Hey everyone check out my new website allgodschildrenonline . com it's got loads of info and more to come about my experience with epileptic and non epileptic seizures, SSD, doctors, and more. Furthermore it's a support group also to talk about what you have learned and your experiences. Hope we can all help each other. God bless!
My Hubby got his disability approval in the mail.Took him 2 yrs with a lawyer helping. He was diagnosed with uncontrolled phenomena convulsive epilepsy and chronic anxiety disorder. They are saying that after combining facts from all 8 of his docs they do not think his are PNES but an unusual type of epilepsy. All his seizures can be different sometimes looking like basic types of seizures but are not and they are typically caused by stress, fatigue, hunger, heat and diet. Feel free to ask Qs.
SO went to Epilepsy foundation center yesterday and doc seems to think he has frontal lobe seizures and maybe a couple other types so Sept 20th he has to go and stay there while they monitor him for at least 24 hours but maybe up to two weeks so they can catch a few of his seizures and determine where they are coming from and what type they are for sure. Still no word from SSD ugh!
He is still having them just about every week even with the highest dose of Tegetrol and the highest dose of Keppa daily that they can give him. They have decided to have him go to an epilepsy research center for help.
@sworda1 The gluten free diet is not the same as Ketogenic diet it was the nurse that informed me about it. I thought it was just for kids with ep and then I found out body builder’s use it for building muscles. I’m still having a few of the blink outs but the big seizures are at bay for now. Just not eating bread was a big shift. Yikes! Help me im turning in to one of those people I can’t stand. Ha ha ha
Oh hay, its possible that the reason it takes more time to recover is he may have hyperventilation during the siez so what’s happening is his brain is going back into size mode do to the hyperventilation, you can see this happen in the video when his left hand starts to move up again that left hand is the sign he’s not yet out. There’s some fast acting meds that can take that down a bit. My hands bend and go up to my chest this can happen again provoked by hyperventilation.
@911isfunnyashellLMAO I wish I had your little punk ass standing in front on me now.. I'd show you retarded you little bitch!
damnoldgun 6 months ago
@911isfunnyashellLMAO That's not funny you MORON!!!!
lolla909 6 months ago
Hey everyone check out my new website allgodschildrenonline . com it's got loads of info and more to come about my experience with epileptic and non epileptic seizures, SSD, doctors, and more. Furthermore it's a support group also to talk about what you have learned and your experiences. Hope we can all help each other. God bless!
kittymccaffery 8 months ago
My Hubby got his disability approval in the mail.Took him 2 yrs with a lawyer helping. He was diagnosed with uncontrolled phenomena convulsive epilepsy and chronic anxiety disorder. They are saying that after combining facts from all 8 of his docs they do not think his are PNES but an unusual type of epilepsy. All his seizures can be different sometimes looking like basic types of seizures but are not and they are typically caused by stress, fatigue, hunger, heat and diet. Feel free to ask Qs.
kittymccaffery 8 months ago
I would cry everytime. you and him both are brave.
YoshixRIOT 1 year ago
SO went to Epilepsy foundation center yesterday and doc seems to think he has frontal lobe seizures and maybe a couple other types so Sept 20th he has to go and stay there while they monitor him for at least 24 hours but maybe up to two weeks so they can catch a few of his seizures and determine where they are coming from and what type they are for sure. Still no word from SSD ugh!
kittymccaffery 1 year ago
He is still having them just about every week even with the highest dose of Tegetrol and the highest dose of Keppa daily that they can give him. They have decided to have him go to an epilepsy research center for help.
kittymccaffery 1 year ago
kitty how is he now? you have a wonerful family.
Care
CW
sworda1 1 year ago
Comment removed
sworda1 1 year ago 3
@sworda1 The gluten free diet is not the same as Ketogenic diet it was the nurse that informed me about it. I thought it was just for kids with ep and then I found out body builder’s use it for building muscles. I’m still having a few of the blink outs but the big seizures are at bay for now. Just not eating bread was a big shift. Yikes! Help me im turning in to one of those people I can’t stand. Ha ha ha
C.W
sworda1 1 year ago 8
Oh hay, its possible that the reason it takes more time to recover is he may have hyperventilation during the siez so what’s happening is his brain is going back into size mode do to the hyperventilation, you can see this happen in the video when his left hand starts to move up again that left hand is the sign he’s not yet out. There’s some fast acting meds that can take that down a bit. My hands bend and go up to my chest this can happen again provoked by hyperventilation.
C.W
sworda1 1 year ago 10