NEVER SAW ANYBODY ELSE WIT IT. SO ITS BEEN... A REAL EYE OPENER 4 ME. IT SEEMS TO ME WE ALL HAVE A COMMON BOND CAUSE WE ALL BEEN THROUGH OUR OWN UPS N DOWNS. ME? I HAVE NO COMPLAINTS I AM A HAPPY GUY INSPITE OF EVERYTHING I HAVE/AM GOIN THROUGH. JUST WANNA TELLU N EVERYBODY I CAN WIT MOEBIUS "KEEP YA HEAD UP N BRUSH OFF NEGATIVE PEOPLE AROUND U"
The31KINGD 1 year ago
Thanks for sharing your story, I am 28 and have moebius like you i have a mild case of it, same things apply to me as you. I too roll my eyes in the back of my head, and i also have no smile. It does not effect who i am, or what i do. The only time i have noticed its effect is when i am at a bar and a cute girl looks my way i cant shoot her a smile. Hey other than that no big deal. Way to stay strong and i want to offer support for all of us
waldojay25 1 year ago
Nicely done. I notice that you roll your eyes up much like I do. I do this without realizing it . . . and ppl take it as me being "disgusted" . . . and it is a bit freaky. I've tried hard to control it, but sometimes it just happens!!
DontLookSoSad 2 years ago
I'm 37 years old and have Moebius, Although It bothers me sometimes especially when other people stare at or make fun of me, It doesn't affect me too much, I'm otherwise pretty normal.
ford9572 2 years ago
i have a child with moebius i thank u very much for putting r self out there life iz a whirl wind when u feel all alone
BigBadoza 2 years ago
Interesting video, thanks for the info!
CommunistPig 2 years ago
I have Moebius Syndrome and Polands Syndrome. I gave you 5 stars for sharing your story. The sound was very low even when I turned it on High but what I did make out sounded great.
nhoverhaulinfan2 3 years ago
Very interesting and very well told!
caferacer51 3 years ago