I wonder what is happening with the ex-patients. it seems that after the latest news that they are feeling better the suddenly disappear.
It's also the case of Michelle. From Feb 2008 no news, not on youtube, not on her blog. What happened to her? she is still feeling better and she forgot about Lyme? has she died suddenly? why all Lyme patients disappear and don;t give us a short feedback on their life: "folks! it's been three years since I feel great!"
very interesting. I dug a tick out of my neck just before it got in too far. I barely felt something on my neck and fortunately reached back and was able to pick it out with my fingers. When I tossed it on the floor and stepped on it, it crunched. I had just been out in a forest under some conifers. I feel so fortunate for my good health.
yeah the info is out there but how the hell does one know who or what to listen to or what is false info. If the test isnt good enough, how does on get dxsd. I have been symptomatic with something for nearly two years now, and still have no answers. I have asked repeatedly if I should be tested for lyme and all have said, you were never sick with a flu like illness of had a rash. hmmm, so now what. And what is the point of being tested if lots come back negative?
Your story is a lot like mine i had a tick and developed the bulls eye rash so i went to the Dr and was put on 2 months of doxycycline. I also had the ELISA test of course it was negative. After my antibiotics they had me come back in because i had "something" show up on my blood test but i still tested negative for lyme. I still have the brain fog and the speaking problems like you! I think i should go in and ask to have a western blot test.
Michelle...appreciate your heart. My husband and I are just starting down this road and would love to see a doctor that someone has already had a good results with. Can you share who the doctor in MO is that you see? So glad that you are doing better!
Michelle, thanks SO much for sharing! My husband was recently diagnosed with ALS and we are now seeing a lyme literate doctor and we're hoping that it's actually lyme. In a couple of years when he is able to walk the kids to school again, I'll be sure to share my story too. Just know, that you inspired me to keep pressing on!
This is Michelle here just giving an update as many have wondered how I am doing now. It is 3/10 - I got sick in 8/06 and I still doing well. I even ran a marathon in June!!! Remember everyone that slow and steady wins this race (that coincidentally was my motto for the marathon too - ha). Keep seeking God, the Great Physician : )
Its almost two years later I would be very interested in a update. I would be thrilled if she were still feeling better but not surprised if she had a return of symptoms. Even Pamela Weintraub who wrote Cure Unknown is sick again. She truly believed she was finally cured. Its an awful unrelenting disease for so many.
This is Michelle here just giving an update as many have wondered how I am doing now. It is 3/10- I got sick in 8/06 and I still doing well. I even ran a marathon in June!!! Remember everyone that slow and steady wins this race (that coincidentally was my motto for the marathon too - ha). Keep seeking God, the Great Physician : )
Michelle, Did you treat with corticosteroids when you thought you had MS? How are you now? Have you had any relapses? I know you don't want to divulge your protocol because it is based on individual response, but do you think Flagyl is what go you "to turn the corner" so to speak? Also, did you have mild, moderate or severe pain? Any residual symptoms today? Praise God...really, He is the one who in the end got you well because you were brave enough to "step out of the boat".
Thank you for sharing your story and about your inner strength from God. I know I could never get up in the morning without having a faith for many years. However I have found this disease to be a real test to everything in my life.
most bacteria round up when exposed to an active cell wall antibiotic before they pop and die. Flagyl is not a cell wall active agent. I dont believe in the cyst stage.
I really think I could have it to. the Serologic test was negative. But nothing done yet. only to go twice to the docter, every symptome I mensiont. But I have/had ADHD, She thinks I have to go back on Ritalin. To releave the concentration and nervs. If I do have lyme thats not good, but is it is not it can be a good try.
i had positive 23 and 41 on IGM bands..........was on IV rocepherin for 6 weeks. then 3 weeks dox. Im still so sick.......cant get help here in Fla. Im in the fight............people traveling with pets and not bording them because of economy....taking pets to northern states on vacations....pets bringing ticks back..be careful southern states.
Don't know a lot about hyperbaric chambers but do think it's HUGELY IMPORTANT to check your Vit. D levels!! Once someone finally checked mine I found out my level was '3'! YIKES Vit. D is critical for all of our immune systems! Glad you brought this up~
I did hyperbaric. What a huge waste of money and it permanently ruined my eyesight and I ended up sicker because what I didn't know was babesia thrives in 100% oxygen, so be very careful before you decide to try this treatment.
Why can't they test for lyme by taking a blood or tissue sample and looking for spirochetes under a microscope? I know it will miss a lot of cases, but so do the other tests.
Thanks for the wonderful info Michelle!!! This is great and THANKS for sharing all this! Fortunately, a new law in Connecticut as of July 1st that a doc can treat Lyme (especially late stage, like myself) based on history/symptoms, etc., and not soley on a test. Anyway, back to you. You're a wonderful voice for public awareness, please continue on! btw I just went to a screening of the documentary/film, "Under Our Skin" and highly recommend that folks get out to see it.
Hello to all you readers out there... Just a little update from me (Michelle)...It's been three years now since I got sick in summer of 2006 and I just finished Grandma's Marathon in Duluth, MN !!! YEE HAW Thanking HIM everyday!
God Bless. Please try "Organic Lapacho tree tee". I lived in the Amazons for 6 years I know, Also try Heavy metal detox . Lyme disease its only a problem in the U.S.A were the medical & insurance companies control the Health of the people. Think about this "ticks" exist long before Man so Lapacho tree. Natives in the Amazons and south America use this tee to cure them way before big medicine companies existed. Also research "chemtrails".
Hey guys....PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the "UNDER OUR SKIN" documentary is wonderful but a show about Lyme won't be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. OPRAH needs to hear about YOUR experience with Lyme disease. WE ARE ALL IN THIS TOGETHER !
P.S. My LLMD is in MO as well. He uses a standard protocol starting with doxy, adding ceftin (which causes spirochetes to convert to cysts so I will not use this or rocephin or penicillins) then adds biaxin, flagyl, plaquenil, etc., to cover all the co infections. Anyone wanting a copy of the protocol can email me at my youtube account.
@trebelclef hello, it was a long time ago ,but co u still having this healing protocol - how much doxy, how much ceftrin, aso. do u have e-mail to write exact medicament plan?
I have a Lyme support group in Texas. None of the members are well in spite of multiple treatments by LLMDs. Since you are well, why don't you share your antibiotic protocol? Even tho it is an individual treatment plan, the antibiotics you used that 'cured' you, may be different than what most people have used and not had success with. That would be more helpful. Most patients are well informed about Lyme and coinfections.
I have been to several LLMDs. None ever stated that flagyl was an antispirochetal. It degrades the cysts but does not kill the spirochete, according to the literature.
Thanks for your story. You are indeed lucky. So many of us don't come through this the way you did.
Can you provide the doctor's name via private email? I've been ill 13 years. I'm also trying to help a friend in your area who I'm certain has lyme as well.
I know about what yr going threw. I was bit in 1992, then twice in 1996, and now get to stay home 24-7, becouse I cant do anything without collasping. Google Dar's Toy Story, I wrote it 1 year ago, to let others know what we go threw every day. Been downloaded 6 Mil. times. Its on Lyme-Net too. Dont look back@what ya did, see what ya can still do, it could be worse,like me. Were alone out here,and can,hope anybody will hear us.I eat a bulb of "Raw-Garlic a day.Only thing that helped Texas Dar !
Very happy you are well. I too have LD & an educational websites - 6 in my family have Ld. I have been hit the hardest PAIN. I think it is important to say that many aren't as blessed as you and need treatment for years, ILADS estimates 1-5 years. Herx reactions can be intolerable for those experiences pain. If anyone suspects LD, NEVER use cortisone as this can cause viral co-infections and are all to common. There are many complications to this disease, Micelle was blessed.
I wonder what is happening with the ex-patients. it seems that after the latest news that they are feeling better the suddenly disappear.
It's also the case of Michelle. From Feb 2008 no news, not on youtube, not on her blog. What happened to her? she is still feeling better and she forgot about Lyme? has she died suddenly? why all Lyme patients disappear and don;t give us a short feedback on their life: "folks! it's been three years since I feel great!"
numaiunaltblog 1 month ago
very interesting. I dug a tick out of my neck just before it got in too far. I barely felt something on my neck and fortunately reached back and was able to pick it out with my fingers. When I tossed it on the floor and stepped on it, it crunched. I had just been out in a forest under some conifers. I feel so fortunate for my good health.
ichthus1890 3 months ago
Awesome :))
venold1969 5 months ago
yeah the info is out there but how the hell does one know who or what to listen to or what is false info. If the test isnt good enough, how does on get dxsd. I have been symptomatic with something for nearly two years now, and still have no answers. I have asked repeatedly if I should be tested for lyme and all have said, you were never sick with a flu like illness of had a rash. hmmm, so now what. And what is the point of being tested if lots come back negative?
Traesmommy1 9 months ago
Your story is a lot like mine i had a tick and developed the bulls eye rash so i went to the Dr and was put on 2 months of doxycycline. I also had the ELISA test of course it was negative. After my antibiotics they had me come back in because i had "something" show up on my blood test but i still tested negative for lyme. I still have the brain fog and the speaking problems like you! I think i should go in and ask to have a western blot test.
devindolce 1 year ago
Michelle...appreciate your heart. My husband and I are just starting down this road and would love to see a doctor that someone has already had a good results with. Can you share who the doctor in MO is that you see? So glad that you are doing better!
570jen 1 year ago
Michelle, thanks SO much for sharing! My husband was recently diagnosed with ALS and we are now seeing a lyme literate doctor and we're hoping that it's actually lyme. In a couple of years when he is able to walk the kids to school again, I'll be sure to share my story too. Just know, that you inspired me to keep pressing on!
LauraHops 1 year ago
I have the following bands:18, 23, 28, 30, 39, 41, 45, 58, 66 and 93. What the hell does this mean? I am seeing a neurologist soon.
IIBARCODEII 1 year ago
@IIBARCODEII I also was positive for H.pylori...which explains the stupid ulcers. This crap has been pissing me off. Stupid tick.
IIBARCODEII 1 year ago
Hi-
This is Michelle here just giving an update as many have wondered how I am doing now. It is 3/10 - I got sick in 8/06 and I still doing well. I even ran a marathon in June!!! Remember everyone that slow and steady wins this race (that coincidentally was my motto for the marathon too - ha). Keep seeking God, the Great Physician : )
JasminePete 1 year ago
Its almost two years later I would be very interested in a update. I would be thrilled if she were still feeling better but not surprised if she had a return of symptoms. Even Pamela Weintraub who wrote Cure Unknown is sick again. She truly believed she was finally cured. Its an awful unrelenting disease for so many.
SeaLizzie 2 years ago
This has been flagged as spam show
Hi-
This is Michelle here just giving an update as many have wondered how I am doing now. It is 3/10- I got sick in 8/06 and I still doing well. I even ran a marathon in June!!! Remember everyone that slow and steady wins this race (that coincidentally was my motto for the marathon too - ha). Keep seeking God, the Great Physician : )
JasminePete 1 year ago
Michelle, Did you treat with corticosteroids when you thought you had MS? How are you now? Have you had any relapses? I know you don't want to divulge your protocol because it is based on individual response, but do you think Flagyl is what go you "to turn the corner" so to speak? Also, did you have mild, moderate or severe pain? Any residual symptoms today? Praise God...really, He is the one who in the end got you well because you were brave enough to "step out of the boat".
cotmh 2 years ago
Thank you for sharing your story and about your inner strength from God. I know I could never get up in the morning without having a faith for many years. However I have found this disease to be a real test to everything in my life.
Amos1010 2 years ago
most bacteria round up when exposed to an active cell wall antibiotic before they pop and die. Flagyl is not a cell wall active agent. I dont believe in the cyst stage.
not for this microbe.
datzfast 2 years ago
tick syphilis, has alot in common with human syphillis
datzfast 2 years ago
@datzfast lol thats what i call it! it sits right by the spine who's to say it cant be in fluids semen etc....i bet it can be transmitted!!!
kaliyeal 1 year ago
Goodevening, Thanks al lot.
I really think I could have it to. the Serologic test was negative. But nothing done yet. only to go twice to the docter, every symptome I mensiont. But I have/had ADHD, She thinks I have to go back on Ritalin. To releave the concentration and nervs. If I do have lyme thats not good, but is it is not it can be a good try.
Bye Remon
masterkey14 2 years ago
awesome video , thanks michelle
NOXBEATZ 2 years ago
i had positive 23 and 41 on IGM bands..........was on IV rocepherin for 6 weeks. then 3 weeks dox. Im still so sick.......cant get help here in Fla. Im in the fight............people traveling with pets and not bording them because of economy....taking pets to northern states on vacations....pets bringing ticks back..be careful southern states.
twinglebaby1 2 years ago
Michelle...
What are your thoughts on hyperbaric chambers?
Also... did you regulate your Vitamin D levels during treatment? (avoid sun, etc)
The Marshall Protocol calls for this
canefan17 2 years ago
Don't know a lot about hyperbaric chambers but do think it's HUGELY IMPORTANT to check your Vit. D levels!! Once someone finally checked mine I found out my level was '3'! YIKES Vit. D is critical for all of our immune systems! Glad you brought this up~
JasminePete 2 years ago
is 3 high?
is having high Vit D bad?
This is where I don't know much about Vitamin D
canefan17 2 years ago
@JasminePete
I did hyperbaric. What a huge waste of money and it permanently ruined my eyesight and I ended up sicker because what I didn't know was babesia thrives in 100% oxygen, so be very careful before you decide to try this treatment.
SeaLizzie 2 years ago
Why can't they test for lyme by taking a blood or tissue sample and looking for spirochetes under a microscope? I know it will miss a lot of cases, but so do the other tests.
HarpFluffy 2 years ago
Comment removed
Juul2234 2 years ago
And thanks for the hope....that like you, I may get better too!!! :D:D:D
mepammy 2 years ago
Thanks for the wonderful info Michelle!!! This is great and THANKS for sharing all this! Fortunately, a new law in Connecticut as of July 1st that a doc can treat Lyme (especially late stage, like myself) based on history/symptoms, etc., and not soley on a test. Anyway, back to you. You're a wonderful voice for public awareness, please continue on! btw I just went to a screening of the documentary/film, "Under Our Skin" and highly recommend that folks get out to see it.
mepammy 2 years ago
I love her, she made it clear, to the point, and I guess I'm going to get tested now!
eileenmk 2 years ago
Hello to all you readers out there... Just a little update from me (Michelle)...It's been three years now since I got sick in summer of 2006 and I just finished Grandma's Marathon in Duluth, MN !!! YEE HAW Thanking HIM everyday!
JasminePete 2 years ago
YEAH!!! WOW and GOOD for you :D:D:D!!! That's one thing I want to do...RUN :D:D
mepammy 2 years ago
God Bless. Please try "Organic Lapacho tree tee". I lived in the Amazons for 6 years I know, Also try Heavy metal detox . Lyme disease its only a problem in the U.S.A were the medical & insurance companies control the Health of the people. Think about this "ticks" exist long before Man so Lapacho tree. Natives in the Amazons and south America use this tee to cure them way before big medicine companies existed. Also research "chemtrails".
zorkox 2 years ago
where can you buy that, do you mean tea?
eileenmk 2 years ago
This has been flagged as spam show
Hey guys....PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the "UNDER OUR SKIN" documentary is wonderful but a show about Lyme won't be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. OPRAH needs to hear about YOUR experience with Lyme disease. WE ARE ALL IN THIS TOGETHER !
God Bless,
Elaine
ecftube 3 years ago
Very Informative but what If Your allergic to doxycycline?
ortafunk 3 years ago
Your symptoms sound a lot like mine. Congrats on your recovery.
barbyfirefly 3 years ago
P.S. My LLMD is in MO as well. He uses a standard protocol starting with doxy, adding ceftin (which causes spirochetes to convert to cysts so I will not use this or rocephin or penicillins) then adds biaxin, flagyl, plaquenil, etc., to cover all the co infections. Anyone wanting a copy of the protocol can email me at my youtube account.
trebelclef 3 years ago
What is your protocol I've been diagnosed and treated with Doxycylin but symptoms come back
dlarsenalami 3 years ago
What doctor in MO? I live in the KC area, been diagnosed with lyme & MS. Please let me know. Thanks
kbwages66 2 years ago
@trebelclef hello, it was a long time ago ,but co u still having this healing protocol - how much doxy, how much ceftrin, aso. do u have e-mail to write exact medicament plan?
makuke30 2 months ago
I have a Lyme support group in Texas. None of the members are well in spite of multiple treatments by LLMDs. Since you are well, why don't you share your antibiotic protocol? Even tho it is an individual treatment plan, the antibiotics you used that 'cured' you, may be different than what most people have used and not had success with. That would be more helpful. Most patients are well informed about Lyme and coinfections.
trebelclef 3 years ago
I have been to several LLMDs. None ever stated that flagyl was an antispirochetal. It degrades the cysts but does not kill the spirochete, according to the literature.
trebelclef 3 years ago
could have been good info had it not been so wordy...........
trebelclef 3 years ago
Thanks for your story. You are indeed lucky. So many of us don't come through this the way you did.
Can you provide the doctor's name via private email? I've been ill 13 years. I'm also trying to help a friend in your area who I'm certain has lyme as well.
thanks much, DS
lymeliterateRN 3 years ago
I know about what yr going threw. I was bit in 1992, then twice in 1996, and now get to stay home 24-7, becouse I cant do anything without collasping. Google Dar's Toy Story, I wrote it 1 year ago, to let others know what we go threw every day. Been downloaded 6 Mil. times. Its on Lyme-Net too. Dont look back@what ya did, see what ya can still do, it could be worse,like me. Were alone out here,and can,hope anybody will hear us.I eat a bulb of "Raw-Garlic a day.Only thing that helped Texas Dar !
texasdar 3 years ago
I lost a dog today from lymes, we need to do more studies on these ticks as it is out of control here in central minnesota.
Chad71174 3 years ago
Wooo hoooooo !!!!!!
Songbottle 3 years ago
Nice video. I think we've only scratched the surface with this illness.
RaiseCFSawareness 3 years ago
Very happy you are well. I too have LD & an educational websites - 6 in my family have Ld. I have been hit the hardest PAIN. I think it is important to say that many aren't as blessed as you and need treatment for years, ILADS estimates 1-5 years. Herx reactions can be intolerable for those experiences pain. If anyone suspects LD, NEVER use cortisone as this can cause viral co-infections and are all to common. There are many complications to this disease, Micelle was blessed.
cotmh 3 years ago
Parkinson story incredible.
maciejwrotek 3 years ago